scholarly journals Planning and designing a self-compassion intervention for family carers of people living with dementia: a person-based and co-design approach

2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Jenny Murfield ◽  
Wendy Moyle ◽  
Analise O’Donovan

Abstract Background This article describes the research activities undertaken to plan and design a self-compassion intervention for family carers of people living with dementia using a person-based and co-design approach. In providing this example, our aim is two-fold: to highlight the value of using qualitative research and co-design processes within intervention development; and to showcase systematic reporting of an intervention’s early planning and design stages. Methods A person-based and co-design approach informed the planning and design of the self-compassion intervention. In Stage 1, qualitative interviews were undertaken with 14 family carers of people living with dementia and 14 professional stakeholders. In Stage 2, intervention guiding principles were developed, psychological theory was incorporated, and six family carers of people living with dementia were engaged as co-designers. Results Knowledge generated during intervention planning identified that the intervention should be situated within the concept of compassion more broadly; address misperceptions, fears, blocks, and resistances to self-compassion; and target feelings of shame, guilt, and self-criticism. Subsequent intervention design activities determined that the needs of family carers of people living with dementia were best met by tailoring an existing intervention, namely group-based Compassion-Focused Therapy. Conclusions Our systematic approach highlights the value of incorporating in-depth qualitative research and co-design within the intervention development process to prioritise the perspectives and lived experiences of family carers of people living with dementia. The planning and design process outlined provides insight that is applicable to the development of our intervention and complex health interventions within gerontology and beyond.

2020 ◽  
Vol 101 (4) ◽  
pp. 484-497
Author(s):  
Jonathan Alschech ◽  
Stephanie Begun

Research on young parents experiencing homelessness has typically focused on mothers and pregnant women. Young homeless fathers’ tendencies to decline involvement throughout pregnancy and in their children’s lives have been documented and condemned; however, little is known about young men’s perspectives on these situations. This exploratory study engaged homeless young men in qualitative interviews regarding their perceptions and experiences of fathering. Respondents often viewed fatherhood as solely representing breadwinner responsibilities and as a burden that one dutifully carries or shamefully (yet commonly) shirks. Homeless young men’s beliefs about fathering, often steeped in guilt and shame, may suggest that encouraging alternative conceptions of competent fathering while young and homeless is an important area for further research, intervention development, and service provision.


2017 ◽  
Vol 41 (S1) ◽  
pp. S356-S356 ◽  
Author(s):  
M. Matos ◽  
J. Duarte ◽  
C. Duarte ◽  
J. Pinto-Gouveia ◽  
P. Gilbert

IntroductionCompassion and self-compassion can be protective factors against mental health difficulties, in particular depression. The cultivation of the compassionate self, associated with a range of practices such as slow and deeper breathing, compassionate voice tones and facial expressions, and compassionate focusing, is central to compassion focused therapy (Gilbert, 2010). However, no study has examined the processes of change that mediate the impact of compassionate self-cultivation practices on depressive symptoms.AimsThe aim of this study is to investigate the impact of a brief compassionate self training (CST) intervention on depressive symptoms, and explore the psychological processes that mediate the change at post intervention.MethodsUsing a longitudinal design, participants (general population and college students) were randomly assigned to one of two conditions: Compassionate self training (n = 56) and wait-list control (n = 37). Participants in the CST condition were instructed to practice CST exercises for 15 minutes everyday or in moments of stress during two weeks. Self-report measures of depression, self-criticism, shame and compassion, were completed at pre and post in both conditions.ResultsResults showed that, at post-intervention, participants in the CST condition decreased depression, self-criticism and shame, and increased self-compassion and openness to receive compassion from others. Mediation analyses revealed that changes in depression from pre to post intervention were mediated by decreases in self-criticism and shame, and increases in self-compassion and openness to the compassion from others.ConclusionsThese findings support the efficacy of compassionate self training components on lessening depressive symptoms and promoting mental health.Disclosure of interestThe authors have not supplied their declaration of competing interest.


2016 ◽  
Vol 19 (2) ◽  
pp. 1-22 ◽  
Author(s):  
MOACIR ROBERTO DAROLT ◽  
CLAIRE LAMINE ◽  
ALFIO BRANDENBURG ◽  
MARIA DE CLÉOFAS FAGGION ALENCAR ◽  
LUCIMAR SANTIAGO ABREU

Abstract This paper presents an analysis about agroecological alternative food networks and new producer-consumer relationships in France and Brazil. The investigation method is based on descriptive and qualitative research about 20 cases (qualitative interviews), selected with stakeholders (farmers, traders, consumers and food experts) in France and Southern Brazil. A typology about the characteristics and organization to short circuits trade is provided. The results show that alternative food networks are very diverse and dynamic, being a social, economic and environmental option to family farming, strengthening local markets and reconnecting producers and consumers. In these countries, the successful initiatives of alternative networks occur in places where there is coordination between food networks stakholders such as the government, NGOs, private enterprises, farmers and consumers' organizations.


Author(s):  
Adeline Grace Marianne Litaay

The study discusses the effects of the abuse experienced by David’s character in David Pelzer’s A Child Called It and The Lost Boy. The theory applied is psychological theory about child abuse and the research method applied is qualitative research by Blaxter. Based on the research, it is found that the effects of the above abuse that David experienced were flashback through nightmares, the feeling of insecure  and frightened, low self esteem and inferior feeling, difficulties to trust others and develop friendliness, and deteriotating school performance. Besides, David had deviant actions (stealing), obstacles to understand and receive love and/or properness, and emotional control disorder.


