Psychometric Evaluation of the TIC Grade, a Self-Report Measure to Assess Youth Perceptions of the Quality of Trauma-Informed Care They Received

2020 ◽  
pp. 107839032095389
Author(s):  
Nicole Boucher ◽  
Cynthia S. Darling-Fisher ◽  
Laura Sinko ◽  
Dana Beck ◽  
Josie Granner ◽  
...  
Keyword(s):  
Emerging Adults ◽  
Short Form ◽  
Psychometric Evaluation ◽  
Self Report ◽  
Clinical Practices ◽  
Trauma Informed Care ◽  
Trauma Informed ◽  
Training And Support ◽  
Report Measure

Background Agencies and clinical practices are beginning to provide trauma-informed care (TIC) to their clients. However, there are no measures to assess clients’ perceptions of and satisfaction with the TIC care they have received. A 20-item questionnaire, the TIC Grade, was developed, based on the National Center for Trauma-Informed Care principles of TIC, to assess the patient or client perception of the TIC provided in settings that serve adolescents and emerging adults. Objective The goal of this project was to evaluate the psychometric properties of the TIC Grade instrument and to make recommendations for use of the full measure and its short form—an overall letter grade. Study Design The TIC Grade questionnaire was administered to youth over the age of 18 years from four community partners providing care to vulnerable young adults. Potential participants were offered questionnaires at the end of their visit. Those interested in participating left their completed anonymous questionnaire in a locked box to maintain confidentiality. Questionnaires were collected from 100 respondents; 95 were complete enough to include in analyses for psychometric evaluation. Results The findings of this project support the reliability and usability of the 20-item TIC Grade measure to assess youth’s perceptions of the quality of TIC they received. Conclusions This TIC-specific, behaviorally worded client report measure can assist service delivery organizations to assess their success at implementing TIC and to identify areas where further staff training and support are needed.

Measuring Social Anxiety in Late Life: A Psychometric Evaluation of a Newly Constructed Self-Report Measure of Social Anxiety

2011 ◽  
Author(s):  
Christine E. Gould ◽  
Caroline Ciliberti ◽  
Barry A. Edelstein ◽  
Merideth Smith ◽  
Lindsay A. Gerolimatos
Keyword(s):  
Social Anxiety ◽  
Psychometric Evaluation ◽  
Late Life ◽  
Self Report ◽  
Constructed Self ◽  
Report Measure

An initial validation of a new quality of life measure for adults with intellectual disability: The Mini-MANS-LD

2018 ◽  
Vol 24 (2) ◽  
pp. 177-193
Author(s):  
Roman Raczka ◽  
Kate Theodore ◽  
Janice Williams
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Small Sample Size ◽  
Initial Study ◽  
Small Sample ◽  
Self Report ◽  
Life Measure ◽  
Acceptable Internal Consistency ◽  
Report Measure

There is an appropriate increasing focus on the need to ensure the voices of people with intellectual disability are captured as part of assessing individuals’ quality of life; however, there remains a lack of a consensus on ways to achieve this. This article describes the development of a self-report measure of quality of life for people with intellectual disability, the ‘Mini-MANS-LD’, based on the concepts of Maslow’s hierarchy of needs. Following use with 33 individuals with intellectual disability, the Mini-MANS-LD was found to have acceptable psychometric properties, including moderate congruent validity and acceptable internal consistency. Administrators’ feedback suggested good acceptability and feasibility, and the measure was relatively quick to administer, easy to use and acceptable to service users. Despite a small sample size, this initial study suggests that the Mini-MANS-LD may present a conceptually relevant, feasible and acceptable self-report measure of quality of life for people with intellectual disability.

