scholarly journals Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e028324
Author(s):  
Shu Ting Au ◽  
Aijia Soong ◽  
Bhone Myint Kyaw ◽  
Lorainne Tudor Car

BackgroundDementia is a debilitating disease that can lead to major changes in a patient’s behaviour and function. It is important to educate both patients with dementia and their non-professional caregivers about the disease. Yet, currently available sources do not seem to be effective for patients and caregivers, who report a need for more information and guidance. A systematic identification of the patients’ and caregivers’ needs for information and information-seeking behaviour is needed to create information resources that are relevant and beneficial to the target population.ObjectivesThis is a protocol for a scoping review aimed at gathering knowledge on the information needs and information-seeking behaviour of patients with dementia and their non-professional caregivers. Our aim was also to provide recommendations for development of future dementia information resources.MethodsThe study will commence in November 2018. Both quantitative and qualitative studies on the information needs of patients with dementia or caregivers will be examined using Arksey and O’Malley’s methodological framework for scoping studies. A comprehensive literature search will be conducted in electronic databases and grey literature sources. We will also screen reference lists of included studies and related systematic reviews for additional eligible studies. Two authors will perform screening of citations for eligibility and independently extract data from the included studies in parallel. Any discrepancies will be resolved through discussion. The findings will be presented through a narrative synthesis and reported in line with PreferredReporting Items for Systematic Reviews and Meta-Analyses reporting guidelines.Ethics and disseminationIn this review, all included data will originate from published literature. Ethics approval is therefore not a requirement. We will present our findings at relevant conferences and will submit them for publication in peer-reviewed journals.

2020 ◽  
Author(s):  
Aijia Soong ◽  
Shu Ting Au ◽  
Bhone Myint Kyaw ◽  
Yin Leng Theng ◽  
Lorainne Tudor Car

Abstract Background: People with dementia often require full-time caregivers especially in the later stages of their condition. People with dementia and caregivers’ access to reliable information on dementia is essential as it may have an important impact on patient care and quality of life. This study aims to provide an overview of the information needs and information seeking behaviour of people with dementia and their non-professional caregivers. Methods: We conducted a scoping review of the literature and searched four electronic databases for eligible studies published up to August 2018. Two reviewers independently screened studies and extracted data. Information needs were classified according to emerging themes in the literature, and information seeking behaviour was categorized using Wilson’s model of information behaviour. Results: Twenty studies with a total of 4,140 participants, were included in this review. Reported information needs focused on: (i) disease; (ii) patient care provision; (iii) healthcare services; and (iv) caregiver self-care. The most commonly reported information need was on healthcare service-related information. Characteristics found to influence information needs were the severity of dementia as well as patient and caregiver status. People with dementia and non-professional caregivers mainly displayed active searching, information seeking behaviour and preferred using electronic sources to obtain health information. Conclusion: Current dementia information sources available in English are extensive in the information they offer, but more emphasis needs to be placed on healthcare service-related information. All studies originated from high income countries and focused on information needs of non-professional caregivers only. The only variables found to be associated to information needs were severity of dementia condition as well as patient/caregiver status. The information needs identified in this review can be used to inform development and design of future dementia resources for people with dementia and their non-professional caregivers.


2014 ◽  
Vol 7 (2) ◽  
pp. 47-60
Author(s):  
Omobolanle Seri Fasola ◽  
Samuel Oladipo Olabode

The diversity in people account for how they seek information and this is what has prompted this study. This paper investigated the Information-Seeking behaviour of students of Ajayi Crowther University, a private university in South Western Nigeria. The survey research method was used and questionnaire administered to five hundred (500) students randomly selected from the three (3) faculties in the university. The data gathered from the questionnaire was analysed using the frequency count and simple percentage. It was discovered that majority of the students (66%) sought information for academic purposes and the library (62.8%) was their preferred place of searching and using information resources. Also, that their course of study (47.6%) influenced the format (55.4%) they want information in. Majority of the respondents (53.2%) also expressed satisfaction with the library for being able to meet their information needs. Recommendations were then made that the library should increase and improve its stock to meet the demands of the students, provide working internet connectivity to enhance ease of electronic search and databases and train its staff in interpersonal relations to improve staff- user relations. And lastly, that periodic user education should be carried out in the library to educate users on effective and efficient use of the library to get maximum satisfaction.


