scholarly journals Acceptability and feasibility of a vestibular nerve stimulation headset protocol in children with cerebral palsy

2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Karen McConnell ◽  
Daniel Topley ◽  
Jason McKeown ◽  
Claire Kerr

Abstract Background Research suggests electrical Vestibular Nerve Stimulation (VeNS) may improve balance for people with neurological impairments. This study aimed to assess the feasibility and acceptability of a VeNS headset protocol in children with cerebral palsy (CP). Methods Children aged 5–18 years with ambulant CP, their parents, and healthcare professionals were recruited via social media. Children completed a battery of balance tests and wore a sham VeNS headset one hour per day for four weeks. Perspectives on the balance tests and headset were ascertained from children, parents and healthcare professionals using semi-structured interviews. Interview data were analysed thematically. Results Two families and four healthcare professionals participated. Balance outcome measures were fully completed and deemed acceptable. Adherence with wearing the headset was 89–100% but discomfort with self-adhesive electrodes was reported. Four themes emerged from interview data: headset issues, perceptions about VeNS, the importance of balance, and modifications for future study. Conclusions Although the VeNS headset had high acceptability, the volunteer sample was small, potentially suggesting limited interest in VeNS as a treatment for children with CP, or reluctance to trial a ‘non-active’ headset. Recruitment via clinicians known to the family and use of an ‘active’ headset may increase participation in future research.

2020 ◽  
pp. 135910531990027
Author(s):  
Assimina Tsibidaki

The study focuses on families raising a child with cerebral palsy to investigate family strengths and their association with family and parent demographic characteristics in Greece and Italy. Participants were 120 parents raising a biological child with cerebral palsy. Data collection used a self-report questionnaire and the Family Strengths Inventory. According to the findings, families share a high sense of family strengths, which is mainly represented in the high sense of ‘pride’ and ‘accord’. In addition, demographic characteristics seem to be important predictors of well-being and strengthen parents and families raising a child with cerebral palsy.


2021 ◽  
Vol 57 (3) ◽  
Author(s):  
Phumudzo Raphulu ◽  
Modjadji Linda Shirindi ◽  
Mankwane Daisy Makofane

Caring for children with cerebral palsy presents numerous circumstances which may contribute to mothers’ inability to cope with the demands of meeting their children’s needs. A qualitative study supported by explorative, descriptive and contextual designs was undertaken. Purposive and snowball sampling facilitated the identification of twelve participants who were interviewed through semi-structured interviews. The enquiry was based on the ecosystems approach. Thematic data analysis was followed through Tesch’s eight steps and Guba’s model was used for data verification. The findings highlighted the necessity to enhance the psycho-social functioning of mothers through collaboration of social workers, health professionals and various organisations.


2021 ◽  
Vol 2 (2) ◽  
pp. 183-196
Author(s):  
Yubaedi Siron ◽  
Hana Sausan Ningrum ◽  
Lingga Gustiani ◽  
Fauziah Muaz

Cerebral palsy children need special treatment from their parents. The optimal caring from father has a significant influence on the development of children with cerebral palsy. This study aims to explore the role of fathers in caring for children with cerebral palsy. This research uses a qualitative approach. This study uses semi-structured interviews with fathers who have children with cerebral palsy. The results of this study found that fathers play an active role in childcare. Fathers help build good relationships with children by inviting them to play, sing, and read a child's favourite storybook. Even though he is busy at work, the father always tries to fulfil the children's needs such as bathing, eating, giving medication, changing diapers and routine therapy. Each participant in this study had their parenting challenges. Although sometimes the participants feel unwilling to do therapy on children, what makes them enthusiastic is their high expectations.


