scholarly journals COMMUNICATION IN THE CONTEXT OF FAMILY CAREGIVING: AN EXPLORATORY STUDY OF UGANDAN CHILDREN ON ANTIRETROVIRAL THERAPY

2015 ◽  
Vol 48 (5) ◽  
pp. 672-693 ◽  
Author(s):  
P. Kajubi ◽  
Anne R. Katahoire ◽  
David Kyaddondo ◽  
Susan R. Whyte

SummaryIt is important to consider the complexities of family dynamics when deciding when and how to communicate with HIV-infected children about their illness and treatment. Previous research has focused on providers’ and caregivers’ perspectives on whether, when and how to disclose HIV/AIDS diagnosis and treatment to HIV-infected children. From the perspective of HIV-infected children, communication does not mean just giving information about illness and treatment, but also encompasses emotional and material care. This paper places communication within the broader framework of caregiving in family situations. This exploratory study was conducted in Jinja district, Uganda, between November 2011 and December 2012. Through participant observation and in-depth interviews, communication by, and with, HIV-infected children in the context of family situations was explored from the perspectives of 29 HIV-infected children aged 8–17 years on antiretroviral therapy (ART) using content thematic analysis. Children’s communication with caregivers about their illness and treatment varied depending on whom they were living with and the nature of caregiving. Although a mother’s care was considered best, children described others who cared ‘like a mother’. For some, caregiving was distributed among several relatives and non-relatives, while others felt they had hardly anyone to care for them. Caregiving from the children’s perspective involved emotional support, expressed verbally and explicitly in messages of concern, encouragement conveyed in reminders to take medicines, attention when sick and confidential conversations about the challenges of having HIV and taking ART. Caregiving was also communicated implicitly in acts of provision of food/drinks to take with medicines, counting pills to confirm they had taken the medicines and accompanying children to treatment centres. Children’s communication about their health and medicines and the care they received was to a large extent shaped by the nature of their relatedness to their caregivers, the extent to which caregiving was dispersed among several people and who else in the household was infected with HIV and on medication.

Journalism ◽  
2021 ◽  
pp. 146488492199628
Author(s):  
Anja Salzmann ◽  
Frode Guribye ◽  
Astrid Gynnild

Due to the visual turn in journalism and the emergence of mobile journalism, many newspaper journalists have had to change the way they work and learn to use new tools. To face these changes, traditional news organizations apply different strategies to increase staff competencies in using new production tools and creating innovative content in new formats. In this paper, we investigate how a specific training arrangement was experienced by a group of 40 print editors and journalists in a German regional publishing house. The journalists were introduced to audio-visual storytelling and reporting with smartphones in a 2-week training course. The training arrangements were studied using participant observation and in-depth interviews, followed by a thematic analysis of the data. The study indicates that for print journalists and editors, the transition from the print to the mojo mindset depends on three dimensions: (i) mastering mojo skills, (ii) adopting visual thinking and (iii) integrating ethical and legal awareness.


Author(s):  
Catarina Sales Oliveira ◽  
Nuno Amaral Jerónimo

In this chapter, we will offer some reflections on ICT accessibility, uses and perceptions by rural women. Using a sociological conceptual framework based on discussions on gender, ICT gap, and women empowerment (Stromquist, 2014; Mezirow, 2006), we will try to understand, in an innovative way, the available statistical data collected in national and international surveys on this subject; we will also add qualitative data collected in an exploratory study, conducted in a Portuguese rural village. This study was a multi-site ethnographic research project (Falzon & Hall, 2009) with participant observation and in-depth interviews. We analysed the infrastructure conditions and constraints, with the aim of giving a voice to the interviewed women, in order to better understand their representations of ICT and the reasons for their use and non-use. The results allow us to advance some possible paths to mitigate some of the constraints to ICT empowerment among rural women.


2021 ◽  
Vol 2 (4) ◽  
pp. 6228-6245
Author(s):  
Elier Abiud Nieto-Rivas ◽  
Félix Armando Fermín Pérez ◽  
Yoly Marlene Arieta Miranda ◽  
Doris Gerardina Mondragón Silva ◽  
Liliana Atanacio Cuaresmayo ◽  
...  

