Process, content, and experiences of delivering the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the Danish specialised palliative care setting

2021 ◽  
Author(s):  
Line Lund ◽  
Lone Ross ◽  
Morten Aagaard Petersen ◽  
Elizabeth Rosted ◽  
Georg Bollig ◽  
...  
Keyword(s):  
Palliative Care ◽  
Needs Assessment ◽  
Care Setting ◽  
Assessment Tool ◽  
Support Needs ◽  
Palliative Care Setting ◽  
Carer Support

scholarly journals Barriers and facilitators to implementing the Carer Support Needs Assessment Tool in a community palliative care setting

2019 ◽  
Vol 24 (6) ◽  
pp. 284-290
Author(s):  
Zoe Horseman ◽  
Libby Milton ◽  
Anne Finucane
Keyword(s):  
Palliative Care ◽  
Needs Assessment ◽  
Assessment Tool ◽  
Palliative Care Service ◽  
Barriers And Facilitators ◽  
Support Needs ◽  
Care Nurse ◽  
Increased Risk ◽  
Palliative Care Setting ◽  
Carer Support

Family carers play a central role in community-based palliative care. However, caring for a terminally ill person puts the carer at increased risk of physical and mental morbidity. The Carer Support Needs Assessment Tool (CSNAT) enables comprehensive assessment of carer support needs. The present study aimed to identify barriers and facilitators to implementing the CSNAT in a community specialist palliative care service. Semi-structured interviews with 12 palliative care nurse specialists from two community nursing teams in Lothian, Scotland, June 2017. Data was audio-recorded, transcribed and analysed. Palliative care nurse specialists acknowledge the importance of carers in palliative care and encourage carer support practices. Nurses perceived the CSNAT as useful, but used it as an ‘add-on’ to current practice, rather than as a new approach to carer-led assessment. Further training is recommended to ensure community palliative care nurses are familiar with the broader CSNAT approach.

scholarly journals Reliability, validity and acceptability of the traditional Chinese version of the carer support needs assessment tool in Hong Kong palliative care settings

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Hui-Lin Cheng ◽  
Doris Yin Ping Leung ◽  
Po Shan Ko ◽  
Ming Wai Chung ◽  
Wai Man Lam ◽  
...  
Keyword(s):  
Palliative Care ◽  
Needs Assessment ◽  
Caregiver Burden ◽  
Assessment Tool ◽  
Chinese Version ◽  
Support Needs ◽  
Family Carers ◽  
Carer Support ◽  
Care Practices ◽  
Test Retest Reliability

Abstract Background Among the few existing needs assessment tools for family carers, the 14-item Carer Support Needs Assessment Tool (CSNAT) is the only brief and holistic needs screening tool designed for everyday use in palliative care practices. The aim of this study was to evaluate the reliability, validity, and acceptability of the traditional Chinese version of the CSNAT in palliative care settings in Hong Kong. Methods This adopted a cross-sectional and correlation design with repeated measures. The participants were 125 family carers of palliative cancer patients and 10 healthcare providers (HCPs) that were recruited from two local hospitals. The evaluation of psychometric properties included the following: (1) content validity through HCPs including frontline physicians, nurses, social workers, and clinical psychologists; (2) construct validity between the CSNAT items and those of the validated tools that measured caregiver burden, social support, and caregiving self-efficacy; and (3) one-week test-retest reliability in a sub-sample of 81 caregivers. The acceptability of the tool was assessed by the carers using several closed-ended questions. Results The content validity index of the CSNAT at the scale level was 0.98. Each item of the CSNAT was significantly and moderately correlated with caregiver burden (Spearman’s r = 0.24 to 0.50) and caregiving self-efficacy (r = − 0.21 to − 0.52), but not for social support. All CSNAT items had fair to moderate test-retest reliability (weighted kappa = 0.21 to 0.48), with the exception of two items “managing your relatives’ symptoms, including giving medicines” and “having time for yourself in the day”. Regarding the acceptability of the CSNAT, almost all HCPs were willing to use the CSNAT for carer assessment and support. 89.6% of the carers demonstrated a comprehensibility of the CSNAT tool and 92.9% felt comfortable answering the questions. Around 90% of the carers agreed to use the tool for screening, discussing needs, and making referrals. Conclusion The traditional Chinese version of the CSNAT is a tool with high validity and acceptability and adequate reliability that measures family carers’ support needs, which should be considered for wide application in local palliative care practices.

scholarly journals The Impact of the Carer Support Needs Assessment Tool (CSNAT) in Community Palliative Care Using a Stepped Wedge Cluster Trial

PLoS ONE ◽  
2015 ◽  
Vol 10 (4) ◽  
pp. e0123012 ◽  
Author(s):  
Samar M. Aoun ◽  
Gunn Grande ◽  
Denise Howting ◽  
Kathleen Deas ◽  
Chris Toye ◽  
...  
Keyword(s):  
Palliative Care ◽  
Needs Assessment ◽  
Assessment Tool ◽  
Support Needs ◽  
Stepped Wedge ◽  
Cluster Trial ◽  
Carer Support ◽  
The Impact

How do healthcare workers judge pain in older palliative care patients with delirium near the end of life?

