National Dementia Capable Care Training: A Model Implementation and Evaluation

2021 ◽  
Vol 59 (5) ◽  
pp. 422-435
Author(s):  
Yumi Shirai ◽  
Kathleen Bishop ◽  
Melissa Kushner
Keyword(s):  
Developmental Disabilities ◽  
Support Staff ◽  
Short Version ◽  
Intellectual And Developmental Disabilities ◽  
Specialized Training ◽  
Structured Interviews ◽  
National Task ◽  
Core Components ◽  
Care Training

Abstract With a growing need for specialized training for direct caregivers and support staff of persons with intellectual and developmental disabilities (IDD) affected by dementia, the National Task Group on Developmental Disabilities and Dementia Practices (NTG) developed a comprehensive evidence-informed Dementia Capable Care Training (DCCT). To overcome the challenge of the training length and cost, and to extend its dissemination, the Sonoran Center developed a shorter version of the NTG-DCCT while retaining its core components, and implemented it in seven cities in the U. S. Southwest (N = 368). The pre- and post-training evaluation (n =260) demonstrated that the short version of the NTG-DCCT is effective in significantly improving participants' knowledge and/or confidence in dementia capable care. The follow-up semi-structured interviews of participants (n = 7) provide some insights.

scholarly journals Evaluating the Implementation of Health Checks for Adults With Intellectual and Developmental Disabilities in Primary Care: The Importance of Organizational Context

2016 ◽  
Vol 54 (2) ◽  
pp. 136-150 ◽  
Author(s):  
Janet Durbin ◽  
Avra Selick ◽  
Ian Casson ◽  
Laurie Green ◽  
Natasha Spassiani ◽  
...  
Keyword(s):  
Primary Care ◽  
Developmental Disabilities ◽  
Organizational Context ◽  
Health Assessment ◽  
Health Check ◽  
Intellectual And Developmental Disabilities ◽  
Preventative Care ◽  
Sustainable Implementation ◽  
Comprehensive Health ◽  
Core Components

Abstract Compared to other adults, those with intellectual and developmental disabilities have more health issues, yet are less likely to receive preventative care. One strategy that has shown success in increasing prevention activities and early detection of illness is the periodic comprehensive health assessment (the health check). Effectively moving evidence into practice is a complex process that often receives inadequate attention. This qualitative study evaluates the implementation of the health check at two primary-care clinics in Ontario, Canada, and the influence of the clinic context on implementation decisions. Each clinic implemented the same core components; however, due to contextual differences, some components were operationalized differently. Adapting to the setting context is important to ensuring successful and sustainable implementation.

Parent and Teacher Perspectives on Friendships and Social Interactions of Secondary Students With Intellectual and Developmental Disabilities

Inclusion ◽  
2016 ◽  
Vol 4 (4) ◽  
pp. 239-256 ◽  
Author(s):  
Zachary Rossetti ◽  
Donna Lehr ◽  
Shuoxi Huang ◽  
Jessica Ghai ◽  
Nancy Harayama
Keyword(s):  
High School Students ◽  
Developmental Disabilities ◽  
Social Interactions ◽  
Secondary Students ◽  
Future Research ◽  
Intellectual And Developmental Disabilities ◽  
Structured Interviews ◽  
School Students ◽  
Inclusive Settings ◽  
Direct Support

AbstractFriendships between students with and without intellectual and developmental disabilities (IDD) remain infrequent, especially at the secondary level. However, when friendships between students with and without IDD have developed, direct support from parents and teachers has been a critical facilitator. Thus, this qualitative study examined parent (n = 10) and teacher (n = 20) perspectives on friendships and social interactions of middle and high school students with IDD receiving special education services in inclusive settings at least part of the day. The data were collected through semi-structured interviews with each participant and analyzed inductively using a multistage process of open and then thematic coding. The thematic findings suggest that the challenge of friendship development between students with and without IDD is ongoing, though there may be potential in focusing more explicitly and intentionally on increasing social interaction opportunities both in and out of school. Implications for future research and practice are described in the context of supporting students with and without IDD to increase social interactions and develop friendships.

scholarly journals ‘She misses the subtleties and I have to help – help to make the invisible visible’: parents’ role in supporting adults with intellectual and developmental disabilities with intimate relationships

2021 ◽  
Author(s):  
Claire Bates ◽  
Michelle McCarthy ◽  
Karen Milne Skillman ◽  
Nicola Elson ◽  
Siobhan Hunt ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Intimate Relationships ◽  
Family Members ◽  
Support Staff ◽  
Intellectual And Developmental Disabilities ◽  
Family Carers ◽  
Potential Partner ◽  
Need Support ◽  
The Family

People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship. Family members provided similar support in this area as support staff, including both practical and emotional support. More needs to be done to support the family members providing this support, such as access to specialist resources and advice, as well as facilitated opportunities to discuss concerns.

