scholarly journals Understanding the Lived Experience of Children With Type 1 Diabetes in Kenya: Daily Routines and Adaptation Over Time

2021 ◽  
pp. 104973232110497
Author(s):  
Tom Palmer ◽  
Cynthia Waliaula ◽  
Geordan Shannon ◽  
Francesco Salustri ◽  
Gulraj Grewal ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Focus Group ◽  
Lived Experience ◽  
Diabetes Management ◽  
Structured Interviews ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Daily Routines ◽  
Over Time

Focusing only on biomedical targets neglects the important role that psychosocial factors play in effective diabetes self-management. This study aims to understand the lived experiences of children with Type 1 Diabetes (T1DM) in Kenya. Children ( n = 15) participated in focus group discussions and photo diary data collection. Focus group discussions and semi-structured interviews were also conducted with caregivers ( n = 14). We describe an adaptation to diabetes over time, identifying four overarching themes: knowledge and awareness, economic exclusion, the importance of social support, and striving for normality. Photo diaries are then categorized to explore daily realities of diabetes management. Children with T1DM in Kenya face varied barriers to care but can lead a “normal” and fulfilling life, provided adequate support is in place. To improve the lives of children with diabetes in this context and others like it, stakeholders must take note of children’s experiences and recognize their multidimensional needs.

scholarly journals “It Got Likes, But I Don’t Think People Understood”: A Qualitative Study of Adolescent Experiences Discussing Type 1 Diabetes on Social Media

2020 ◽  
pp. 193229682096558
Author(s):  
Kristen Chalmers ◽  
Mia Smith ◽  
Megan Moreno ◽  
Faisal Malik
Keyword(s):  
Social Media ◽  
Type 1 Diabetes ◽  
Diabetes Management ◽  
Social Consequences ◽  
Structured Interviews ◽  
Daily Lives ◽  
Social Media Engagement ◽  
Social Media Platforms ◽  
Management Advice

Background: The majority of adolescents with type 1 diabetes (T1D) integrate social media engagement into their daily lives. The aim of this study was to explore adolescents’ experiences and perspectives discussing their T1D on social media. Methods: Semi-structured interviews with adolescents with T1D were conducted in person and via telephone. Questions focused on the participant’s experiences utilizing social media to discuss T1D and factors that informed the nature of T1D-related social media engagement. Open coding and thematic content analysis were used to identify emergent themes that aligned with accepted domains of social media affordances. Results: Participants included 35 adolescents with T1D. Adolescents’ experiences related to discussing T1D on social media aligned with four affordances of social media: identity, cognitive, emotional, and social. The identity affordances of social media platforms allowed adolescents to curate online personas that selectively included their diagnosis of T1D, while managing the potential negative emotional and social implications linked to the stigma of T1D. Adolescents who decided to discuss T1D on social media leveraged cognitive affordances by providing and receiving diabetes management advice, emotional affordances by obtaining affirmation from peers, and social affordances by extending their network to include other individuals with T1D. Conclusions: Adolescents with T1D flexibly leverage the affordances offered by social media to access emotional support, information, and identity affirmation resources while navigating stigma-based social consequences. Our findings highlight the value of developing tools to support adolescents with T1D in comfortably discussing and receiving appropriate support about T1D on social media.

scholarly journals Factors Shaping Uptake of Antenatal Care in Surabaya Municipality, Indonesia: A Qualitative Study

2021 ◽  
Vol 16 (3) ◽  
Author(s):  
Lisa Jones ◽  
Nyoman Anita Damayanti ◽  
Nicola Wiseman ◽  
Neil Harris
Keyword(s):  
Focus Group ◽  
Antenatal Care ◽  
Pregnant Women ◽  
Urban Areas ◽  
Waiting Times ◽  
Structured Interviews ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Risk Pregnancy ◽  
Return Visits