2020 ◽  
Author(s):  
Shelley Anne Tranter ◽  
Maria Cabreras-Aguas ◽  
Mandy Riddell ◽  
Joanna McCulloch ◽  
Therese Riley ◽  
...  

Abstract Background: Microbial keratitis is a vision-threatening condition requiring intensive treatment. Understanding patients’ and carers’ experience during and after hospitalisation can inform improvements in care and outcomes. This study explored the vision-related quality of life, and the experiences of patients with microbial keratitis and their family carers when admitted to a quaternary referral eye hospital in AustraliaMethods: The study employed mixed methods, including qualitative interviews and a survey in hospital and a telephone interview post-discharge. A convenience sample was recruited of 33 patients with microbial keratitis who presented to hospital between March and October 2017, and 10 of their family carers. Semi-structured interviews were audiotaped, transcribed verbatim, coded and analysed using thematic analysis. Patient participants completed the National Eye Institute Visual Functioning Questionnaire – 25 (NEIVFQ-25).Results: Qualitative analyses identified two main themes: Saving sight, with subthemes of costs of saving sight, and travel and transportation; Safe-guarding home and normal life with subthemes of family, work and pastimes. A group mean NEIVFQ-25 score of 74 was similar to other ophthalmic disease groups but pain scores were higher.Conclusion: Findings provide insights into the experiences and often unspoken concerns of microbial keratitis patients and their family carers, revealing the priority and the associated costs of saving sight, and the implications for family and lifestyles. These patients reported similarly reduced vision-related quality of life but greater pain compared to other ophthalmic groups. Findings point to ways to improve their experience and potentially reduce the high rates of unplanned representations of this patient group.


2019 ◽  
Author(s):  
Mandy M. Greaves ◽  
Cass Dykeman

Rates of Non-suicidal self-injury (NSSI) has have steadily been on the risen among in adolescents and young adults. This study collected pro-NSSI public blog posts from Tumblr on pro-NSSI and analyzed the content linguistically using LIWC software. , examining the The NSSI -specific words, the linguistics properties and the psychological linguistic properties were examined. The results align with similar studies conducted on understanding the language markers of mental health. For NSSI specific word categories, the methods of engaging in NSSI was the most frequently used in the Tumblr blogs. This aligns with literature about the need for people to express their emotional pain to others who may understand. The linguistic properties demonstrated some unique results that can be best explained by the numbing feeling that is found in individuals who utilize NSSI and their tendency to avoid expressing painful experiences in a manner that would increase their vulnerability. The psychological properties of these public Tumblr posts were revealed through the dominantly in a negative emotional tone of the writing, which is also indicative of anyone struggling with severe mental illness. These findings suggest that treatment which specializes in shame and increasing self-compassion, such as Compassion Focused Therapy, would be more beneficial to these individuals who struggle with pain, shame and emotional distress than current treatment programs.


Author(s):  
Alexander Syam

The purpose of this study is to determine and analyze Mandeh tourism development strategy and to formulate Development Alternatives using FGD (Focus Group Discussion) and AHP (Analytical Hierarchy Process). The type of this study is Mixed Method which is research that combines or integrates qualitative and quantitative Method to be used together in research activities in order to obtain more comprehensive, valid, reliable, and objective data. However, in this study is more weighted on qualitative research and quantitative data to support qualitative research. So, based on the results of FGD and AHP there are four main priorities strategy in dealing MEA: 1) tourism development of art, culture and religion, 2) tourism product’s development of natural wonder, 3) development of underwater tourism, 4) providing socialization to meet MEA.


2019 ◽  
Vol 8 (1) ◽  
pp. 230-234
Author(s):  
Oksana Yurievna Brazhnik ◽  
Ekaterina Aleksandrovna Batrachenko

This paper describes features of students research activities organization. The authors consider possibilities of research use while studying the courses of the variable part of the educational program. This paper focuses on the role of industrial practice in the implementation of research activities. The approximate content of practices programs, as well as the typology of tasks aimed at research work intensification is given. The authors emphasize the role of research activities for general professional and professional competencies development. The paper also considers peculiarities of estimation and ways of scientific-research work optimization while studying for the Masters degree. The conducted studies have shown that the assessment of competencies development can be carried out on various indicators, the following indicators are of fundamental importance: practical nature of scientific and innovative activity (participation in fundamental landscape and geographical research, modernization and creation of landscape programs of general scientific and applied importance), originality of the idea and creative approach, use of the latest technologies of landscape planning and design.


2021 ◽  
Author(s):  
Stephen Thompson ◽  
Shadrach Chuba-Uzo ◽  
Brigitte Rohwerder ◽  
Jackie Shaw ◽  
Mary Wickenden

This qualitative study was undertaken as part of the work of the Foreign, Commonwealth and Development Office (FCDO) funded Inclusion Works programme which aims to improve inclusive employment for people with disabilities in four countries: Uganda, Kenya, Nigeria, Bangladesh. When the COVID-19 pandemic emerged early in 2020 the work of this consortium programme was adapted to focus on pandemic relief and research activities, while some other planned work was not possible. The Institute of Development Studies (IDS) led a piece of qualitative research to explore the experiences and perceptions of the pandemic and related lockdowns in each country, using a narrative interview approach, which asks people to tell their stories, following up with some further questions once they have identified their priorities to talk about. 10 people with disabilities who were involved in Inclusion Works in each country were purposively selected to take part, each being invited to have two interviews with an interval of one or two months in between, in order to capture changes in their situation over time. The 10 interviewees had a range of impairments, were gender balanced and were various ages, as well as having differing living and working situations.


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