The Quality, Content, Accuracy and Readability of Information about Sickle Cell Anemia on the Internet

Blood ◽  
2015 ◽  
Vol 126 (23) ◽  
pp. 4462-4462
Author(s):  
Vicky R. Breakey ◽  
Lauren Harris ◽  
G Omar Davis ◽  
Arnav Agarwal ◽  
Carley Ouellette ◽  
...  
Keyword(s):  
Sickle Cell ◽  
Sickle Cell Anemia ◽  
Conflicts Of Interest ◽  
Reading Level ◽  
Online Information ◽  
Internet Health Information ◽  
Flesch Reading Ease ◽  
Ease Score ◽  
Website Content

Abstract Objective: A comprehensive website review was conducted to assess the quality, content and readability of online information for teens with sickle cell anemia (SCA). Methods. Key words relevant to SCA were searched across the five most commonly used search engine domains. Websites that contained information about the diagnosis and management of SCA were reviewed. Quality of the information was appraised using the validated DISCERN tool. Two physicians rated website content completeness and accuracy independently. Readability of the sites was documented using SMOG scores and the Flesch Reading ease scoring system. Results. Search results yielded more than 600 sites of which 25 websites met the criteria for DISCERN quality review. The majority of sites targeted parents and only 5/25 (20%) were specific to teens with SCA. The overall quality of the website information was "fair", with the average DISCERN quality rating score being 50.1 (± 9.3, range 31.0-67.5). Only 12/25(48%)of the websites had DISCERN scores above 50 (mean 57.37 + 4.93, range 52.17-67.50). The average completeness score of the sites was 20 out of 29 (±5; range 12-27) and accuracy was consistently rated 4/4, indicating high accuracy with moderate completeness. The average SMOG score was 12.44 (±2.01; range 10.21-16.08), and the mean Flesch Reading Ease score was 46.45 (±13.22; range 17.50-66.10) indicating that the material was written well above the acceptable level for patient education materials. Conclusion. Given the paucity of high quality Internet health information at an appropriate reading level for teens with SCA, there is a critical need for the development of Internet programs to meet their unique self-management needs. Disclosures No relevant conflicts of interest to declare.

Surfing for Juvenile Idiopathic Arthritis: Perspectives on Quality and Content of Information on the Internet

2009 ◽  
Vol 36 (8) ◽  
pp. 1755-1762 ◽  
Author(s):  
JENNIFER N. STINSON ◽  
LORI TUCKER ◽  
ADAM HUBER ◽  
HEATHER HARRIS ◽  
CARMEN LIN ◽  
...  
Keyword(s):  
Juvenile Idiopathic Arthritis ◽  
Grade Level ◽  
English Language ◽  
Reading Level ◽  
Web Pages ◽  
Internet Health Information ◽  
Internet Information ◽  
Ease Score ◽  
Website Content

Objective.To determine the quality and content of English language Internet information about juvenile idiopathic arthritis (JIA) from the perspectives of consumers and healthcare professionals.Methods.Key words relevant to JIA were searched across 10 search engines. Quality of information was appraised independently by 2 health professionals, 1 young adult with JIA, and a parent using the DISCERN tool. Concordance of the website content (i.e., accuracy and completeness) with available evidence about the management of JIA was determined. Readability was determined using Flesch-Kincaid grade level and Reading Ease Score.Results.Out of the 3000 Web pages accessed, only 58 unique sites met the inclusion criteria. Of these sites only 16 had DISCERN scores above 50% (indicating fair quality). These sites were then rated by consumers. Most sites targeted parents and none were specifically developed for youth with JIA. The overall quality of website information was fair, with a mean DISCERN quality rating score of 48.92 out of 75 (± 6.56, range 34.0–59.5). Overall completeness of sites was 9.07 out of 16 (± 2.28, range 5.25–13.25) and accuracy was 3.09 out of 4 (± 0.86, range 2–4), indicating a moderate level of accuracy. Average Flesch-Kincaid grade level and Reading Ease Score were 11.48 (± 0.74, range 10.1–12.0) and 36.36 (± 10.86, range 6.30–48.1), respectively, indicating that the material was difficult to read.Conclusion.Our study highlights the paucity of high quality Internet health information at an appropriate reading level for youth with JIA and their parents.

