scholarly journals Psychosocial profile of children with pediatric malignancy and their families

QJM ◽  
2020 ◽  
Vol 113 (Supplement_1) ◽  
Author(s):  
E A Zaky ◽  
D M A Elnasharty ◽  
R M Elhossiny

Abstract Background The diagnosis and treatment of cancer are a stressful and threatening experience, which has tremendous impact on children and their families. As advances in cancer care have led to more treatment options and longer survival for cancer patients, a focus on quality of life for patients and their families has gained. Objectives The aim of this study was to evaluate the psychosocial aspects of children with different types of pediatric cancer (newly diagnosed as well as survivors), their parents, and sibs in comparison with those with normal children. Patients and Methods This study comprised 60 children, their sibs and caregivers. They were classified into three groups. Group I which comprised 20 newly diagnosed children with cancer, their caregivers and sibs, group II which comprised 20 cancer survivors children, their caregivers and sibs, group III which comprised 20 clinically healthy children, their caregivers and sibs. All children and their sibs in this study were subjected to full history taking, thorough clinical examination, assessment of socioeconomic standard, assessment of pediatric quality of life, a battery of psychometric tests included pediatric checklist, anxiety, depression, and self- esteem scores. All caregivers were subjected to record of demographic variable, assessment of socio-economic level, assessment of anxiety, depression, and isolation score, assessment of stress and burden related to the disease itself, if any, using standardized questionnaire and assessment of quality of life. Results Mean value of DS was significantly higher (P < 0.05) in newly diagnosed cancer children and survivors compared to controls while AS and PCLS was only significantly higher (P < 0.05) in newly diagnosed cancer children compared to controls. On the other hand, mean value of IQ of newly diagnosed cancer children and survivors was significantly than controls(P < 0.05); Mean values of Child as well as the Parental Total HRQL were significantly lower in newly diagnosed and survivors compared to controls (P < 0.05) with the former significantly lower than the later. In studied sib groups, AS was significantly higher in newly diagnosed compared to survivors and controls (P < 0.05), while PCLS was only significantly higher when newly diagnosed compared to survivors. In studied parental groups, mean values of DS, AS, and SS were significantly higher(P,0.05) in newly diagnosed compared to survivors and controls. Meanwhile, IS was significantly higher in newly diagnosed compared to controls. Newly diagnosed children with cancer, their parents and sibs had significantly lower mean values of all Child HRQL subcategories. On the other hand, survivors showed only significantly lower physical and social subcategories compared to controls. In studied sib groups only sibs of newly diagnosed patients and those of survivors, had significantly lower mean value of social subcategory compared to controls. Conclusion The current study showed that newly diagnosed cancer children had severe impact on their psychosocial aspects as well as their HRQL compared to controls while survivors showed a much lesser effects. On the other hand, sibs were mainly affected socially while parents were extremely affected.

2018 ◽  
Vol 64 (3) ◽  
pp. 234-242 ◽  
Author(s):  
Alessandro Gonçalves Campolina ◽  
Rossana Veronica Mendoza Lopez ◽  
Elene Paltrinieri Nardi ◽  
Marcos Bosi Ferraz

Summary Objective: This study describes the summary scores of the Short Form-12 (SF-12) questionnaire, according to socio-demographic factors obtained in a probabilistic and representative sample of the Brazilian urban population. Method: Five thousand (5,000) individuals, over the age of 15, were assessed in 16 capital cities, in the five regions of the country. The selection of households was random. Face-to-face approach was applied in the household interviews. The SF-12 questionnaire was used to assess quality of life. Demographic and socioeconomic characteristics were also evaluated: gender, age, marital status, skin color, region of the country and use of the public health service. Results: The mean value (SD) of the SF-12 for the entire population was 49.3 (8.7) for the physical component (PCS-12) and 52.7 (9.7) for the mental component (MCS-12). Statistical differences were found for gender (PCS-12 and MCS-12), age (PCS-12) and working status (PCS-12 and MCS-12). Women, elderly, widowed and unemployed individuals, those with lower income and with complaints in the last seven days showed lower mean values (PCS-12 and MCS-12). Conclusion: From this point forward, we can provide the basis for comparisons with future research that use the SF-12 for quality of life assessment in Brazil. The Brazilian population has a lower degree of quality of life related do the physical component, and the SF-12 is a useful and discriminative instrument for assessing quality of life in different socio-demographic groups.


Author(s):  
Cláudia Helena Henriques

This chapter contributes to the emergent debate about sustainable tourism versus overtourism, in the context of urban development. The study underlines, on one hand, the growing importance of tourism in the historic quarters of Lisbon, and on the other hand the rise of overtourism and its effects on residents' quality of life. Consequently, there is the analysis and debate regarding the policies responses of the Lisbon Council in the framework of an integrated urban rehabilitation in Lisbon's historic quarters and the Lisbon Council Strategy.


