Help Me Understand: Providing Palliative Care to Individuals With Serious Mental Illness

2021 ◽  
pp. 104990912110107
Author(s):  
Kate L. M. Hinrichs ◽  
Cindy B. Woolverton ◽  
Jordana L. Meyerson
Keyword(s):  
Mental Illness ◽  
Palliative Care ◽  
End Of Life ◽  
Serious Mental Illness ◽  
End Of Life Care ◽  
Psychosocial Support ◽  
Life Care ◽  
Case Examples ◽  
Increased Risk ◽  
Palliative Care Teams

Individuals with serious mental illness (SMI) have shortened life expectancy with increased risk of developing comorbid medical illnesses. They might have difficulty accessing care and can be lost to follow-up due to complex socioeconomic factors, placing them at greater risk of dying from chronic or undiagnosed conditions. This, in combination with stigma associated with SMI, can result in lower quality end-of-life care. Interdisciplinary palliative care teams are in a unique position to lend assistance to those with SMI given their expertise in serious illness communication, values-based care, and psychosocial support. However, palliative care teams might be unfamiliar with the hallmark features of the various SMI diagnoses. Consequently, recognizing and managing exacerbations of SMI while delivering concurrent palliative or end-of-life care can feel challenging. The goal of this narrative review is to describe the benefits of providing palliative care to individuals with SMI with concrete suggestions for communication and use of recovery-oriented language in the treatment of individuals with SMI. The salient features of 3 SMI diagnoses—Bipolar Disorders, Major Depressive Disorder, and Schizophrenia—are outlined through case examples. Recommendations for working with individuals who have SMI and other life-limiting illness are provided, including strategies to effectively manage SMI exacerbations.

scholarly journals Ethico-legal issues in relation to end-of-life care and institutional mental health

2006 ◽  
Vol 30 (3) ◽  
pp. 286 ◽  
Author(s):  
Pam D McGrath ◽  
Kim Forrester
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Palliative Care ◽  
End Of Life ◽  
Serious Mental Illness ◽  
End Of Life Care ◽  
Legal Issues ◽  
Life Care ◽  
Health Institution ◽  
Mental Health Institution

Objectives: In view of the fact that there is a higher mortality rate for individuals with serious mental illness and that people with mental illness suffer excess mortality due to physical illness, the lack of attention to end-of-life care for patients with a serious mental illness needs addressing. This article seeks to put these issues on the agenda by beginning to explore important ethico-legal issues at the interface of palliative care and institutional mental health. Methods: Data were collected from eight qualitative interviews conducted with mental health professionals at The Park, Centre for Mental Health, Queensland. The interviews were recorded verbatim, coded and thematically analysed. Results: The findings highlight the inherent tension at the interface of compassionate, patientcentred end-of-life care and the participants? perception of the legal restraints imposed by virtue of being in a mental health institution. This article examines the participants? perceptions of the legal restraints curtailing the provision of palliative care in a mental health institution and considers these findings within an understanding of the limitations imposed by law. Our hope and expectation in undertaking this exploration is to clarify the legal limitations that operate to restrict the type of end-of-life care that can be offered to mental health patients, in order to provide an informed basis for practice.

End-of-life care for patients with mental illness and personality disorders

2015 ◽  
pp. 618-627 ◽  
Author(s):  
Betty D. Morgan
Keyword(s):  
Decision Making ◽  
Mental Illness ◽  
Palliative Care ◽  
Personality Disorders ◽  
End Of Life ◽  
Serious Mental Illness ◽  
Mentally Ill ◽  
End Of Life Care ◽  
Ethical Issues ◽  
Life Care

This chapter examines what is known about palliative care and the mentally ill, including those with serious mental illness (SMI) and personality disorders (PDs). Special issues related to communication and treatment are presented as well as strategies for care for this population. Ethical issues including capacity and competency for decision-making as it relates to those with SMI and end-of-life care are also discussed. Collaboration and consultation between providers is essential in providing end-of-life care for those with SMI.

Palliative Care at the End of Life

2006 ◽  
Author(s):  
David J. Bearison
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Assisted Suicide ◽  
Psychosocial Support ◽  
Symptom Control ◽  
Life Care ◽  
Curative Intent ◽  
The Board Of Directors ◽  
Life Decisions

