scholarly journals MOTHERS CARING FOR CHILDREN LIVING WITH CEREBRAL PALSY: SUGGESTIONS FOR PSYCHO-SOCIAL SUPPORT

2021 ◽  
Vol 57 (3) ◽  
Author(s):  
Phumudzo Raphulu ◽  
Modjadji Linda Shirindi ◽  
Mankwane Daisy Makofane

Caring for children with cerebral palsy presents numerous circumstances which may contribute to mothers’ inability to cope with the demands of meeting their children’s needs. A qualitative study supported by explorative, descriptive and contextual designs was undertaken. Purposive and snowball sampling facilitated the identification of twelve participants who were interviewed through semi-structured interviews. The enquiry was based on the ecosystems approach. Thematic data analysis was followed through Tesch’s eight steps and Guba’s model was used for data verification. The findings highlighted the necessity to enhance the psycho-social functioning of mothers through collaboration of social workers, health professionals and various organisations.

2020 ◽  
Vol 0 (0) ◽  
Author(s):  
Restuning Widiasih ◽  
Yanti Hermayanti ◽  
Ida Maryati ◽  
Tetti Solehati ◽  

AbstractMuslim-friendly tourism or halal tourism is an industry targeted by the Indonesian government. This is also created as an opportunity for the halal healthcare tourism industry. Previous studies in Indonesia have been conducted in the area of halal tourism. However, limited study has focused on halal healthcare tourism. This paper aimed to examine the challenges and prospects of halal healthcare tourism in Indonesia from nurses’ perspectives. Methods, this qualitative study applied the descriptive approach. Semi-structured interviews were conducted to 10 nurses from different hospitals in West Java and South Sumatra provinces. The snowball sampling technique was used to recruit participants. Data from the interviews were analyzed using the Comparative Analysis for Interview technique to find the study themes. Results, three themes emerged from the data analysis including the concept of halal healthcare tourisms is applied in health services, barriers in developing halal healthcare tourism, and the leader determines the main focus of services programs in the hospital. In conclusion, these findings provide an understanding of the potency of Indonesian hospitals in the halal healthcare tourism market from nurses’ perspectives, yet several barriers were also identified. A comprehensive assessment is needed to obtain other health professionals’ opinions, and to raise their awareness of the strength of this industry in Indonesia.


2001 ◽  
Vol 57 (2) ◽  
pp. 28-31 ◽  
Author(s):  
M. M. Mweshi ◽  
R. Mpofu

The purpose of this study was to investigate the perceptions of parents and caregivers on the causes of disabilities in children with cerebral palsy in selected areas of the Cape Metropolitan. A qualitative research design was chosen for the investigation. Data collection was by semi-structured interviews. The results showed that the range of variation in the beliefs of the parents and caregivers concerning the cause of the child’s disability and the stigma attached was quite considerable. However, the majority of the informants hardly knew the causes of disabilities while only a few informants seemed to have known. It is recommended that health professionals who work with families directly could play a major role in preventing unnecessary stressful situations by providing adequate information about the child’s condition in terms of aetiology and the likely prognosis. Helping and working with such families require a multidisciplinary effort, effective communication among families and professionals, and knowledge of community resources.


2020 ◽  
Vol 2 (2) ◽  
pp. 208
Author(s):  
Adina Riska Anindita ◽  
Nurliana Cipta Apsari

 AbstrakKeluarga, khususnya orangtua merupakan orang yang paling dekat dengan anak, sehingga orangtua memiliki peranan yang sangat penting di dalam kehidupan anak, terutama anak yang memiliki kondisi cerebral palsy. Namun, di sisi lain, orangtua yang memiliki anak dengan cerebral palsy memiliki peluang lebih besar untuk mengalami kondisi yang menyebabkan stres. Metode yang digunakan dalam jurnal ilmiah ini adalah dengan studi literatur. Agar dapat menjalankan peranannya sebagai orangtua bagi anaknya yang memiliki kondisi cerebral palsy, orangtua memerlukan dukungan sosial. Pekerja sosial dapat berperan dalam mengatasi hal ini yaitu dengan pemberian pelayanan kelompok melalui support group. Support group memiliki kekuatan penyembuhan karena orangtua yang memiliki anak dengan cerebral palsy akan mendapatkan dukungan yang sifatnya timbal balik.  AbstrackFamily, especially parents are the people closest to children, so parents have a very important role in the lives of children, especially children who have a condition of cerebral palsy. However, on the other hand, parents who have children with cerebral palsy have a greater chance of experiencing stressful conditions. The method used in this scientific journal is the study of literature. In order to be able to carry out its role as a parent for children who have cerebral palsy, parents need social support. Social workers can play a role in overcoming this, namely by providing group services through a support group. Support groups have therapeutic powers because parents who have children with cerebral palsy will get reciprocal support.


