Ethics of medical research in Aboriginal and Torres Strait Islander populations

2019 ◽  
Vol 25 (5) ◽  
pp. 402 ◽  
Author(s):  
Samantha Bobba
Keyword(s):  
Cultural Values ◽  
Health Research ◽  
Torres Strait Islander ◽  
Healthcare Professionals ◽  
Historical Context ◽  
Negative Stereotypes ◽  
Ethical Implications ◽  
Research Protocols ◽  
Fresh Perspective ◽  
Torres Strait

Conducting ethical health research in Aboriginal and Torres Strait Islander populations requires an understanding of their unique cultural values and the historical context. The assimilation of Indigenous people with the broader community through colonial policies such as the dispossession of land and forcible removal of children from their families in the Stolen Generation, deprived entire communities of their liberty. Poorly designed research protocols can perpetuate discriminatory values, reinforce negative stereotypes and stigmas and lead to further mistrust between the Indigenous community and healthcare professionals. The manuscript offers a fresh perspective and an up-to-date literature review on the ethical implications of conducting health research in Aboriginal and Torres Strait Islander communities.

Aboriginal and Torres Strait Islander community governance of health research: Turning principles into practice

2015 ◽  
Vol 23 (4) ◽  
pp. 235-242 ◽  
Author(s):  
Josephine Gwynn ◽  
Mark Lock ◽  
Nicole Turner ◽  
Ray Dennison ◽  
Clare Coleman ◽  
...  
Keyword(s):  
Health Research ◽  
Torres Strait Islander ◽  
Community Governance ◽  
Torres Strait

Perspectives of my lived experiences for addressing suicides among aboriginal communities in the North Queensland tropics

2020 ◽  
Vol 16 (3) ◽  
pp. 211-219
Author(s):  
Mercy Baird
Keyword(s):  
Indigenous Knowledge ◽  
Cultural Values ◽  
Torres Strait Islander ◽  
Young Person ◽  
James Cook ◽  
Strategic Intent ◽  
The North ◽  
Philosophical Standpoint ◽  
Torres Strait ◽  
The Tropics

This article contextualises my perspectives of Indigenous knowledge within a cultural cosmology, used to address the suicide epidemic in an Indigenous Community in the Far North Queensland Tropics of Australia. I use my personal narrative from the philosophical standpoint theory of an Indigenous female with first-hand experience of living under the residues of the Queensland Government Act (1897). Through the lens of a social constructivist worldview and theoretical underpinnings of Indigenist research, I give honour to Indigenous knowledge, cultural values and privilege the voices of local people. As a PhD researcher at James Cook University, I apply to my research, “Healing after experiencing the suicide of a young person—Aboriginal and Torres Strait Islander perspectives informed by Indigenous Knowledges” with three Aboriginal and Torres Strait Islander Communities. This research also aligns itself to the JCU Strategic Intent, Peoples and Society in the Tropics.

Aboriginal Disadvantage and Collective Moral Responsibility

1997 ◽  
Vol 10 (1) ◽  
pp. 39-52
Author(s):  
Christopher C. Prowse
Keyword(s):  
Moral Responsibility ◽  
Torres Strait Islander ◽  
Collective Responsibility ◽  
Social Structures ◽  
Ethical Implications ◽  
Christian Churches ◽  
Torres Strait

Australia's relationship with its Aboriginal and Torres Strait Islander peoples has changed in recent years. A most positive movement towards reconciliation is growing but not without being continually challenged by entrenched racist attitudes and sinful social structures within the community. This article attempts to offer some ethicaltheological parameters around which this fragile desire for reconciliation might mature. It discusses the results of recent data in the light of the concept of collective responsibility with its corresponding ethical implications. An application of these concepts to the Australian Christian churches is initiated and an overall challenge to all Australians will be suggested.

scholarly journals Culturally Adaptive Governance—Building a New Framework for Equity in Aboriginal and Torres Strait Islander Health Research: Theoretical Basis, Ethics, Attributes and Evaluation

2021 ◽  
Vol 18 (15) ◽  
pp. 7943
Author(s):  
Daniel L.M. Duke ◽  
Megan Prictor ◽  
Elif Ekinci ◽  
Mariam Hachem ◽  
Luke J. Burchill
Keyword(s):  
Health Research ◽  
Theoretical Basis ◽  
Torres Strait Islander ◽  
Indigenous Health ◽  
Health Inequities ◽  
Adaptive Governance ◽  
Research Projects ◽  
Governance Framework ◽  
Torres Strait ◽  
Indigenous Governance

Indigenous health inequities persist in Australia due to a system of privilege and racism that has political, economic and social determinants, rather than simply genetic or behavioural causes. Research involving Aboriginal and Torres Strait Islander (‘Indigenous’) communities is routinely funded to understand and address these health inequities, yet current ethical and institutional conventions for Indigenous health research often fall short of community expectations. Typically, mainstream research projects are undertaken using traditional “top-down” approaches to governance that hold inherent tensions with other dominant governance styles and forms. This approach perpetuates long-held power imbalances between those leading the research and those being researched. As an alternative, Indigenous governance focuses on the importance of place, people, relationships and process for addressing power imbalances and achieving equitable outcomes. However, empowering principles of Indigenous governance in mainstream environments is a major challenge for research projects and teams working within organisations that are regulated by Western standards and conventions. This paper outlines the theoretical basis for a new Culturally Adaptive Governance Framework (CAGF) for empowering principles of Indigenous governance as a prerequisite for ethical conduct and practice in Indigenous health research. We suggest new orientations for mainstream research project governance, predicated on translating theoretical and practical attributes of real-world ethics, adaptive governance and critical allyship frameworks to Indigenous health research. The CAGF is being implemented in a national Indigenous multicenter trial evaluating the use of continuous blood glucose monitors as a new technology with the potential to improve diabetes care and treatment for Indigenous Australians—the FlashGM Study. The CAGF is a governance framework that identifies the realities of power, acknowledges the complexities of culture and emerging health technologies, and foregrounds the principle of equity for mainstream Indigenous health research.

scholarly journals Aboriginal and Torres Strait Islander participation in ethical review of health research

2006 ◽  
Vol 30 (3) ◽  
pp. 291-292 ◽  
Author(s):  
Paul Stewart ◽  
Sanchia Shibasaki ◽  
Ian Anderson ◽  
Priscilla Pyett ◽  
Terry Dunbar ◽  
...  
Keyword(s):  
Health Research ◽  
Torres Strait Islander ◽  
Ethical Review ◽  
Torres Strait
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