scholarly journals Caregiving in a Pandemic: COVID-19 and the Well-Being of Family Caregivers 55+ in the United States

2022 ◽  
pp. 107755872110624
Author(s):  
Yulya Truskinovsky ◽  
Jessica M. Finlay ◽  
Lindsay C. Kobayashi
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Family Care ◽  
Well Being ◽  
The United States ◽  
National Sample ◽  
Work From Home ◽  
More Care ◽  
Using Data ◽  
The Impact

Little is known about the effects of Coronavirus disease 2019 (COVID-19) on older family caregivers. Using data from a national sample of 2,485 U.S. adults aged ≥55, we aimed to describe the magnitude of disruptions to family care arrangements during the initial wave of the COVID-19 pandemic, and the associations between these disruptions and the mental health outcomes (depression, anxiety, loneliness, and self-rated health) and employment outcomes (job loss or furlough, hours or wages reduced, transition to work-from-home) of family caregivers. We found that COVID-19 disrupted over half of family caregiving arrangements, and that care disruptions were associated with increased depression, anxiety, and loneliness among caregivers, compared with both noncaregivers and caregivers who did not experience disruptions. Family caregivers who experienced pandemic-related employment disruptions were providing more care than caregivers who did not experience disruptions. These findings highlight the impact of the pandemic on an essential and vulnerable health care workforce.

scholarly journals Caregiver Health and Well-Being, and Financial Strain

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 681-682
Author(s):  
Susan Reinhard ◽  
Lynn Feinberg
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Family Care ◽  
Well Being ◽  
Financial Strain ◽  
Caregiver Health ◽  
Financial Impacts ◽  
The Impact ◽  
Health And Well Being ◽  
The U.S

Abstract Family caregivers often face key challenges when caring for a relative or close friend with health or functional needs. This paper presents findings from Caregiving in the U.S. 2020 on the impact of caregiving on the physical health and well-being of family caregivers and the financial impacts of family care. The data suggest that the caregiver’s own health has declined, with 1 in 5 (21%) saying they are in fair to poor health themselves, up from 17 percent in 2015. Nearly 1 in 4 (23%) feel caregiving has made their health worse. Nearly 4 in 10 (38%) family caregivers of adults experience a moderate to a high degree of financial strain from providing care. Forty-five percent have experienced at least one financial impact (e.g., stopped savings, debt, ability to pay bills, and ability to afford necessary expenses, like food). These findings reveal that because family caregiving today is more complex, costly, and stressful than in the past, action is needed to recognize and support family caregivers in the U.S adequately.

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

scholarly journals The Impacts of Discrimination and Filial Caregivers’ Age on Aspects of Physical Health

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 360-360
Author(s):  
Barbara Hodgdon ◽  
Jen Wong
Keyword(s):  
Physical Health ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Chronic Conditions ◽  
The United States ◽  
Life Course Perspective ◽  
Late Adulthood ◽  
Study Results ◽  
The Face ◽  
The Impact

Abstract Filial caregivers (e.g., individuals caring for a parent or parent-in-law) are a part of the growing number of family caregivers in midlife and late adulthood. The responsibilities that filial caregivers navigate in midlife and late adulthood may expose them to multiple types of discrimination that may decrease their physical health, though this relationship has been understudied. As numbers of family caregivers grow, it is important to examine the potential vulnerability of younger and older filial caregivers’ physical health in the context of discrimination. Informed by the life course perspective, this study compares the physical health of younger (aged 34-64) and older (aged 64-74) filial caregivers who experience discrimination. Filial caregivers (N=270; Mage=53; SD=9.37) from the Midlife in the United States (MIDUS-II) Survey reported on demographics, family caregiving, daily discrimination, self-rated physical health, and chronic conditions via questionnaires and phone interviews. Regression analyses showed no differences between younger and older adults’ self-rated physical health or average chronic conditions. However, moderation analyses revealed that younger filial caregivers who experienced greater discrimination reported poorer self-rated physical health than their older counter parts as well as younger and older filial caregivers who experienced less discrimination. Additionally, younger caregivers with greater discrimination exposure exhibited more number of chronic conditions as compared to other caregivers. The study results highlight the impact of the intersection between filial caregivers’ age and discrimination on physical health. Findings have the potential to inform programs that could promote the health of filial caregivers in the face of discrimination.

scholarly journals WORK-RELATED OPPORTUNITY COSTS OF PROVIDING UNPAID FAMILY CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S135-S135
Author(s):  
Stipica Mudrazija
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Panel Study ◽  
Economic Value ◽  
Family Care ◽  
National Study ◽  
Nursing Facilities ◽  
Unpaid Care ◽  
Work Related ◽  
The Impact