A Systematic Review and Synthesis of Trauma-Informed Care Within Outpatient and Counseling Health Settings for Young People

2020 ◽  
pp. 107755952092746
Author(s):  
Sarah Bendall ◽  
Oliver Eastwood ◽  
Georgina Cox ◽  
Anna Farrelly-Rosch ◽  
Helen Nicoll ◽  
...  
Keyword(s):  
Young People ◽  
Therapeutic Interventions ◽  
System Level ◽  
Family Carer ◽  
Clinical Practices ◽  
Provider Training ◽  
Trauma Informed Care ◽  
Trauma Informed ◽  
And Gender ◽  
Definition Of

There is growing consensus that outpatient health services for young people (aged 12–25 years) need to deliver trauma-informed care to ameliorate the effects of trauma, offer safe treatments, and avoid retraumatization. Trauma-informed care has become a familiar term for many professionals; however, its operating definition lacks clarity. MEDLINE, Embase, and PsycINFO were systematically searched to clarify what trauma-informed care is, and what it should achieve in these settings. We reviewed 3,381 unique records, of which 13 met criteria for inclusion. Content analysis identified 10 components of trauma-informed care as it has been operationalized in practice: seven of these occurred at the system-level (interagency collaboration; service provider training; safety; leadership, governance and agency processes; youth and family/carer choice in care; cultural and gender sensitivity; youth and family/carer participation), and three involved trauma-specific clinical practices (screening and assessment; psychoeducation; therapeutic interventions). There is a need for greater consensus regarding an operating definition of trauma-informed care and further research into outcomes for young people and their families/carers.

Developing the TIC Grade: A Youth Self-Report Measure of Perceptions of Trauma-Informed Care

2020 ◽  
pp. 107839032097065
Author(s):  
Laura Sinko ◽  
Dana Beck ◽  
Julia Seng
Keyword(s):  
Instrument Development ◽  
Content Validity ◽  
Service Use ◽  
Psychometric Testing ◽  
Companion Paper ◽  
Self Report ◽  
Trauma Informed Care ◽  
Trauma Informed ◽  
Development Approach ◽  
Definition Of

BACKGROUND: Service delivery organizations are advancing the provision of trauma-informed care (TIC) for youth to improve outcomes. However, currently there are no validated, reliable evaluation measures to capture the voices of adolescent clients and how well they perceive TIC implementation. AIMS: The purpose of this project was to create an evaluation measure with strong content validity for adolescent health and service users to give feedback to organizations about their implementation of TIC. This article outlines Step 1 of our instrument development, by discussing our process creating the measure and affirming content validity. Psychometric testing of this measure (Step 2) is described in a companion paper. METHOD: We combined deductive theory substruction with an inductive participatory process to create, revise, and finalize the measure. The National Center for Trauma-Informed Care’s framework of four practices and six principles was substructed into an 18-item draft measure. A four-member community youth advisory board (CYAB) then worked to inductively modify our draft to provide age-appropriate clarity and ensure a nontriggering respondent experience. Finally, the CYAB members conducted cognitive interviews with 10 other adolescents in local evening data collection events, refining the measure for future psychometric testing. RESULTS: The process resulted in a 20-item form based on CYAB feedback. Refinements included providing an accessible definition of trauma, asking questions about trauma history, and asking whether trauma affected the client’s visit on the day of service use. The CYAB involvement enhanced content validity and ensured a trauma-informed instrument development approach.

scholarly journals TAKE ME BACK TO MOVE ME FORWARD: RE-ENACTMENT OF THE FAMILY SYSTEM AS A PATHWAY TO BETTER QUALITY OF LIFE FOR ALEXITHYMIC PATIENTS IN GROUP THERAPY

2019 ◽  
Author(s):  
Petra ◽  
John S. Ogrodniczuk ◽  
Joanna Cheek ◽  
David Kealy ◽  
Ingrid Sochting
Keyword(s):  
Quality Of Life ◽  
Group Therapy ◽  
Family System ◽  
Short Form ◽  
Specific Aspect ◽  
Self Report ◽  
Clinical Literature ◽  
The Family ◽  
The Relationship