BMJ Open ◽  
2020 ◽  
Vol 10 (7) ◽  
pp. e036937
Author(s):  
Amanda M Midboe ◽  
Caroline Gray ◽  
Hannah Cheng ◽  
Leonore Okwara ◽  
Randall C Gale

IntroductionVulnerable populations face significant challenges in navigating the care continuum, ranging from diagnosis of illness to linkage and retention in healthcare. Understanding how best to move individuals within these vulnerable populations across the care continuum is critical to improving their health. A large body of literature has focused on evaluation of implementation of various health-focused interventions in this population. However, we do not fully understand the unique challenges to implementing healthcare interventions for vulnerable populations. This study aims to examine the literature describing implementation of health service interventions among vulnerable populations to identify how implementations using the Consolidated Framework for Implementation Research are adapted. Findings from this review will be useful to implementation scientists to identify gaps in evidence and for adapting similar interventions in unique settings.Methods and analysisThis study protocol outlines a scoping review of the peer-reviewed and grey literature, using established approaches delineated in Arksey and O'Malley’s scoping review framework and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews Checklist. Search strategies will be developed and refined by a medical librarian in collaboration with the research team. Searches will be conducted in electronic databases (CINAHL, Cochrane, PsychINFO, PubMed, Social Services Abstracts, Web of Science, Google and Google Scholar) and limited to studies published between 1 August 2009 and 1 June 2020. Additionally, hand searches will be conducted in three relevant journals—Implementation Science, Systematic Reviews and BMJ Open. English-language studies and reports meeting inclusion criteria will be screened independently by two reviewers and the final list will be abstracted and charted in duplicate.Ethics and disseminationThis is a review of the literature; ethics approval is not indicated. We will disseminate findings from this study in peer-reviewed journals as well as presentations to relevant stakeholders and conferences.


2019 ◽  
Author(s):  
Aijia Soong ◽  
Shu Ting Au ◽  
Bhone Myint Kyaw ◽  
Yin Leng Theng ◽  
Lorainne Tudor Car

Abstract Background Patients with dementia often require full-time caregivers especially in the later stages of their condition. Patients and caregivers’ access to reliable information on dementia is essential as it may have an important impact on patient care and quality of life. This study aims to provide an overview of the information needs and information seeking behaviour of dementia patients and their caregivers.Methods We conducted a scoping review of the literature and searched four electronic databases for eligible studies published up to August 2018. Two reviewers independently screened studies and extracted data. Information needs were classified according to emerging themes in the literature, and information seeking behaviour was categorized using Wilson’s model of information behaviour.Results Twenty studies with a total of 4,140 participants, were included in this review. Reported information needs focused on: (i) disease; (ii) patient care provision; (iii) healthcare services; and (iv) caregiver self-care. The most commonly reported information need was on healthcare service-related information. Characteristics found to influence information needs were the severity of dementia as well as patient and caregiver status. Dementia patients and caregivers mainly displayed active searching information seeking behaviour and preferred using electronic sources to obtain health information.Conclusion Current dementia information sources available in English are extensive in the information they offer, but more emphasis needs to be placed on healthcare service-related information. All studies originated from high income countries and focused on information needs of caregiver only. The only variable found to significantly influence information needs was severity of dementia condition. The information needs identified in this review can be used to inform development and design of future dementia resources for patients and their caregivers.


2019 ◽  
Author(s):  
Aijia Soong ◽  
Shu Ting Au ◽  
Bhone Myint Kyaw ◽  
Yin Leng Theng ◽  
Lorainne Tudor Car

Abstract Background Patients with dementia often require full-time caregivers especially in the later stages of their condition. Patients and caregivers’ access to reliable information on dementia is essential as it may have an important impact on patient care and quality of life. This study aims to provide an overview of the information needs and information seeking behaviour of dementia patients and their caregivers.Methods We conducted a scoping review of the literature and searched four electronic databases for eligible studies published up to August 2018. Two reviewers independently screened studies and extracted data. Information needs were classified according to emerging themes in the literature, and information seeking behaviour was categorized using Wilson’s model of information behaviour.Results Twenty studies with a total of 4,140 participants, were included in this review. Reported information needs focused on: (i) disease; (ii) patient care provision; (iii) healthcare services; and (iv) caregiver self-care. The most commonly reported information need was on healthcare service-related information. Characteristics found to influence information needs were the severity of dementia as well as patient and caregiver status. Dementia patients and caregivers mainly displayed active searching information seeking behaviour and preferred using electronic sources to obtain health information.Conclusion Current dementia information sources available in English are extensive in the information they offer, but more emphasis needs to be placed on healthcare service-related information. All studies originated from high income countries and focused on information needs of caregiver only. The only variable found to significantly influence information needs was severity of dementia condition. The information needs identified in this review can be used to inform development and design of future dementia resources for patients and their caregivers.