El liderazgo es un conjunto de tareas y actividades que realiza el líder de una organización con la finalidad de lograr metas establecidas, desarrollándose en diversos entornos como el social, laboral. En este sentido, el liderazgo de los directivos presenta gran interés en el actual contexto de trabajo remoto ocasionado por el Covid-19. En ese contexto, se plantea esta investigación que tiene como propósito aproximarse a las experiencias vividas por el personal directivo de las instituciones de educación de educación superior. El abordaje metodológico se enmarca dentro del enfoque cualitativo bajo un diseño de fenomenológico hermenéutico, en el que se usaron técnicas de observación participante y entrevistas a profundidad. Entre los principales resultados develados se encontró que el soporte emocional combinado con adecuados procesos de reflexión son elementos relevantes para influir positivamente en las instituciones educativas. Se llega a la conclusión que la dirección efectiva del liderazgo directivo depende en gran medida de la convergencia de las opiniones grupales y a delegación de funciones que conllevan a fortalecer el compromiso institucional.   Leadership is a set of tasks and activities carried out by the leader of an organization in order to achieve established goals, developing in various environments such as social, work. In this sense, the leadership of managers is very interested in the current context of remote work caused by Covid-19. In this context, this research is proposed with the purpose of approaching the experiences lived by the directives of higher education institutions. The methodological approach is framed within the qualitative approach under a hermeneutical phenomenological design, in which participant observation techniques and in-depth interviews were used. Among the main results revealed, it was found that emotional support combined with adequate reflection processes are relevant elements to positively influence educational institutions. It is concluded that the effective direction of directive leadership depends to a great extent on the convergence of group opinions and the delegation of functions that lead to strengthening institutional commitment.


2020 ◽  
Vol 8 (4) ◽  
pp. 176
Author(s):  
Jung Hee Lee

Recently research has identified positive dimensions of the caregiving experience. However, there is still a dearth of research into positive aspects of home-based family caregiving for older adults in various cultural contexts. This exploratory study seeks to expand our knowledge in this area by exploring the positive experience of Korean family caregivers who cared for older adults with frailty at home and how they can transform their caregiving experience into positive one despite of many challenges. Eighteen family caregivers were explored through semi-structured in-depth interviews. Participants reported several positive aspects from their home-based elder caregiving experience. The positive aspects were categorized into three groups; relational aspects, personal aspects, and spiritual aspects. Findings indicate that Koran family caregivers of older adults in this study perceive that caregiving experience is challenging but also offers an opportunity for gains.


2019 ◽  
Author(s):  
Mark McCormack

In this article, the author details how 16–18-year-old boys ascribe to the tenets of inclusive masculinity in a U.K. secondary school that the author calls “Standard High.” Drawing on five months of participant observation and twelve in-depth interviews, this article demonstrates that the boys' masculinities are predicated in opposition to the orthodox values of homophobia, misogyny, and aggressiveness. Accordingly, the practices of subordination and marginalization described in hegemonic masculinity theory are not used to regulate masculine behaviors or obtain dominance in this setting. At Standard High, boys ascribing to different masculine archetypes can each maintain high social status. Nonetheless, a social hierarchy still exists. Here, boys are stratified in accordance to a popularity ranking, which is determined by the possession of a matrix of variables: Namely, charisma, authenticity, emotional support, and social fluidity.


Author(s):  
Janouk C. bij de Weg ◽  
Aline K. Honingh ◽  
Marieke Teeuw ◽  
Paula S. Sterkenburg

The new Dutch Care and Coercion Act aims to better regulate the use of psychotropic drugs for challenging behaviour in people with an intellectual disability. This study explores experiences of intellectual disability physicians (IDPs) in prescribing psychotropic drugs and investigates how the Act and the new multidisciplinary guideline on challenging behaviour affects their practice. A qualitative study was conducted, consisting of nine semi-structured in-depth interviews with IDPs, followed by a thematic analysis. It was found that IDPs experienced the new Act and guideline as supportive of their work as guardians of the appropriate use of psychotropic drugs. The multidisciplinary character of the guideline was experienced positively. However, IDPs are faced with organisational barriers and time constraints, as such, they question the feasibility of implementing the Act. Based on these findings, it can be concluded that the Care and Coercion Act may support the existing shift towards the appropriate use of psychotropic drugs if required conditions can be met.


2018 ◽  
Vol 28 (4) ◽  
pp. 475-478 ◽  
Author(s):  
Aya Mostafa ◽  
Heba Tallah Mohammed ◽  
Wafaa Mohamed Hussein ◽  
Mahmoud Elhabiby ◽  
Wael Safwat ◽  
...  