2019 ◽  
Vol 35 (2) ◽  
pp. 118-128 ◽  
Author(s):  
Anne V. Kirby ◽  
Nancy Bagatell ◽  
Grace T. Baranek

Research suggests higher parent expectations can predict more independent outcomes of youth with autism spectrum disorder (ASD), yet little is known about how parents’ expectations are formed. To gain an understanding of their formation, we conducted semi-structured interviews with seven parents of adolescents with ASD. Three main types of influences on parent expectations were identified: factors related to the youth, to the parent, and to social and societal forces external to the family. Although not directly probed, all of the participants also discussed their approaches to planning for the future, suggesting a connection with their expectations. These findings contribute to a growing body of literature on the role of parent expectations during the transition to adulthood. Future research and clinical practice implications include designing interventions aimed at expanding parent expectations in addition to approaches directly preparing youth with ASD for adulthood as a means to improve outcomes.


1992 ◽  
Vol 12 (5) ◽  
pp. 278-295 ◽  
Author(s):  
Denise T. Reid

The effects of a hand positioning device (HPD) on the quality of upper-extremity movement of five children with cerebral palsy were examined in this pilot study. Hand position was monitored during a reaching task using a single-point, 3°-of-freedom, three-dimensional tracker device. Three-dimensional path length, average velocity, movement time, response time, and the number of accelerations and decelerations (movement units) were measured. Operational definitions for each of these variables were developed for this study. Each subject performed 15 reaching trials at a pretest and posttest. A 6-week intervention period followed the pretest where each subject wore the HPD for 1 hour daily for functional activities. Group results showed no significant differences for any of the variables being measured. However, individual data analysis revealed that the HPD has the potential for modifying the quality of reaching motions in some children with cerebral palsy. The nature of the changes observed among these five subjects is discussed, as well as suggestions for future research studies. Finally, this initial study shows that the tracker is a sensitive method for recording qualitative changes in the upper-extremity motion of children with cerebral palsy in occupational therapy research.


2021 ◽  
Vol 15 (58) ◽  
pp. 304-312
Author(s):  
Michele Vivia Da Silva Nascimento ◽  
Verônica Teixeira

Resumo: Esse trabalho irá mencionar assuntos bastante relevante, e que faz parte do nosso dia a dia em quando profissional da educação, como também formadores de cidadãos, falar de inclusão não é fácil, e principalmente colocá-la em prática. Mas é de suma importância, pois a educação é um direito de todos, e dever do Estado assegurar esse direito as crianças, jovens e adolescentes. Incluir ou inserir crianças diagnosticadas com Paralisia Cerebral no ambiente educacional é uma tarefa, um pouco complicada, pois requer um olhar diferenciado. Com isso, a escola precisa da ajuda da família nesse processo, como também da contribuição da comunidade em geral, pra trazer essas crianças pra esse ambiente, e assim desperta o conhecimento e as habilidades delas em questão cognitivo, emocional e afetivo, como também, o social. A visão que esse trabalho trará em seus pontos fundamentais e essenciais, na construção do saber e do fazer, uma educação inclusiva e acessiva de todos para todos; cabe os órgãos garantir formações específicas aos profissionais de educação, como os de apoios de sala de aula, sendo que, essas formações têm que abordar temas ligados a realidade do aluno que foram diagnosticados com tal deficiência.Palavras-Chave: Inclusão, Habilidades, Família, Direitos Deficiência Paralisia Cerebral. Abstract: This work will mention very relevant issues, which are part of our daily lives as education professionals, as well as citizen educators, talking about inclusion is not easy, and especially putting it into practice. But it is of paramount importance, as education is a right for all, and the State’s duty to ensure this right for children, young people and adolescents. Including or inserting children diagnosed with Cerebral Palsy in the educational environment is a task, a little complicated, as it requires a different look. With this, the school needs the help of the family in this process, as well as the contribution of the community in general, to bring these children to this environment, and thus awaken their knowledge and skills in cognitive, emotional and affective matters, as well as, the social. The vision that this work will bring in its fundamental and essential points, in the construction of knowledge and action, na inclusive and accessible education from all to all; it is up to the bodies to guarantee specific training for education professionals, such as classroom support, and these trainings have to address issues related to the reality of the student who has been diagnosed with such a disability.Keywords: Inclusion, Skills, Family, Rights Disability Cerebral Palsy.


Sign in / Sign up

Export Citation Format

Share Document