Abstract Older Americans living in the community who need help with basic activities of daily living overwhelmingly rely on unpaid care provided most commonly by working-age family members. Because unpaid family care limits the demand for nursing facilities and reduces expenses paid by Medicaid and other government programs, previous estimates of its economic value have mostly focused on estimating the benefits of unpaid family care. However, to assess accurately the overall economic value of unpaid family care and define better the scope for policy intervention, it is also important to account for the costs of such care, yet our knowledge of their magnitude remains limited. This study assesses the impact of unpaid family caregiving on the likelihood of working and hours worked for caregivers, and calculates the related cost of forgone earnings today and in 2050. To do so, it matches family caregivers from the National Study of Caregiving with non-caregivers from the Panel Study of Income Dynamics, and uses projections from the Urban Institute’s DYNASIM microsimulation model to inform calculations of future costs of foregone earnings. Results suggest that the cost of foregone earnings attributable to caregiving is currently about $67 billion. By mid-century, it will likely more than double, outpacing the growth of disabled older population as the share of better-educated caregivers with higher earning capacity increases. Policymakers can use these results to inform their current and future policy efforts aimed at assisting family caregivers who are facing the challenge of balancing work and caregiving responsibilities.

Family Caregiving and the Intergenerational Transmission of Poverty

2018 ◽  
Vol 46 (3) ◽  
pp. 629-635 ◽  
Author(s):  
Richard L. Kaplan
Keyword(s):  
Social Security ◽  
Family Caregivers ◽  
Intergenerational Transmission ◽  
Family Caregiving ◽  
The United States ◽  
Retirement Savings ◽  
Term Care ◽  
Retirement Benefits ◽  
Lifetime Earnings ◽  
The Impact

The United States relies on uncompensated family caregivers to provide most of the long-term care required by older adults as they age. But such care comes at a significant financial cost to these caregivers in the form of lower lifetime earnings and diminished (or even no) Social Security retirement benefits, ineligibility for Medicare coverage of their healthcare costs, and minimal retirement savings. To reduce the impact of uncompensated caregiving on the intergenerational transmission of poverty, this paper discusses three possible mechanisms of compensating family caregivers: public payments, deemed wage credits under Social Security, and income tax incentives.

scholarly journals The Impact of Major Events on the Lives of Family Caregivers of Children with Disabilities

1996 ◽  
Vol 77 (8) ◽  
pp. 502-514 ◽  
Author(s):  
Thomas P. McDonald ◽  
Graciela Couchonnal ◽  
Theresa Early
Keyword(s):  
Family Caregivers ◽  
Emotional Disorders ◽  
Family Caregiving ◽  
Well Being ◽  
Stressful Events ◽  
School Activities ◽  
Children's Behavior ◽  
The Family ◽  
Families With Children ◽  
The Impact

The authors examine the family caregiving experience among families with children with severe emotional disabilities from a perspective that recognizes the importance of the family's views and feelings. This viewpoint anticipates the occurrence of both positive and negative experiences and seeks to illuminate the caregiving process from the perspective of outcomes achieved. Family caregivers of 164 children with serious emotional disorders were asked to identify major pleasant and stressful events that had occurred in the past 12 months. The most frequently described pleasant events related to children's behavior, school activities, and interactions with professionals and friends. Frequently described problem areas included children's behavior, professionals/services, and difficulty with school. The impact of these pleasant and stressful events was examined with respect to caregivers' perceived well-being: (1) overall stress, (2) the ability to fulfill responsibilities, and (3) pleasure experienced in various life domains. Implications of the study findings for supporting family caregivers in their roles are discussed.

scholarly journals Implications of COVID-19: The Effect of Working From Home on Financial and Mental Well-Being in the UK

2021 ◽  
Author(s):  
Eleftherios Giovanis ◽  
Oznur Ozdamar
Keyword(s):  
Negative Impact ◽  
Well Being ◽  
Policy Implications ◽  
Financial Situation ◽  
Work From Home ◽  
Working From Home ◽  
Using Data ◽  
The Uk ◽  
The Impact ◽  
Mental Well Being

In response to the threat posed by coronavirus disease 2019 (COVID-19), the UK prime minister announced on the 23rd of March strict lockdowns and introduced a new way of living and working, at least temporarily. This included working from home (WHF) wherever possible. Many experts from the IT industry were long arguing about the potential for WFH, which suddenly now became indisputable. The objective of this study is to evaluate the impact of WFH on the individuals’ perception about their future financial situation and their mental well-being. We apply a difference-in-differences (DiD) framework using data from the UK Household Longitudinal Study (UKHLS) combined with the UKHLS COVID-19 survey conducted in April 2020. Our findings suggest that those who have not experienced a shift from working at the employer’s premises to WFH became more concerned about their future financial situation. However, we find that WFH has a negative impact on mental well-being. On the other hand, we find no difference in the mental well-being when we consider those who work from home on occasion. The findings of this study have policy implications for government, firms and health practitioners. In particular, a balance between WFH and at the employer’s premises may provide both financial security and maintain the mental and psychological well-being at satisfying levels.