2020 ◽  
Vol 35 (Supplement_3) ◽  
Author(s):  
Helaoui Fadwa

Abstract Background and Aims Procedure of haemodialysis (HD) treatment is associated with an impaired quality of life in chronic kidney disease patients. It is due to changes in family, social and professional relationships. These changes can also lead to mental health problems. The purpose of our study is to determine the prevalence of depressive and anxiety disorders in hemodialysis patients. Method Fifty chronic hemodialysis patients were enrolled in our cross-sectional study during four months (September -October- November- December 2019). The HADS (Hospital Anxiety and Depression Scale) survey was used to assess depressive and anxiolytic disorder in our hemodialysis population. Were excluded patients aged less than 18 yearsold as well as kidney transplant patients and psychiatric patients. Results The mean age of our patients was 49.5 range (24-79).The sex ratio was 1.27. The prevalence of anxiety syndrome was 40% with a female predominance of 54.5% versus 54,5%. Depressive syndrome was noted in 48% of our patients with a male predominance of 58.3% versus 41,7%. 48% of our HD patients have shown depression in various degrees. It was about mild depression of 20,8% of pts, moderate depression of 41,6% of pts and severe depression of 37,5% of pts. Somatic symptoms of depression in our population were respectively noted in 52,8% of loss of energy, 57,5% fatigue, 63,4% sleep disturbances, and 38,5% changes in appetite. The most common psychological symptoms were: pessimism (79,1%), loss of interest in appearance (41,6%), psychomotor retardation (75%). On the other hand, 37, 5% of patients felt cheerful and 16,6% still enjoy doing some activities. For patients with anxiety syndrom, we noted: concentration disturbance (45,4%), palpitations (50%), abdominal pain (59,09%) and headache (81,8%). With regard to psychological symptoms, the most emphasized were: sudden feelings of panic (54,5%), worrying thoughts (72,7%),77,2% are feeling restless and 59,09% are feeling wound up. On the other hand, 68,1% feel relaxed especially after the hemodialysis session. It seems that gender, marital status and HD duration did not influence significantly in occurrence of depression with respectively (p=0,08, p=0.1 and p= 0.08). Older patients were significantly more depressed in compared to younger patients (p= 0.003). Unemployed patients were significantly more depressed in relation to employed patients(p=0.01). Finally, as the educational level of patients increased, level of depression significantly decreased (p=0,04). Conclusion Depression is the most frequent psychological complication of hemodialysis (HD) patients. Our results showed a high prevalence of depressive symptoms among the study group. The exact prevalence of depression in dialysis patients is unclear because of different criteria utilized for diagnosis of depression. A close collaboration between nephrologists and psychiatrists is needed to ensure a better quality of life in HD patients.


Author(s):  
Anastasius S. Moumtzoglou

The era of the science of individuality promises to fully recognize the uniqueness of the individual who needs to be seen and treated with utter respect for his or her individuality. It will not be long until digitizing a person unlocks the cause for what is wrong, creating valuable knowledge that can save a life or markedly improve the quality of life. On the other hand, emerging m-health technologies provide fundamentally different ways of looking at tailored communication technology. As a result, tailored communications research is poised at a crossroads. It needs to both build on and break away from existing frameworks into new territory, realizing the necessary commitment to theory-driven research at basic, methodological, clinical, and applied levels. The chapter envisions tailored m-health communication in the context of the science of individuality, emphasizing the variability, stability, and centrality of the individual.


Ekonomia ◽  
2018 ◽  
Vol 23 (4) ◽  
pp. 85-93
Author(s):  
Katarzyna Sawicz

Comparative ana lysis of the quality of life of seniors in selected countries of the European UnionFor more than twenty years, the number of elderly people in Europe has been increasing. This process is called “the graying of the continent”. The aging of societies raises many problems of a medical, social and economic nature. On the other hand, the increase in the quality of life of seniors caused less spending on medical and social care.The article attempts to analyze the quality of life of seniors in selected countries of the European Union. The level of quality of life was examined in economic aspect. Particular attention is paid to the health of the population in selected EU country and the level of poverty. The article indicates countries with the highest quality of life of the elderly and countries in which the quality of life of seniors is low.


Man is made by cells and their life is made by emotions, which in turn determine their health and wealth. Our emotions and feelings direct our physical activities. What we think inside comes outside. What we see outside came from human mind1 . Our thoughts and the emotions are the input and the deeds and the actions are the outcomes. In fact, our emotions and thoughts are our life. As the quality of inputs determine the output. The nature of our emotions and thoughts determine the nature of our life. If the emotions and thoughts are positive then our life will be positive.1 that means we will be happy and healthy. On the other hand, if our thoughts are negative, we will be negative, that is our life will be unhappy and unhealthy. It is believed that, negative emotions such as anger, anxiety, worry, depression and jealous influence our mental and physical health negatively. Therefore the researchers made an attempt in this study to find out the impact of emotions on human health. Thus, the study concludes that the negative emotions such as anger, anxiety, depression, fear and worry and disease are associated. But this may or may not be generalized as it is pertaining to a particular group of people belong to a particular center and a particular area, however it may be a valuable model for a macro study.


Author(s):  
Anastasius S. Moumtzoglou

The era of the science of individuality promises to fully recognize the uniqueness of the individual who needs to be seen and treated with utter respect for his or her individuality. It will not be long until digitizing a person unlocks the cause for what is wrong, creating valuable knowledge that can save a life or markedly improve the quality of life. On the other hand, emerging m-health technologies provide fundamentally different ways of looking at tailored communication technology. As a result, tailored communications research is poised at a crossroads. It needs to both build on and break away from existing frameworks into new territory, realizing the necessary commitment to theory-driven research at basic, methodological, clinical, and applied levels. The chapter envisions tailored m-health communication in the context of the science of individuality, emphasizing the variability, stability, and centrality of the individual.


2019 ◽  
Vol 2019 ◽  
pp. 1-10 ◽  
Author(s):  
Gary R. Hunter ◽  
Harshvardhan Singh ◽  
Stephen J. Carter ◽  
David R. Bryan ◽  
Gordon Fisher

Sarcopenia not only affects the ability to lead an active lifestyle but also contributes to increased obesity, reduced quality of life, osteoporosis, and metabolic health, in part due to reduced locomotion economy and ease. On the other hand, increased obesity, decreased quality of life, and reduced metabolic health also contribute to sarcopenia. The purpose of this mini-review is to discuss the implications sarcopenia has for the development of obesity and comorbidities that occur with aging.


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