scholarly journals Serving up mealtime strategies : how families experience dementia in the community

2021 ◽  
Author(s):  
Abigail Wickson
Keyword(s):  
Sense Of Self ◽  
Secondary Analysis ◽  
Well Being ◽  
Spousal Caregivers ◽  
Data Set ◽  
People With Dementia ◽  
Adult Caregivers ◽  
Late Stages ◽  
Existing Data

The mealtime experiences for people with dementia and their caregivers living in the community has not been extensively explored. An existing data set provided information on the mealtime strategies used to cope with changing dementia behaviours. A secondary analysis of data from 10 dyads of people with dementia and their caregivers were analyzed. Four categories were identified including: Strategies to facilitate eating; Strategies to promote a sense of self; Stategies to minimize risk; and Strategies to promote caregiver well-being. The dyads used a variety of strategies that were common to all stages of dementia; however by the late stages, the dyads used more specific strategies. In general, the mealtime strategies used by adult caregivers and spousal caregivers did not greatly differ but rather the context in which they engaged in mealtimes did. The results demonstrated that there are opportunities to educate families and professionals about potential mealtime strategies.

scholarly journals Serving up mealtime strategies : how families experience dementia in the community

2021 ◽  
Author(s):  
Abigail Wickson
Keyword(s):  
Sense Of Self ◽  
Secondary Analysis ◽  
Well Being ◽  
Spousal Caregivers ◽  
Data Set ◽  
People With Dementia ◽  
Adult Caregivers ◽  
Late Stages ◽  
Existing Data

The mealtime experiences for people with dementia and their caregivers living in the community has not been extensively explored. An existing data set provided information on the mealtime strategies used to cope with changing dementia behaviours. A secondary analysis of data from 10 dyads of people with dementia and their caregivers were analyzed. Four categories were identified including: Strategies to facilitate eating; Strategies to promote a sense of self; Stategies to minimize risk; and Strategies to promote caregiver well-being. The dyads used a variety of strategies that were common to all stages of dementia; however by the late stages, the dyads used more specific strategies. In general, the mealtime strategies used by adult caregivers and spousal caregivers did not greatly differ but rather the context in which they engaged in mealtimes did. The results demonstrated that there are opportunities to educate families and professionals about potential mealtime strategies.

The Psychological and Financial Impact of Cybercrime Victimization: A Novel Application of the Shattered Assumptions Theory

2021 ◽  
pp. 089443932098382
Author(s):  
Jildau Borwell ◽  
Jurjen Jansen ◽  
Wouter Stol
Keyword(s):  
Negative Impact ◽  
Secondary Analysis ◽  
Well Being ◽  
Policy Implications ◽  
Financial Impact ◽  
Financial Loss ◽  
Data Set ◽  
Loss Compensation ◽  
Shattered Assumptions ◽  
The Impact

While criminality is digitizing, a theory-based understanding of the impact of cybercrime on victims is lacking. Therefore, this study addresses the psychological and financial impact of cybercrime on victims, applying the shattered assumptions theory (SAT) to predict that impact. A secondary analysis was performed on a representative data set of Dutch citizens ( N = 33,702), exploring the psychological and financial impact for different groups of cybercrime victims. The results showed a higher negative impact on emotional well-being for victims of person-centered cybercrime, victims for whom the offender was an acquaintance, and victims whose financial loss was not compensated and a lower negative impact on emotional well-being for victims with a higher income. The study led to novel scientific insights and showed the applicability of the SAT for developing hypotheses about cybercrime victimization impact. In this study, most hypotheses had to be rejected, leading to the conclusion that more work has to be done to test the applicability of the SAT in the field of cybercrime. Furthermore, policy implications were identified considering the prioritization of and approach to specific cybercrimes, treatment of victims, and financial loss compensation.

scholarly journals Perceived needs and coping resources of newly hired nurses

2019 ◽  
Vol 7 ◽  
pp. 205031211983321 ◽  
Author(s):  
Catherine A Schmitt ◽  
Rachel Schiffman
Keyword(s):  
Sense Of Self ◽  
Secondary Analysis ◽  
Coping Resources ◽  
First Year ◽  
Data Set ◽  
Great Cost ◽  
Mentorship Program ◽  
Experienced Nurses ◽  
Predominantly Female ◽  
Newly Hired