BackgroundAlthough Egypt places four generic pictorial health warnings (PHWs) on the front and back half of waterpipe tobacco packs (WTPs), waterpipe tobacco smoking (WTS) rates have continued to rise. It has been suggested that PHWs would be more salient if placed on the waterpipe device itself. This qualitative study explored how participants perceived the effects placing PHWs on waterpipe devices would have on warning salience and uptake or quitting of WTS.MethodsWe conducted 10 focus groups and 10 in-depth interviews with 90 adult waterpipe smokers and non-smokers, men and women, who lived in rural, semi-urban and urban regions of Egypt. We presented participants with four novel PHWs of different sizes positioned randomly at four locations on a waterpipe device (the glass body, metal holder, mouthpiece or hose), one at a time. At each session, participants viewed a PHW on all four locations. Novel warnings were shown on plain labels with a dark uniform background and featured pictures, text and the quitline number. Transcripts were analysed using thematic analysis.ResultsParticipants thought placing PHWs on waterpipe devices might increase salience, prevent WTS initiation or trigger quit attempts; they favoured placing PHWs on the glass body, mouthpiece or waterpipe hose. Both waterpipe smoker and non-smoker participants thought these potential effects would affect non-smokers or non-established smokers more than established waterpipe users.ConclusionsOur exploratory study suggests that PHWs featured prominently on waterpipe devices could potentially deter experimentation with waterpipe tobacco products and promote cessation, especially among non-established users.


2017 ◽  
Vol 5 (2) ◽  
pp. 107-133 ◽  
Author(s):  
Ruth Kevers ◽  
Peter Rober ◽  
Lucia De Haene

While collective identifications of diasporic Kurds have attracted considerable scholarly interest, their possible role in familial processes of post-trauma reconstruction has hardly been studied. The aim of this article is therefore to develop an explorative understanding of the deployment and meaning of collective identifications in intimate family contexts by examining the interconnectedness between the transmission of cultural and political belonging and post-trauma meaning-making and coping in Kurdish refugee families. After contextualising diasporic Kurds’ collective identifications through an ethnographic depiction of the Kurdish diasporic community in Belgium, this article reports on findings from a small-scale, exploratory study with five Kurdish refugee families in Belgium. Thematic analysis of family and parent interviews indicates how cultural and political identifications may operate as sources of (1) dealing with cultural bereavement and loss; (2) commemorating trauma; and (3) reversing versus reiterating trauma. Overall, this study’s findings support an explorative understanding of collective identifications as meaningful resources in families’ post-trauma reconstruction.ABSTRACT IN KURMANJIRola nasnameyên komelî di pêvajoyên malbatî yên vesazkirina paş-trawmayê de: Xebateke raveker li ser malbatên kurd ên penaber û civakên wan ên dîasporayêTevî ku nasnameyên komelî yên kurdên dîasporayê ta radeyeke baș bûye mijara lêkolînan, rola wan a muhtemel di pêvajoyên malbatî yên vesazkirina (selihandin) paş-trawmayê qet nehatine vekolîn. Lewma armanca vê gotarê ew e têgihiştineke raveker pêş bixe li ser rol û wateya nasnameyên komelî yên di çarçoveya mehremiya malbatê de, ku vê yekê jî dê bi rêya vekolîna wê têkiliya rijd bike ya di navbera neqlkirina aidiyetên çandî-siyasî û rêyên sazkirina wateyê û serederîkirina li dû trawmayê di nav malbatên kurd ên penaber de. Piştî diyarkirina çarçoveya nasnameya komelî ya Kurdên diasporayê bi rêya teswîreke etnografîk a cemaeta diasporaya Kurd li Belçîkayê, ev gotar encamên ji xebateke biçûk a bi pênc malbatên kurd ên penaber ên li Belçîkayê pêşkêş dike. Tehlîla babetî ya hevpeyvînên ligel malbatan û dayik û bavan nîşan dide ka çawa nasnameyên çandî û siyasî dikarin bibin çavkanî ji bo (1) serederîkirina bi mehrûmiyeta çandî û windahiyên xwe; (2) bibîranîna trawmayê; û (3) kêmrengkirin an, beramber vê yekê, dubarekirina trawmayê. Bi giştî, encamên vê xebatê wê têgihiştineke raveker tesdîq dikin ku nasnameyên kolektîf çavkaniyên kêrhatî ne di vesazkirina paş-trawmayê ya malbatan de. ABSTRACT IN SORANIDewrî nasname bekomellekan le prose binemalleyîyekanî sazkirdinewey paş-trawmayîda: lêkollîneweyekî şirovekarî binemalle penabere kurdekan û civatî ewan le diyasporaLe katêkda nasname bekomellekanî kurdekanî diyaspora le layen şarezakanewe giringîyekî berçawî pê drawe û serincî ewanî bo lay xoyî rakêşawe, bellam sebaret be egerî dewrî prose binemalleyîyekanî sazkirdinewey paş-tirawma be degmen lêkollîneweyek encam drawe. Ke wate, amancî em wutare perepêdan be têgeyîştinêkî şirovekarane lemerr bekarhênan û manay nasname bekomellekan le bestênekanî têkellawîy binemalleyîdaye, ke le rêgey peywendîy nêwan rewtî gwastineweyî grêdraweyî kultûrî û siyasî, sazbûnî mana û herweha rahatin legell kêşekanî qonaẍî paş tirawma le binemalle kurde penaberekanda taqî krawetewe. Dway awirrdanewe le civakî diyasporay kurd le Belcîka, nasname bekomellekanî kurdekanî diyaspora le bestênî xoyda xwêndinewey bo krawe û bem gêreye lem wutareda lêkollîneweyekî şirovekarane bo qebareyekî biçûk le pênc binemalley kurdî penaber le Belcîka dekrê û encamekanî billaw dekrêtewe. Şîkarîyekî babetiyaney wutuwêj legell binemalle û dayk û bawkekan nîşanî dedat ke çon dekrê nasname kultûrî û siyasîyekan wek serçaweyek bo em sê mijare derbikewn: (1) gîrodebûn be ledestçûn û bizirbûnî kultûr; (2) webîrhênanewey tirawma; û (3) pêçewanebûnî tirawma leberamber dûbarebûneweyda. Beşêweyekî giştî, encamekanî em lêkollîneweye piştgîrî le têgeyîştinêkî şirovekarane le nasname bekomellekan dekat ke wekû serçaweyekî giring bo sazkirdinewey binemallekan le dway qonaẍî paş-tirawma seyr dekrêt.


