scholarly journals Stigma and quality of life for patients with facial dystonia: a cross-sectional study

Author(s):  
MING YI ◽  
Jing LI ◽  
Gang LIU ◽  
Weixi ZHANG ◽  
Ying WANG ◽  
...  

Abstract Background Facial appearance and expressions influence social interaction. However, few studies have reported on the stigma associated with spasms from facial dystonia. This study investigated the stigma and quality of life for these patients. Methods This cross-sectional study included 90 patients with facial dystonia (hemifacial spasm [HFS], blepharospasm [BSP], and blepharospasm-oromandibular dystonia [BOD]; 30 patients per group) and 30 individuals without dystonia (control group) from October 2019 to November 2020. All participants underwent stigma, quality of life, and mental health evaluations using seven questions related to stigma, the 36-item Short Form Health Survey, the 14-item version of the Hamilton Anxiety Scale (HAMA), and the 24-item version of the Hamilton Depression Scale. Results Nineteen patients (21.11%) felt stigmatized. Patients with BPS and HFS had more difficulty finding a job and were more susceptible to discrimination than healthy individuals. The role-physical and social function scores were significantly lower in the dystonia groups than in the control group. The vitality score of the BPS group and the mental health scores in the BPS and BOD groups were significantly less than those of the control group. The HAMA scores in the BPS and BOD groups were significantly higher than in the control group. Regression analysis demonstrated that the disease course influenced depression. Conclusion Enacted stigma from a negative public attitude may be the main factor triggering stigma in patients with facial dystonia, with detrimental effects on psychosocial outcomes, including social rights, quality of life, and mood.

2020 ◽  
Vol 10 (1) ◽  
Author(s):  
Daniel F. Jiménez-Garrido ◽  
María Gómez-Sousa ◽  
Genís Ona ◽  
Rafael G. Dos Santos ◽  
Jaime E. C. Hallak ◽  
...  

Author(s):  
Daniella Brunelli D’Avila de Santana ◽  
Letticia Parreira Neves ◽  
Maria Clara Siufi ◽  
Marina Franco Panovich ◽  
Milena Nakase Takayassu ◽  
...  

O presente estudo visa analisar a prevalência de depressão nos profissionais enfermeiros de um Hospital Filantrópico, em Campo Grande/MS, que nunca haviam tido diagnóstico de depressão anteriormente, correlacionando com aspectos sociodemográficos e laborais, como período de trabalho e horas de descanso semanal. Tratou-se de um estudo de caráter quantitativo, aspecto analítico, observacional e transversal, realizado com 89 enfermeiros do Hospital Associação Beneficente Santa Casa de Campo Grande, com início em maio de 2015 e término em novembro de 2016. Para a análise, foram aplicados dois questionários, sendo um de autoria própria (com perfil sociodemográfico, qualidade de vida e de trabalho e saúde mental), e outro validado, representado pelo Inventário de Depressão de Beck, o qual possibilita inferir o diagnóstico de depressão. Dos 89 profissionais enfermeiros, a prevalência de casos de depressão foi de 2 (2,2%), sendo que 9 (11,1%) se mostraram disfóricos e os demais não tiveram alterações relacionadas a tal enfermidade psiquiátrica. Daqueles trabalhadores com depressão, 2 (2,2%) eram do sexo feminino, 2 (2,2%) eram solteiros e 2 (2,2%) exerciam seu trabalho no período vespertino. Houve maior prevalência de depressão nos enfermeiros do sexo feminino, solteiros, que exerciam suas atividades no turno vespertino e possuíam um ou nenhum período de lazer durante a semana.Palavras-chave: Depressão. Enfermagem. Qualidade de Vida. Saúde Mental.AbstractThe present study has as its main objective to analyze the depression prevalence in nurses in a Philantropic Hospital in Campo Grande MS that have never been previously diagnosed with depression correlating with sociodemographic and labor aspects, such as work period and weekly rest hours. This was a quantitative, analytical observational and cross sectional study with 89 nurses from Hospital Associação Beneficente Santa Casa de Campo Grande , that began on May of 2015 and ended on November of 2016. For the analysis two questionnaires were applied, one of the author’s authorship (with sociodemographic profile, quality of life and work and mental health) and another validated, Beck Depression Inventory, which allows to classify depression diagnosis. From 89 nurses, the prevalence of depression cases were 2 nurses (2,2%), and 9 (11,1%) were dysphoric and the others had no relevant alterations. Of those with depression 2 (2,2%) were female, 2 (2,2%) were single and 2 (2,2%) exercised their work in the evening period. There was higher prevalence of depression in female, single nurses that exercised their work in the evening period and had one or no free time during the week.Keywords: Depression. Nursing. Quality of Life. Prevalence. Mental Health.


2020 ◽  
Author(s):  
Myung Kyung Lee ◽  
Woo Jin CHUNG

Abstract Background: Previous studies have not considered a broad range of symptoms and the association with healthy behavior and quality of life of patients with liver cirrhosis. Objectives: The purposes of the study were to examine the association of symptom with adopting exercise and consuming fruits and vegetables, and to identify factors associated with quality of life in patients with liver cirrhosis.Methods: This cross-sectional study enrolled 91 consecutive patients with liver cirrhosis in one tertiary general hospital in South Korea between February 2016 and January 2017. Each study participant completed a self-administered questionnaire that measured symptom, stage-of-change in performing exercise and consumption of fruits and vegetables, and the Korean version of the 36-item Short-Form Health Survey. Multivariate logistic regression analysis and multiple regression models was used respectively to examine the association of each symptom with engaging in exercise and increasing consumption of fruits and vegetables and to evaluate factors affecting quality of life.Results: Experiencing nausea was associated with increased intensity of exercise but experiencing shortness of breath was associated with decreased intensity of exercise. Experiencing right upper quadrant pain was associated with increased consumption of fruits and vegetables and muscle cramps, anorexia, right upper quadrant pain and body pain, itching, ascites or edema, bruising, and change in appearance negatively affected quality of life.Conclusions: The results suggest that the types of symptoms experienced by a patient with liver cirrhosis hinder or promote the patient’s adoption of exercise and dietary behavior. Experiencing symptoms may negatively affect quality of life. Caregivers should provide supportive care to patients with liver cirrhosis, which includes assessing and managing symptoms to improve quality of life.


