scholarly journals Information needs and information seeking behaviour of people with dementia and their non-professional caregivers: a scoping review

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Aijia Soong ◽  
Shu Ting Au ◽  
Bhone Myint Kyaw ◽  
Yin Leng Theng ◽  
Lorainne Tudor Car
BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e028324
Author(s):  
Shu Ting Au ◽  
Aijia Soong ◽  
Bhone Myint Kyaw ◽  
Lorainne Tudor Car

BackgroundDementia is a debilitating disease that can lead to major changes in a patient’s behaviour and function. It is important to educate both patients with dementia and their non-professional caregivers about the disease. Yet, currently available sources do not seem to be effective for patients and caregivers, who report a need for more information and guidance. A systematic identification of the patients’ and caregivers’ needs for information and information-seeking behaviour is needed to create information resources that are relevant and beneficial to the target population.ObjectivesThis is a protocol for a scoping review aimed at gathering knowledge on the information needs and information-seeking behaviour of patients with dementia and their non-professional caregivers. Our aim was also to provide recommendations for development of future dementia information resources.MethodsThe study will commence in November 2018. Both quantitative and qualitative studies on the information needs of patients with dementia or caregivers will be examined using Arksey and O’Malley’s methodological framework for scoping studies. A comprehensive literature search will be conducted in electronic databases and grey literature sources. We will also screen reference lists of included studies and related systematic reviews for additional eligible studies. Two authors will perform screening of citations for eligibility and independently extract data from the included studies in parallel. Any discrepancies will be resolved through discussion. The findings will be presented through a narrative synthesis and reported in line with PreferredReporting Items for Systematic Reviews and Meta-Analyses reporting guidelines.Ethics and disseminationIn this review, all included data will originate from published literature. Ethics approval is therefore not a requirement. We will present our findings at relevant conferences and will submit them for publication in peer-reviewed journals.


2020 ◽  
Author(s):  
Aijia Soong ◽  
Shu Ting Au ◽  
Bhone Myint Kyaw ◽  
Yin Leng Theng ◽  
Lorainne Tudor Car

Abstract Background: People with dementia often require full-time caregivers especially in the later stages of their condition. People with dementia and caregivers’ access to reliable information on dementia is essential as it may have an important impact on patient care and quality of life. This study aims to provide an overview of the information needs and information seeking behaviour of people with dementia and their non-professional caregivers. Methods: We conducted a scoping review of the literature and searched four electronic databases for eligible studies published up to August 2018. Two reviewers independently screened studies and extracted data. Information needs were classified according to emerging themes in the literature, and information seeking behaviour was categorized using Wilson’s model of information behaviour. Results: Twenty studies with a total of 4,140 participants, were included in this review. Reported information needs focused on: (i) disease; (ii) patient care provision; (iii) healthcare services; and (iv) caregiver self-care. The most commonly reported information need was on healthcare service-related information. Characteristics found to influence information needs were the severity of dementia as well as patient and caregiver status. People with dementia and non-professional caregivers mainly displayed active searching, information seeking behaviour and preferred using electronic sources to obtain health information. Conclusion: Current dementia information sources available in English are extensive in the information they offer, but more emphasis needs to be placed on healthcare service-related information. All studies originated from high income countries and focused on information needs of non-professional caregivers only. The only variables found to be associated to information needs were severity of dementia condition as well as patient/caregiver status. The information needs identified in this review can be used to inform development and design of future dementia resources for people with dementia and their non-professional caregivers.


2019 ◽  
Author(s):  
Aijia Soong ◽  
Shu Ting Au ◽  
Bhone Myint Kyaw ◽  
Yin Leng Theng ◽  
Lorainne Tudor Car