Author(s):  
Ronel Sanet Davids ◽  
Mariana De Jager

An estimated 90 per cent of children with a hearing loss are born to hearing parents. Most parents are unprepared for the diagnosis, leaving them shocked, confused, sad and bewildered. This article reports on a study aimed at exploring and describing the experiences of hearing parents regarding their child’s hearing loss. The study was conducted in Cape Town, South Africa. The study applied a qualitative methodology with a phenomenological design. Purposive sampling was implemented and data were collected by means of unstructured in-depth interviews. Data were analysed using thematic analysis. Ethical considerations were adhered to. The main findings of the study indicated that hearing parents experience a myriad of emotions when their child is diagnosed with a hearing loss. This study advocates for various stakeholders in the helping profession to collaborate in the best interest of hearing parents and a child with hearing loss. Furthermore, these findings serve as guidelines for professionals working with these families.


2019 ◽  
Author(s):  
María Jesús Gómez Camuñas ◽  
Purificación González Villanueva

<div><i>Background</i>: the creative capacities and the knowledge of the employees are components of the intellectual capital of the company; hence, their training is a key activity to achieve the objectives and business growth. <i>Objective</i>: To understand the meaning of learning in the hospital from the experiences of its participants through the inquiry of meanings. <i>Method</i>: Qualitative design with an ethnographic approach, which forms part of a wider research, on organizational culture; carried out mainly in 2 public hospitals of the Community of Madrid. The data has been collected for thirteen months. A total of 23 in-depth interviews and 69 field sessions have been conducted through the participant observation technique. <i>Results</i>: the worker and the student learn from what they see and hear. The great hospital offers an unregulated education, dependent on the professional, emphasizing that they learn everything. Some transmit the best and others, even the humiliating ones, use them for dirty jobs, focusing on the task and nullifying the possibility of thinking. They show a reluctant attitude to teach the newcomer, even if they do, they do not have to oppose their practice. In short, a learning in the variability, which produces a rupture between theory and practice; staying with what most convinces them, including negligence, which affects the patient's safety. In the small hospital, it is a teaching based on a practice based on scientific evidence and personalized attention, on knowing the other. Clearly taught from the reception, to treat with caring patience and co-responsibility in the care. The protagonists of both scenarios agree that teaching and helping new people establish lasting and important personal relationships to feel happy and want to be in that service or hospital. <i>Conclusion</i>: There are substantial differences related to the size of the center, as to what and how the student and the novel professional are formed. At the same time that the meaning of value that these health organizations transmit to their workers is inferred through the training, one orienting to the task and the other to the person, either patient, professional or pupil and therefore seeking the common benefit.</div>


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