scholarly journals 287: Adolescent decision-making involvement, social support, and nutritional adherence in adolescents with CF

2021 ◽  
Vol 20 ◽  
pp. S138-S139
Author(s):  
J. Kelleher ◽  
K. Durkin ◽  
J. Crouch ◽  
L. Stark ◽  
C. Lynn ◽  
...  
2011 ◽  
Vol 29 (9) ◽  
pp. 1159-1167 ◽  
Author(s):  
Alberto Alonso-Babarro ◽  
Eduardo Bruera ◽  
María Varela-Cerdeira ◽  
María Jesús Boya-Cristia ◽  
Rosario Madero ◽  
...  

Purpose The purpose of this study was to identify factors associated with at-home death among patients with advanced cancer and create a decision-making model for discharging patients from an acute-care hospital. Patients and Methods We conducted an observational cohort study to identify the association between place of death and the clinical and demographic characteristics of patients with advanced cancer who received care from a palliative home care team (PHCT) and of their primary caregivers. We used logistic regression analysis to identify the predictors of at-home death. Results We identified 380 patients who met the study inclusion criteria; of these, 245 patients (64%) died at home, 72 (19%) died in an acute-care hospital, 60 (16%) died in a palliative care unit, and three (1%) died in a nursing home. Median follow-up was 48 days. We included the 16 variables that were significant in univariate analysis in our decision-making model. Five variables predictive of at-home death were retained in the multivariate analysis: caregiver's preferred place of death, patients' preferred place of death, caregiver's perceived social support, number of hospital admission days, and number of PHCT visits. A subsequent reduced model including only those variables that were known at the time of discharge (caregivers' preferred place of death, patients' preferred place of death, and caregivers' perceived social support) had a sensitivity of 96% and a specificity of 81% in predicting place of death. Conclusion Asking a few simple patient- and family-centered questions may help to inform the decision regarding the best place for end-of-life care and death.


1993 ◽  
Vol 23 (1) ◽  
pp. 10-14 ◽  
Author(s):  
T. Brian Pretorius

The aim of the present study was to identify factors that might have a direct or buffering effect on the stress-burnout relationship. Ninety-four ( N = 94) faculty members of the University of Western Cape, completed instruments developed to measure participation in decision-making, social support, organizational commitment, role conflict and role ambiguity. The results of moderated multiple regression analyses indicated a buffering effect for social support on the stress-emotional exhaustion relationship, a direct effect for participation in decision-making on personal accomplishment as well as a stress-buffering and direct effect for organizational commitment on depersonalization. The results appear to indicate that different factors play a role in each of the components of burnout and that interventions aimed at addressing the problem of burnout need to take this fact into account.


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