scholarly journals Assessing whether child and parent reports of the KINDL questionnaire measure the same constructs of quality of life in children with attention-deficit hyperactivity disorder

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Marzieh Alamolhoda ◽  
Mohammad Farjami ◽  
Zahra Bagheri ◽  
Ahmad Ghanizadeh ◽  
Peyman Jafari
Keyword(s):  
Discriminant Validity ◽  
Self Report ◽  
Proxy Report ◽  
Parent Reports ◽  
Convergent And Discriminant Validity ◽  
Parent Proxy Report ◽  
Questionnaire Measure ◽  
Iranian Children ◽  
Parent Proxy

Abstract Background Discrepancy between child self-report and parent proxy-report has long been documented in the health-related quality of life (HRQoL) measurement of children with chronic health conditions. This study aims to assess whether child and parent reports of the Kinder Lebensqualität fragebogen (KINDL) questionnaire measure the same construct of HRQoL in children with attention-deficit hyperactivity disorders (ADHD). Methods Participants were 122 Iranian children with ADHD and 127 of their parents, who completed the child and parent reports of the KINDL, respectively. Internal consistency of the child and parent reports were assessed by Cronbach's alpha. The intra-class correlation (ICC) coefficient and factor analysis were applied to assess whether the child self-report and the parent proxy-report measured the same construct of HRQoL. Additionally, convergent and discriminant validity were assessed using the Spearman correlation. Results The results of factor analysis revealed that the child self-report and parent proxy-report measure two different aspects of HRQoL. Moreover, both versions of the KINDL instrument showed excellent convergent and discriminant validity. The internal consistency was close to or greater than 0.7 for all domains of both child and parent reports. Conclusions Although the child self-report and the parent proxy-report of the Persian version of the KINDL have good psychometric properties, they are not interchangeable. This finding indicates that Iranian children with ADHD and their parents evaluate children's HRQoL from their own viewpoints.

scholarly journals Quality of life in Hungarian patients with cystic fibrosis

2013 ◽  
Vol 154 (20) ◽  
pp. 784-791 ◽  
Author(s):  
Réka Bodnár ◽  
Klára Holics ◽  
Rita Ujhelyi ◽  
László Kádár ◽  
Lajos Kovács ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Self Report ◽  
Clinical Severity ◽  
Proxy Report ◽  
Parent Proxy Report ◽  
Multisystemic Disease ◽  
Cystic Fibrosis Questionnaire ◽  
Parent Proxy

Introduction: Cystic fibrosis is a progressive multisystemic disease which affects the quality of life of patients. Aim: The aim of the study was to evaluate quality of life in Hungarian patients with cystic fibrosis. Methods: Validated Hungarian translation of The Cystic Fibrosis Questionnaire – Revised was used to measure quality of life. Clinical severity was determined on the basis of Shwachman–Kulczycki score. Lung function was measured using spirometry. Results: 59 patients were included from five centres in Hungary. The relationships between 8–13 year-old children self-report and parent proxy report was 0.77 (p<0.001) in physical functioning, 0.07 (p<0.001) in emotional functioning, 0.51 (p<0.001) in eating, 0.21 (p<0.001) in treatment burden, 0.54 (p<0.001) in body image, 0.49 (p<0.001) in respiratory symptoms and 0.40 (p<0.001) in digestive symptoms domains. Conclusions: In contrast to physical domains weak correlations were observed between answers obtained from children and their parents in psychosocial domains. The perception of both patients and their parents should be assessed when measuring quality of life in paediatric patients with cystic fibrosis. Orv. Hetil., 2013, 154, 784–791.