Abstract Background Patients with dementia often require full-time caregivers especially in the later stages of their condition. Patients and caregivers’ access to reliable information on dementia is essential as it may have an important impact on patient care and quality of life. This study aims to provide an overview of the information needs and information seeking behaviour of dementia patients and their caregivers.Methods We conducted a scoping review of the literature and searched four electronic databases for eligible studies published up to August 2018. Two reviewers independently screened studies and extracted data. Information needs were classified according to emerging themes in the literature, and information seeking behaviour was categorized using Wilson’s model of information behaviour.Results Twenty studies with a total of 4,140 participants, were included in this review. Reported information needs focused on: (i) disease; (ii) patient care provision; (iii) healthcare services; and (iv) caregiver self-care. The most commonly reported information need was on healthcare service-related information. Characteristics found to influence information needs were the severity of dementia as well as patient and caregiver status. Dementia patients and caregivers mainly displayed active searching information seeking behaviour and preferred using electronic sources to obtain health information.Conclusion Current dementia information sources available in English are extensive in the information they offer, but more emphasis needs to be placed on healthcare service-related information. All studies originated from high income countries and focused on information needs of caregiver only. The only variable found to significantly influence information needs was severity of dementia condition. The information needs identified in this review can be used to inform development and design of future dementia resources for patients and their caregivers.


2019 ◽  
Author(s):  
Aijia Soong ◽  
Shu Ting Au ◽  
Bhone Myint Kyaw ◽  
Yin Leng Theng ◽  
Lorainne Tudor Car

Abstract Background Patients with dementia often require full-time caregivers especially in the later stages of their condition. Patients and caregivers’ access to reliable information on dementia is essential as it may have an important impact on patient care and quality of life. This study aims to provide an overview of the information needs and information seeking behaviour of dementia patients and their caregivers.Methods We conducted a scoping review of the literature and searched four electronic databases for eligible studies published up to August 2018. Two reviewers independently screened studies and extracted data. Information needs were classified according to emerging themes in the literature, and information seeking behaviour was categorized using Wilson’s model of information behaviour.Results Twenty studies with a total of 4,140 participants, were included in this review. Reported information needs focused on: (i) disease; (ii) patient care provision; (iii) healthcare services; and (iv) caregiver self-care. The most commonly reported information need was on healthcare service-related information. Characteristics found to influence information needs were the severity of dementia as well as patient and caregiver status. Dementia patients and caregivers mainly displayed active searching information seeking behaviour and preferred using electronic sources to obtain health information.Conclusion Current dementia information sources available in English are extensive in the information they offer, but more emphasis needs to be placed on healthcare service-related information. All studies originated from high income countries and focused on information needs of caregiver only. The only variable found to significantly influence information needs was severity of dementia condition. The information needs identified in this review can be used to inform development and design of future dementia resources for patients and their caregivers.


2020 ◽  
Vol 10 (1) ◽  
pp. 1-5
Author(s):  
K. V. Jayamma ◽  
G. T. Mahesh

This Study was designed to examine information seeking behaviour of PG Students at Government Science College Library, Bangalore. The study intended with an aim to explore the information usage among PG students. Closed ended questionnaire was used to collect the data from respondents. A total of 200 samples out of 319 students. Among the200 hundred questionnaires distributed, 127 were completely answered and returned. The findings of this study revealed the information needs of PG students in Government Science College. The majority of students who are visiting library are females; also, the majority of the PG students are visiting library once in a week. The main purpose of the visit to the library is for accessing exam related information for their study.


2017 ◽  
Vol 35 (3) ◽  
pp. 362-373 ◽  
Author(s):  
Addisalem Gebrekidan Desta ◽  
Madely du Preez ◽  
Patrick Ngulube

The purpose of this study was to investigate some of the factors affecting the information-seeking behaviour of postgraduate students registered at the University of South Africa (Unisa) as represented by its Ethiopia Regional Learning Centre, with particular emphasis on their use of electronic information resources. A qualitative case study approach was adopted. In semi-structured interviews, eight conveniently selected postgraduate students shared their information-seeking experiences. The data was analysed thematically. The findings identified contextual and personal factors which gave rise to the respondents’ information needs and in turn prompted information activities such as information seeking. Of these, a lack of ICT infrastructure, frequent interruptions in electricity supply, old computers and the location of the Akaki Branch Library proved to be the main factors affecting postgraduate students’ electronic information-seeking behaviour. The findings showed the effect that inadequate facilities have on postgraduate students’ information behaviour.


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