Objective: Newly hired nurses who do not transition well often leave their first nursing position or nursing prematurely, at great cost to themselves, the profession, hiring organizations and patients. The purpose of this secondary analysis study was to better understand the transition experience of new graduate nurses and experienced nurses as they moved to a new setting in nursing, and the preceptor’s role in that transition. Methods: Schlossberg’s Transition Theory provided the framework for the secondary analysis of a large qualitative data set that were collected from 118 newly hired nurses who were predominantly female and Caucasian with the majority being under the age of 30 years and having less than 1-year experience. The data available for secondary analysis included all transcripts from the original study. Results: Two main themes were identified: Institutional Support and Sense of Self. Discussion: Preceptors are critical early in the transition and the newly hired nurse continues to look for support beyond the first year of the transition. Hospitals should consider implementing transition to practice programs that support the newly hired nurse, to include those with prior experience, throughout the first year of transition and should also consider a mentorship program of support after the first year.

scholarly journals Factors of Resilience in Informal Caregivers of People with Dementia from Integrative International Data Analysis

2016 ◽  
Vol 42 (3-4) ◽  
pp. 198-214 ◽  
Author(s):  
Karlijn J. Joling ◽  
Gill Windle ◽  
Rose-Marie Dröes ◽  
Franka Meiland ◽  
Hein P.J. van Hout ◽  
...  
Keyword(s):  
Informal Caregivers ◽  
Well Being ◽  
Negative Consequences ◽  
Data Set ◽  
Male Caregiver ◽  
People With Dementia ◽  
Different Types ◽  
High Care ◽  
International Data ◽  
Person With Dementia

Background/Aims: Although caring for a person with dementia can be stressful, some caregivers appear to experience few negative consequences to their well-being. This study aimed to examine what proportion of caregivers demonstrates resilience under different challenging circumstances and to identify factors related to their resilience. Methods: Baseline data from 4 studies from the Netherlands and UK among informal caregivers of people with dementia were harmonized and integrated. Caregiver resilience was defined as high levels of psychological well-being despite different types of high caregiving demands. Multivariate regression analyses identified factors significantly related to caregiver resilience. Results: The integrated data set included 15 harmonized variables with data from 1,048 caregivers facing a high care demand. The prevalence of resilience varied between 35 and 43%, depending on the demand for high care. Being a male caregiver, caring for a female, living apart from your relative, and low caregiver burden were positively related to caregiver resilience. Conclusion: Caregivers have the capacity to demonstrate resilience despite significant challenges. This study demonstrates how harmonization of data from multiple existing studies can be used to increase power and explore the consistency of findings. This contributes to a better understanding of which factors are likely to facilitate caregiver resilience and offers insights for developing services.

Communication Strategies to Promote Spiritual Well-Being among People with Dementia

2005 ◽  
Vol 59 (1-2) ◽  
pp. 43-55 ◽  
Author(s):  
Ellen B. Ryan ◽  
Lori Schindel Martin ◽  
Amanda Beaman
Keyword(s):  
Older Adults ◽  
Communication Skills ◽  
Life Stories ◽  
Sense Of Self ◽  
Communication Strategies ◽  
Religious Life ◽  
Well Being ◽  
Spiritual Needs ◽  
People With Dementia ◽  
Spiritual Well Being

Declining communication skills in dementia threaten a person's sense of self. Building on enduring capabilities, pastoral visitors can significantly enhance spiritual well-being through the use of individualized, person-centered strategies. This article outlines the primary spiritual needs of older adults with dementia and some general strategies to improve communication based on enduring abilities. Detailed examples illustrate how these personhood-centered strategies can meet spiritual needs by connecting with individuals with dementia through life stories and through helping them to participate in religious life.

scholarly journals Resilience and Service Needs Among African American Caregivers of People With Dementia: A Pilot Mixed-Methods Study