DOZ047.115: Quality and readability of esophageal atresia information on the Internet

2019 ◽  
Vol 32 (Supplement_1) ◽  
Author(s):  
B R O’Connor ◽  
E Doherty ◽  
F Friedmacher ◽  
L Vernon ◽  
T S Paran
Keyword(s):  
Esophageal Atresia ◽  
Oesophageal Atresia ◽  
The Internet ◽  
Online Information ◽  
Search Term ◽  
Flesch Reading Ease ◽  
Ease Score ◽  
The Mean ◽  
Google Search

Abstract Introduction Increasingly in pediatric surgical practice, patients, their parents, and surgeons alike use the Internet as an easily and quickly accessible source of information about conditions and their treatment. The quality and reliability of this information may often be unregulated. We aim to objectively assess the online information available relating to esophageal atresia and its management. Methods We performed searches for ‘oesophageal atresia’ and ‘esophageal atresia’ using the Google, Yahoo, and Bing engines to encompass both European and American spellings. We assessed the first 20 results of each search and excluded duplicates or unrelated pages. The DISCERN score and the Health on the Net Foundation Code (HONcode) toolbar were utilized to assess the quality of information on each website. We evaluated readability with the Flesch reading ease (FRE) and the Flesch–Kincaid grade (FKG). Results Of the original 120 hits, 61 were excluded (51 duplicates, 10 unrelated). Out of 59 individual sites reviewed, only 13 sites were HONcode approved. The mean overall DISCERN score was 52.55 (range: 22–78). The mean DISCERN score for the search term ‘oesphageal atresia’ was 57 (range: 22–78) in comparison to 59.03 for ‘esophageal atresia’ (range: 27–78). Google search had the lowest overall mean DISCERN score at 54.83 (range: 35–78), followed by Yahoo at 58.03 (range: 22–78), and Bing with the highest overall mean score of 61.2 (range: 27–78). The majority of websites were graded excellent (≥63) or good (51–62), 43% and 27%, respectively; 20% were scored as fair (39–50), with 10% being either poor (27–38) or very poor (≤26). In terms of readability, the overall Flesch Reading Ease score was 33.02, and the overall Flesch–Kincaid grade level was 10.3. Conclusions The quality of freely available online information relating to esophageal atresia is generally good but may not be accessible to everyone due to being relatively difficult to read. We should direct parents towards comprehensive, high-quality, and easily readable information sources should they wish to supplement their knowledge about esophageal atresia and its management.

scholarly journals P126 An analysis of the quality and readability of online information for osteoarthritis

Rheumatology ◽  
2020 ◽  
Vol 59 (Supplement_2) ◽  
Author(s):  
Kieran Murray ◽  
Timothy Murray ◽  
Candice Low ◽  
Anna O'Rourke ◽  
Douglas J Veale
Keyword(s):  
Grade Level ◽  
English Language ◽  
Assessment Tool ◽  
Scoring Systems ◽  
Online Information ◽  
Flesch Reading Ease ◽  
12Th Grade ◽  
8Th Grade ◽  
Ease Score

Abstract Background Osteoarthritis is the most common cause of disability in people over 65 years old. The readability of of online osteoarthritis information has never been assessed. A 2003 study found the quality of online osteoarthritis information to be poor. This study reviews the quality of online information regarding osteoarthritis in 2018 using three validated scoring systems. Readability is reviewed for the first time, again using three validated tools. Methods The term osteoarthritis was searched across the three most popular English language search engines. The first 25 pages from each search engine were analysed. Duplicate pages, websites featuring paid advertisements, inaccessible pages (behind a pay wall, not available for geographical reasons) and non-text pages were excluded. Readability was measured using Flesch Reading Ease Score (FRES), Flesch-Kincaid Grade Level (FKGL) and Gunning-Fog Index (GFI). Website quality was scored using the the Journal of the American Medical Association (JAMA) benchmark criteria and DISCERN criteria. Presence or absence of HONcode certification, age of content, content producer and author characteristics were noted. Results 37 unique websites were suitable for analysis. Readability varied by assessment tool from 8th to 12th grade level. This compares with the recommended 7- 8th grade level. One (2.7%) website met all four JAMA Criteria. Mean DISCERN quality of information for OA websites was “fair”, comparing favourably with the “poor” grading of a 2003 study. HONCode endorsed websites (43.2%) were of a statistically significantly higher quality. Conclusion Quality of online health information for OA is “fair”. 2.7% of websites met JAMA benchmark criteria for quality. Readability was equal to or more difficult than recommendations. HONcode certification was indicative of higher quality, but not readability. Disclosures K. Murray None. T. Murray None. C. Low None. A. O'Rourke None. D.J. Veale None.