Consider the following advice given to parents whose children are dying in hospitals: “If your child has to die, he can die peacefully. You can make sure he is free of pain. You can make sure that everyone has a chance to say good-bye” (Hilden & Tobin, 2003, p. 3). To offer parents this kind of unconditional assurance (i.e., “You can make sure . . . ”) dismisses the confusing and disturbing realities of actually having to care for a child when it becomes increasingly apparent that curative intent is failing and staff begin to question how best to proceed. The complexity of symptom control in various clinical conditions sometimes precludes children from having peaceful deaths. However, when you read findings from the few palliative care studies that exist (and there are few that consider children as participants), issues of pain management and psychosocial support at the end of life do not seem to be so difficult to resolve. These findings promote ideas that, when satisfactory end-of-life care is not achieved, it is because mistakes were made, staff were inadequately trained, and children thereby were made to suffer unnecessarily. Such ways of thinking in turn lead bereft parents to feel guilty at not having empowered themselves to have taken greater control in the care of their child and to have done the right thing for their child. Although mistakes occur, staff can be better trained, and children might unnecessarily suffer, there are very few guarantees of a comfortable way of dying from medical causes. Most textbooks and studies about end-of-life care simply ignore the messy realities and uncertainties, particularly as they pertain to children and their families. The Report to the Board of Directors of the American Psychological Association from its Working Group on Assisted Suicide and End-of-Life Decisions (2003) raised a clarion call to document publicly what it is like, in practical day-by-day terms, for people who die in hospitals and how it affects endof- life decisions for the staff, patients, and families. We all prefer to die quickly, without protracted suffering and pain and without humiliation. Deaths during sleep are particularly preferred.

scholarly journals End-of-Life Care in Individuals With Serious Mental Illness

2020 ◽  
Vol 61 (5) ◽  
pp. 428-435
Author(s):  
Daniel Shalev ◽  
Lauren Fields ◽  
Peter A. Shapiro
Keyword(s):  
Mental Illness ◽  
End Of Life ◽  
Serious Mental Illness ◽  
End Of Life Care ◽  
Life Care

scholarly journals Do Palliative Care Teams in Nursing Homes Improve the Quality of End-of-Life Care for Nursing Home Residents?

2019 ◽  
Author(s):  
Helena Temkin-Greener Helena Temkin-Greener ◽  
Dana Mukamel ◽  
Susan Ladwig ◽  
Thomas , Caprio ◽  
Sally Norton ◽  
...  
Keyword(s):  
Palliative Care ◽  
Nursing Home ◽  
Nursing Homes ◽  
End Of Life ◽  
End Of Life Care ◽  
Nursing Home Residents ◽  
Life Care ◽  
Palliative Care Teams

Palliative Care: Nicht erst am Lebensende – eine praxisorientierte Diskussion der aktuellen Evidenz

2018 ◽  
Vol 75 (2) ◽  
pp. 123-126
Author(s):  
Jan Gärtner ◽  
Bernd Alt-Epping ◽  
Marion Daun
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Spezialisierte Ambulante Palliativversorgung ◽  
Palliative Care Teams

Zusammenfassung. Patienten mit nicht heilbaren und fortschreitenden neurologischen, internistischen, onkologischen und anderen Erkrankungen leiden schon bei Diagnosestellung unter teils massiven Einschränkungen der Lebensqualität durch körperliche Symptome (z. B. Schmerz und Luftnot) sowie durch psychische, soziale und spirituelle Belastungen. Palliative Care dient als umfassendes Unterstützungskonzept dem bestmöglichen Erhalt individueller Lebensqualität und umfasst mehr als nur die Betreuung in der letzten Lebensphase, im Sinne einer «End of Life Care». Ärzte und andere Berufsgruppen aller Fachrichtungen sollten daher grundlegende Massnahmen und Basiswissen der Palliative Care beherrschen und schon früh im Erkrankungsverlauf anwenden. Dazu gehören u. a. Grundfertigkeiten palliativer Schmerztherapie und Symptomkontrolle, aber auch pflegerische, psychosoziale, ethische und kommunikative Kompetenzen. Die Kooperation mit anderen medizinischen Berufsgruppen und therapeutisch Tätigen sollte sich an den spezifischen Bedürfnissen der Palliativpatienten orientieren. Nicht zuletzt braucht es die Bereitschaft, spezialisierte palliativmedizinische Dienste bei besonders belasteten Patienten in komplexen Situationen aktiv einzubeziehen. Der frühzeitige Einbezug palliativmedizinischen Denkens und Handelns ist eine Aufgabe aller Fachdisziplinen und Berufsgruppen des Gesundheitswesens im Rahmen der allgemeinen Palliative Care. Zusätzlich zu dieser allgemeinen Palliative Care ist auch eine Mitbetreuung durch multiprofessionelle Teams der spezialisierten Palliative Care möglich. Dieses ist zum Beispiel für den Bereich der häuslichen Versorgung (in Deutschland: Spezialisierte Ambulante Palliativversorgung (SAPV)) etabliert und gemäss einer aktuellen Meta-Analyse in Bezug auf Lebensqualität und Symptomlast der Patienten sowie der Ermöglichung eines Versterbens im häuslichen Umfeld sehr hilfreich. Allerdings erfolgt eine häusliche Mitbetreuung durch die spezialisierte Palliative Care selten in frühen Erkrankungsstadien. Eine andere Meta-Analyse konnte zeigen, dass Patienten in Krankenhäusern (Ambulanzen und Stationen) besonders dann von der Mitbetreuung durch spezialisierte multiprofessionelle Palliative Care-Teams (in Deutschland: Palliativdienste) in Bezug auf ihre Lebensqualität profitieren, wenn deren Integration frühzeitig im Erkrankungsverlauf stattfindet. Eine konkrete Mitbehandlung aller Patienten mit inkurablen Grunderkrankungen durch die spezialisierte Palliative Care ist im Alltag allerdings weder praktikabel noch zielführend. Vielmehr ist es angezeigt, die besonders belasteten oder unter komplexen Symptomen und Problemen leidenden Patienten frühzeitig zu identifizieren und diese Patienten entsprechend zu unterstützen. Dazu werden Indikatoren für den Einbezug spezialisierter Palliative Care verwendet. Ebenso bedarf es der Kenntnis von Schnittstellen zu den jeweiligen vorhandenen regionalen Versorgungsstrukturen.