2013 ◽  
Vol 64 (2) ◽  
pp. 100-106
Author(s):  
Tinatin Gagua ◽  
Tkeshelashvili Besarion ◽  
David Gagua

Objective: The study aimed to measure the effect of primary dysmenorrhea on the quality of life of female adolescents living in Tbilisi, Georgia, and to compare Quality of Life (QoL) with healthy controls.Materials and methods: Cross-sectional study of 424 women aged 14-20, living in Tbilisi, Georgia, coming from academic and research institutions. The women were divided into those suffering dysmenorrhea (exposure group) and those without pain (control group). Reproductive history, demographic features, menstrual pattern, severity of dysmenorrhea and quality of life using the generic instrument EQ-5D, were measured. The Independent T student test was used for group comparison.Results: The group with dysmenorrhea (276) showed a lower Quality of Life score of 0.69 ± 0.20 vs. 0.94 ± 0.10 in the control group (p = 0.000); the Quality of Life VAS was also lower at 74.38 ± 17.83 vs. 87.02 ± 12.03 (p = 0.000). Of the subjetcs with primary dismenorrhea, 56.6% reported school absenteeism due to pain.Conclusion: Primary dysmenorrhea is a common problem in the adolescent population of Tbilisi, Georgia. The results of this study demonstrate that adolescents with primary dysmenorrhea in Georgia experience significantly lower physical and psychosocial health-related QoL than their healthy peers.


2020 ◽  
Author(s):  
Niloofar Namazi ◽  
Shadi Ziaei ◽  
Golnaz Afzal ◽  
Saghar Barati ◽  
Rezvaneh Mohebbi ◽  
...  

Abstract BackgroundThe main objectives of this study were to assess quality of life (QoL), consumption patterns of dietary supplements, as well as physical/mental health status in patients with multiple sclerosis (MS). The present study also aimed to determine the association between demographic characteristics and physical as well as mental health composite (PHC and MHC) scores using the Multiple Sclerosis Quality of Life-54 (MSQoL-54) questionnaire.MethodsThis cross-sectional study was conducted on a group of patients with MS (n=382) referring to Shahid Kazemi Pharmacy, based in the city of Tehran, Iran, as a national pharmacy providing specialized pharmaceutical care to these individuals from February 2019 to March 2020 via the implementation of the MSQoL-54 questionnaire. ResultsA total number of 382 patients with MS participated in this study, including 89 (23.3%) men and 293 (76.7%) women, aged 40±10.9 years old (range: 18-84 years old). The overall score of the MSQoL-54 questionnaire was also by 41.58, and that was 69.60 and 62.99 from 100 for PHC and MHC, respectively. Conclusions The study results demonstrated that advanced age, longer disease duration, and lower levels of education were significantly associated with lower QoL. Trial registration IR.SBMU.PHARMACY.REC.1398.240.


2021 ◽  
Vol 48 (5) ◽  
pp. 447
Author(s):  
Vicki Montoya ◽  
Katie Donnini ◽  
Marjolaine Gauthier-Loiselle ◽  
Myrlene Sanon ◽  
Martin Cloutier ◽  
...  

2017 ◽  
Vol 41 (S1) ◽  
pp. S238-S238
Author(s):  
M. Holubova ◽  
J. Prasko ◽  
M. Ociskova ◽  
M. Marackova ◽  
A. Grambal ◽  
...  

BackgroundSelf-stigma is a maladaptive psychosocial phenomenon that may disturb many areas of patient's life and have the negative impact on their quality of life. The present study explored the association between self-stigma, quality of life, demographic data, and the severity of symptoms in patients with depressive disorder.MethodPatients, who met ICD-10 research criteria for depressive disorder, were enrolled in the cross-sectional study. All probands completed these measurements: the Quality of Life Satisfaction and Enjoyment Questionnaire (Q-LES-Q), the Internalised Stigma of Mental Illness Scale (ISMI), demographic questionnaire, and the severity of the disorder measured by objective and subjective Clinical Global Impression severity scales (CGI).ResultsEighty-one depressive patients (with persistent affective disorder – dysthymia, major depressive disorder or recurrent depressive disorder) and 43 healthy controls contributed to the study. Comparing with the healthy control group, there was a lower quality of life in patients with depression. The level of self-stigma correlated positively with total symptom severity score and negatively with the quality of life. Multiple regression analysis discovered that the overall rating of objective symptoms severity and self-stigma were significantly associated with the quality of life.ConclusionsPresent study suggests the lower quality of life in outpatients with depressive disorder in comparison with healthy controls, and the negative impact of self-stigma level on quality of life in patients suffering from depressive disorders.Disclosure of interestThe authors have not supplied their declaration of competing interest.


Sign in / Sign up

Export Citation Format

Share Document