The Importance of Raising Chronic Kidney Disease (CKD) Awareness for Young People and Parents

2014 ◽  
Vol 4 (4) ◽  
pp. 56-70
Author(s):  
Shahid Muhammad ◽  
Barbara Sen
Keyword(s):  
Chronic Kidney Disease ◽  
Social Media ◽  
Kidney Disease ◽  
Young People ◽  
Health Professionals ◽  
Best Practice ◽  
The Internet ◽  
Online Support ◽  
Shared Decision ◽  
Effective Learning

Chronic Kidney Disease (CKD) in young people is complex, with many requiring Renal Replacement Therapy (RRT). Young people may be disenfranchised by perceptions of helplessness and feelings of powerlessness against a backdrop of diminished health, consequently impacting on their capacity for effective coping. Not surprisingly, young people and parents/ guardians seek online support through social media which offers advantages over standard forms of engagement/ education. The claim here is that future clinicians are unable to best practice unless they get more involved in patient-led initiatives and better appreciate how young people with CKD and their parents use the internet/ social media as an effective learning resource. Social media can positively influence young people, parents/ guardians to gather resources, supporting them to develop self-care and enhance shared-decision-making, empowering them to adopt coping strategies. Health professionals should have an understanding of what resources are available to young people and parents/ guardians.

Coping and Transition in Young People With Chronic Kidney Disease (CKD) – Maintaining Best Practice

2019 ◽  
pp. 425-443
Author(s):  
Shahid Muhammad
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Young People ◽  
Coping Strategies ◽  
Best Practice ◽  
Future Research ◽  
Advisory Group ◽  
Care Needs ◽  
Patient Support Group ◽  
Great Ormond Street Hospital

Most young people coping with Chronic Kidney Disease (CKD) know that over time this disease can affect their physical health, lifestyle and psychological wellbeing. Transition services and experiences differ; some young people also have better coping strategies than others. This article explores 1) whether there is a need for a transition reorganization to maintain best practice for young people with CKD and 2) what would make more effective coping and transition research for the future. Three coordinated meetings took place inviting young people to contribute their insights on transition and coping questions. 1) Twelve (12) young people from the Renal Patient Support Group (RPSG) online invited (mean age = 15 years), 2) Nine (9) young people attended a Medicines for Children Research Network (MCRN) Young Person's Advisory Group (YPAG) at the Birmingham Children's Hospital, UK (mean age = 14 years) and 3) Nine (9) from the MCRN YPAG meeting at Great Ormond Street Hospital, London UK (mean age = 15 years). Young people's contribution can be summarized: 1) The ‘rounded experiences' before, during and after transition of young people with CKD are still required, 2) It is important to see if there is an association between positive coping and smoother transition, 3) Need to appreciate care needs to be better integrated for young people ahead of their transition to achieve best practice and 4) Supporting young people with CKD to build aptitudes is important so they become independent and cope with their health. An overall transition guideline and reorganization that factors in coping strategies should be prompted in future research for teams supporting the care for young people to maintain best practice.

Coping and Transition in Young People with Chronic Kidney Disease (CKD) – Maintaining Best Practice

2015 ◽  
Vol 5 (1) ◽  
pp. 30-46
Author(s):  
Shahid Muhammad
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Young People ◽  
Coping Strategies ◽  
Best Practice ◽  
Transition Services ◽  
Research Network ◽  
Advisory Group ◽  
Street Hospital ◽  
Health Lifestyle

Most young people coping with Chronic Kidney Disease (CKD) know that over time this disease can affect their physical health, lifestyle and psychological wellbeing. Transition services and experiences differ; some young people also have better coping strategies than others. This article explores 1) whether there is a need for a transition reorganization to maintain best practice for young people with CKD and 2) what would make more effective coping and transition research for the future. Three coordinated meetings took place inviting young people to contribute their insights on transition and coping questions. 1) Twelve (12) young people from the Renal Patient Support Group (RPSG) online invited (mean age = 15 years), 2) Nine (9) young people attended a Medicines for Children Research Network (MCRN) Young Person's Advisory Group (YPAG) at the Birmingham Children's Hospital, UK (mean age = 14 years) and 3) Nine (9) from the MCRN YPAG meeting at Great Ormond Street Hospital, London UK (mean age = 15 years). Young people's contribution can be summarized: 1) The ‘rounded experiences' before, during and after transition of young people with CKD are still required, 2) It is important to see if there is an association between positive coping and smoother transition, 3) Need to appreciate care needs to be better integrated for young people ahead of their transition to achieve best practice and 4) Supporting young people with CKD to build aptitudes is important so they become independent and cope with their health. An overall transition guideline and reorganization that factors in coping strategies should be prompted in future research for teams supporting the care for young people to maintain best practice.