Examining Association Between Reported High Cholesterol and Risk Factors in Adults With Intellectual and Developmental Disabilities (IDD): A Five-Year Follow-Up

2021 ◽  
Vol 59 (2) ◽  
pp. 112-122
Author(s):  
Sumithra Murthy ◽  
Kelly Hsieh
Keyword(s):  
Risk Factors ◽  
Developmental Disabilities ◽  
Physical Inactivity ◽  
Intellectual And Developmental Disabilities ◽  
Mediating Effects ◽  
High Cholesterol ◽  
Time Points ◽  
Obesity And Diabetes ◽  
The Relationship

Abstract Adults with intellectual and developmental disabilities (IDD) are at a greater risk of developing high cholesterol and cardiovascular disease. We examined whether physical inactivity, obesity, and diabetes were predictive of reported high cholesterol and whether there were any mediating effects of diabetes on the relationship between obesity and high cholesterol in 1,618 adults with IDD across five years. Results suggest that obesity and diabetes were significantly associated with high cholesterol after adjusting for age, sex, and residence type with a partial mediator effect of diabetes in the relationship between obesity and high cholesterol across all time points. Further research is needed to explore the causal mechanisms behind the relationships between obesity, diabetes, and high cholesterol.

scholarly journals The experiences of children with intellectual and developmental disabilities in inclusive schools in Accra, Ghana

2019 ◽  
Vol 8 ◽  
Author(s):  
Christiana Okyere ◽  
Heather M. Aldersey ◽  
Rosemary Lysaght
Keyword(s):  
Developmental Disabilities ◽  
Inclusive Education ◽  
Corporal Punishment ◽  
Individual Characteristics ◽  
Intellectual And Developmental Disabilities ◽  
Structured Interviews ◽  
Learning Improvement ◽  
Inclusive Schools ◽  
Peer Victimisation ◽  
Qualitative Descriptive

Background: Inclusive education is internationally recognised as the best strategy for providing equitable quality education to all children. However, because of the unique challenges they often present, children with intellectual and developmental disabilities (IDDs) are often excluded from inclusive schools. To date, limited research on inclusion has been conducted involving children with IDD as active participants.Objectives: The study sought to understand the experiences of children with IDDs in learning in inclusive schools in Accra, Ghana.Method: A qualitative descriptive design was utilised with 16 children with IDDs enrolled in inclusive schools in Accra, Ghana. Participants were recruited through purposive sampling and data were collected using classroom observations, the draw-and-write technique and semi-structured interviews. The data were analysed to identify themes as they emerged.Results: Children’s experiences in inclusive schools were identified along three major themes: (1) individual characteristics, (2) immediate environments and (3) interactional patterns. Insights from children’s experiences reveal that they faced challenges including corporal punishment for slow performance, victimisation and low family support relating to their learning.Conclusion: Although children with IDDs receive peer support in inclusion, they experience diverse challenges including peer victimisation, corporal punishment and low family and teacher support in their learning. Improvement in inclusive best practices for children with IDD requires systematic efforts by diverse stakeholders to address identified challenges.

scholarly journals Morbidity and mortality of women and men with intellectual and developmental disabilities newly initiating antipsychotic drugs

BJPsych Open ◽  
2016 ◽  
Vol 2 (2) ◽  
pp. 188-194 ◽  
Author(s):  
Simone N. Vigod ◽  
Yona Lunsky ◽  
Virginie Cobigo ◽  
Andrew S. Wilton ◽  
Sarah Somerton ◽  
...  
Keyword(s):  
Venous Thromboembolism ◽  
Developmental Disabilities ◽  
Antipsychotic Drugs ◽  
Population Based ◽  
Intellectual And Developmental Disabilities ◽  
Medical Outcomes ◽  
Population Based Study ◽  
Antipsychotic Medications ◽  
Men And Women