Five focus group discussions (FGDs) with 61 pregnant women were conducted in June and July 2019 at primary health care (PHC) services within five urban areas of Surabaya, Indonesia. In addition, five semi-structured interviews with five midwives were carried out to explore the experiences of pregnant women accessing Antenatal Care (ANC) and the factors shaping uptake of ANC services. Data were audio-recorded, transcribed, and translated into English, and analyzed using thematic analysis. Findings from focus group discussions suggested that fears of negative diagnosis before initial ANC appointment and personal beliefs and myths surrounding pregnancy may delay uptake of ANC. Further, the influence of husbands, family, and friends and long waiting times with overcrowding leading to limited seating shaped timely access and return visits. In addition, feeling comfortable with the quality of the service and receiving a friendly service from the practitioners assisted women in feeling comfortable to return. Finally, midwives acknowledged feeling afraid of being referred to a hospital if deemed a high-risk pregnancy-shaped return ANC visits. The findings highlighted several factors needing to be addressed to increase the promptness of first ANC visits and ensure return visits to achieve great ANC coverage.

scholarly journals HIGH SCHOOL LEARNERS’ EXPERIENCES OF GANGSTERISM IN HANOVER PARK

2016 ◽  
Vol 28 (1) ◽  
pp. 69-84 ◽  
Author(s):  
Mufaro Magidi ◽  
Rinie Schenk ◽  
Charlene Erasmus
Keyword(s):  
South Africa ◽  
High School ◽  
Focus Group ◽  
School Attendance ◽  
Community Life ◽  
Western Cape ◽  
Structured Interviews ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Exploratory Approach

The culture of gang violence has become deeply entrenched in South Africa. The present study explored the experiences of non-gang school-going adolescents regarding gangs and gangsterism in Hanover Park in the Western Cape. A qualitative exploratory approach was used. Data collection instruments were focus group discussions supported by qualitative semi-structured interviews involving 18 adolescents between the ages of 16 and 18 from two secondary schools in Hanover Park, Cape Town. The data were thematically analysed. The results have shown that the presence of gangs affects the learners’ school attendance, restricts their mobility, increases bullying at school and seriously disrupts family and community life.

scholarly journals GAMBARAN DUKUNGAN SOSIAL DARI GURU YANG DIRASAKAN OLEH SISWA SMA “X”

2019 ◽  
Vol 6 (02) ◽  
pp. 77-86
Author(s):  
Anisah Aninditya Rahmaputri ◽  
Dianti Endang Kusumawardhani
Keyword(s):  
Social Support ◽  
High School ◽  
Focus Group ◽  
School Engagement ◽  
Perceived Social Support ◽  
Group Discussion ◽  
Data Retrieval ◽  
Structured Interviews ◽  
Focus Group Discussions ◽  
Group Discussions

Teachers have an important role in educating students well. One way that teachers can do to be able to increase motivation and school engagement is by providing social support to students. This study aims to find out the overview of perceived social support from teachers by high school “X” students in South Tangerang. The research method is descriptive qualitative research with data collection techniques through focus group discussions and structured interviews. The results of data retrieval show that the perceived social support from some teachers by high school "X" students is quite satisfying for students but not from every teachers. This means it can still be improved again. This is because not all teachers are considered good enough at providing social support to students. The total number of teachers are 17 people and for students are 67. It should be able to be improved in communication skills so that they can provide better social support to students. Keywords : Adolescent, School, Social support. Abstrak Guru memiliki peran penting dalam mendidik siswa dengan baik. Salah satu cara yang dapat guru lakukan untuk dapat meningkatkan motivasi serta keaktivan siswa di sekolah adalah dengan memberikan dukungan sosial kepada siswa. Penelitian ini bertujuan untuk mencari tahu gambaran dukungan sosial dari guru yang dirasakan oleh siswa SMA “X” di Tangerang Selatan. Metode penelitian berupa penelitian kualitatif deskriptif dengan teknik pengambilan data melalui focus group discussion dan wawancara terstruktur. Hasil pengambilan data menunjukkan bahwa gambaran dukungan sosial dari guru yang dirasakan oleh siswa SMA “X” cukup memuaskan bagi siswa tetapi masih dapat ditingkatkan lagi. Hal ini dikarenakan belum semua guru dianggap sudah bagus dalam memberikan dukungan sosial kepada siswa. Total guru yang berjumlah 17 orang untuk siswa sebanyak 67 orang seharusnya dapat ditingkatkan dalam kemampuan komunikasi sehingga mampu memberikan dukungan sosial kepada siswa dengan lebih baik lagi.