Quality of information available on the World Wide Web for patients undergoing thyroidectomy: review

2011 ◽  
Vol 126 (2) ◽  
pp. 116-119 ◽  
Author(s):  
S Muthukumarasamy ◽  
Z Osmani ◽  
A Sharpe ◽  
R J A England
Keyword(s):  
World Wide Web ◽  
World Wide ◽  
Medical Information ◽  
Quality Of Information ◽  
Internet Health Information ◽  
Flesch Reading Ease ◽  
Key Word ◽  
The World ◽  
Ease Score

AbstractIntroduction:This study aimed to assess the quality of information available on the World Wide Web for patients undergoing thyroidectomy.Methods:The first 50 web-links generated by internet searches using the five most popular search engines and the key word ‘thyroidectomy’ were evaluated using the Lida website validation instrument (assessing accessibility, usability and reliability) and the Flesch Reading Ease Score.Results:We evaluated 103 of a possible 250 websites. Mean scores (ranges) were: Lida accessibility, 48/63 (27–59); Lida usability, 36/54 (21–50); Lida reliability, 21/51 (4–38); and Flesch Reading Ease, 43.9 (2.6–77.6).Conclusion:The quality of internet health information regarding thyroidectomy is variable. High ranking and popularity are not good indicators of website quality. Overall, none of the websites assessed achieved high Lida scores. In order to prevent the dissemination of inaccurate or commercially motivated information, we recommend independent labelling of medical information available on the World Wide Web.

scholarly journals Factors Associated with the Quality of Online Information about Scapholunate Interosseous Ligament Insufficiency

2018 ◽  
Vol 11 (02) ◽  
pp. 094-099
Author(s):  
Daniel Bakker ◽  
Janna S. E. Ottenhoff ◽  
David Ring
Keyword(s):  
Web Sites ◽  
Ligament Injury ◽  
The Internet ◽  
Online Information ◽  
Interosseous Ligament ◽  
Factors Associated ◽  
Flesch Reading Ease ◽  
Ease Score ◽  
Ibm Watson

Abstract Background The Internet is increasingly used by patients to seek health information about their medical conditions. The online information is of variable quality, often difficult to read, and sometimes inaccurate or misleading. This study assessed factors associated with the quality, readability, and dominant tones of online information about scapholunate interosseous ligament (SLIL) insufficiency. Materials and Methods Using the three most used search engines, we entered the terms “wrist sprain,” “scapholunate ligament injury,” and “SL dissociation” and assessed the quality of the 45 Web sites identified using the DISCERN tool, readability by the Flesch Reading Ease Score, the Flesch–Kincaid Grade Level, the Gunning Fog Index, and the Simple Measure Of Gobbledygook, and dominant tones using the IBM Watson Tone Analyzer and the Linguistic Inquiry and Word Count. Results Online information about SLIL injuries had a mean DISCERN score of 39 ± 8.2. A dominant Web site tone of “sadness” correlated with lower DISCERN scores. A dominant tentative tone in text was associated with easier to comprehend texts. Conclusion The online information regarding SLIL insufficiency is of generally low quality, limited readability, and the underlying tones may be misleading. Professional societies might consider efforts to provide appealing, readable, information about SLIL insufficiency and other less common diagnoses on the Internet.

scholarly journals Readability and Quality of Online Information on Osteoarthritis: An Objective Analysis With Historic Comparison (Preprint)

2018 ◽  
Author(s):  
Kieran Edward Murray ◽  
Timothy Eanna Murray ◽  
Anna Caroline O'Rourke ◽  
Candice Low ◽  
Douglas James Veale
Keyword(s):  
Grade Level ◽  
English Language ◽  
Assessment Tool ◽  
Code Of Conduct ◽  
Online Information ◽  
Flesch Reading Ease ◽  
12Th Grade ◽  
8Th Grade ◽  
Ease Score

