scholarly journals Resilience in advanced cancer caregiving. A systematic review and meta-synthesis

2022 ◽  
pp. 026921632110577
Author(s):  
Sophie Opsomer ◽  
Emelien Lauwerier ◽  
Jan De Lepeleire ◽  
Peter Pype
Keyword(s):  
Family Caregivers ◽  
Advanced Cancer ◽  
Personal Growth ◽  
Mental Health Problems ◽  
Theoretical Framework ◽  
Mental Wellbeing ◽  
Eligibility Criteria ◽  
Hand Search ◽  
Resilience Process ◽  
Cancer Caregiving

Background: Close relatives provide much of the care to people with cancer. As resilience can shield family caregivers from mental health problems, there has been a burgeoning interest in resilience-promoting interventions. However, the evidence necessary for the development of these interventions is scant and unsynthesized. Aim: To create an overall picture of evidence on resilience in cancer caregiving by a theory-driven meta-synthesis. Design: In this systematically constructed review a thematic synthesis approach has been applied. The original findings were coded and structured deductively according to the theoretical framework. Consequently, the codes were organized inductively into themes and subthemes. Data sources: Through September 2019, five electronic databases were searched for qualitative studies on resilience in cancer caregiving. The search was extended by a supplementary hand search. Seventeen studies met the eligibility criteria. Results: The elements of resilience, as described in the pre-defined theoretical framework of Bonanno, are reflected in the lived experiences of family caregivers. The resilience process starts with the diagnosis of advanced cancer and may result in mental wellbeing, benefit finding, and personal growth. The process is influenced by context elements such as individual history, sociocultural background, caregiver characteristics, and the behavior of the supportive network. A repertoire of coping strategies that caregivers use throughout the caregiving process moderates the resilience process. Conclusion: This review and theoretical synthesis reveal key elements of resilience in the process of cancer caregiving, including influencing factors and outcomes. Implications and avenues for further research are discussed.

scholarly journals Family caregiver emotional distress in advanced cancer: the DME-C scale psychometric properties

2020 ◽  
pp. bmjspcare-2020-002608
Author(s):  
Joaquín T Limonero ◽  
Jorge Maté-Méndez ◽  
María José Gómez-Romero ◽  
Dolors Mateo-Ortega ◽  
Jesús González-Barboteo ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
End Of Life ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Emotional Distress ◽  
Family Caregiver ◽  
Screening Tools ◽  
Anxiety And Depression ◽  
The Family ◽  
End Stage

BackgroundFamily caregivers of patients with advanced illness at end of life often report high levels of emotional distress. To address this emotional distress is necessary to have adequate and reliable screening tools.AimThis study analyses the psychometric properties and clinical utility of the Family Caregiver Emotional Detection Scale for caregivers of patients with end-stage cancer (DME-C, Spanish acronym) who are receiving palliative care (PC).DesignMulticentre, cross-sectional study.Settings/participantsFamily caregivers of patients with advanced cancer at end of life receiving palliative treatment were interviewed to explore their emotional distress through the DME-C scale and other instruments measuring anxiety and depression (Hospital Anxiety and Depression Scale (HADS)), distress thermometer (DT) and overload (B), as well as a clinical psychological assessment (CPA).Results138 family caregivers, 85 (61.6%) female and 53 (38.4%) male, with an average age of 59.69±13.3 participated in the study. The reliability of the scale, as measured by Cronbach’s alpha, was 0.76, and its stability over time was 0.734. Positive, significant correlations were found between the DME-C and the scores for anxiety and depression registered on the HADS scale, as well as with the total result of this latter scale and the results for B, the DT and the CPA. A statistical analysis of the receiver-operating characteristic curves showed that the scale has a sensitivity and specificity of 75%, and that the cut-off point for the detection of emotional distress was a score ≥11. Fifty-four per cent of the caregivers displayed emotional distress according to this scale.ConclusionsThe DME-C displays good psychometric properties. It is simple, short, reliable and easy to administer. We believe that the instrument is useful for the detection of emotional distress in the family caregivers of hospitalised patients suffering from end-stage illnesses and receiving PC.

scholarly journals Scoping review of the World Health Organization’s underlying equity discourses: apparent ambiguities, inadequacy, and contradictions

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Michelle M. Amri ◽  
Geneviève Jessiman-Perreault ◽  
Arjumand Siddiqi ◽  
Patricia O’Campo ◽  
Theresa Enright ◽  
...  
Keyword(s):  
Health Equity ◽  
Capabilities Approach ◽  
World Health ◽  
Eligibility Criteria ◽  
Hand Search ◽  
Ovid Medline ◽  
Concept Of Health ◽  
Past Half Century ◽  
The World ◽  
Health Organization

Abstract Background and objective Given the heightened rhetorical prominence the World Health Organization has afforded to equity in the past half-century, it is important to better understand how equity has been referred to and its conceptual underpinning, which may have broader global implications. Eligibility criteria Articles were included if they met inclusion criteria — chiefly the explicit discussion of the WHO’s concept of health equity, for example in terms of conceptualization and/or definitions. Articles which mentioned health equity in the context of WHO’s programs, policies, and so on, but did not discuss its conceptualization or definition were excluded. Sources of evidence We focused on peer-reviewed literature by scanning Ovid MEDLINE and SCOPUS databases, and supplementing by hand-search. Results Results demonstrate the WHO has held — and continues to hold — ambiguous, inadequate, and contradictory views of equity that are rooted in different theories of social justice. Conclusions Moving forward, the WHO should revaluate its conceptualization of equity and normative position, and align its work with Amartya Sen’s Capabilities Approach, as it best encapsulates the broader views of the organization. Further empirical research is needed to assess the WHO interpretations and approaches to equity.

