Editor's Comment: A Proposed Role for Consumers and the General Public As Consumers of Health Care in Community-wide Genetic Testing

2002 ◽  
Vol 6 (1) ◽  
pp. 23-24 ◽  
Author(s):  
Fred Gilbert
Keyword(s):  
Health Care ◽  
Genetic Testing ◽  
General Public

Impact of Health Perception and Knowledge on Genetic Testing Decisions Using the Health Belief Model

2022 ◽  
Author(s):  
Safa Elkefi ◽  
Avishek Choudhury ◽  
Olga Strachna ◽  
Onur Asan
Keyword(s):  
Health Care ◽  
Genetic Testing ◽  
Cancer Risk ◽  
Health Belief Model ◽  
Health Care Providers ◽  
Health Belief ◽  
Care Providers ◽  
Cancer History ◽  
Belief Model ◽  
The Health Belief Model

PURPOSE Early detection of cancer risk is essential as it is associated with a higher chance of survival, more successful treatment, and improved quality of life. Genetic testing helps at-risk patients estimate the likelihood of developing cancer in a lifetime. This study aims to indentify the factors (perceived susceptibility, severity, benefits, and self-efficacy) that impact one's decision to take the genetic test. METHODS We examined the impacts of different factors of the health belief model on the engagement of patients in genetic testing using data from the National Cancer Institute's 2020 cross-sectional nationally representative data published in 2021. Complete surveys were answered by 3,865 participants (weighted population size = 253,815,197). All estimates were weighted to be nationally representative of the US population using the jackknife weighting method for parameter estimation. We used multivariable logistic regression to test our hypotheses for patients who have taken the genetic test for cancer risk detection. We adjusted the multivariate model for age, education, income, race, sex, cancer history, familial cancer history, and education. RESULTS We tested five hypotheses using the health belief model. Respondents who had genetic testing were more likely to rely on their health care providers and genetic counselors to make their decisions. Respondents who had genetic tests also reported less reliability on other sources than doctors: for the internet and social media (odds ratio = 0.33; P < .001) and for journals and magazines (odds ratio = 0.48; P = .007). CONCLUSION The findings show that patients generally rely on suggestions from their health care providers and counselors in genetic testing decisions. These findings also indicate that health care providers play a critical role in helping patients decide whether to use genetic testing to detect cancer risk in the early stages.

scholarly journals Which BRCA genetic testing programs are ready for implementation in health care? A systematic review of economic evaluations

2016 ◽  
Vol 18 (12) ◽  
pp. 1171-1180 ◽  
Author(s):  
Elvira D’Andrea ◽  
Carolina Marzuillo ◽  
Corrado De Vito ◽  
Marco Di Marco ◽  
Erica Pitini ◽  
...  
Keyword(s):  
Systematic Review ◽  
Health Care ◽  
Genetic Testing ◽  
Economic Evaluations ◽  
Brca Genetic Testing

scholarly journals KNOWLEDGE IMPROVEMENT OF YOUTH ORGANIZATION AND HEALTH’S CADRES OF FIRST AID IN ACCIDENT AT RANGKAH KIDUL VILLAGE

2020 ◽  
Vol 2 (1) ◽  
pp. 1
Author(s):  
Kusuma Wijaya Ridi Putra ◽  
Riesmiyatiningdyah Riesmiyatiningdyah ◽  
Meli Diana ◽  
Agus Sulistyowati ◽  
Faida Annisa ◽  
...  
Keyword(s):  
Health Care ◽  
Community Service ◽  
General Public ◽  
First Aid ◽  
Youth Organization ◽  
First Aid Training ◽  
Training Activities