Author(s):  
Daniele Costa ◽  
J. C. Guedes ◽  
J. Santos Baptista

Thermal comfort affects satisfaction in the workplace, which impacts work efficiency and productivity. Since office workers spend most of their working hours performing sedentary tasks, a scoping review is proposed to contextualize how thermal sensation and thermal comfort are experimentally assessed in the scientific literature. This work presents the scoping review protocol for the scoping review. It follows the Preferred Reporting Items for Systematic Reviews and Meta-Analyses for systematic review protocols (PRISMA-P). The scoping review will be elaborated based on the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews (PRISMA-ScR). The scoping review will consider peer-reviewed articles written in English, published or in-press. Grey literature and conference papers will be excluded. Only studies performing the experimental assessment of thermal sensation and thermal comfort of human subjects engaged in sedentary activities within homogeneous environments will be considered suitable for the scoping review. Studies will be retrieved from the Journal Storage (JSTOR), PubMed, Scopus, and Web of Science databases. The search strategy will consist of the use of the expression ("thermal comfort" OR "therm* sensation" OR "thermosensation") AND ("sedentary" or "office work*" or "office task*"). After removing duplicates, the remaining studies will have their title, abstract, and keywords screened. Studies meeting the eligibility criteria will be selected for full-text screening. Data items will be summarized using summary tables, and their reporting will consider the PRISMA-ScR checklist. The scoping review aims to summarize the existing scientific evidence and identify research needs to experimentally assess the thermal sensation and the thermal comfort of subjects performing sedentary tasks.


2021 ◽  
Author(s):  
Carl Heneghan ◽  
Annette Pluddemann ◽  
Elizabeth A Spencer ◽  
Jon Brassey ◽  
Cecilia Rosca ◽  
...  

Abstract Background Vaccine uptake varies substantially, and resources to promote the uptake of vaccines differ widely by country and income level. As a result, immunization rates are often suboptimal. There is a need to understand what works, particularly in low- and middle-income countries and other settings where resources are scarce. Methods: We plan to conduct a scoping review of interventions designed to increase vaccination uptake We will include systematic reviews and meta-analyses of interventional studies that address the question of vaccine uptake. We will search the following electronic databases: MEDLINE, Cochrane Database of Systematic Reviews, EMBASE, Epistemonikos, Google Scholar, LILACs and TRIP database (which covers guidelines and the grey literature) until 01 July 2021 and hand-search the reference lists of included articles. We will include systematic reviews that comprise studies of all ages if they report quantitative data on the impact on vaccine uptake. To assess the quality, we will use a modified AMSTAR score and ate the quality of the evidence in included reviews using the "Grade of Recommendations Assessment, Development and Evaluation" (GRADE). Expected results We intend to present the evidence using summary tables to present the evidence stratified by vaccine coverage, the specific population, e.g., children, adolescents and older adults, and by setting, e.g. healthcare, community. We will also present when low middle-income subgroups are reported.


Pain Medicine ◽  
2021 ◽  
Author(s):  
Daly Geagea ◽  
Zephanie Tyack ◽  
Roy Kimble ◽  
Lars Eriksson ◽  
Vince Polito ◽  
...  

Abstract Objective Inadequately treated pain and distress elicited by medical procedures can put children at higher risks of acute and chronic biopsychosocial sequelae. Children can benefit from hypnotherapy, a psychological tailored intervention, as an adjunct to pharmacological agents to address the multiple components of pain and distress. Despite providing evidence on the effectiveness and potential superiority of hypnotherapy to other psychological interventions, research on hypnotherapy for paediatric procedural pain and distress has been predominantly limited to oncology and needle procedures. Plus, there is a lack of reporting of intervention manuals, factors influencing hypnotic responding, pain unpleasantness outcomes, theoretical frameworks, adverse events, as well as barriers and facilitators to the feasibility of delivering the intervention and study procedures. The proposed review aims to map the range and nature of the evidence on hypnotherapy for procedural pain and distress in children to identify gaps in literature and areas requiring further investigation. Methods This review will follow the Arksey and O'Malley (2005) methodology and incorporate additional scoping review recommendations by The Joanna Briggs Institute and Preferred Reporting Items for Systematic reviews and Meta-Analyses. Relevant studies will be identified through searching published literature databases (PubMed, Cochrane Library, PsycINFO, Embase, CINAHL, Scopus and Web of Science) and grey literature in addition to hand-searching of reference lists and key journals. Two authors will independently screen titles and abstracts of search results followed by full-texts review against eligibility criteria. Conclusion Findings are anticipated to guide future research and inform the development of tailored hypnotic interventions in children.


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