scholarly journals MEANING AND DIMENSIONALITY OF STATE OF COMFORT IN PATIENTS WITH CHRONIC HEMODIALYSIS KIDNEY DISEASE

2021 ◽  
Vol 30 ◽  
Author(s):  
Sinara de Menezes Lisboa Freire ◽  
Renan Alves Silva ◽  
Geórgia Alcântara Alencar Melo ◽  
Letícia Lima Aguiar ◽  
Joselany Áfio Caetano ◽  
...  

ABSTRACT Objective: to understand the meaning and dimensionality of state of comfort from chronic hemodialysis patients’ perspectives. Method: this is a qualitative study conducted with 30 patients from a hemodialysis clinic from May to June 2018. A semi-structured interview with guiding questions was used. Data were analyzed according to Bardin’s content analysis method, supported by Kolcaba’s theoretical framework. Results: five subcategories for being and feeling comfortable emerged: psychological well-being; Silent environment; Good quality of care; No health changes; Reduction in the frequency/duration of hemodialysis. Regarding dimensionality to achieve comfort, there were three subcategories according to the adopted states. Regarding dimensionality, relief is achieved when a patient is disconnected from the machine, does not attend any session or does not present clinical manifestations of hemodialysis complications. In calm, visible discomforts are linked to change of routine, abandonment of work activities, financial difficulties and poor family support, and psychospiritual issues that weaken in their daily life, making them vulnerable to discomfort. In transcendence, absence of symptoms, attachment to religion, faith or spirituality and resilience to the new routine figured as indexes. States do not act individually, they are related to the experiences of contexts. Conclusion: comfort has meaning of relief from discomfort, state of having met basic human needs, mental and physical well-being, physical, mental and environmental comfort, and final state of nursing therapeutic actions, which permeate the contexts and states of relief, calm, and transcendence. These elements combine with each other to generate unique responses.

1977 ◽  
Vol 3 (1) ◽  
pp. 1-18 ◽  
Author(s):  
Ignacy Sachs

With the full development of Man as its central concern, this paper rejects both economism, which sees Nature as something to be appropriated without regard for its finiteness and fine balance, and ecologism, which treats the conservation of nature as an end in itself without regard for the well-being of the race. It steers clear of the false choice between economic growth and quality of life, and proposes, instead, a strategy of development that makes the maximum use of the flows of renewable resources but only a sparing use of Nature's capital stock, through the employment of prudent technological styles with the help of science and the devising of appropriate social organization at all levels. The strategy is relevant no less to the industrialized countries than to the countries of the Third World. The strategy calls for a ceiling on material consumption to ensure to everyone the satisfaction of basic human needs. It does not envisage a return to some past mythical golden age but takes the present situation as given, and then goes on to outline the steps by which a style of development can be attained that does not entail great social costs and that is consistent with enlarged social responsibility.


1979 ◽  
Vol 9 (4) ◽  
pp. 50-51
Author(s):  
Ephraim Nkwute Aniebona

The term, “technology,” as used here, refers basically to: (1) the science or art of devising tools and instruments and how to use them; (2) the development of new materials and substances and their application; (3) the development of machines to supplement or replace human effort, where desirable and feasible; (4) the development of energy and power resources for running the machines; and (5) the development of efficient methods of doing work—that is, using tools, machines, and instruments. From an observation of human efforts throughout the world, it is clear that every human society is concerned with technology, for it is a proven means by which man has extended his power beyond his physical capacity and gained some control over his environment. Although technology exists in every society, it is the amount and quality of the technology that separates nations today on a scale of economic development. Whilst the developing, technologically backward countries of Africa constantly face the basic human needs of food, shelter, and clothing, the developed nations consume and enjoy a disproportionate amount of the world’s resources and wealth by reason of their technological advancement.