First Aid Training in Accidents (P3K) in Youth Organization and Health Care Cadres in Rangkah Kidul Village is one form of community service in the form of counseling aimed at increasing the understanding and skills of the general public towards first aid in accidents. The implementation of these activities on December 7, 2019 took place at the Rangkah Kidul Village Hall, Sidoarjo District, Sidoarjo Regency. The target is Youth Organization and Health Cadre of Rangkah Kidul Village, Sidoarjo. Before the activity is carried out, there is a process of compiling the activity for approximately 2 months before the activity is carried out, starting from determining the theme of the training to applying for permission to the parties concerned. As a form of evaluation, the activity was attended by 28 participants consisting of Health Cadres, Youth Organization, Village Officials, Head of RT / RW, and LKMD representatives. Participants participated in the activity with enthusiasm and seemed very enthusiastic, the training activities could run on time and smoothly. Keywords: Training of the first aid in accident, youth organization, health cadre.

scholarly journals Differences in Perceptions of Health Information Between the Public and Health Care Professionals: Nonprobability Sampling Questionnaire Survey (Preprint)

2019 ◽  
Author(s):  
Anat Gesser-Edelsburg ◽  
Nour Abed Elhadi Shahbari ◽  
Ricky Cohen ◽  
Adva Mir Halavi ◽  
Rana Hijazi ◽  
...  
Keyword(s):  
Health Care ◽  
Social Networks ◽  
New Media ◽  
Health Information ◽  
Health Care Professionals ◽  
Questionnaire Survey ◽  
General Public ◽  
The Public ◽  
Search For Information

BACKGROUND In the new media age, the public searches for information both online and offline. Many studies have examined how the public reads and understands this information but very few investigate how people assess the quality of journalistic articles as opposed to information generated by health professionals. OBJECTIVE The aim of this study was to examine how public health care workers (HCWs) and the general public seek, read, and understand health information and to investigate the criteria by which they assess the quality of journalistic articles. METHODS A Web-based nonprobability sampling questionnaire survey was distributed to Israeli HCWs and members of the public via 3 social media outlets: Facebook, WhatsApp, and Instagram. A total of 979 respondents participated in the online survey via the Qualtrics XM platform. RESULTS The findings indicate that HCWs find academic articles more reliable than do members of the general public (44.4% and 28.4%, respectively, P<.001). Within each group, we found disparities between the places where people search for information and the sources they consider reliable. HCWs consider academic articles to be the most reliable, yet these are not their main information sources. In addition, HCWs often use social networks to search for information (18.2%, P<.001), despite considering them very unreliable (only 2.2% found them reliable, P<.001). The same paradoxes were found among the general public, where 37.5% (P<.001) seek information via social networks yet only 8.4% (P<.001) find them reliable. Out of 6 quality criteria, 4 were important both to HCWs and to the general public. CONCLUSIONS In the new media age where information is accessible to all, the quality of articles about health is of critical importance. It is important that the criteria examined in this research become the norm in health writing for all stakeholders who write about health, whether they are professional journalists or citizen journalists writing in the new media.

scholarly journals Varying Opinions on Who Deserves Collectively Financed Health Care Services: A Discrete Choice Experiment on Allocation Preferences of the General Public

2018 ◽  
Vol 55 ◽  
pp. 004695801775198
Author(s):  
Maartje J. van der Aa ◽  
Aggie T. G. Paulus ◽  
Mickaël J. C. Hiligsmann ◽  
Johannes A. M. Maarse ◽  
Silvia M. A. A. Evers
Keyword(s):  
Health Care ◽  
Discrete Choice Experiment ◽  
Discrete Choice ◽  
General Public ◽  
Choice Experiment ◽  
Access To Health Care ◽  
Health Care Services ◽  
Insurance Coverage ◽  
Financial Capacity ◽  
Medical Needs

In Europe, health insurance arrangements are under reform. These arrangements redistribute collectively financed resources to ensure access to health care for all. Allocation of health services is historically based on medical needs, but use of other criteria, such as lifestyle, is debated upon. Does the general public also have preferences for conditional allocation? This depends on their opinions regarding deservingness. The aim of this study was to gain insight in those opinions, specifically by examining the perceived weight of different criteria in allocation decisions. Based on literature and expert interviews, we included 5 criteria in a discrete choice experiment: need, financial capacity, lifestyle, cooperation with treatment, and package/premium choice. A representative sample of the Dutch population was invited to participate (n = 10 760). A total of 774 people accessed the questionnaire (7.2%), of whom 375 completed it (48.4%). Medical need was overall the most important criterion in determining deservingness (range β = 1.60). Perceived deservingness decreased if claimants had higher financial capacity (1.26) and unhealthier lifestyle (1.04), if their cooperation was less optimal (1.05), or if they had opted for less insurance coverage (0.56). However, preferences vary among respondents, in relation to demographic and ideological factors.