2015 ◽  
Vol 14 (2) ◽  
pp. 151-158 ◽  
Author(s):  
Lucia Gagliese ◽  
Rebecca Rodin ◽  
Vincent Chan ◽  
Bonnie Stevens ◽  
Camilla Zimmermann
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Medical Records ◽  
Healthcare Workers ◽  
Care Setting ◽  
Assessment Tool ◽  
Self Report ◽  
Palliative Care Setting ◽  
Older Cancer Patients ◽  
Nurses And Physicians

AbstractObjective:Pain and delirium are commonly reported in older people with advanced cancer. However, assessing pain in this population is challenging, and there is currently no validated assessment tool for this task. The present retrospective cohort study was conducted to understand how healthcare workers (HCWs; nurses and physicians) determine that older cancer patients with delirium are in pain.Method:We reviewed the medical records of consecutive palliative care inpatients, 65 years of age and above (N= 113), in order to identify patient-based cues used by HCWs to make pain judgments and to examine how the cues differ by delirium subtype and outcome.Results:We found that HCWs routinely make judgments about pain in older patients with delirium using a repertoire of strategies that includes patient self-report and observations of spontaneous and evoked behavior. Using these strategies, HCWs judged pain to be highly prevalent in this inpatient palliative care setting.Significance of results:These novel findings will inform the development of valid and reliable tools to assess pain in older cancer patients with delirium.

14 Enabling tailored and coordinated support for family carers of people with motor neurone disease through adaptation of a carer support needs assessment tool (CSNAT) intervention

2018 ◽  
Vol 8 (3) ◽  
pp. 365.1-365 ◽  
Author(s):  
Gail Ewing ◽  
Sarah Croke ◽  
Christine Rowland ◽  
Gunn Grande
Keyword(s):  
Needs Assessment ◽  
Assessment Tool ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Support Needs ◽  
List Type ◽  
Family Carers ◽  
Carer Support ◽  
Main Support ◽  
Stage 1

IntroductionFamily carers provide vital support for people with Motor Neurone Disease (MND) but caregiving can be very physically and mentally demanding. It is therefore crucial to ensure healthcare practitioners (HCPs) can provide timely support to carers fitting their individual needs. Currently there are no UK interventions for this.AimTo adapt an existing carer support needs assessment tool (CSNAT) intervention to support the needs and situation of family carers of people with MND.MethodsStages:Focus groups and interviews with 33 carers (14 bereaved 19 current carers) to capture support needs key points of change during patient’s illness and main support services.Workshops with HCPs (N=17 recruited to date) and carer advisors (N=19) to inform materials and procedures for MND carer assessment and support.ResultsStage 1: Carers’ experience was one of dealing with a devastating diagnosis a constantly changing situation with heavy dependence on them as carers and with little consideration of their separate support needs. Carers’ support needs mainly mapped onto CSNAT domains but MND carers may experience relationship issues warranting further consideration. Stage 2 will integrate HCP and carers’ views on when where how and by whom MND carer assessment and support should best be provided.ConclusionsFindings to be presented from Stages 1 and 2 will provide insights into how MND carers want to be assessed and supported. This will form the basis for an intervention to be tested in a future Stage 3 feasibility study.FunderMarie Curie Research Fund/Motor Neurone Disease Association

scholarly journals Face and content validity of the Carer Support Needs Assessment Tool (CSNAT), and feasibility of the CSNAT intervention, for carers of patients with chronic obstructive pulmonary disease

2021 ◽  
pp. 174239532199943
Author(s):  
Kerry Micklewright ◽  
Morag Farquhar
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Needs Assessment ◽  
Pulmonary Disease ◽  
Content Validity ◽  
Assessment Tool ◽  
Chronic Obstructive ◽  
Support Needs ◽  
Obstructive Pulmonary Disease ◽  
Carer Support ◽  
The Impact

Objectives Informal carers of patients with Chronic Obstructive Pulmonary Disease (COPD) have unmet support needs. Evidence relating to carers’ support needs in chronic conditions informed version 3 of the Carer Support Needs Assessment Tool (CSNAT) which forms part of an intervention to identify and address carer support needs. Aim of study: to establish the face and content validity of CSNAT v3 for use with COPD carers and explore their views on delivery of the CSNAT Intervention in practice. Methods Focus groups conducted September-October 2019 in non-clinical settings recruited eleven COPD carers (two to six participants per group). COPD patients ( n = 2) attended one group to facilitate carer attendance, the impact of which is discussed. Most participating carers were female ( n = 10); carers’ ages ranged 52–79 years. Results CSNAT v3 was easy to understand and complete, and all 15 domains were considered relevant and appropriate, suggesting good face and content validity. The demeanour, relational skills, and knowledge of the CSNAT facilitator appeared more important to carers than being a certain practitioner type. Discussion COPD carers considered the CSNAT Intervention an acceptable way of identifying and responding to their needs. The intervention could potentially be delivered through a range of services.

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