scholarly journals Integrating Healthcare Education for Best Practice – A Question of which Health Professionals Between Paediatric and adult Chronic Kidney Disease (CKD) Patients – Topic Tagging and what is ‘Deemed’ Clinically Relevant Context – A Qualitative Perspective

2021 ◽  
pp. 1-17
Author(s):  
Muhammad SN ◽  
◽  
Orzechowska K ◽  
Gardener J ◽  
Gardner V ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Support Groups ◽  
Health Professionals ◽  
Best Practice ◽  
Qualitative Data ◽  
Public Involvement ◽  
Patient And Public Involvement ◽  
Long Term Conditions ◽  
Educational Gaps

Education and information seeking is pinnacle for patients with Long-Term Conditions (LTCs) like Chronic Kidney Disease (CKD) to take ownership of health and disease and navigate healthcare between health sectors. Patient and Public Involvement (PPI) are key to help understand gaps in health education. Aims/ Objectives: 1) Involving patients between two support groups to help understand which topics and subjects are pertinent to CKD patients; 2) Involving patients to understand whether, retrospectively there has been an educational neglect in healthcare; and 3) To understand how healthcare and education for CKD patients could be more integrated. Methods: Two PPI workshops were implemented (May and June 2019) after reviewing NIHR INVOLVE best practice guidelines. Fourteen (14) topic tags were applied over 1-month (March and April 2020) between the Renal Patient Support Group (RPSG) (est.2009) and the Kidney Disease and Renal Support (KDARs) (est.2014) for Kids platforms. Ethics: Group disclaimers encouraged informed consent. GDPR (2018) guidelines were implemented to ensure best practice surrounding confidentiality and data protection. Results: Thematic Analysis was used to highlight findings, according to over-arching themes having used Nvivo-12 software to code and help understand where there are healthcare educational inefficiencies. Five themes were identified through this study including 1) Using Different Mediums to Collect Qualitative Data and Understanding Healthcare; 2) Reliability and Validity of using the Internet to Collect Data; 3) Healthcare, Patient and Public Involvement and Maintaining Confidentiality through Online Methods to collect Qualitative Data; 4) Advantages, Disadvantages and Limitations to Online Data Collection and Peer Support Groups and 5) Using Qualitative Methodology to Understand Educational Needs for CKD Patients. Discussion: Wider Allied Health Professionals (AHPs) could increasingly find themselves taking on roles, particularly where involvement is increasingly dependent bridging educational gaps and ‘alleviating misinformation’ through technology and ‘online spaces’. Conclusion: This is the first UK retrospective study that examines educational gaps between online paediatric and adult CKD patients close to two decades (16 years), and highlights where further PPI-focused research would help understand where healthcare requires investment

An Evidence-Based Approach to the Use of Social Media to Promote Political Literacy among Youth in the Sultanate of Oman

2017 ◽  
Vol 8 (2) ◽  
pp. 30-39
Author(s):  
Mohammed Nasser Al-Suqri ◽  
Salim Said AlKindi ◽  
Abdullah Khamis Al-Kindi
Keyword(s):  
Social Media ◽  
Young People ◽  
Best Practice ◽  
Political Conflict ◽  
Evidence Based ◽  
Citizen Engagement ◽  
Sultanate Of Oman ◽  
Political Literacy ◽  
The Government ◽  
Use Of Social Media

This paper presents the findings of a review of literature to understand the issues facing the Sultanate of Oman in this area, and to identify international examples of best practice in the use of social media to promote political literacy among young people. Evidence-based recommendations for the Government of the Sultanate of Oman are developed, which include the provision of social media literacy training at school and university level, as well as the establishment of an online citizen engagement portal. By adopting international best practice in the use of social media to promote political literacy and citizen engagement among young people, it is believed that the Sultanate of Oman can provide a model for other Middle Eastern Arab states, helping to reduce the potential for political conflict in these countries and promoting participatory approaches to policy-making which reflect the growing demands of young citizens.

scholarly journals Physical Exercise in People with Chronic Kidney Disease—Practices and Perception of the Knowledge of Health Professionals and Physical Activity and Sport Science Professionals about Their Prescription

2022 ◽  
Vol 19 (2) ◽  
pp. 656
Author(s):  
Víctor Martínez-Majolero ◽  
Belén Urosa ◽  
Sonsoles Hernández-Sánchez
Keyword(s):  
Physical Activity ◽  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Physical Exercise ◽  
Health Professionals ◽  
Chi Square ◽  
Sport Science ◽  
Ex Post ◽  
Ex Post Facto ◽  
Training Programmes

