scholarly journals 247: Evaluation of an educational intervention that supports patient self-management of medications in stable adult outpatients with cystic fibrosis

2021 ◽  
Vol 20 ◽  
pp. S120-S121
Author(s):  
N. Rudawsky ◽  
G. Earl ◽  
L. Matthews ◽  
K. Shah ◽  
R. Griffith
Keyword(s):  
Cystic Fibrosis ◽  
Educational Intervention ◽  
Self Management

scholarly journals Mechanisms of Action of a Web-Based Intervention With Health Professional Support to Increase Adherence to Nebulizer Treatments in Adults With Cystic Fibrosis: Qualitative Interview Study (Preprint)

2019 ◽  
Author(s):  
Sarah J Drabble ◽  
Alicia O'Cathain ◽  
Alexander J Scott ◽  
Madelynne A Arden ◽  
Samuel Keating ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Randomized Controlled Trial ◽  
Behavior Change ◽  
Controlled Trial ◽  
Qualitative Interview ◽  
Mechanisms Of Action ◽  
Self Management ◽  
Randomized Controlled ◽  
Qualitative Interview Study ◽  
Adherence Data

BACKGROUND Adherence to nebulizer treatments in adults with cystic fibrosis (CF) is often low. A new complex intervention to help adults with CF increase their adherence to nebulizer treatments was tested in a pilot randomized controlled trial (RCT) in 2 UK CF centers. Patients used a nebulizer with electronic monitoring capabilities that transferred data automatically to a digital platform (CFHealthHub) to monitor adherence over time and to a tailored website to display graphs of adherence data and educational and problem-solving information about adherence. A trained interventionist helped patients identify ways to increase their adherence. OBJECTIVE This study aims to explore the mechanisms of action underpinning the intervention. METHODS A qualitative interview study was conducted concurrently with a pilot RCT. In total, 25 semistructured interviews were conducted with 3 interventionists at 2 time points, 14 patients in the intervention arm of the trial, and 5 members of the multidisciplinary teams offering wider care to patients. A framework approach was used for the analysis. RESULTS The intervention was informed by a theoretical framework of behavior change. There was evidence of the expected behavior change mechanisms of action. There was also evidence of additional mechanisms of action associated with effective telehealth interventions for self-management support: relationships, visibility, and fit. Patients described how building a relationship with the interventionist through face-to-face visits with someone who cared about them and their progress helped them to consider ways of increasing adherence to medication. Rather than seeing the visibility of adherence data to clinicians as problematic, patients found this motivating, particularly if they received praise about progress made. The intervention was tailored to individuals, but there were challenges in how the intervention fitted into some patients’ busy lives when delivered through a desktop computer. CONCLUSIONS The mechanisms of action associated with effective telehealth interventions for self-management operated within this new intervention. The intervention was modified to strengthen mechanisms of action based on these findings, for example, delivery through an app accessed via mobile phones and then tested in an RCT in 19 UK CF centers. CLINICALTRIAL International Standard Randomized Controlled Trial Number 13076797; http://www.isrctn.com/ISRCTN13076797

scholarly journals Self-management for non-cystic fibrosis bronchiectasis

2017 ◽  
Author(s):  
Carol Kelly ◽  
Sally Spencer ◽  
Seamus Grundy ◽  
Dave Lynes ◽  
David JW Evans
Keyword(s):  
Cystic Fibrosis ◽  
Self Management

scholarly journals Using digital technology for home monitoring, adherence and self-management in cystic fibrosis: a state-of-the-art review

Thorax ◽  
2019 ◽  
Vol 75 (1) ◽  
pp. 72-77 ◽  
Author(s):  
Rebecca Jane Calthorpe ◽  
Sherie Smith ◽  
Katie Gathercole ◽  
Alan Robert Smyth
Keyword(s):  
Cystic Fibrosis ◽  
Digital Technology ◽  
State Of The Art ◽  
Digital Health ◽  
Home Monitoring ◽  
Global Strategy ◽  
Healthcare Sector ◽  
Self Management ◽  
Comprehensive Overview ◽  
Treatment Regimens

Digital healthcare is a rapidly growing healthcare sector. Its importance has been recognised at both national and international level, with the WHO recently publishing its first global strategy for digital health. The use of digital technology within cystic fibrosis (CF) has also increased. CF is a chronic, life-limiting condition, in which the treatment burden is high and treatment regimens are not static. Digital technologies present an opportunity to support the lives of people with CF. We included 59 articles and protocols in this state-of-the-art review, relating to 48 studies from 1999 until 2019. This provides a comprehensive overview of the expansion and evolution of the use of digital technology. Technology has been used with the aim of increasing accessibility to healthcare, earlier detection of pulmonary exacerbations and objective electronic adherence monitoring. It may also be used to promote adherence and self-management through education, treatment management Apps and social media.

scholarly journals Enhancing Asthma Patients' Self-Management through Smartphone-Based Application: Design, Usability Evaluation, and Educational Intervention

2019 ◽  
Vol 10 (05) ◽  
pp. 870-878 ◽  
Author(s):  
Mehrdad Farzandipour ◽  
Ehsan Nabovati ◽  
Marzieh Heidarzadeh Arani ◽  
Hossein Akbari ◽  
Reihane Sharif ◽  
...  
Keyword(s):  
Educational Intervention ◽  
Prescription Drugs ◽  
Positive Impact ◽  
User Interaction ◽  
Usability Evaluation ◽  
Self Management ◽  
Asthma Patients ◽  
Asthma And Allergy ◽  
The Mean ◽  
Therapeutic Tools

Abstract Objective The aim of this study was to design and evaluate a smartphone-based application for improving self-management in patients with asthma and evaluate its effects on their knowledge. Methods In this applied research, based on the Clinical Practice Guideline and a systematic review, a questionnaire was designed to determine the application information content and functionality requirements by 15 pediatric and adult asthma and allergy specialist. Then the application was designed and developed using Adobe Air software on the Android operating system. Usability evaluation of the mobile application was performed using the standard questionnaire for user interaction satisfaction (QUIS), which completed by 30 patients with asthma, 8 information technology (IT) specialists, and 2 asthma and allergy specialists. Self-management knowledge of 30 asthma patients was measured using a researcher-made questionnaire before and after using the application. Results The number of specialists in the both Delphi rounds was 15 and the mean work experiences were 17.6 years. The most important elements for asthma self-management were avoiding exposure to allergen and triggers (96%), drug treatment (94.6%), and how to use the therapeutic tools (92.4%), and the most important functionalities were alerting the patients when they did not control asthma (92%), setting reminders for timely drug use (85.4%) and therapeutic tools (82.6%), recording prescription drugs (82.6%), and peak flow meter values (82%). Usability evaluation showed that 30 patients with asthma, 8 IT specialists, and 2 physicians evaluated the application at a “good” level. The mean score of the patients' knowledge before intervention was 2.43 ± 0.95 which after intervention was significantly increased to 4.3 ± 0.56 (p < 0.001). Conclusion Considering the desirable outcomes of application evaluation and a positive impact of this educational intervention on asthma patients' knowledge, it is possible to use mobile-based self-management programs to help these patients to manage illness and gain knowledge and self-management skills.

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