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 353-353
Author(s):  
Heehyul Moon ◽  
Sunshine Rote ◽  
Hallie Decker ◽  
Burton Kelsey ◽  
Chelsea Burton ◽  
...  
Keyword(s):  
African American ◽  
Family Relationships ◽  
Sense Of Self ◽  
Health Care Systems ◽  
Well Being ◽  
Dementia Care ◽  
Service Needs ◽  
Dementia Caregivers ◽  
People With Dementia ◽  
African American Caregivers

Abstract African American caregivers face unique challenges and strengths in addressing the needs of dementia care recipients. The purpose of the current study was to explore the roles of the familism and faith and service preferences and needs for African American dementia caregivers. Through collaborative partnerships among the research team, Alzheimer’s’ Association, Area Agency on Aging, and local churches, we obtained focus group and survey data (N=30) from African American dementia caregivers. Most caregivers were female (90%) and older than 51 years and had provided care more than 3 years. CGs showed strong cultural reasons (e.g., faith, duty, paying back) for providing care (range 0-40;M= 34.5; SD= 5.2). Focus groups data, which was audio taped, transcribed, and analyzed by three researchers using content analysis, revealed three major themes related to dementia care experiences and needs. First, caregivers explained positive aspects of caregiving for both the individual caregiver and family (growth in faith, sense of self -efficacy, feeling of gratefulness). Second, caregivers also described negative aspects that pose substantial challenges such as lack of services, lack of balance in life, family conflicts over care, and mistrust based on their previous experiences with existing health care systems. Third, caregivers described their knowledge of dementia and shared their self-care and coping strategies and a need for support group services. The findings show an urgent need to implement culturally responsive services, especially in undeserved areas and populations, for caregivers to maintain or improve their emotional well-being and quality of care as well as family relationships.

Bedlam or bliss? Recognising the emotional self-experience of people with moderate to advanced dementia in residential and nursing care

2015 ◽  
Vol 16 (4) ◽  
pp. 235-248 ◽  
Author(s):  
Beatrice Godwin ◽  
Fiona Poland
Keyword(s):  
Nursing Care ◽  
Sense Of Self ◽  
Well Being ◽  
Emotional Reactions ◽  
Supplementary Information ◽  
Moral Awareness ◽  
Advanced Dementia ◽  
Content Type ◽  
People With Dementia ◽  
Emotional Capital

Purpose – The purpose of this paper is to examine the self-experience of people with moderate to advanced dementia. While people with dementia are widely assumed to lose their sense of self, emotions are preserved long into dementia and some can still discuss their lives, enabling exploration of respondents’ own self-conceptualisation of experience. Design/methodology/approach – Ten people, purposively sampled, living in long-term residential or nursing care. A mixed methods design with Interpretative Phenomenological Analysis approach used semi-structured empathetic interviews to explore their experience and continuing goals, using supplementary information from family and others to contextualise core data. Data analysis identified emerging themes and superordinate concepts. Findings – Sustained well-being and resistant ill-being emerged as major themes. Findings demonstrated continuity in sense of self, moral awareness and diversity of emotional reactions to living with dementia, associated with their emotional capital. Research limitations/implications – The sample was small and limited to well- and moderately funded care homes. How to provide such support in less-well-funded homes needs further research as do reasons for resistant ill-being in advanced dementia. Practical implications – Findings suggest care provision for people with advanced dementia which acknowledges individual feelings may support their sustained well-being. Psychological assessments should take closer account of multiple factors in individuals’ situations, including their emotional capital. Social implications – Findings suggest everyday care of people with advanced dementia, may sustain their sense of self, well-being and emotional capital. Originality/value – By empathically facilitating in-depth expression of individuals’ feelings and views, this research illuminates the personal self-experience of advanced dementia, hitherto little explored.

scholarly journals Resilience in older people living with dementia – A narrative analysis

Dementia ◽  
2020 ◽  
pp. 147130122092761
Author(s):  
Sarah-Louise Buggins ◽  
Christopher Clarke ◽  
Emma Wolverson
Keyword(s):  
Older People ◽  
Narrative Analysis ◽  
Lived Experiences ◽  
Sense Of Self ◽  
Personal Narratives ◽  
Well Being ◽  
Self Identity ◽  
Positive Attitudes ◽  
People With Dementia ◽  
Dialectical Process

