scholarly journals Psychological Adjustment in Apert Syndrome: Parent and Young Person Perspectives

2021 ◽  
pp. 105566562110698
Author(s):  
Jennifer Netherton ◽  
Jo Horton ◽  
Nicola M Stock ◽  
Rachel Shaw ◽  
Peter Noons ◽  
...  

To date, limited research has been carried out into the psychological impact of having a diagnosis of Apert syndrome (AS) and the life experiences of families living with this condition. The aim of the current study was to explore psychological adjustment to AS from the perspectives of young people, and their parents, with the broader goal of informing care, and support for this population. Four young people (2 male) aged 11 to 15 years and their mothers were interviewed in their homes using a semistructured interview guide and photo-elicitation methods. Transcripts were analyzed using Interpretive Phenomenological Analysis. Three superordinate themes were identified from the data: (1) Acceptance and Adjustment: A Cyclical Journey; (2) A Barrier to Adjustment: Navigating Treatment; and (3) Facilitating Adjustment: Social Support. Families described adjustment as a cyclical process, which was sensitive to change, particularly in the context of ongoing medical treatment. Families also utilized many resources, particularly in the form of social support, to adjust to the challenges of AS and build resilience. The findings of this study have important implications for the implementation of patient-centered care within designated craniofacial treatment centers, which should at a minimum include the provision of reliable information throughout the treatment pathway, additional support from health professionals at key times of transition, and the coordination of support across medical teams, and other key organizations in the child's life.

2014 ◽  
Vol 9 (4) ◽  
pp. 263-279 ◽  
Author(s):  
Sarah Parry ◽  
Stephen Weatherhead

Purpose – Due to the emergence of rich personal narratives within recent research, the purpose of this paper is to review and to explore the experience of transition from care and consider how these accounts can inform care services. Design/methodology/approach – This meta-synthesis follows from several quantitative and mixed method reviews examining how young people experience aging out of the care system. Findings – Three themes emerged from an inductive analysis: navigation and resilience – an interrelated process; the psychological impact of survival; and complex relationship. Research limitations/implications – The findings of a meta-synthesis should not be over generalised and are at least partially influenced by the author's epistemological assumptions (Dixon-Woods et al., 2006). However, a synthesis of this topic has the potential to provide greater insight into how transition can be experienced through the reconceptualising of the personal experiences across the studies reviewed (Erwin et al., 2011). Practical implications – This synthesis discusses the themes; their relationship to existing research and policies, and suggestions for further exploration. The experience of transition is considered critically in terms of its often traumatic nature for the young person aging out of care but also the ways in which the experience itself can build essential resiliencies. Social implications – Reflections for clinical practice are discussed with importance placed upon systemic working, accommodating likely challenges and considering appropriate therapeutic approaches for the client group and their systems. Originality/value – No review thus far has qualitatively examined the narratives told by the young people emerging from care and how these narratives have been interpreted by the researchers who sought them (Hyde and Kammerer, 2009).


Author(s):  
Beth Broussard ◽  
Michael T. Compton

To move toward recovery after a first episode of psychosis, young people must focus on both their mental and physical health. Staying away from tobacco products, alcohol, and marijuana and other drugs; having a healthy diet; getting plenty of exercise; sleeping well; and having social support from family and friends are all necessary parts of a healthy lifestyle. Even those who have already begun to use substances can quit, and though difficult, in the end quitting will improve their mind and body. Even if the young person is not ready to quit completely, reducing substance use is always helpful. One way to introduce new healthy behaviors is by setting achievable weekly goals and tracking progress along the way to keep motivated.


GIS Business ◽  
2019 ◽  
Vol 14 (4) ◽  
pp. 122-129
Author(s):  
Monika Bansal ◽  
Sh. Lbs Arya Mahila

Youth Mentoring is the process of matching mentors with young people who need or want a caring responsible adult in their lives. It is defined as an on-going relationship between a caring adult and a young person which is required for self-development, professional growth and carrier development of the mentee and mentors both and all this must be placed within a specific institution context. The purpose of this article is to quantitatively review the three major areas of mentoring research (youth, academic, and workplace) to determine the overall effect size associated with mentoring outcomes for students.


