scholarly journals The importance of methodology to palliative care research: A new article type for Palliative Medicine

2021 ◽  
pp. 026921632110695
Author(s):  
Jenny T van der Steen ◽  
Melissa J Bloomer ◽  
Sandra Martins Pereira
Keyword(s):  
Palliative Care ◽  
Palliative Medicine ◽  
Care Research ◽  
Article Type

scholarly journals Trends in Pediatric Palliative Care Research (TPPCR) 2019; Issue #5: Commentary on Ekberg et al.

2021 ◽  
Author(s):  
Fariel Rahman ◽  
TPPCR
Keyword(s):  
Palliative Care ◽  
Delphi Study ◽  
Palliative Medicine ◽  
Pediatric Palliative Care ◽  
Care Research ◽  
Paediatric Palliative Care

This TPPCR commentary discusses the 2020 paper by Ekberg et al., “Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care” published in Palliative Medicine.

scholarly journals Erratum

2016 ◽  
Vol 30 (10) ◽  
pp. 986-986
Keyword(s):  
Palliative Care ◽  
Palliative Medicine ◽  
Care Research

Philip J Larkin, Fliss Murtagh, Heather Richardson, Myra Bluebond Langner and Sheila Payne (2016) Collaboration: Securing a future for palliative care research. Palliative Medicine, September 2016 30:8 709–710, doi: 10.1177/0269216316661970 .

scholarly journals A Strategy To Advance the Evidence Base in Palliative Medicine: Formation of a Palliative Care Research Cooperative Group

2010 ◽  
Vol 13 (12) ◽  
pp. 1407-1413 ◽  
Author(s):  
Amy P. Abernethy ◽  
Noreen M. Aziz ◽  
Ethan Basch ◽  
Janet Bull ◽  
Charles S. Cleeland ◽  
...  
Keyword(s):  
Palliative Care ◽  
Palliative Medicine ◽  
Evidence Base ◽  
Cooperative Group ◽  
Care Research

scholarly journals Trends in Pediatric Palliative Care Research (TPPCR) 2019; Issue #9: Commentary on Janvier et al.

2020 ◽  
Author(s):  
Marie-Claude Grégoire ◽  
(TPPCR) Trends in Pediatric Palliative Care Research
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Palliative Medicine ◽  
Mixed Methods Study ◽  
Trisomy 13 ◽  
Pediatric Palliative Care ◽  
Care Research ◽  
Building Trust

This TPPCR commentary discusses the 2019 paper by Janvier et al., “Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study” published in Palliative Medicine.

Tinjauan sistematis: Efektifitas Palliative Home Care untuk Pasien dengan HIV/AIDS

1970 ◽  
Vol 5 (1) ◽  
Author(s):  
Linlin Lindayani ◽  
Nenden Nur Asriyani Maryam
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
Palliative Medicine ◽  
Cochrane Library ◽  
Palliative Home Care ◽  
Hiv Aids

Asuhan palitif untuk pasien dengan HIV/AIDS merupakan elemen inti dari asuhan pasien dengan HIV/AIDS. Asuhan paliatif yang berbasis home care saat ini menjadi elemen penting yang digunakan di berbagainegara. Akan tetapi, tidak ada studi atau tinjauan sebelumnya yang menganalisis efektifitas dari asuhanpaliatif yang berbasis home care pada pasien dengan HIV/AIDS. Tujuan dari tinjauan sistematik ini adalahuntuk mengevaluasi efektivitas Palliative Home Care untuk pasien dengan HIV/AIDS terhadap nyeri,pengendalian gejala, meningkatkan kualitas hidup, meningkatkan kepuasan asuhan, dan efektivitas biaya.Pencarian awal terbatas dilakukan di MEDLINE dan CINAHL. Kedua database tersebut dipilih denganpertimbangan bahwa keduanya merupakan database terbesar di bidang kesehatan dan kedokteran. Kemudiastrategi pencarian lainnya dilakukan pada database lain meliputi: Cochrane Library, UpToDate, Ovid, AIDSCare, Journal of Palliative Care, dan Journal of Palliative Medicine. Studi yang diterbitkan dalam Bahasa Inggrisdan tahun 2000-2016 dipertimbangkan untuk dimasukkan dalam tinjauan ini. Data diekstrak oleh penulis dandiringkas menggunakan alat ekstraksi data dari JBI (Joanna Briggs Institute). Kami menemukan 4 studi yangmasuk kedalam kriteria tinjauan kami, satu studi randomizes control trial dan tiga studi prospectively control.Hasil dari tinjauan ini menunjukkan bahwa Palliative Home Care terbukti efektif dalam mengontol nyeridan gejala-gelaja lain, mempertahankan dan meningkatkan kualitas hidup pasien, tingginya kepuasan daripasien dan kelurga terhadap asuhan Palliative Home Care berkisar 93% - 96% dan lebih cost-effectivenessdibandingkan dengan Hospital-Based Palliative Care. Dengan demikian, penting untuk mengembangkanPalliative Home Care untuk pasien dengan HIV/AIDS terutama untuk negara dengan sumber daya yang terbatas.

scholarly journals Reflective insights from developing a palliative care children and young people’s advisory group

2021 ◽  
pp. 026921632097603
Author(s):  
Anna Roach ◽  
Debbie Braybrook ◽  
Steve Marshall
Keyword(s):  
Palliative Care ◽  
Young People ◽  
Health Research ◽  
School Health ◽  
Public Involvement ◽  
After School ◽  
Advisory Group ◽  
Research Projects ◽  
Children And Young People ◽  
Care Research

Background: The importance of actively involving patient and public members throughout the different stages of palliative care and health research projects is widely acknowledged, however patient and public involvement work rarely considers insight from children and young people. Although this is becoming increasingly recognised in other areas of research, there is currently no structured guidance on how to best involve children and young people in palliative care research. Aim: To plan and deliver a Young People’s Advisory Group in palliative care and health research at a secondary school. Findings: Attending an after-school ‘Health and Social Research Methods Club’ for 11 weeks benefitted children and researchers. Children were taught about data collection methods, data analysis and ethics in health research and used these skills to provide valuable feedback which has been implemented in current palliative care research projects. Children took part in considered discussions around palliative care topics and enjoyed attending the group. Conclusion: This project has equipped researchers with skills and provided a structured template for future Young People’s Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research.

scholarly journals 3 The use of online videoconferencing for focus groups in palliative care research

2021 ◽  
Author(s):  
Rebecca Gemmell ◽  
Alison Allam ◽  
Margaret Perkins ◽  
Joanne Droney
Keyword(s):  
Palliative Care ◽  
Focus Groups ◽  
Care Research
Sign in / Sign up

Export Citation Format

Share Document