scholarly journals “You Feel Very Isolated”: Effects of COVID-19 Pandemic on Caregiver Social Connections

2021 ◽  
Vol 7 ◽  
pp. 233372142110601
Author(s):  
Alycia A. Bristol ◽  
Aaron C. Mata ◽  
Melody Mickens ◽  
Kara B. Dassel ◽  
Lee Ellington ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Qualitative Interviews ◽  
Well Being ◽  
The United States ◽  
Care Recipient ◽  
Social Connections ◽  
Web Based ◽  
Sequential Mixed Methods ◽  
Care And Support ◽  
The Impact

One in five individuals in the United States provides care and support to ill, disabled, and aging family members in the home, leading to feelings of burden, stress, and poor health and well-being. Social support represents an important buffer for family caregivers that allows them to feel less isolated and more positive about their caregiving role. This sequential mixed-methods study aimed to examine the effect of the COVID-19 pandemic on family caregivers’ social connections. Eighty-two caregivers completed a web-based survey which comprised of fixed-choice and open-ended questions. Survey data showed that the majority of caregivers (83%) reported an increase in stress and feeling lonely (77%) during the pandemic. Qualitative interviews with a subsample of caregivers ( n=27) further explored social connections during the pandemic. Three themes echoed the quantitative findings and centered around defining boundaries, intentionality in social interactions, and loss of social resources. Although caregivers were often strained by new or increased caregiving demands, many experienced positive changes such as feeling a deeper connection with the care-recipient. Findings from this study highlight the need for further consideration of the impact of social isolation on the well-being of caregivers.

scholarly journals LIFE COURSE EXAMINATION OF GLOBAL AND DAILY PSYCHOSOCIAL IMPACTS OF FAMILY CAREGIVERS IN MIDLIFE AND LATE ADULTHOOD

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S819-S819
Author(s):  
Jen D Wong ◽  
Jen D Wong ◽  
Yetty Shobo ◽  
Barbara T Hodgdon
Keyword(s):  
Life Course ◽  
Marital Status ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Multilevel Models ◽  
Well Being ◽  
The United States ◽  
Life Course Perspective ◽  
Psychosocial Impacts ◽  
The Life Course

Abstract Family members often serve as informal caregivers for the first line of care. The complexity of family caregiving suggests the need to examine the personal and environmental resources that contribute to caregivers’ psychosocial well-being. Informed by the life course perspective, this study investigates the impacts of providing care to a family member on global and daily psychosocial well-being, and the moderating influences of age, gender, marital status, and social support. The sample consists of 1449 (M=55.99, SD=9.31) participants from Midlife in the United States (MIDUS-II: Main and Diary) survey. Regression and multilevel models results indicated greater global negative affect and daily stressors in caregivers as compared to non-caregivers. In line with the positive correlates of caregiving, caregivers reported greater daily positive events. Age, gender, and marital status significantly moderated the associations between caregiving and well-being. Findings showed that services aimed at family caregivers should take into account of personal resources.

scholarly journals Caregiving for Persons Living With Dementia in the New Normal: Family Caregiver’s Perspective

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1036-1036
Author(s):  
Priyanka Shrestha ◽  
Donna Fick ◽  
Marie Boltz ◽  
Susan Loeb ◽  
Andrew High
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Qualitative Methodology ◽  
Well Being ◽  
Intensive Care Admission ◽  
Increased Risk ◽  
The Family ◽  
Poor Outcomes ◽  
Person With Dementia ◽  
The Impact

Abstract Persons living with dementia (PLWD) are at increased risk for COVID-19 and associated poor outcomes, including: incident delirium, hospitalization, severe symptoms, intensive care admission, and even death. PLWD are likely to rely on family caregivers to maintain their health and well-being in the community. Under normal circumstances, caregiving can be stressful and complex, and the COVID-19 pandemic has the potential to change and exacerbate the stresses of family caregiving. As a part of a larger study using descriptive qualitative methodology to explore the family caregiver understanding and experiences related to delirium in caring for a person with dementia, 14 participants (age x̄ =67, SD= 13.8) were asked about the impact of COVID-19 on their caregiving for PLWD. Thematic analysis of the transcribed interviews using Dedoose generated four overarching themes associated with the family caregiver’s perspective of changes in caregiving during the COVID-19 pandemic: 1) Cautious of COVID-19 exposure, 2) We can’t go in, 3) Feeling of isolation for both the PLWD and caregiver, and 4) Six-feet distance. The current study highlights the importance of understanding the needs of PLWD during a pandemic based upon the perspective of their family caregivers and will inform the development of ways to safely incorporate family caregivers in the interdisciplinary care team. Caregivers are integral to the care of PLWD across settings of care and should be partners even during a pandemic. Solutions for care include integrating technology for individualized approaches. Finally, future areas for research will be discussed.

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