scholarly journals Self-care support for the management of type 1 diabetes during the transition from childhood to adolescence

2018 ◽  
Vol 52 (0) ◽  
Author(s):  
Neusa Collet ◽  
Annanda Fernandes de Moura Bezerra Batista ◽  
Vanessa Medeiros da Nóbrega ◽  
Maria Helena do Nascimento Souza ◽  
Leiliane Teixeira Bento Fernandes
Keyword(s):  
Type 1 Diabetes ◽  
Health Care Professionals ◽  
Diabetes Management ◽  
Self Care ◽  
Family Health ◽  
Lifestyle Changes ◽  
Self Awareness ◽  
Structured Interviews ◽  
Care Support

ABSTRACT Objective: To analyze the needs of pre-adolescents with type 1 diabetes regarding self-care support for disease management. Method: Qualitative study conducted between October and December 2016 with pre-adolescents seen at a hospital outpatient clinic and at Family Health Units; semi-structured interviews were used. Data were analyzed using a thematic analysis based on the theoretical basis of self-care support. Results: Nine pre-adolescents participated in the study. It was identified that in order to build self-efficacy, pre-adolescents need to overcome the disease denial phase, know how to handle feelings triggered by the need for lifestyle changes, receive support from their families and social networks, and have the self-awareness and self-perception needed to feel secure in managing their diabetes. Conclusion: The intrinsic challenges of adolescence and the way pre-adolescents with diabetes handle the disease have an influence on diabetes management and create needs that must be appreciated by health care professionals in order to provide self-care support.

Barriers to the Uptake of Cataract Surgery

1998 ◽  
Vol 28 (4) ◽  
pp. 218-220 ◽  
Author(s):  
J G Johnson ◽  
V Goode Sen ◽  
H Faal
Keyword(s):  
Focus Group ◽  
Low Vision ◽  
Structured Interviews ◽  
Eye Care ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Care Programme ◽  
Knowledge And Attitudes ◽  
Lack Of Information ◽  
Transfer Of Information

In The Gambia many patients identified as blind or as having low vision are not attending for surgery. The aim of this study was to investigate the reasons for non-attendance. Three methods were used: semi-structured interviews; focus group discussions; and written questionnaires completed by staff. The most frequently identified barrier by all three methods was cost, closely followed by lack of information about services, fear, transport difficulties, and the lack of an escort. In addition to the existing measures taken by the National Eye Care Programme (NECP) to reduce these barriers, further research into both the public's knowledge and attitudes regarding surgery for cataract is needed. More contact between members of the eye care programme and the communities would aid the transfer of information about the surgery.

scholarly journals Adolescent Perspectives on the Use of Social Media to Support Type 1 Diabetes Management: Focus Group Study

10.2196/12149 ◽  
2019 ◽  
Vol 21 (6) ◽  
pp. e12149 ◽  
Author(s):  
Faisal S Malik ◽  
Neil Panlasigui ◽  
Jesse Gritton ◽  
Harsimrat Gill ◽  
Joyce P Yi-Frazier ◽  
...  
Keyword(s):  
Social Media ◽  
Type 1 Diabetes ◽  
Focus Group ◽  
Diabetes Management ◽  
Focus Group Study ◽  
Use Of Social Media

scholarly journals Male Perceptions Toward the Cultural Practice of Chinamwali/Khomba Among the Mahenye

2019 ◽  
Vol 19 (1) ◽  
pp. 25-40
Author(s):  
Maheshvari Naidu ◽  
William Muc hono
Keyword(s):  
Focus Group ◽  
Role Theory ◽  
Social Role ◽  
Cultural Practice ◽  
Body Politics ◽  
Structured Interviews ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Cultural Texts ◽  
Male Perceptions