2020 ◽  
Vol 8 (1) ◽  
pp. 147
Author(s):  
Veeraraja B. Sathenahalli ◽  
G. R. Rajashekar Murthy ◽  
Netra Gouda ◽  
Sanjay K. Shivanna

Background: Thalassemia is an autosomal recessive congenital disease caused by the reduced or absent beta globin chain synthesis of hemoglobin tetramer. The degree of imbalance between alpha and non alpha globin chains determines the severity of clinical manifestations. The disabling nature of the disease and chronic therapy affects the normal life causing psychosocial burden. Overall patient’s life, such as education, free-time, physical activities, skills, capabilities, and family adjustment is affected. The effects of which often result in psychological, emotional and social compromise. Health-Related Quality of Life (HRQoL) measurement is a multidimensional concept that focuses on the impact of the disease and its treatment on the well being of an individual.Methods: A descriptive observational hospital based study was conducted over a period of 3 months. Transfusion dependency in thalassemic children aged between 5 years and 18 years was the inclusion criteria. Thalassemic children having debilitating illnesses unrelated to thalassemia were excluded. Quality of life was assessed using Pediatric Quality of Life Inventory (PedsQL™ 4.0)4. The tool assesses the quality of life in five domains: physical functioning (PF: 8 items), psychosocial functioning (sum of emotional, social and school functioning), emotional functioning (EF: 5 items), social functioning (SF: 5 items) and school functioning (SC: 5 items).Results: Total of 125 children were enrolled with a mean age of 9.4±4.6 years (age range 5-18 yrs). According to the PedsQL questionnaire, the quality of life was similarly assessed by both parents and children. The total mean QoL score of the parents was 72.36±11.47 and of the children was 77.63±14.17. Emotional, school and psycho-social function were significantly affected according to both child and parents without statistical significance.Conclusions: Thalassaemia patients and their parents require lifelong psychological support for prevention of mental health issues. By increasing the awareness and knowledge levels of the parents, we can help sick children in developing countries to get the best care locally and to thus improve HRQoL.


Author(s):  
Cecília Lopes Lobo ◽  
Rui Costa

There is an increasing concern for public stakeholders to develop sustainable tourism strategies, in order to satisfy the needs of today's society, without compromising future generations. Considering the key dimensions of sustainable tourism, this chapter aims to analyse the well-being of a destination's local community and its relationship with tourist events. This exploratory research used a qualitative approach by employing a semi-structured interview with the most relevant stakeholders of the destination. It is possible to conclude that local events can have different positive impacts on the quality of life of the residents. Greater support for local political strategies, better feedback, and word-of-mouth, translating into a positive and sustainable promotion of the destination by the local community are results that can be expected from organising events also designed for the residents of the destination, as a sustainable and inclusive experience.


2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Christiane Horwood ◽  
Lyn Haskins ◽  
Silondile Luthuli ◽  
Neil McKerrow

Abstract Background There is a high global burden of neonatal mortality, with many newborn babies dying of preventable and treatable conditions, particularly in low and middle-income countries. Improving quality of newborn care could save the lives of many thousands of babies. Quality of care (QoC) is a complex and multifaceted construct that is difficult to measure, but patients’ experiences of care are an important component in any measurement of QoC. We report the findings of a qualitative study exploring observations and experiences of health workers (HWs) and mothers of babies in neonatal units in South Africa. Methods A qualitative case study approach was adopted to explore care of newborn babies admitted to neonatal units in district hospitals. Observation data were collected by a registered nurse during working hours over a continuous five-day period. Doctors and nurses working in the neonatal unit and mothers of babies admitted during the observation period were interviewed using a semi-structured interview guide. All interviews were audio recorded. Observation data were transcribed from hand written notes. Audiotapes of interviews were transcribed verbatim and, where necessary, translated into English. A thematic content analysis was used to analyse the data. Results Observations and interviews were conducted in seven participating hospitals between November 2015 and May 2016. Our findings highlight the importance of information sharing between HWs and mothers of babies, contrasting the positive communication reported by many mothers which led to them feeling empowered and participating actively in the care of their babies, with incidents of poor communication. Poor communication, rudeness and disrespectful behaviour of HWs was frequently described by mothers, and led to mothers feeling anxious, unwilling to ask questions and excluded from their baby’s care. In some cases poor communication and misunderstandings led to serious mismanagement of babies with HWs delaying or withholding care, or to mothers putting their babies at risk by not following instructions. Conclusion Good communication between mothers and HWs is critical for building mothers’ confidence, promoting bonding and participation of mothers in the care of their baby and may have long term benefits for the health and well-being of the mother and her baby.