2020 ◽  
pp. 103985622097005
Author(s):  
Oliver Smith ◽  
Jessica Bergmann ◽  
Ulrich Schall

Objective: General practitioners (GPs) are key health professionals for referrals to mental health specialists. Youth mental health issues are particularly challenging, requiring a competent assessment and understanding of appropriate referral pathways. We surveyed local GPs about their understanding of youth mental health problems and needs to competently look after young patients. Methods: GPs working in the Hunter region were contacted via email, fax and post over a 6-month period in 2019. Results: Seventy-five GPs participated. They reported 577 of 1698 (34%) of young people seen 2 weeks prior to being surveyed presented with a mental health problem. Predominantly, referrals were to private practice psychologists and Headspace. Almost a third (31%) reported having limited understanding of ‘at-risk mental state’ and are ‘not always comfortable’ when facing a young person with a mental health problem. Nearly all (95%) expressed interest in attending specialised training. GPs identified treatment costs, scarce access to psychiatrists and limited patient engagement as the main obstacles to help young people. Conclusions: Effective treatment of a mental health problem relies on early identification. GPs are seeing young people on a regular basis but don’t feel well equipped for this task and are keen to up-skill, which needs to be addressed by targeted training.


Author(s):  
Nele Van Hecke ◽  
Florien Meulewaeter ◽  
Wouter Vanderplasschen ◽  
Lore Van Damme ◽  
Jan Naert ◽  
...  

In recent years, a growing trend to consider strengths and protective factors in studies on desistance from crime has emerged. The present study explores three formerly detained adolescents’ narratives, aiming to tease out how Quality of Life (QoL) and desistance interact in pathways towards a “better life.” The narratives suggest that the journey towards a better life is highly individual, and may unfold via multiple pathways characterized by an ambivalent relationship between QoL and desistance. Alongside the importance of individual aspects and social support, societal barriers and opportunities play a significant role in creating new chances to re-build a life and prosocial identities. This reflects earlier findings that desistance is not an individual responsibility. It is essential to support young people to overcome societal barriers that impede participation in society and living a good life. This research adds to growing evidence of strengths-based approaches to rehabilitation, such as the Good Lives Model (GLM).


2021 ◽  
Vol 51 (2) ◽  
pp. 199-204
Author(s):  
Alejandra Álvarez-Iglesias ◽  
Emily Garman ◽  
Crick Lund

The majority of COVID-19 cases in sub-Saharan Africa are found in South Africa, where one third of young people are not in employment, education or training. As the world continues to fight the COVID-19 virus spread, an increasing volume of studies are analysing and trying to predict the consequences of the pandemic on the economy and on physical and mental health. This article describes the economic and psychological impact of COVID-19 in South Africa’s youth specifically, the efforts made to tackle these issues, and the opportunities to integrate mental health into the country’s social protection measures, such as the Child Support Grant.


Author(s):  
Albert Farre ◽  
Sara Ryan ◽  
Abigail McNiven ◽  
Janet E. McDonagh

Abstract Introduction Young people’s transition into adulthood is intertwined with the worlds of education and work. Poor health in adolescence has been associated with poorer education and employment outcomes in adulthood. This paper explores the impact of arthritis on the educational and early work experiences of young people with arthritis. Methods We undertook a supplementary secondary analysis of a qualitative dataset comprising narrative and semi-structured interviews of 39 young people who had been diagnosed with arthritis in childhood, adolescence or young adulthood. Results Our findings illustrate how young people living with arthritis are faced with a range of added disruptions and challenges in their educational/vocational lives. There is an important element of resilience associated with the process of making a career choice and acting upon personal aspirations. Appropriate support and flexibility in the workplace/educational setting can enable successful outcomes, but disclosure is not a straightforward process for young people living with arthritis. Conclusions It is paramount that health providers consistently and effectively address self-advocacy skills with the young person, particularly during educational and vocational transitions. Alongside this, there is the need to further strengthen the health-school/work interface to ensure that young people living with chronic illness can meet their full potential in adulthood.