Background: Despite much attention in the clinical literature, research on alexithymia in the treatment setting has only recently gained traction. While several reports indicate limited benefit from therapy amongst patients with high alexithymia, this seems to be less so in the context of group therapy. This study considers a specific aspect of the group therapy process - family re-enactment - infacilitating improvement in overall quality of life for patients with high levels of alexithymia.Subjects and methods: Family re-enactment was examined as a potential mediator of the relationship between alexithymia and change in quality of life among 50 patients who completed treatment in an intensive, integrative group therapy programme. Patients completed three self-report measures: Toronto Alexithymia Scale-20 (baseline), Quality of Life Inventory (baseline, post-therapy), and Therapeutic Factors Inventory-Short Form (week 8). Regression with mediation analysis was employed using the change scorefor the QOLI as the dependent variable, alexithymia scores as the independent variable, and the family re-enactment score as the mediator; baseline quality of life was included in the model as a control variable.Results: Family re-enactment emerged as a significant mediator of the relationship between alexithymia and treatment outcome, implicating it as a contributing mechanism of change for alexithymic patients who participate in group therapy.Conclusion: Patients with higher levels of alexithymia (in particular, difficulty identifying and describing feelings) were more likely to positively endorse aspects of family re-enactment during group therapy, which in turn were significantly associated with greater improvement in patients’ overall quality of life.

Parent experience of HIE and hypothermia: A call for trauma informed care

2022 ◽  
Author(s):  
Anna Elizabeth Sagaser ◽  
Betsy Pilon ◽  
Annie Goeller ◽  
Monica Lemmon ◽  
Alexa Craig
Keyword(s):  
Parental Involvement ◽  
Neonatal Intensive Care ◽  
Parent Support ◽  
Face To Face ◽  
Trauma Informed Care ◽  
Parent Experience ◽  
Parent Role ◽  
Trauma Informed ◽  
E Mail

Purpose/Background: Therapeutic hypothermia (TH) is the standard treatment for hypoxic ischemic encephalopathy (HIE). We surveyed parents of infants treated with TH about their experiences of communication and parental involvement in the Neonatal Intensive Care Unit (NICU). Methods/Approach: A 29-question anonymous survey was posted on a parent support website (https://www.hopeforhie.org) and sent to members via e-mail. Responses from open-ended questions were analyzed using thematic analysis. Results: 165 respondents completed the survey and 108 (66%) infants were treated with TH. 79 (48%) respondents were dissatisfied/neutral regarding the quality of communication in the NICU, whereas 127 (77%) were satisfied/greatly satisfied with the quality of parental involvement in the NICU. 6 themes were identified: 1) Setting for communication: Parents preferred face to face meetings with clinicians. 2) Content and clarity of language: Parents valued clear language (use of layman’s terms) and being explicitly told the medical diagnosis of HIE. 3) Immediate and Longitudinal Emotional Support: Parents required support from clinicians to process the trauma of the birth experience and hypothermia treatment. 4) Clinician time and scheduling: Parents valued the ability to join rounds and other major conversations about infant care. 5) Valuing the Parent Role: Parents desired being actively involved in rounds, care times and decision making. 6) Physical Presence and Touch: Parents valued being physically present and touching their baby; this presence was limited by COVID-related restrictions. Conclusion: We highlight stakeholder views on parent involvement and parent-clinician communication in the NICU and note significant overlap with principles of Trauma Informed Care: safety (physical and psychological), trustworthiness and transparency, peer support, collaboration and mutuality, and empowerment, voice and choice. We propose that a greater understanding and implementation of these principles may allow the medical team to more effectively communicate with and involve parents in the care of infants with HIE in the NICU.

scholarly journals 0740 Quality of Life in Phase 3, Placebo-Controlled, Double-Blind, Randomized Withdrawal Study of JZP-258 in Adults with Narcolepsy with Cataplexy

SLEEP ◽  
2020 ◽  
Vol 43 (Supplement_1) ◽  
pp. A281-A282
Author(s):  
N Foldvary-Schaefer ◽  
M J Thorpy ◽  
Y Dauvilliers ◽  
A Roy ◽  
L Tang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Standard Of Care ◽  
Sodium Oxybate ◽  
Self Report ◽  
Double Blind Study ◽  
Open Label ◽  
Double Blind ◽  
Sf 36

