A Pilot Study on Educational Workshops for Caregivers of Patients with Brain Tumors Called AGAPE Showed its Feasibility and the Maintain Caregiver’s Quality of Life Despite Patient’s Disease Progression.

2021 ◽  
Author(s):  
Héloïse Bourien ◽  
Elodie Pelotte ◽  
Aurélie Thébault ◽  
Claire Larible-Lefort ◽  
Frédérique Lebrun ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Brain Tumors ◽  
Disease Progression ◽  
Adjuvant Treatment ◽  
Progressive Disease ◽  
Level Of Satisfaction ◽  
The Impact ◽  
Very High

Abstract Background Several studies have highlighted the difficulties faced by caregivers of patients with brain tumors. We created the educational workshops called AGAPE. Their aim is to explain precisely the medical aspects of brain tumors, describe resources available, and allow a moment of exchange between caregivers. Purpose To evaluate outcomes of AGAPE. Methods This was an observational uncontrolled pilot study. Feasibility was evaluated by the caregivers’ attendance of the 2 theoretical scheduled sessions and their satisfaction. Additional outcomes were the percentage of caregivers in favour of AGAPE sustainability and the impact on their quality of life according to CarGOQoL questionnaires (Caregiver Oncology Quality of Life) between baseline before the first workshop and after the last one. Results From February 2015 to March 2019, 12 three-month sessions were organized allowing 87 caregivers to participate. 84% of caregivers attended at least 2 theoretical sessions, the level of satisfaction was very high, and all caregivers were in favor of AGAPE sustainability. 36 caregivers submitted completed questionnaires at baseline and after the last workshop attended, separated by more than 2 months. The first workshop took place mostly during or after the adjuvant treatment of their loved ones. Two-thirds of their loved ones had a progressive disease after the first workshop and 21 died. Caregivers’ quality of life was stable between the first and last attended workshop. Conclusion Our study showed that AGAPE helped to maintain caregiver’s quality of life despite patient’s disease progression and its feasibility. Moreover, AGAPE may easily be run in other hospitals.

The impact of stigma and discrimination on the quality of life and social disability in persons with a diagnosis of mental disorder. A pilot study

2017 ◽  
Vol 41 (S1) ◽  
pp. S571-S571
Author(s):  
T.M. Gondek ◽  
K. Kotowicz ◽  
A. Kiejna
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Mental Disorders ◽  
Mental Disorder ◽  
Public Information ◽  
Scientific Data ◽  
Social Disability ◽  
Stigma And Discrimination ◽  
The Impact

Stigma and discrimination of persons diagnosed with mental disorder is a common issue. In many European countries, research studies on the prevalence and implications of this problem are conducted in order to better understand how to overcome it. In Poland, there is a scarcity of such studies, what results in neglecting this issue by the policy makers. The objective of the study is to assess the prevalence of stigma and discrimination affecting the patients hospitalized in psychiatric day units and in-patient wards between 2016–2017 as well as to analyze the relationship between the stigma and the quality of life and social disability in persons with a mental disorder diagnosis of F20–F48 according to ICD-10, aged 18–65, in a day ward and an in-patient ward settings. The pilot study presents the data gathered from a preliminary sample of 20 patients of both genders diagnosed with the aforementioned mental disorders, equaling 10 per cent of the targeted total study sample. The quality of life is assessed with WHOQOL-Bref, WHO-5 questionnaire and Rosenberg self-esteem scale, while social disability is measured with the second version of the Groningen Social Disabilities Schedule. The assessment of the impact of stigma on the social disability of persons with mental disorders and their quality of life can be useful in the context of developing evidence-based interventions for these persons, while it could also provide the scientific data to support public information campaigns aiming at tackling the stigma against persons with mental disorders in Poland.Disclosure of InterestThe authors have not supplied their declaration of competing interest.

The Impact of Gaze Controlled Technology on Quality of Life

2012 ◽  
pp. 48-54 ◽  
Author(s):  
Valentina Pasian ◽  
Fulvio Corno ◽  
Isabella Signorile ◽  
Laura Farinetti
Keyword(s):  
Quality Of Life ◽  
Eye Tracking ◽  
Progressive Disease ◽  
Gaze Control ◽  
Communication Method ◽  
Tracking Device ◽  
The Impact

This chapter presents the process of introducing an eye tracking device to impaired users. It reports results from a gaze control user trial conducted with people for whom gaze control is a necessity due to their current condition or for whom it will soon become a necessity because of a progressive disease. Special attention is paid to the impact of this new communication method on their quality of life.

scholarly journals Development and Validation of a Questionnaire Evaluating the Impact of Prosthetic Dental Treatments on Patients’ Oral Health Quality of Life: A Prospective Pilot Study

2020 ◽  
Vol 17 (14) ◽  
pp. 5037 ◽  
Author(s):  
Eitan Mijiritsky ◽  
Yael Lerman ◽  
Ori Mijiritsky ◽  
Asaf Shely ◽  
Joseph Meyerson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Pilot Study ◽  
Post Treatment ◽  
Self Report ◽  
Measurement Tool ◽  
The Novel ◽  
Prospective Pilot Study ◽  
The Impact

Objectives: the aims of this study were the development of a novel questionnaire to assess the impact of prosthetic treatments on oral health-related quality of life (OHRQoL) and the performance of a prospective pilot study. Background: the currently preferred OHRQoL measurement tool is the oral health impact profile-49 (OHIP-49), a self-report questionnaire which mainly focuses on general effects related to oral health. Materials and methods: A total of 24 adult participants (9 females and 15 males) were recruited and asked to complete the novel questionnaire twice: once before the prosthetic treatment began and 4–6 weeks post-treatment. The assessment of the change in OHRQoL was based on the differences in participants’ answers before and after treatment. Data were analyzed using ANOVA with a repeated-measures method and t-tests. The reliability of the questionnaire was tested using Cronbach’s alpha and intraclass coefficient (ICC). Results: The questionnaire was found to be reliable (α ≥ 0.6), with “social disability” having the highest score (α = 0.868). All domains showed an improvement (α < 0.005) in OHRQoL scores after treatment. Conclusions: the novel questionnaire tested in this study was found to be reliable and convenient to use, and demonstrated that prosthetic treatments have a significant positive effect on OHRQoL post-treatment scores.