BackgroundWhile up to 45% of individuals with intellectual and developmental disabilities (IDD) have a comorbid psychiatric disorder, and antipsychotics are commonly prescribed, gender differences in the safety of antipsychotics have rarely been studied in this population.AimsTo compare men and women with IDD on medical outcomes after antipsychotic initiation.MethodOur population-based study in Ontario, Canada, compared 1457 women and 1951 men with IDD newly initiating antipsychotic medication on risk for diabetes mellitus, hypertension, venous thromboembolism, myocardial infarction, stroke and death, with up to 4 years of follow-up.ResultsWomen were older and more medically complex at baseline. Women had higher risks for venous thromboembolism (HR 1.72, 95% CI 1.15–2.59) and death (HR 1.46, 95% CI 1.02–2.10) in crude analyses; but only thromboembolism risk was greater for women after covariate adjustment (aHR 1.58, 95% CI 1.05–2.38).ConclusionsGender should be considered in decision-making around antipsychotic medications for individuals with IDD.

Exploring Patterns of Advocacy and Well-Being of Parents of Children With Intellectual and Developmental Disabilities

2021 ◽  
Vol 59 (6) ◽  
pp. 459-471
Author(s):  
Kristina Rios ◽  
Janeth Aleman-Tovar ◽  
Meghan Burke
Keyword(s):  
Quality Of Life ◽  
Developmental Disabilities ◽  
Well Being ◽  
Marital Relationships ◽  
Future Research ◽  
Family Quality Of Life ◽  
Intellectual And Developmental Disabilities ◽  
Structured Interviews ◽  
Research And Practice

Abstract Advocacy is often an expectation for parents of children with intellectual and developmental disabilities (IDD). However, little is known about how advocacy may impact parent well-being, including stress, family dynamics, and marital relationships. By exploring the effects of advocacy on well-being, interventions can be implemented to support both the advocacy and well-being of parents of children with IDD. To this end, the purpose of the study was to explore the pattern between positive and negative advocacy experiences of parents of children with IDD and the well-being of parents, families, and marriages. Semi-structured interviews were conducted with 38 parents of children with IDD. Regardless of the nature (i.e., positive, or negative) of the advocacy experience, participants reported that advocacy increased their stress. When the advocacy experience was positive, some participants reported improved family quality of life. Also, regardless of the nature of the advocacy experience, some participants reported feeling frustration within their marital relationships. Implications for future research and practice are discussed.

scholarly journals Implementation of Self-Directed Supports for People With Intellectual and Developmental Disabilities in the United States

2018 ◽  
Vol 30 (1) ◽  
pp. 11-21 ◽  
Author(s):  
M. P. DeCarlo ◽  
M. D. Bogenschutz ◽  
J. A. Hall-Lande ◽  
A. S. Hewitt
Keyword(s):  
Developmental Disabilities ◽  
The United States ◽  
Support Staff ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
Thematic Map ◽  
Human Service Delivery ◽  
State Administrators ◽  
Services And Supports

Self-direction is an approach to human service delivery within long-term services and supports that aims to provide greater control for individuals with disabilities and their closest supporters. The purpose of this study was to understand the implementation of self-directed supports for individuals with intellectual and developmental disabilities. Researchers interviewed state developmental disabilities administrators in 34 of 42 states that currently operate self-directed service options and used qualitative analysis to arrive at a thematic map of the strengths and challenges currently experienced by state administrators. Common strengths identified by state administrators were increased opportunities for participant self-determination and improved relationships with support staff. Common challenges included restructuring case management relationships, as well as rulemaking and enforcement. Administrators’ suggestions for the future of self-direction focused on increasing program size and streamlining services using technology.

scholarly journals Implementation of Self-Directed Supports for People With Intellectual and Developmental Disabilities in the United States

2019 ◽  
Author(s):  
Matthew Peter DeCarlo ◽  
Matthew D. Bogenschutz ◽  
Jennifer Hall-Lande ◽  
Amy Hewitt
Keyword(s):  
Developmental Disabilities ◽  
The United States ◽  
Support Staff ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
Thematic Map ◽  
Human Service Delivery ◽  
State Administrators ◽  
Services And Supports

Self-direction is an approach to human service delivery within long term services and supports that aims to provide greater control for individuals with disabilities and their closest supporters. The purpose of this study was to understand the implementation of self-directed supports for individuals with IDD. Researchers interviewed state developmental disabilities administrators in 34 of 42 states that currently operate self-directed service options and used qualitative analysis to arrive at a thematic map of the strengths and challenges currently experienced by state administrators. Common strengths identified by state administrators were increased opportunities for participant self-determination and improved relationships with support staff. Common challenges included restructuring case management relationships as well as rulemaking and enforcement. Administrators’ suggestions for the future of self-direction focused on increasing program size and streamlining services using technology.

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