Meta-analysis of quality of life in children and adolescents with ADHD: By both parent proxy-report and child self-report using PedsQL™

2016 ◽  
Vol 51-52 ◽  
pp. 160-172 ◽  
Author(s):  
Yi-chen Lee ◽  
Hao-Jan Yang ◽  
Vincent Chin-hung Chen ◽  
Wan-Ting Lee ◽  
Ming-Jen Teng ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Meta Analysis ◽  
Self Report ◽  
Proxy Report ◽  
Parent Proxy Report ◽  
Parent Proxy

scholarly journals Measuring parent proxy-reported quality of life of 11 rare diseases in children in Zhejiang, China

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Qisheng Gao ◽  
Shanshan Wang ◽  
Jianping Ren ◽  
Xin Wen
Keyword(s):  
Quality Of Life ◽  
Rare Diseases ◽  
Physical Functioning ◽  
Psychosocial Health ◽  
Self Report ◽  
School Functioning ◽  
Proxy Report ◽  
Parent Proxy Report ◽  
Parent Proxy

Abstract Background It has become increasingly important to measure the health-related quality of life (HRQoL) of rare diseases in children and adolescents in recent decades. Much attention has been paid to investigate the HROoL of a specific rare disease by self-report in previous studies. This study aimed to evaluate and compare the HROoL of 11 rare diseases in Chinese children by parent proxy-report, to explore the factors associated with HROoL of patients, and to understand the problems of most concern. Methods A total of 651 children aged from 2 to 18 were enrolled from the Children’s Hospital Affiliated Zhejiang University in 2018. Their parents completed the parent proxy-report version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™ 4.0). Independent samples t-test, one-way ANOVA, or Kruskal–Wallis H test was used to compare HROoL scores between groups. Multilevel linear regression models with random intercept were applied to analyze the relationship between socioeconomic variables and both the total score and subdomain scores. Results The total PedsQL scores of Patent ductus arteriosus (PDA), Infantile agranulocytosis, Autoimmune thrombocytopenia (ITP), Polysyndactyly, Hirschsprung disease, Cleft lip and palate, Tetralogy of fallot, Myasthenia gravis, Guillain–barre syndrome, Glycogen storage disease, and Langerhans cell histiocytosis children were 79.65 ± 5.46, 95.88 ± 3.48, 71.39 ± 3.27, 91.77 ± 6.35, 76.18 ± 6.92, 96.33 ± 4.22, 77.85 ± 8.90, 95.99 ± 3.31, 85.77 ± 4.56, 82.97 ± 4.13 and 77.6 ± 5.15, respectively. Age was significantly associated with physical functioning, school functioning, and psychosocial health scores. The household registration place was significantly related to the total score. The most urgent desire of patients was to reduce the overall medical costs. Conclusions This study showed that patients with PDA had the lowest physical functioning score, while patients with ITP scored the lowest in the emotional functioning, social functioning, school functioning, psychosocial health, and total scores. Incentive policies should be further adopted to improve orphan drug availability and reduce the economic burden of rare diseases.

An Initial Investigation of the Use of Comparative Referents to Assess Social Anxiety

2018 ◽  
Vol 34 (6) ◽  
pp. 367-375 ◽  
Author(s):  
Laura D. Seligman ◽  
Erin F. Swedish ◽  
Jason P. Rose ◽  
Jessica M. Baker
Keyword(s):  
Social Anxiety ◽  
Discriminant Validity ◽  
Self Report ◽  
Injunctive Norms ◽  
Good Reliability ◽  
Convergent And Discriminant Validity ◽  
Excellent Internal Consistency ◽  
Social Quality Of Life ◽  
Comparison Measures

Abstract. The current study examined the validity of two self-report measures of social anxiety constructed using social comparative referent points. It was hypothesized that these comparison measures would be both reliable and valid. Results indicated that two different comparative versions – one invoking injunctive norms and another invoking descriptive norms – showed good reliability, excellent internal consistency, and acceptable convergent and discriminant validity. The comparative measures also predicted positive functioning, some aspects of social quality of life, and social anxiety as measured by an independent self-report. These findings suggest that adding a comparative reference point to instructions on social anxiety measures may aid in the assessment of social anxiety.

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