This exploratory and descriptive article explores male perceptions toward the cultural practice of chinamwali/khomba among the Shangaan of the Mahenye community of Chipinge district in Zimbabwe. Chinamwali/khomba is the cultural practice of female initiation among the Mahenye people. The article draws on narratives of men from interviews and focus group discussions and describes khomba/chinamwali as a central aspect of (female) body politics in the Mahenye community, where the female practice of chinamwali marks the entrance into so-called ‘womanhood’ [sic]. The men’s sexually gendered narratives reveal how the women’s bodily sexual enactments become ‘cultural texts’ prescribed and inscribed by (male) societal perceptions and social (sexual) interactions. Semi-structured interviews and focus group discussions were carried out with 40 men from the community. Social role theory was the lens which was used to analyse these dynamics. Emergent findings reveal that the men of the community compel an overtly patriarchal agenda by encouraging and compelling women to be initiated.

scholarly journals Female Principals in Education: Breaking the Glass Ceiling in Spain

2016 ◽  
Vol 26 (65) ◽  
pp. 343-350 ◽  
Author(s):  
Enrique Javier Diez Gutierrez
Keyword(s):  
Focus Group ◽  
Leadership Roles ◽  
Autobiographical Narratives ◽  
Structured Interviews ◽  
Leadership Positions ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Female Principals ◽  
Female Teachers ◽  
Structural Aspects

Abstract Spanish schools are characterised by having a high proportion of female staff. However, statistics show that a proportionately higher number of men hold leadership positions. The aim of this study was to analyse the reasons why this is so, and to determine the motivations and barriers that women encounter in attaining and exercising these positions of greater responsibility and power. Questionnaires were administered to 2,022 female teachers, 430 female principals and 322 male principals. In addition, semi-structured interviews were held with 60 female principals, 14 focus group discussions were held with female principals and 16 autobiographical narratives were compiled with female principals and school inspectors. The reasons identified were related to structural aspects linked to the patriarchal worldview that is still dominant in our society and culture. Nevertheless, we also found motivations among women for attaining and exercising leadership roles.

Perception of Barriers to Self-care Management Among Diabetic Patients

2009 ◽  
Vol 35 (5) ◽  
pp. 778-788 ◽  
Author(s):  
Julie A. Gazmararian ◽  
David C. Ziemer ◽  
Catherine Barnes
Keyword(s):  
Focus Group ◽  
Low Income ◽  
Diabetes Management ◽  
Lifestyle Changes ◽  
School Level ◽  
Self Management ◽  
Diabetic Patients ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Patients With Diabetes

Purpose The purpose of this study was to explore individual, educational, and system barriers that limit low-income diabetes patients’ ability to achieve optimal diabetes self-management. Methods Economically disadvantaged patients with diabetes who used the Diabetes Clinic of Grady Health System in Atlanta, Georgia, participated in 3 focus group discussions. Results The discussions were held with mostly African Americans (n = 35) to explore barriers to achieving optimal diabetes self-management. Most participants were not married, approximately one-third had less than high school level reading skills, and 40% were not currently working. In terms of individual barriers, the emotional toll from the diagnosis of and lifestyle changes to treat diabetes was a recurrent theme, and included stress, frustration, social isolation, interpersonal conflicts, depression, and fear. Denial was often mentioned as the key factor that inhibited adherence to a healthy mode of living. The educational barriers were failure to recognize the risks and consequences of an asymptomatic condition. Many participants did not understand A1C. Finally, several system barriers were identified. The participants identified needed services, including follow-up and refresher courses, support group discussions, nutrition and medication education, availability of different education modalities, and expanded clinic hours. Conclusions The focus group discussions identified both barriers to diabetes management and opportunities for improving care for underserved patients with diabetes. The results are useful to improve the delivery of care and to develop quantitative studies to explore particular areas of interest. Based on these results, the current system needs to provide more support and education to patients with diabetes.

Sign in / Sign up

Export Citation Format

Share Document