Abstract Introduction Narcolepsy negatively impacts health-related quality of life (HRQoL). Sodium oxybate is a standard of care for the treatment of cataplexy and excessive daytime sleepiness in narcolepsy. JZP-258 is an oxybate product candidate with 92% less sodium. Efficacy and safety of JZP-258 were established in a double-blind randomized withdrawal study in adults with narcolepsy with cataplexy. Methods Participants 18-70 years of age began JZP-258 treatment during a 12-week, open-label, optimized treatment and titration period, followed by a 2-week stable-dose period (SDP). Participants were then randomized to receive placebo or continue JZP-258 treatment during a 2-week, double-blind, randomized withdrawal period (DBRWP). HRQoL assessments included the 36-Item Short Form Health Survey Version 2 (SF-36) and 5-level EuroQoL 5-Dimensions Self-Report Questionnaire (EQ-5D-5L). Results 201 participants enrolled; 134 were randomized and received at least 1 dose of double-blind study medication (efficacy population; placebo, n=65; JZP-258, n=69). Decreased scores (worsening) were observed in participants randomized to placebo compared with participants randomized to continue JZP-258 treatment for the SF-36 physical component summary (median [Q1, Q3], −1.92 [−3.46, 1.73] for placebo and −0.03 [−2.07, 2.41] for JZP-258; nominal P=0.02), SF-36 mental component summary (−1.92 [−6.28, 1.34] for placebo and 1.55 [−1.88, 3.78] for JZP-258; nominal P=0.03), and EQ-5D-5L visual analog scale (−5.00 [−10.0, 5.00] for placebo and 0 [0, 5.00] for JZP-258; nominal P=0.01). No change was observed in the EQ-5D-5L crosswalk index (0 [−0.05, 0.03] for placebo and 0 [−0.01, 0.03] for JZP-258; nominal P=0.39). The overall safety profile of JZP-258 was similar to sodium oxybate. Conclusion HRQoL worsened in those randomized to placebo during DBRWP but remained stable in participants who continued JZP-258 treatment. Support Jazz Pharmaceuticals

scholarly journals Psychometric evaluation of the short form of the Arizona Life History Battery (K-SF-42): A revised Chinese version for emerging adults

2020 ◽  
Vol 18 (4) ◽  
pp. 147470492096911
Author(s):  
Meng Xuan Zhang ◽  
Bryant P. H. Hui ◽  
Anise M. S. Wu
Keyword(s):  
Life History ◽  
Emerging Adults ◽  
Factor Model ◽  
Short Form ◽  
Psychometric Evaluation ◽  
Chinese Version ◽  
Short Version ◽  
Chinese University ◽  
Confirmatory Factor ◽  
Positive Correlations

Life history (LH) strategies explain how organisms adapt to the environment and make the best use of their resources to fulfill bodily maintenance, growth, reproduction and other functions. The K-SF-42 is a short version of the 199-item Arizona Life History Battery for assessing seven different domains of LH strategies. This article aims to evaluate the psychometric properties of a Chinese version of the K-SF-42. We recruited 1,016 Chinese university students, who aged 16 to 28 years old ( M age = 19.47, SD = 1.17) to participant in an anonymous questionnaire. Results of the confirmatory factor analysis supported the second-order six-factor model (except romantic partner attachment), and the scale and subscales of such measurement displayed good internal consistencies. With the exception of religiosity, all of the subscales showed significant positive correlations with a brief unidimensional measure of LH strategies (i.e., the Mini-K). The criterion-related validity of the scale was further supported by the association between its higher score (suggesting slower LH strategies) and the lower levels of childhood harshness and unpredictability. This study provided evidence for the satisfactory applicability of the Chinese version of the K-SF-42 to a Chinese population and contributed to the further investigation of the LH strategies’ mechanisms underlying human behavior across cultures.

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