2021 ◽  
Vol 8 (1) ◽  
pp. 205510292199536
Author(s):  
Rikke Schultz ◽  
Peter la Cour ◽  
Marius Brostrøm Kousgaard ◽  
Annette Sofie Davidsen

People with chronic widespread pain (CWP) are often unfit for work, and consequently they are dependent on the municipality job center to receive social support and sickness benefits. The job center’s case management is based on a social worker’s assessment of the citizen’s health condition. This qualitative study investigates social workers’ understandings of CWP. Interviews were carried out with 12 social workers. The results showed that the participants predominantly experienced the citizens’ illnesses as psychosocially mediated—referring to trauma, or a lack of meaning in the citizens’ lives. Only a few participants mentioned possibilities for somatic explanations of CWP.


2016 ◽  
Vol 34 (4) ◽  
pp. 280-289 ◽  
Author(s):  
Ellen T Crumley

Background Internationally, physicians are integrating medical acupuncture into their practice. Although there are some informative surveys and reviews, there are few international, exploratory studies detailing how physicians have accommodated medical acupuncture (eg, by modifying schedules, space and processes). Objective To examine how physicians integrate medical acupuncture into their practice. Methods Semi-structured interviews and participant observations of physicians practising medical acupuncture were conducted using convenience and snowball sampling. Data were analysed in NVivo and themes were developed. Despite variation, three principal models were developed to summarise the different ways that physicians integrated medical acupuncture into their practice, using the core concept of ‘helping’. Quotes were used to illustrate each model and its corresponding themes. Results There were 25 participants from 11 countries: 21 agreed to be interviewed and four engaged in participant observations. Seventy-two per cent were general practitioners. The three models were: (1) appointments (44%); (2) clinics (44%); and (3) full-time practice (24%). Some physicians held both appointments and regular clinics (models 1 and 2). Most full-time physicians initially tried appointments and/or clinics. Some physicians charged to offset administration costs or compensate for their time. Discussion Despite variation within each category, the three models encapsulated how physicians described their integration of medical acupuncture. Physicians varied in how often they administered medical acupuncture and the amount of time they spent with patients. Although 24% of physicians surveyed administered medical acupuncture full-time, most practised it part-time. Each individual physician incorporated medical acupuncture in the way that worked best for their practice.


Author(s):  
Amalia De Leo ◽  
Eloisa Cianci ◽  
Paolo Mastore ◽  
Caterina Gozzoli

The COVID-19 pandemic put the Italian health system under great stress. The sudden reorganization of work practices and the emotional impact of the large number of the victims had many consequences on the well-being of the healthcare professionals (HCPs) involved in managing the crisis. In the available literature, most studies have focused on the risk aspects while only few studies also take into account protective factors. For this reason, it was decided to conduct, within psycho-sociological perspective, a qualitative study with the aim to explore in depth the protective and risk factors as experienced by HCPs who worked in the Italian healthcare system during the COVID-19 outbreak. A total of 19 semi-structured interviews were conducted with HCPs–9 nurses and 10 physicians (7M and 12F) with an average age of 43 (SD = 13.4)–selected using snowball sampling. Considering three different levels of analysis the results highlight the protective and risk factors: personal history level (intrinsic/ethical motivation and flexible role versus extrinsic motivation and static role), interpersonal level (perception of supportive relationships with colleagues, patients, and family versus bad relationships), and organizational level (good leadership and sustainable work purpose versus absence of support from management and undefined or confused tasks).


2014 ◽  
Vol 48 (4) ◽  
pp. 610-617 ◽  
Author(s):  
Diene Monique Carlos ◽  
Maria das Graças Carvalho Ferriani ◽  
Michelly Rodrigues Esteves ◽  
Lygia Maria Pereira da Silva ◽  
Liliana Scatena

Objective: Assess the understanding of adolescents regarding the social support received in situations of domestic violence. Method: A qualitative study with data collection carried out through focus groups with 17 adolescent victims of domestic violence, institutionally welcomed in Campinas-SP, and through semi-structured interviews with seven of these adolescents. Information was analyzed by content analysis, thematic modality. Results: Observing the thematic categories it was found that social support for the subjects came from the extended family, the community, the Guardianship Council, the interpersonal relationships established at the user embracement institution and from the religiosity/spirituality. Conclusion: The mentioned sources of support deserve to be enhanced and expanded. With the current complexity of the morbidity and mortality profiles, especially in children and adolescents, the (re)signification and the (re)construction of health actions is imperative.




Author(s):  
Mariana Ribeiro Volpini Lana ◽  
Joana Pimenta Maia ◽  
Anderson Antônio Horta ◽  
Sérgio Teixeira da Fonseca ◽  
Marcella Guimarães Assis

2018 ◽  
Vol 7 (1) ◽  
pp. 35-43 ◽  
Author(s):  
Claudia Mary Donkor ◽  
Jackie Lee ◽  
Natasha Lelijveld ◽  
Melanie Adams ◽  
Marjolein Meande Baltussen ◽  
...  

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