BACKGROUND Osteoarthritis (OA) is the most common cause of disability in people older than 65 years. Readability of online OA information has never been assessed. A 2003 study found the quality of online OA information to be poor. OBJECTIVE The aim of this study was to review the readability and quality of current online information regarding OA. METHODS The term osteoarthritis was searched across the three most popular English language search engines. The first 25 pages from each search engine were analyzed. Duplicate pages, websites featuring paid advertisements, inaccessible pages (behind a pay wall, not available for geographical reasons), and nontext pages were excluded. Readability was measured using Flesch Reading Ease Score, Flesch-Kincaid Grade Level, and Gunning-Fog Index. Website quality was scored using the Journal of the American Medical Association (JAMA) benchmark criteria and the DISCERN criteria. Presence or absence of the Health On the Net Foundation Code of Conduct (HONcode) certification, age of content, content producer, and author characteristics were noted. RESULTS A total of 37 unique websites were found suitable for analysis. Readability varied by assessment tool from 8th to 12th grade level. This compares with the recommended 7th to 8th grade level. Of the 37, 1 (2.7%) website met all 4 JAMA criteria. Mean DISCERN quality of information for OA websites was “fair,” compared with the “poor” grading of a 2003 study. HONcode-endorsed websites (43%, 16/37) were of a statistically significant higher quality. CONCLUSIONS Readability of online health information for OA was either equal to or more difficult than the recommended level.

The reliability of the Internet for patient-centred education for surgical procedures

2020 ◽  
Vol 15 (4) ◽  
pp. 197-203
Author(s):  
Ca Slinger ◽  
I Smillie
Keyword(s):  
Surgical Procedures ◽  
Patient Information ◽  
Medical Information ◽  
Poor Quality ◽  
Reading Level ◽  
The Internet ◽  
Flesch Reading Ease ◽  
Written Information ◽  
Ease Score

Background There is increasing use of the Internet by patients as an educational tool prior to a surgical procedure. However, the quality of information is highly variable, and it is imperative that as clinicians, we are aware of the information available to ensure that consent is valid and avoid unrealistic expectations. Our aim is to assess the quality of medical information available on the Internet related to common surgical procedures. Methods Analysis of the quality of patient information on 10 websites for six common surgical conditions ( n = 54 following exclusions) was assessed using the DISCERN questionnaire and, for readability, using the Flesch reading ease test. Results There was high variation in the DISCERN score from 1.34 to 4.4 (mean 2.75). Overall, poor quality of patient information is available. Consistent scoring below 55 on Flesch reading ease score suggests a reading level beyond the majority of the patient population. Conclusion The majority of patient-centred health education on the Internet is poor. Therefore, improved verbal and written information during consultation combined with local, national and international websites is important to meet patient’s expectations and avoid issues regarding consent.

scholarly journals Readability and Quality of Online Information on Osteoarthritis: An Objective Analysis With Historic Comparison

10.2196/12855 ◽  
2019 ◽  
Vol 8 (3) ◽  
pp. e12855 ◽  
Author(s):  
Kieran Edward Murray ◽  
Timothy Eanna Murray ◽  
Anna Caroline O'Rourke ◽  
Candice Low ◽  
Douglas James Veale
Keyword(s):  
Grade Level ◽  
English Language ◽  
Assessment Tool ◽  
Code Of Conduct ◽  
Online Information ◽  
Flesch Reading Ease ◽  
12Th Grade ◽  
8Th Grade ◽  
Ease Score