There is evidence on the need to include physical exercise as a treatment for diseases. A large number of professionals are involved in this, but it is not known how physical exercise is prescribed and which professionals are involved. This research has two objectives: (a) to find out the current practices in Spain regarding the prescription of physical exercise in patients with Chronic Kidney Disease (CKD) and (b) to analyse the perception that different health and physical activity professionals have of their knowledge to prescribe of physical exercise in the treatment of CKD. This is an empirical research with an ex post facto retrospective analysis of the information in a descriptive and correlational way. A total of 692 health and sports professionals participated. A questionnaire validated by a committee of experts was administered. Descriptive analyses were carried out and the differences in the study variables were analysed using Chi-square tests and one-factor Analysis of Variance. From the results obtained, we conclude there is a need to develop specific training programmes in the field of physical exercise for health professionals, as well as the establishment of multiprofessional teams for the prescription of physical exercise in CKD treatment, including physical exercise professionals (Cafyde).

scholarly journals Directed Use of the Internet for Health Information by Patients With Chronic Kidney Disease: Prospective Cohort Study

2013 ◽  
Vol 15 (11) ◽  
pp. e251 ◽  
Author(s):  
Clarissa Jonas Diamantidis ◽  
Wanda Fink ◽  
Shiming Yang ◽  
Marni R Zuckerman ◽  
Jennifer Ginsberg ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Cohort Study ◽  
Kidney Disease ◽  
Health Information ◽  
Prospective Cohort Study ◽  
Prospective Cohort ◽  
The Internet ◽  
Use Of The Internet

scholarly journals Da’wah of Digital Era Applicative Study: Qs. An-Nahl: 125 on Millennial Generation

2019 ◽  
Vol 2 (2) ◽  
pp. 380-391
Author(s):  
Muhammad Raihan Nasution
Keyword(s):  
Social Media ◽  
Young People ◽  
New Media ◽  
Communication Technology ◽  
The Internet ◽  
Research Approach ◽  
Digital Era ◽  
Library Research ◽  
The Media ◽  
Getting Lost

In this digital era, young people are very vulnerable to negative things, therefore Islam as a religion which is rahmatan lil alamin, must take appropriate and fast actions to save young generations of Islam from getting lost in the darkness of cyberspace life. This article is prepared with a library research approach by conducting a literature review and collecting data from various sources and subsequently, the data is analyzed descriptively by presenting facts or findings which are then theoretically reviewed. Therefore da’wah of digital era really must use the media, especially new media. The development of communication technology has changed the way people communicate and interact. Nowadays, almost everyone uses the internet to send, search, and read information. Therefore, the Qur’an Surah An-Nahl: 125 offering da'wah methods of digital era have to be able to attract sympathetic Millennials, presenting representative, interactive and innovative da'wah methods through social media is the best way to save the young generations of Islam in the future.

scholarly journals Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely

2016 ◽  
Vol 3 (1) ◽  
pp. 35-41
Author(s):  
Shahid N Muhammad ◽  
Amy J Zahra ◽  
Howard J Leicester ◽  
Heather Davis ◽  
Stephen Davis
Keyword(s):  
Chronic Kidney Disease ◽  
Social Media ◽  
Kidney Disease ◽  
Long Term Conditions ◽  
The Uk

Prosumers Building the Virtual World

2021 ◽  
pp. 492-517
Author(s):  
Mario Fontanella ◽  
Claudio Pacchiega
Keyword(s):  
Social Media ◽  
Young People ◽  
Mass Media ◽  
Virtual World ◽  
Digital Technologies ◽  
Clear Distinction ◽  
The Internet ◽  
Cooperative Group ◽  
Group Environment ◽  
Exchange Information

With the development of new digital technologies, the internet, and mass media, including social media, it is now possible to produce, consume, and exchange information and virtual creations in a simple and practically instantaneous way. As predicted by philosophers and sociologists in the 1980s, a culture of “prosumers” has been developed in communities where there is no longer a clear distinction between content producers and content users and where there is a continuous exchange of knowledge that enriches the whole community. The teaching of “digital creativity” can also take advantage of the fact that young people and adults are particularly attracted to these fields, which they perceive akin to their playful activities and which are normally used in an often sterile and useless way in their free time. The didactic sense of these experiences is that we try to build a cooperative group environment in which to experiment, learn, and exchange knowledge equally among all the participants.

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