Health Care Transition Status of Youth and Young Adults in Florida

2007 ◽  
Author(s):  
John Reiss
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Care Transition ◽  
Health Care Transition ◽  
Youth And Young Adults

Survey of US pediatric nurses’ role in health care transition planning: Focus on assessment of self-management abilities of youth and young adults with long-term conditions

2020 ◽  
pp. 136749352095364
Author(s):  
Cecily L Betz ◽  
Jennifer E Mannino ◽  
Jennifer A Disabato
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Transition Planning ◽  
Self Management ◽  
Care Transition ◽  
Long Term Conditions ◽  
Health Care Transition ◽  
Youth And Young Adults ◽  
Nurses Role

The survival rates of youth and young adults (YYAs) diagnosed with long-term conditions have improved considerably as 90% now enter adulthood; health care transition planning (HCTP) has emerged as a nursing practice priority. The aim of this national online survey was to investigate the extent to which nurses, recruited from two major United States pediatric nursing organizations are involved with HCTP including assessing YYA self-management abilities (SMA). Findings of a 9-item assessment of self-management abilities subscale of the nurses’ role in HTCP tool are reported. The nurse respondents ( n = 1269), identified the most frequently assessed SMA was the YYAs’ ability to understand and speak about their condition and its treatment ( M = 2.3, SD = .89). The least frequently assessed was the YYAs’ ability to identify community advocates to help them become more independent ( M =1.5, SD = .90). Regression analysis identified significant predictors of the frequency nurses assess YYA for SMA included nurses’ level of knowledge, perceived level of importance, HCTP and skills identified in job description, and caring for YYA. Findings indicate HCTP care advancements will necessitate HCTP training and development of nurse-led service efforts to facilitate optimal outcomes for YYA.

scholarly journals Improving health care transition and longitudinal care for adolescents and young adults with hydrocephalus: report from the Hydrocephalus Association Transition Summit

2019 ◽  
Vol 131 (4) ◽  
pp. 1037-1045 ◽  
Author(s):  
Michael A. Williams ◽  
Tessa van der Willigen ◽  
Patience H. White ◽  
Cathy C. Cartwright ◽  
David L. Wood ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Health Care Professionals ◽  
Health Care Services ◽  
Care Transition ◽  
Health Care Transition ◽  
Professional Societies ◽  
Consensus Recommendations ◽  
Care Services ◽  
The Us

The health care needs of children with hydrocephalus continue beyond childhood and adolescence; however, pediatric hospitals and pediatric neurosurgeons are often unable to provide them care after they become adults. Each year in the US, an estimated 5000–6000 adolescents and young adults (collectively, youth) with hydrocephalus must move to the adult health care system, a process known as health care transition (HCT), for which many are not prepared. Many discover that they cannot find neurosurgeons to care for them. A significant gap in health care services exists for young adults with hydrocephalus. To address these issues, the Hydrocephalus Association convened a Transition Summit in Seattle, Washington, February 17–18, 2017.The Hydrocephalus Association surveyed youth and families in focus groups to identify common concerns with HCT that were used to identify topics for the summit. Seven plenary sessions consisted of formal presentations. Four breakout groups identified key priorities and recommended actions regarding HCT models and practices, to prepare and engage patients, educate health care professionals, and address payment issues. The breakout group results were discussed by all participants to generate consensus recommendations.Barriers to effective HCT included difficulty finding adult neurosurgeons to accept young adults with hydrocephalus into their practices; unfamiliarity of neurologists, primary care providers, and other health care professionals with the principles of care for patients with hydrocephalus; insufficient infrastructure and processes to provide effective HCT for youth, and longitudinal care for adults with hydrocephalus; and inadequate compensation for health care services.Best practices were identified, including the National Center for Health Care Transition Improvement’s “Six Core Elements of Health Care Transition 2.0”; development of hydrocephalus-specific transition programs or incorporation of hydrocephalus into existing general HCT programs; and development of specialty centers for longitudinal care of adults with hydrocephalus.The lack of formal HCT and longitudinal care for young adults with hydrocephalus is a significant health care services problem in the US and Canada that professional societies in neurosurgery and neurology must address. Consensus recommendations of the Hydrocephalus Association Transition Summit address 1) actions by hospitals, health systems, and practices to meet local community needs to improve processes and infrastructure for HCT services and longitudinal care; and 2) actions by professional societies in adult and pediatric neurosurgery and neurology to meet national needs to improve processes and infrastructure for HCT services; to improve training in medical and surgical management of hydrocephalus and in HCT and longitudinal care; and to demonstrate the outcomes and effectiveness of HCT and longitudinal care by promoting research funding.

scholarly journals Health Care Transition in Young Adults with Type 1 Diabetes: Barriers to Timely Establishment of Adult Diabetes Care

2013 ◽  
Vol 19 (6) ◽  
pp. 946-952 ◽  
Author(s):  
Katharine Garvey ◽  
Howard Wolpert ◽  
Lori Laffel ◽  
Erinn Rhodes ◽  
Joseph Wolfsdorf ◽  
...  
Keyword(s):  
Health Care ◽  
Type 1 Diabetes ◽  
Young Adults ◽  
Diabetes Care ◽  
Care Transition ◽  
Health Care Transition ◽  
Adult Diabetes
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