scholarly journals Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents

2010 ◽  
Vol 8 (1) ◽  
pp. 150 ◽  
Author(s):  
David B Nicholas ◽  
Anthony R Otley ◽  
Rachel Taylor ◽  
Anil Dhawan ◽  
Susan Gilmour ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Qualitative Analysis ◽  
Pediatric Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Barriers To Health

scholarly journals Health-related quality of life and psychological correlates in patients listed for liver transplantation

2007 ◽  
Vol 1 (4) ◽  
pp. 437-443 ◽  
Author(s):  
Jolie J. Gutteling ◽  
Robert A. de Man ◽  
Jan J. V. Busschbach ◽  
Anne-Sophie E. Darlington
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Health Related Quality ◽  
Psychological Correlates ◽  
Related Quality ◽  
Health Related

454 Adolescent health related quality of life after liver transplantation

Hepatology ◽  
2003 ◽  
Vol 38 ◽  
pp. 380-380 ◽  
Author(s):  
S SUNDARAM ◽  
K NEIGHBORS ◽  
L AMARUSO ◽  
J SINACORE ◽  
E ALONSO
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Adolescent Health ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Effects of liver transplantation on health-related quality of life in patients with primary biliary cholangitis

2018 ◽  
Vol 32 (12) ◽  
pp. e13434 ◽  
Author(s):  
Marcin Krawczyk ◽  
Małgorzata Koźma ◽  
Agnieszka Szymańska ◽  
Katarzyna Leszko ◽  
Marta Przedniczek ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Primary Biliary Cholangitis ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Poor Oral Health-Related Quality of Life in Pre- and Post-Liver Transplantation Patients

2021 ◽  
Vol 15 (1) ◽  
pp. 196-203
Author(s):  
Larissa S. Santos-Lins ◽  
Inácio L.S. Aguiar ◽  
Liana Codes ◽  
Maria A. Evangelista ◽  
Alessandra de Oliveira Castro ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Liver Disease ◽  
Oral Health ◽  
Work Ability ◽  
General Health ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background: Oral health is associated with Chronic Liver Disease (CLD) and may play a relevant role in oral (OHRQoL) and general health-related quality of life (HRQoL) among people with chronic liver disease (CLD). Objective: To explore the correlations between OHRQoL and HRQoL in pre- and post-liver transplantation (LT) patients. Methods: A cross-sectional study with 189 patients: 63 per group (pre-LT, post-LT, and without liver disease). The Oral Health Impact Profile-14 (OHIP-14), the 36-Item Short-Form Health Survey, and the Work Ability Index (WAI) were used to measure oral health-related quality of life, health-related quality of life, and work ability, respectively. Oral health was evaluated according to the World Health Organization criteria. The relationship between the OHIP-14 and independent variables was analysed by multiple linear regression. Results: Pre-LT group presented the highest OHIP-14 total mean score, followed by the post-LT group, compared to the group without liver disease (p=0.001). All HRQoL and WAI mean scores were lower in the pre-LT group than in the other groups (p≤0.013). In the pre-LT group, the OHIP-14 total mean score was negatively correlated with the Mental Health, Physical Functioning, and General Health mean scores (p=0.01) and negatively and significantly (p<0.05) associated with decayed teeth and with poor workability. In the post-TL group, OHRQOL of life was associated with decayed and missing teeth, lower educational level, and poor workability. Conclusion: Patients in the pre- and post-LT groups presented poorer OHRQoL compared to patients without liver disease. OHRQoL was strongly correlated with HRQoL in the pre-LT group.

scholarly journals Health-related quality of life outcomes in pediatric patients with cardiac rhythm devices: a cross-sectional study with case-control comparison

2019 ◽  
Vol 17 (1) ◽  
Author(s):  
Helene Werner ◽  
Phaedra Lehmann ◽  
Alina Rüegg ◽  
Silvia Hilfiker ◽  
Karin Steinmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Health ◽  
Pediatric Patients ◽  
Healthy Controls ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Cardiac Medication ◽  
Disease Specific

Abstract Background Little is known about health-related quality of life (HRQoL) in pediatric patients with cardiac rhythm devices. This study aims to compare self- and proxy-reported HRQoL in patients with pacemaker (PM) and implantable cardioverter-defibrillator (ICD) to that in sex- and age-matched healthy controls and to examine predictors for generic and disease-specific HRQoL. Methods The study included 72 PM and ICD patients (39% females) and 72 sex- and age-matched healthy controls from 3 to 18 years of age. HRQoL data was obtained by the PedsQL 4.0 Generic Core Scales and Pediatric Cardiac Quality of Life Inventory. Medical data was collected retrospectively from medical records. Results Patients had significantly lower self- and proxy-reported generic overall HRQoL and lower physical health than healthy controls, and ICD patients also had lower psychosocial health. On multivariate analyses, generic overall HRQoL and physical health was significantly predicted by current cardiac medication (β = −.39, p = .02 for overall HRQoL, respectively β = −.44, p = .006 for physical health). Disease-specific overall HRQoL was only marginally predicted by child age, device type, and the presence of a structural congenital heart disease (p < .10). Conclusions This study shows that PM and ICD patients have lower HRQoL than healthy controls and that patients who need cardiac medication are seen by their parents at great risk for lower generic overall HRQoL. Our study also indicates a trend towards higher risk for low disease-specific HRQoL in younger patients, ICD patients, and patients with a structural congenital heart disease. Special attention should be given to these patients as they may benefit from a timely clinical evaluation in order to provide supportive interventions.

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