The impact of cleft lip and/or palate on parental quality of life: A pilot study

2019 ◽  
Vol 126 ◽  
pp. 109598 ◽  
Author(s):  
Elise De Cuyper ◽  
Frederick Dochy ◽  
Els De Leenheer ◽  
Helen Van Hoecke
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Cleft Lip ◽  
Parental Quality ◽  
The Impact

scholarly journals The impact of osteoporosis on health-related quality of life in patients after liver transplantation – a pilot study

2015 ◽  
Vol 4 ◽  
pp. 215-221
Author(s):  
Joanna Raszeja-Wyszomirska ◽  
Robert Kucharski ◽  
Katarzyna Kotarska ◽  
Marta Zalewska ◽  
Tomasz Miazgowski
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Pilot Study ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Outcomes for patients with advanced N3 penile cancer undergoing flap reconstruction and adjuvant chemo/radiotherapy.

2017 ◽  
Vol 35 (6_suppl) ◽  
pp. 419-419
Author(s):  
Asif Muneer ◽  
Findlay MacAskill ◽  
Michelle Christodoulidou ◽  
Clare Akers ◽  
Ash Mosahebi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Adjuvant Treatment ◽  
Penile Cancer ◽  
Average Length ◽  
Wound Management ◽  
Flap Reconstruction ◽  
Nodal Disease ◽  
Reconstruction Methods ◽  
The Impact

419 Background: Patients presenting with advanced penile cancer with significant inguinal disease requiring extensive resection. Reconstruction is required to cover the defect and protect underlying vascular structures when undergoingl adjuvant treatment. Often the performance status or the extent of the disease makes neoadjuvant chemo/radiotherapy difficult. Although this group of patients undoubtedly have a poor prognosis, palliative resection reduces the tumour burden and allows improved wound management and quality of life. The aim of this study was to present the techniques and report the outcomes for patients with N3 disease undergoing flap reconstruction. Methods: Medical records were reviewed for penile cancer patients with fixed inguinal nodal disease either at presentation or recurrence. Resection was performed by a team comprising urological and plastic surgeons. Cancer specific survival and the impact of adjuvant chemo/radiotherapy was recorded. Results: Seventeen patients were included; mean age 62 (range 37–85) years. Nine (53%) patients had a first presentation with penile cancer and advanced nodal disease, with 8 (47%) presenting with inguinal disease recurrence. The majority (n = 13) underwent a vertical rectus abdominis musculocutaneous (VRAM) flap. Of these, 3 required femoral vein reconstruction. Where defects were smaller, a tensor fascia latae (n = 2) or a scrotal advancement flap was used (n = 1). The average length of stay was 23 days (10-45 days) regardless of type of flap. Ten patients had adjuvant radiotherapy, 5 underwent neoadjuvant chemotherapy with a 4 undergoing adjuvant chemotherapy. The disease specific survival was 595 days (range 24-3881). Complications were related to wound healing and managed conservatively. Post operative lower limb lymphoedema occurred in the majority of patients. There were no flap failures and all but one patient was discharged home. Conclusions: Aggressive surgical management for patients with extensive nodal disease and flap reconstruction is feasible. This aids wound management and improves the quality of life for patients. Survival rates can extend to over 12 months following adjuvant treatment.

scholarly journals The Impact of Quality of Life on the Health of Older People from a Multidimensional Perspective

2018 ◽  
Vol 2018 ◽  
pp. 1-7 ◽  
Author(s):  
Luis Miguel Rondón García ◽  
Jose Manuel Ramírez Navarrro
Keyword(s):  
Quality Of Life ◽  
Meta Analysis ◽  
Social Contact ◽  
Well Being ◽  
The Elderly ◽  
Subjective Health ◽  
Level Of Satisfaction ◽  
Capacity Level ◽  
The Impact

Background. This research analyzes the impact of quality of life as a metavariable that conditions the health and social welfare of the elderly. The sample of this study is composed of 500 people, randomly selected from the major day centers for the elderly in the province of Granada (Spain).Method. For the inferential analysis, we used the CUBRECAVI questionnaire, which is a multidimensional scale of health and quality of life, along with the Katz and García measure questionnaires, which are also applied to quality of life. Through the technique of the interview, we have distributed the participants into two groups: experimental and control.Results and Conclusions. Once the tests have been completed, we have concluded from the meta-analysis and validation tests that the participants have a good perception of their quality of life, considering health, leisure, environmental quality, functional capacity, level of satisfaction, social support, social networks, and positive social interactions as the determinants of their well-being, although social contact reduces as the age advances. We conclude that multidimensional evaluation is an effective tool to evaluate the quality of life and the objective and subjective health of the elderly. These variables can be related to the improvement of health and well-being.

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