2013 ◽  
Vol 24 (1) ◽  
pp. 54-68 ◽  
Author(s):  
M. B. H. Yap ◽  
N. J Reavley ◽  
A. F. Jorm

Aims.An inherent prerequisite to mental health first-aid (MHFA) is the ability to identify that there is a mental health problem, but little is known about the association between psychiatric labelling and MHFA. This study examined this association using data from two national surveys of Australian young people.Methods.This study involved a national telephonic survey of 3746 Australian youth aged 12–25 years in 2006, and a similar survey in 2011 with 3021 youth aged 15–25 years. In both surveys, respondents were presented with a vignette portraying depression, psychosis or social phobia in a young person. The 2011 survey also included depression with suicidal thoughts and post-traumatic stress disorder. Respondents were asked what they thought was wrong with the person, and reported on their first-aid intentions and beliefs, which were scored for quality of the responses.Results.Accurate labelling of the mental disorder was associated with more helpful first-aid intentions and beliefs across vignettes, except for the intention to listen non-judgementally in the psychosis vignette.Conclusions.Findings suggest that community education programmes that improve accurate psychiatric label use may have the potential to improve the first-aid responses young people provide to their peers, although caution is required in the case of psychosis.


Author(s):  
Mariya М. Odintsova ◽  

A lot of modern psychological studies point to the inextricable link between the real and the Internet space in the context of the process of socialization of the individual, structuring the life scenario, in particular in the field of professional development. However, the integration of various predictors associated with the characteristics of the modern labor market and, as a consequence of career planning, life scenario is a methodological problem. To solve it, research design was applied, based on a combination of theoretical and empirical, quantitative and qualitative analysis. The aim of the study was the desire to clarify the role of the content of social networks in the formation of the life model of the professional sphere in the personal life space. It is suggested that the components of life models in the field of the profession broadcast on the Internet may be similar to the constructs already available in young people. The empirical research was carried out in several stages. At the first stage, semantic and content analysis of more than 170,000 posts over the past 2 years from the 20 most popular communities of the social network was carried out using special computer programs. The results of the analysis were the identified features of the components of the life model in the field of the profession, broadcast in the information space. At the second stage, the peculiarities of personal ideas of young people about building their own professional path, as well as the perception of the experience of parents’ professional activities were investigated. The sample consisted of 166 respondents; the average age was 21 years. The results obtained confirm the assumption about the similarity of the characteristics of the components of life models in the field of the profession, presented in the posts of Internet communities and the characteristics of the constructed life scenario in the field of the profession by the respondents themselves. The ideas about professional life and its further construction are probably associated with intergenerational transmission and traditional family values, the personal interests of a young person, his/her abilities, as well as with the tendencies learned in the process of intergenerational transmission of values and certain ideas in the circle of contemporaries presented on the Internet.


2018 ◽  
Vol 8 (4) ◽  
pp. 392-403 ◽  
Author(s):  
Janean Robinson ◽  
Barry Down ◽  
John Smyth

Our research is driven by a strong belief that the stories of young people gathered through ethnographic interviews can generate awareness not only of the complexities, uncertainties and possibilities of young people’s lives but also the ways in which their identities and life chances are shaped by broader structural, institutional and historical forces beyond their control. In this article, we introduce Jacinta, a young person who describes the events and conditions which serve to hinder and/or support her journey in school and beyond. We have used Jacinta’s story from a larger research project, to speak back to the impact the broader neoliberalising agenda is having on young lives with a view to reimagining democratic alternatives in education.


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