Dominant discourses surrounding dementia tend to focus on narratives of loss and decline. Simultaneously, individuals living with dementia are vulnerable to being dispossessed of personal narratives supportive of identity and well-being. How older people with dementia story their experiences of resilience in this context has not previously been investigated. In response, this qualitative study utilised a narrative approach to understand lived experiences of resilience shared by eight older people living with dementia. Structural analyses indicated that participants’ personal narratives regarding resilience in living with dementia contained distinct and common phases (The Diagnosis, Initial Tasks, 'The High Point', Reflecting on Limitations and Focusing on Today) as well as a variety of dynamic characters. Overarching themes within participants’ narratives included sense of self/identity, being connected to others, sense of agency and having positive attitudes. Participants narrated richer, more active personal stories than those typically represented in dominant social discourses surrounding dementia. As such, their narratives depict lived experiences of resilience that unfolded over time in response to adversity and uncertainty and involved a dialectical process in relation to adjustment and well-being. The findings have important implications for the way resilience in living with dementia is framed and supported.

“I am not a good enough caregiver, and it is my fault”: The complex self-concept of Vietnamese female caregivers in dementia care

Dementia ◽  
2021 ◽  
pp. 147130122199435
Author(s):  
Trang T Nguyen
Keyword(s):  
Social Services ◽  
Secondary Analysis ◽  
Well Being ◽  
Dementia Care ◽  
The Self ◽  
Self Concept ◽  
Structured Interviews ◽  
People With Dementia ◽  
Total Data ◽  
Self Discrepancy

In Vietnam, the majority of dementia caregivers are women. They play multiple social roles, confronting role conflicts, and caregiving burdens with insufficient social supports. Dementia caregiving alters their self-concepts, or who and how good they think they are. This secondary analysis study aims to explore self-concepts of Vietnamese female caregivers of people with dementia. In total, data of 21 face-to-face, semi-structured interviews, including six follow-up interviews, conducted with 13 Vietnamese female caregivers of people with dementia, were drawn from a larger study for analysis following the thematic coding procedure. Results showed that the self-concepts of female caregivers in dementia care were complex, contextualized, and manifested in different aspects. First, the guided self and the performed self emerged from the data as the key themes consistently shared by female caregivers. Their guided self was the self that their social norms and cultural traditions told them about who they should be, while their performed self was the self they demonstrated to the outside world. The mismatch between these two types of self (self-discrepancy) caused distress among caregivers. Second, caregivers’ self-concept was the combination of the three key types of the self: the moral self (a filial daughter or a responsible wife); the feminine self (a patient and graceful women); and the worthy self (a devoted and helpful caregiver). Understanding Vietnamese female caregivers’ self-concepts, self-discrepancy, and its impacts on their well-being can be used to inform the development of interventions and social services for this underserved group.

Using an Existing Data Set to Answer New Research Questions: A Methodological Review

2009 ◽  
Vol 23 (3) ◽  
pp. 203-215 ◽  
Author(s):  
Daniel M. Doolan ◽  
Erika S. Froelicher
Keyword(s):  
Data Analysis ◽  
Research Question ◽  
Secondary Analysis ◽  
Secondary Data ◽  
Secondary Data Analysis ◽  
Data Set ◽  
Research Questions ◽  
Conducting Research ◽  
New Research ◽  
Existing Data

The vast majority of the research methods literature assumes that the researcher designs the study subsequent to determining research questions. This assumption is not met for the many researchers involved in secondary data analysis. Researchers doing secondary data analysis need not only understand research concepts related to designing a new study, but additionally must be aware of challenges specific to conducting research using an existing data set. Techniques are discussed to determine if secondary data analysis is appropriate. Suggestions are offered on how to best identify, obtain, and evaluate a data set; refine research questions; manage data; calculate power; and report results. Examples from nursing research are provided. If an existing data set is suitable for answering a new research question, then a secondary analysis is preferable since it can be completed in less time, for less money, and with far lower risks to subjects. The researcher must carefully consider if the existing data set’s available power and data quality are adequate to answer the proposed research questions.

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