Background Osteoarthritis (OA) is the most common cause of disability in people older than 65 years. Readability of online OA information has never been assessed. A 2003 study found the quality of online OA information to be poor. Objective The aim of this study was to review the readability and quality of current online information regarding OA. Methods The term osteoarthritis was searched across the three most popular English language search engines. The first 25 pages from each search engine were analyzed. Duplicate pages, websites featuring paid advertisements, inaccessible pages (behind a pay wall, not available for geographical reasons), and nontext pages were excluded. Readability was measured using Flesch Reading Ease Score, Flesch-Kincaid Grade Level, and Gunning-Fog Index. Website quality was scored using the Journal of the American Medical Association (JAMA) benchmark criteria and the DISCERN criteria. Presence or absence of the Health On the Net Foundation Code of Conduct (HONcode) certification, age of content, content producer, and author characteristics were noted. Results A total of 37 unique websites were found suitable for analysis. Readability varied by assessment tool from 8th to 12th grade level. This compares with the recommended 7th to 8th grade level. Of the 37, 1 (2.7%) website met all 4 JAMA criteria. Mean DISCERN quality of information for OA websites was “fair,” compared with the “poor” grading of a 2003 study. HONcode-endorsed websites (43%, 16/37) were of a statistically significant higher quality. Conclusions Readability of online health information for OA was either equal to or more difficult than the recommended level.

How readable and reliable is online patient information on chronic rhinosinusitis?

2021 ◽  
pp. 1-4
Author(s):  
A Habeeb
Keyword(s):  
Chronic Rhinosinusitis ◽  
Patient Information ◽  
Grade Level ◽  
Information Quality ◽  
Reading Level ◽  
Improve Patient Compliance ◽  
Flesch Reading Ease ◽  
Ease Score ◽  
Improve Patient ◽  
Average Adult

Abstract Objective This study aimed to assess the quality and readability of websites on chronic rhinosinusitis. Methods A total of 180 results from 3 different search engines regarding ‘chronic rhinosinusitis’, ‘sinusitis’ and ‘sinus infections’ were analysed for readability using the Flesch–Kincaid Grade Level, Flesch Reading Ease Score and Gunning Fog Index. The Discern tool was used to approximate information quality. Results From 180 total searches, 69 unique websites were identified. These had an average Flesch–Kincaid Grade Level of 9.75 (95 per cent confidence interval = 9.12–10.4), a Flesch Reading Ease Score of 45.0 (41.0–49.0) and a Gunning Fog Index of 13.7 (12.9–14.4), which equates to the average reading level of a college or university student. Discern scores were variable but consistently showed good-quality information. Conclusion Chronic rhinosinusitis information is of a high quality but is for a reading level higher than that of the average adult. Standardising patient information should ensure adequate comprehension and improve patient compliance.

scholarly journals Quality Assessment of Online Patient Information for Cosmetic Botulinum Toxin

2020 ◽  
Vol 40 (11) ◽  
pp. NP636-NP642 ◽  
Author(s):  
Eric Barbarite ◽  
David Shaye ◽  
Samuel Oyer ◽  
Linda N Lee
Keyword(s):  
Botulinum Toxin ◽  
Patient Education ◽  
Online Education ◽  
Grade Level ◽  
Assessment Tool ◽  
Botulinum Toxin Injection ◽  
Reading Level ◽  
Accuracy Score ◽  
Flesch Reading Ease

Abstract Background In an era of widespread Internet access, patients increasingly look online for health information. Given the frequency with which cosmetic botulinum toxin injection is performed, there is a need to provide patients with high-quality information about this procedure. Objectives The aim of this study was to examine the quality of printed online education materials (POEMs) about cosmetic botulinum toxin. Methods An Internet search was performed to identify 32 websites of various authorship types. Materials were evaluated for accuracy and inclusion of key content points. Readability was measured by Flesch Reading Ease and Flesch-Kincaid Grade Level. Understandability and actionability were assessed with the Patient Education Materials Assessment Tool for Printed Materials. The effect of authorship was measured by undertaking analysis of variance between groups. Results The mean [standard deviation] accuracy score among all POEMs was 4.2 [0.7], which represents an accuracy of 76% to 99%. Mean comprehensiveness was 47.0% [16.4%]. Mean Flesch-Kincaid Grade Level and Flesch Reading Ease scores were 10.7 [2.1] and 47.9 [10.0], respectively. Mean understandability and actionability were 62.8% [18.8%] and 36.2% [26.5%], respectively. There were no significant differences between accuracy (P > 0.2), comprehensiveness (P > 0.5), readability (P > 0.1), understandability (P > 0.3), or actionability (P > 0.2) by authorship. Conclusions There is wide variability in the quality of cosmetic botulinum toxin POEMs regardless of authorship type. The majority of materials are written above the recommended reading level and fail to include important content points. It is critical that providers take an active role in the evaluation and endorsement of online patient education materials.

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