Author(s):  
Natalya Shipova ◽  
Ulyana Sevastyanova

The relevance of the scientific problem and the scientific novelty are due to the social demand of society for studying problems related to the subjective well-being of people with disabilities. The focus of our attention is the psychological well-being of dyads in close relationships (romantic or marital). The aim of the study is to analyze the psychological well-being in a dyad of partners who are in close relationships. The article analyzes the characteristics inherent in close relations of couples in which one of the partners has a disability. Using the Scale of Adaptation and Cohesion (FACES-3)), the levels of adaptation and cohesion of the dyads were revealed. Methods Quality of life Enjoyment and Satisfaction Questionnaire examines quality of life and subjective well-being, assesses the degree of subjective satisfaction with emotional and social spheres, health, activity in free time. Particularly analyzed data of a semi-structured interview. Empirically revealed differences in the understanding of their own close relationships depending on the health status of the partner. Dyads, including partners with disabilities, demonstrate a high level of satisfaction, average cohesion values, partial balance. The study is complex, and now there is a clear prospect for its continuation.  


1998 ◽  
Vol 28 (2) ◽  
pp. 85-91
Author(s):  
Natius Oelofsen ◽  
Josua P.P. Fullard ◽  
Cheryl D. Foxcroft

This study aimed to describe the health-related quality of life (HRQOL) of South African coronary artery bypass graft recipients. The sample consisted of 31 participants (22 males and 9 females) with an average age of 58 years six months (SD = 5 years 9 months). Participants were assessed in their homes an average of 14.25 weeks after surgery (SD = 3.99 weeks). The assessment consisted of a structured interview, a self-report questionnaire, and a psychometric test battery that measured cognitive functioning. Data were analysed by computing descriptive statistics (percentages, means) and multivariate statistics to identify subgroups of the sample. Participants' HRQOL was described along the dimensions of symptoms, functional status and perceptions. Key findings included the following: All participants experienced relief from cardiac chest pain symptoms; subgroups were identified that experienced cognitive impairment and low levels of psychological well-being; the majority of participants (84%) believed that their health was good and 80% felt that the coronary bypass surgery had fulfilled their expectations; and overall, the findings emphasised the individualised nature of reactions to cardiac surgery and the importance of psychological variables in cardiac care.


2017 ◽  
Vol 8 (2) ◽  
Author(s):  
Marília De Sousa Leite ◽  
Lia Cardoso De Aguiar