Ethical Issues in Genetic Research with Infants

2018 ◽  
pp. 155-171
Author(s):  
Erin Rothwell ◽  
Jeffrey R. Botkin
Keyword(s):  
Health Care ◽  
Genetic Testing ◽  
Ethical Issues ◽  
Genetic Research ◽  
Newborn Health ◽  
Research Use ◽  
Whole Genome ◽  
Use Of Data ◽  
The Impact ◽  
Genetic Results

There are a number of ethical issues raised when newborns participate in research. Two examples include genetic testing, and the storage and research use of biospecimens collected from newborns. This chapter highlights a range of ethical, legal, and social implications with these practices. Examples from retention of residual newborn screening bloodspots, use of biospecimens collected from infants in biomedical research, concerns with the use of whole genome sequencing, and challenges of consent during the newborn period are discussed. These issues are explored within the context of newborns who are healthy or newborns faced with an undiagnosed condition. At this time, more research is needed to understand the impact of genomics on newborn health care, the storage and use of data generated from biospecimens, and how genetic results from newborns impact families. Further challenges around consent and parental permission are also discussed.

scholarly journals PCN158 The Influence of Health Care Policies and Health Care System Distrust on Willingness to Undergo Genetic Testing

2011 ◽  
Vol 14 (7) ◽  
pp. A463
Author(s):  
K. Armstrong ◽  
M. Putt ◽  
C. Hughes halbert ◽  
D. Grande ◽  
J.S. Shwartz ◽  
...  
Keyword(s):  
Health Care ◽  
Genetic Testing ◽  
Health Care System ◽  
Care Policies ◽  
Health Care Policies ◽  
Care System

scholarly journals Oncology Clinic-Based Hereditary Cancer Genetic Testing in a Population-Based Health Care System

Cancers ◽  
2020 ◽  
Vol 12 (2) ◽  
pp. 338 ◽  
Author(s):  
Matthew Richardson ◽  
Hae Jung Min ◽  
Quan Hong ◽  
Katie Compton ◽  
Sze Wing Mung ◽  
...  
Keyword(s):  
Ovarian Cancer ◽  
Health Care ◽  
Genetic Testing ◽  
Population Based ◽  
Gene Panel ◽  
Wait Times ◽  
Genetic Counsellor ◽  
Care Providers ◽  
Cancer Genetic ◽  
Breast And Ovarian Cancer

New streamlined models for genetic counseling and genetic testing have recently been developed in response to increasing demand for cancer genetic services. To improve access and decrease wait times, we implemented an oncology clinic-based genetic testing model for breast and ovarian cancer patients in a publicly funded population-based health care setting in British Columbia, Canada. This observational study evaluated the oncology clinic-based model as compared to a traditional one-on-one approach with a genetic counsellor using a multi-gene panel testing approach. The primary objectives were to evaluate wait times and patient reported outcome measures between the oncology clinic-based and traditional genetic counselling models. Secondary objectives were to describe oncologist and genetic counsellor acceptability and experience. Wait times from referral to return of genetic testing results were assessed for 400 patients with breast and/or ovarian cancer undergoing genetic testing for hereditary breast and ovarian cancer from June 2015 to August 2017. Patient wait times from referral to return of results were significantly shorter with the oncology clinic-based model as compared to the traditional model (403 vs. 191 days; p < 0.001). A subset of 148 patients (traditional n = 99; oncology clinic-based n = 49) completed study surveys to assess uncertainty, distress, and patient experience. Responses were similar between both models. Healthcare providers survey responses indicated they believed the oncology clinic-based model was acceptable and a positive experience. Oncology clinic-based genetic testing using a multi-gene panel approach and post-test counselling with a genetic counsellor significantly reduced wait times and is acceptable for patients and health care providers.

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