scholarly journals A digital self-care intervention for Ugandan patients with heart failure and their clinicians: User-centred design and usability study

Author(s):  
Jason Hearn ◽  
Sahr Wali ◽  
Patience Birungi ◽  
Joseph A. Cafazzo ◽  
Isaac Ssinabulya ◽  
...  

Background: The prevalence of heart failure (HF) is increasing in Uganda. Ugandan patients with HF report receiving limited information about their illness, disease management, or empowerment to engage in self-care behaviors. Interventions targeted at improving HF self-care have been shown to improve patient quality of life and to reduce hospitalizations in high-income countries. However, such interventions remain underutilized in resource-limited settings like Uganda. Objective: To develop a digital health intervention that enables improved self-care amongst HF patients in Uganda. Methods: We implemented a user-centred design process to develop a self-care intervention entitled Medly Uganda. The ideation phase comprised a systematic scoping review and preliminary data collection amongst HF patients and clinicians in Uganda. An iterative design process was then used to advance an initial prototype into a fully-functional digital health intervention. The evaluation phase involved usability testing of the developed intervention amongst Ugandan patients with HF and their clinicians. Results: Medly Uganda is a digital health intervention that is fully integrated within a government-operated mobile health platform. The system allows patients to report daily HF symptoms, receive tailored treatment advice, and connect with a clinician when showing signs of decompensation. Medly Uganda harnesses Unstructured Supplementary Service Data technology that is already widely used in Uganda for mobile phone-based financial transactions. Usability testing showed the system to be accepted by patients, caregivers, and clinicians. Conclusions: Medly Uganda is a fully-functional and well-accepted digital health intervention that enables Ugandan HF patients to better care for themselves. Moving forward, we expect the system to help decongest cardiac clinics and improve self-care efficacy amongst HF patients in Uganda.

2014 ◽  
Vol 62 (2) ◽  
pp. 97-111 ◽  
Author(s):  
Sandra B. Dunbar ◽  
Brittany Butts ◽  
Carolyn M. Reilly ◽  
Rebecca A. Gary ◽  
Melinda K. Higgins ◽  
...  

2012 ◽  
Vol 18 (8) ◽  
pp. S104-S105
Author(s):  
Victoria Vaughan Dickson ◽  
Joan L. Combellick ◽  
Marnie Malley ◽  
Luis Sanchez ◽  
Allison Squires ◽  
...  

2021 ◽  
pp. 109019812110431
Author(s):  
Amanda Whittal ◽  
Isabell Ehringfeld ◽  
Paula Steinhoff ◽  
Oliver Rudolf Herber

There is a rising recognition of the crucial role self-care plays in managing heart failure (HF). Yet patients often have difficulties implementing ongoing self-care recommendations into their daily lives. There is also recognition of the importance of theory for successful intervention design, and understanding of key factors for implementation so interventions fit a given context. Local key stakeholders can provide valuable insights to help understand relevant context-specific factors for intervention implementation. This study sought to engage stakeholders to explore and determine relevant contextual factors needed to design and facilitate successful implementation of an HF self-care intervention in the German health care system. A ranking-type Delphi approach was used to establish consensus from stakeholders (i.e., clinicians, patients, policymakers/potential funders) regarding eight factors (content, interventionist, target group, location, mode of delivery, intensity, duration, and format) to adequately define the components and implementation strategy of the intervention. Seventeen participants were invited to participate in the first Delphi round. A response rate of 94% (16/17) was achieved and maintained for all three Delphi rounds. Stakeholder consensus determined that nurses specializing in HF are the most appropriate interventionists, target groups should include patients and carers, and the intervention should occur in an outpatient HF clinic, be a mixture of group and individual training sessions, and last for 30 minutes. Sessions should take place more frequently in the beginning and less often over time. Local stakeholders can help determine contextual factors that must be taken into account for successful delivery of an intervention. This enables the intervention to be developed and applied based on these factors, to make it suitable for the target context and to enhance participation to achieve the desired outcomes.


2021 ◽  
Author(s):  
Mingzhi Hu ◽  
Hengheng Dai ◽  
Kehua Zhou ◽  
Jingjing Zhang ◽  
Ying Chen ◽  
...  

Abstract Background: Active self-care improves quality of life, lowers hospital readmission risks, and decreases mortality from heart failure. Different self-care intervention models for these patients involve a variety of care contributions from healthcare professionals and caregivers, and little is known about which self-care intervention model is the most effective.Methods: We will search the MEDLINE/PubMed, the Cochrane Library, CINAHL, ClinicalTrials.gov, Embase and PsycINFO databases from January, 2000 to April, 2021. The gray literature will also be searched to ensure randomized controlled trials are included as comprehensively as possible. Summary standardized mean differences and 95% credible intervals will be calculated via Bayesian random-effects network meta-analysis. Heterogeneity will be evaluated, and risk of bias will be assessed using the Cochrane Risk of Bias tool.Discussion: This network meta-analysis will analyze outcomes including quality of life, healthcare use, readmission rate, and mortality to identify the most effective intervention model.Impact: We will analyze self-care interventions and determine which is most effective through this meta‐analysis.Registration number: PROSPERO CRD42021253179


Circulation ◽  
2012 ◽  
Vol 125 (23) ◽  
pp. 2854-2862 ◽  
Author(s):  
Darren A. DeWalt ◽  
Dean Schillinger ◽  
Bernice Ruo ◽  
Kirsten Bibbins-Domingo ◽  
David W. Baker ◽  
...  

2014 ◽  
Vol 20 (8) ◽  
pp. S5
Author(s):  
Carolyn M. Reilly ◽  
Melinda Higgins ◽  
Javed Butler ◽  
Rebecca Gary ◽  
Steven D. Culler ◽  
...  

2020 ◽  
Author(s):  
Sean P. Collins ◽  
Dandan Liu ◽  
Cathy A. Jenkins ◽  
Alan B. Storrow ◽  
Phillip D. Levy ◽  
...  

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