Objetivo: conhecer os diagnósticos de enfermagem dos pacientes submetidos à colostomia. Metodologia: trata-se de uma pesquisa descritiva, com abordagem quantitativa, realizada nos meses de julho e agosto de 2015. A amostra foi constituída de 15 pacientes colostomizados de um hospital de referência oncológica do estado do Maranhão. Resultados: os diagnósticos de NANDA identificados e mais citados foram padrão de sono prejudicado, baixa autoestima situacional, negação ineficaz, motilidade gastrointestinal disfuncional e padrão de sexualidade ineficaz. Ainda foram identificadas necessidades humanas básicas através da teoria de Wanda Horta. Conclusão: sugere-se promoção de meios que favoreçam a prática do processo de enfermagem, visando uma assistência planejada com métodos que promovam a qualidade do serviço.Descritores: Diagnóstico de Enfermagem, Colostomia, Cuidados de Enfermagem.DIAGNOSIS IN NURSING PATIENTS SUBJECTED TO COLOSTOMYObjective: to know the diagnostic of nursing patients undergoing colostomy Methodology: it is a descriptive survey, quantitative approach conducted in July and August 2015, with 15 colostomy patients of a reference hospital on oncology in the state of Maranhao. Results: as for the diagnoses from NANDA, the most cited were disturbed pattern of sleep, low situational self-esteem, ineffective denial, dysfunctional gastrointestinal motility and ineffective pattern of sexuality. Yet they have identified basic human needs by Wanda Horta’s theory. Conclusion: it is indicated the development of methods that favor the practice of nursing process to a planned tour with methods that promote the quality of service.Descriptors: Nursing Diagnosis, Colostomy, Nursing care.DIAGNÓSTICOS DE ENFERMERÍA EN PACIENTES SOMETIDOS A LA COLOSTAMIAObjetivo: conocer los diagnósticos de enfermería de pacientes sometidos a colostomía. Metodología: Se trata de un estudio descriptivo con un enfoque cuantitativo, llevado a cabo en julio y agosto de 2015, la muestra consistió en 15 pacientes de colostomía un hospital de referencia oncológica en el estado de Maranhao. Resultados: diagnósticos NANDA identificados y más citadas fueron el sueño perturbado estándar, baja autoestima situacional, la negación ineficaz, la motilidad gastrointestinal disfuncional y estándares de sexualidad ineficaces. Sin embargo, se han identificado las necesidades humanas básicas de la teoría de Wanda Horta. Conclusión: se sugiere medios de promoción que favorezcan la práctica del proceso de enfermería a un proyecto de gira con los métodos que promueven la calidad del servicio.nclusión: se sugiere medios de promoción que favorezcan la práctica del proceso de enfermería a la asistencia a los métodos y la calidad de servicio previstas.Descriptors: Diagnóstico de Enfermería, Colostomía, Los Cuidados de Enfermería.


2014 ◽  
Vol 18 ◽  
pp. 105
Author(s):  
Leah Wortham ◽  
Catherine Klein ◽  
Beryl Blaustone