scholarly journals When chemotherapy fails: Emotionally charged experiences faced by family caregivers of patients with advanced cancer

2019 ◽  
Vol 102 (5) ◽  
pp. 909-915 ◽  
Author(s):  
Rachel A. Rodenbach ◽  
Sally A. Norton ◽  
Marsha N. Wittink ◽  
Supriya Mohile ◽  
Holly G. Prigerson ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Advanced Cancer

scholarly journals Evaluating Mental Health and Wellbeing of Postgraduate Researchers: Prevalence and Contributing Factors

2020 ◽  
Author(s):  
Jelena Milicev ◽  
Stephany Biello ◽  
Maria Gardani
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Academic Success ◽  
Online Survey ◽  
Mental Health Problems ◽  
Sleep Problems ◽  
Mental Wellbeing ◽  
Contributing Factors ◽  
Health And Wellbeing ◽  
The Uk

AbstractIntroduction: Recent research has revealed high rates of mental health issues in postgraduate researchers (PGRs). Mental ill-health is a barrier to life satisfaction and academic success. More knowledge is necessary to understand the extent and origins of mental health problems of PGRs in the UK. Aims: To assess the prevalence of anxiety, depression, sleep problems, subjective mental wellbeing, and suicide behaviours of PGRs in the UK, as well as to explore the factors that underpin these outcomes.Methods: An online survey (N=479) was used to measure the mental health outcomes, and assess the influence of demographic, trait and academic variables, and social support. Results: In this sample the prevalence of mental ill-health was high, while wellbeing was lower than in the general population. Female, non-binary and non-heterosexual PGRs had poorer mental health than their male and/or heterosexual counterparts. Researchers in the field of Arts had higher levels of wellbeing, while those in the 5th year of study or above were at a higher risk of suicidal behaviours. Resilience, adaptive perfectionism, social support and positive evaluations of progress and preparation, departmental climate, and supervisory relationship were associated with positive outcomes, while maladaptive perfectionism and workaholism were linked to the negative ones. Resilience and workaholism were the only variables that played a role in all mental health outcomes.Conclusions: The current paper contributes new knowledge about the PGR wellbeing, the prevalence of mental health symptoms, and some of the factors that shape them. Our findings imply that institutional efforts to improve PGR mental health and wellbeing should include a variety of strategies to promote equality, diversity, resilience, integration and work-life balance of PGRs.

scholarly journals Is early integration of palliative home care in oncology treatment feasible and acceptable for advanced cancer patients and their health care providers? A phase 2 mixed-methods study.

2020 ◽  
Author(s):  
Naomi Dhollander ◽  
Tinne Smets ◽  
Aline De Vleminck ◽  
Lore Lapeire ◽  
Koen Pardon ◽  
...  
Keyword(s):  
Home Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Health Care Providers ◽  
Control Group ◽  
Care Providers ◽  
Advanced Cancer Patients ◽  
Palliative Home Care ◽  
Early Integration

Abstract Background: To support the early integration of palliative home care (PHC) in cancer treatment, we developed the EPHECT intervention and pilot tested it with 30 advanced cancer patients in Belgium using a pre post design with no control group. We aim to determine the feasibility, acceptability and perceived effectiveness of the EPHECT intervention.Methods: Interviews with patients (n=16 of which 11 dyadic with family caregivers), oncologists and GPs (n=11) and a focus group with the PHC team. We further analyzed the study materials and logbooks of the PHC team (n=8). Preliminary effectiveness was assessed with questionnaires EORTC QLQ C-30, HADS and FAMCARE and were filled in at baseline and 12, 18 and 24 weeks.Results: In the interviews after the intervention period, patients reported feelings of safety and control and an optimized quality of life. The PHC team could focus on more than symptom management because they were introduced earlier in the trajectory of the patient. Telephone-based contact appeared to be insufficient to support interprofessional collaboration. Furthermore, some family caregivers reported that the nurse of the PHC team was focused little on them.Conclusion: Nurses of PHC teams are able to deliver early palliative care to advanced cancer patients. However, more attention needs to be given to family caregivers as caregiver and client. Furthermore, the home visits by the PHC team have to be further evaluated and adapted. Lastly, professionals have to find a more efficient way to discuss future care.

Quality of life domains important and relevant to family caregivers of advanced cancer patients in an Asian population: a qualitative study

2014 ◽  
Vol 24 (4) ◽  
pp. 817-828 ◽  
Author(s):  
Geok Ling Lee ◽  
Mandy Yen Ling Ow ◽  
Ramaswamy Akhileswaran ◽  
Grace Su Yin Pang ◽  
Gilbert Kam Tong Fan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Asian Population ◽  
Life Domains ◽  
Advanced Cancer Patients
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