scholarly journals Palliative and end-of-life care in care homes: protocol for codesigning and implementing an appropriate scalable model of Needs Rounds in the UK

BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e049486
Author(s):  
Aisha Macgregor ◽  
Alasdair Rutherford ◽  
Brendan McCormack ◽  
Jo Hockley ◽  
Margaret Ogden ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Care Home ◽  
Care Homes ◽  
Successful Implementation ◽  
Life Care ◽  
Care Home Staff ◽  
Palliative Care Teams ◽  
The Uk

IntroductionPalliative and end-of-life care in care homes is often inadequate, despite high morbidity and mortality. Residents can experience uncontrolled symptoms, poor quality deaths and avoidable hospitalisations. Care home staff can feel unsupported to look after residents at the end of life. Approaches for improving end-of-life care are often education-focused, do not triage residents and rarely integrate clinical care. This study will adapt an evidence-based approach from Australia for the UK context called ‘Palliative Care Needs Rounds’ (Needs Rounds). Needs Rounds combine triaging, anticipatory person-centred planning, case-based education and case-conferencing; the Australian studies found that Needs Rounds reduce length of stay in hospital, and improve dying in preferred place of care, and symptoms at the end of life.Methods and analysisThis implementation science study will codesign and implement a scalable UK model of Needs Rounds. The Integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) framework will be used to identify contextual barriers and use facilitation to enable successful implementation. Six palliative care teams, working with 4–6 care homes each, will engage in two phases. In phase 1 (February 2021), stakeholder interviews (n=40) will be used to develop a programme theory to meet the primary outcome of identifying what works, for whom in what circumstances for UK Needs Rounds. Subsequently a workshop to codesign UK Needs Rounds will be run. Phase 2 (July 2021) will implement the UK model for a year. Prospective data collection will focus on secondary outcomes regarding hospitalisations, residents’ quality of death and care home staff capability of adopting a palliative approach.Ethics and disseminationFrenchay Research Ethics Committee (287447) approved the study. Findings will be disseminated to policy-makers, care home/palliative care practitioners, residents/relatives and academic audiences. An implementation package will be developed for practitioners to provide the tools and resources required to adopt UK Needs Rounds.Registration detailsRegistration details: ISRCTN15863801.

scholarly journals 458 - End-of-life decision-making capacity in an elderly patient with schizophrenia and terminal cancer

2020 ◽  
Vol 32 (S1) ◽  
pp. 179-179
Author(s):  
C Kotzé ◽  
JL Roos
Keyword(s):  
Decision Making ◽  
Mental Illness ◽  
End Of Life ◽  
Serious Mental Illness ◽  
End Of Life Care ◽  
Care Planning ◽  
Life Care ◽  
Decision Making Capacity ◽  
Advance Care ◽  
End Of Life Decision

Medical practitioners are confronted on a daily basis with decisions about patients’ capacity to consent to interventions. To address some of the pertinent issues with these assessments, the end -of-life decision-making capacity in a 72-year old lady with treatment resistant schizophrenia and terminal cancer will be discussed.In the case discussed there were differences in opinion about the patients decision-making capacity. In light of this, the role of the treating clinician and importance of health-related values in capacity assessment are highlighted. It is recommended that the focus of these assessments can rather be on practical outcomes, especially when capacity issues arise. This implies that the decision-making capacity of the patient is only practically important when the treatment team is willing to proceed against the patient’s wishes. This shifts the focus from a potentially difficult assessment to the simpler question of whether the patient’s capacity will change the treatment approach.Compared to the general population, people with serious mental illness have higher rates of physical illness and die at a younger age, but they do not commonly access palliative care services and are rarely engaged in end-of-life care discussions. Older people with serious mental illness can engage in advance care planning. Conversations about end -of-life care can occur without fear that a person’s psychiatric symptoms or related vulnerabilities will undermine the process. Clinicians are also advised to attend to any possible underlying issues, instead of focusing strictly on capacity. Routine documentation of end-of-life care preferences can support future decision making for family and clinicians at a time when patients are unable to express their decisions.More research about palliative care and advance care planning for people with serious mental illness is needed. This is even more urgent in light of the COVID-2019 pandemic, as there are potential needs for rationing of health care in the context of scarce resources. Health services should consider recommendations that advanced care planning should be routinely implemented. These recommendations should not only focus on the general population and should include patients with serious mental illness.

Sign in / Sign up

Export Citation Format

Share Document