<p>“There is a science to what we do”</p><p>This article takes its name from the keynote plenary that the authors presented at the 8th International Journal of Clinical Legal Education conference held at Northumbria University in July 2010 The presentation and this article link research on human motivation and well-being to the structure and methods of clinical legal education. The quote above is from a conference participant in response to a question that we posed to small groups at our plenary regarding how the concepts of autonomy support and mastery resonate with their experience in clinical education and legal education more generally.</p><p>Autonomy, mastery, and purpose are the “tripod of Type I behavior” formulated by Daniel H. Pink in his 2009 book, DRIVE: THE SURPRISING TRUTH ABOUT WHAT MOTIVATES US. Pink postulates “Type I” behavior as that driven by intrinsic, self-generated motivations as opposed to “Type X” behavior directed toward extrinsic factors outside the self such as imposed production quotas, bonuses, competitions to “best” others, or avoiding punishments.</p><p>Pink develops a computer-operating-system metaphor to advocate “Motivation 3.0” as an optimal organizing principle for 21st century business built on providing employees opportunities for autonomy, mastery, and purpose as opposed to an outmoded “Motivation 2.0,” which assumes a controlling work environment based on the premise that people respond best to carrots and sticks. Pink’s book cites examples of businesses structured to support autonomy, mastery, and purpose and describes their successes in enhanced creativity, innovation, retaining valued employees, and productivity. He contrasts such businesses with work places organized around specifically dictated job conditions and traditional structures where workers are subject to externally controlled rewards and punishments.</p><p>Pink provides an engaging, easily accessible entry to a body of social science literature on motivation, achievement, and feelings of well-being that also has been applied to legal education. This article seeks to provide user-friendly access to theory regarding the basic human needs for autonomy, mastery, and purpose as well as regarding intrinsic versus extrinsic motivation. The article provides examples of choices clinical teachers can make to promote student learning and feelings of well-being through methods supporting satisfaction of those basic human needs and encouraging students to find their self-driven motivations.</p><p>Part I describes the difference in extrinsic and intrinsic motivation and reviews the negative effects of business and educational models assuming extrinsic motivation to be most effective rather than seeking to stimulate intrinsic motivation. Part II describes the Carnegie Foundation’s Preparation for the Professions project’s call for law schools to focus on law students’ sense of identity and purpose as part of their professional education, as well as noting the similar goal that students learn “how to be” as articulated by the Tuning Project of the Bologna process regarding higher education in Europe. Part III provides basics on the theory of human needs for a sense of autonomy, mastery, and purpose on which the rest of the article is based. Part IV applies work contrasting autonomy-supportive teacher behaviors with controlling instructional behaviors to the clinical context. Part V of the article draws on cognitive psychology, neuroscience, and learning theory to suggest four methods useful for assisting novice law students on the steep road to mastery of lawyering competence within the time constraints of clinical programs and the professional demands of client service. Methods identified also contribute to satisfaction of students’ need for relatedness, which too often is undermined in other parts of law school. Part VI extends the discussion of clinics’ potential contribution to the need for relatedness and focuses on clinical education’s capacity to support development of students’ sense of how a career in law can contribute to their sense of life purpose in being part of something larger than themselves.</p><p>Many of this article’s applications of theory to clinical teaching are from the clinics in which students provide client representation or are engaged in transactional legal problem solving under faculty supervision, the type of clinics in which Professors Klein and Blaustone teach. We think, however, that clinical teachers will be able to see applications of the theory presented to the various types of clinical programs that exist around the world, e.g, street law programs in which students teach community members and externship programs in which students work under the supervision of a lawyer in an organization external to the law school. We hope, like Pink’s book, to offer an accessible gateway to a body of theoretical and empirical work that can help clinical teachers think critically and creatively about both their clinical program’s structure and their teaching and supervision. We hope to inspire teachers to think about ways they might apply this theory toward nurturing the type of life-long self-direction that motivates people to continually seek greater mastery and provides a sense of well-being both now and in the students’ future careers.</p>


2019 ◽  
Vol 28 (3) ◽  
pp. 116-126
Author(s):  
Tatyana V. Ashutova ◽  
Zoia Yu. Zhelnina

The article presents the experience of Murmansk Arctic State University in the implementation of a unique project for the region – «Creative city – territory of development», which reflects innovative social practices, technologies of project training and the strategy of the University to fulfill its potential in the creative industries. Creative industries are a growth point for the regional “smart specialization”, significantly affecting the quality of life of the local communities and fulfilling not only current, but also emerging human needs. Therefore it is important to involve the younger generation in creative activities in order to develop experience of participation in new socio-economic processes. The discussion about the productivity of classical and project solutions in professional training programs determined the advantage of creative projects of students to present their competencies not only to potential employers, but also to other stakeholders in the development of the region. Initiatives in the Northern Design Cluster and the Tourism and Recreation Cluster of the Murmansk Region have become a new type of university activities; their the projects allow to attract experts to discuss areas of work and clusters cooperation models. Creative industries meet the challenges of the era, when for success the territories must use the resources of cultural brands, shape the quality of life by developing social spaces, non-standard use of color and light in design for psycho-emotional well-being. The project “Creative City – Territory of Development” makes it possible to get feedback from the local communities. The university consistently implements a strategy of expanding areas of participation in the life of the region, conducts research on integrating the modern Arctic design, socio-cultural and economic practices of municipalities. Therefore, the article analyzes the growth factors and ways of influence of the university on the regional community in the field of creative industries; emphasizes the complexity of the tasks and the increase in the number of stakeholders in the creative industries, underlines the fact that university projects are both the creative products and creative technologies for the formation of professional competences in the welfare industry, tourism and design.


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