scholarly journals The Effects of False-positive Result in Newborn Congenital Hypothyroidism Screening to Parents in Guangxi, China

Author(s):  
Si-Jing Tu ◽  
Xiao-Fei Zhang ◽  
Chen Jin ◽  
Bi-Yan Wang ◽  
Chao Luo ◽  
...  

Abstract Background: As more than 200,000 neonates participate in newborn congenital hypothyroidism (CH) screening in Guangxi each year, the overall number of false positives has increased. Concerns arise regarding the potential demographic impact on parental stress and knowledge of CH results has emerged. Methods: 255 parents were invited to participate in the false-positive (FP) group, and 1040 parents were invited to participate in the control group. After providing consent, the parents completed a semistructured questionnaire on demographic characteristics, knowledge of CH and the parental stress index-short form (PSI-SF). Results: The parents in the FP group had better knowledge of CH and higher PSI scores than did the parents in the control group (both P <0.001). The result of Logistic Regression showed that the major influence factors of knowledge of CH were FP experience and source of knowledge (both P <0.001). The parents in the FP group who were well-informed during the recall phone call had lower PSI scores than did the other parents (P = 0.001). The results suggested that FP screening results may affect parental stress and the parent-child relationships. Conclusion: Targeted health education should be carried out to increase prospective parents’ knowledge of NBS and reduce parental stress when false-positive results are received.

2017 ◽  
Vol 41 (S1) ◽  
pp. s787-s787
Author(s):  
R. Ferrara ◽  
M. Esposito

IntroductionIn parents of autistic children there are high levels of stress. For parents, counseling can help them face the world of autism through the many stressors they experiment.ObjectivesTo evidence a possible effect of the counseling intervention on parental stress.MethodsThe sample consisted of 24 parents (mean age = 38.7) of children diagnosed with autism spectrum disorder related to the treatment centre “Una breccia nel muro”. Parents’ group was randomly divided into two subgroups, the first (EG experimental group) consists in 12 parents, which were included in a counseling treatment of six months (one meeting of 2 hours every 15 days), while the other subgroup parents, (CG control group) were not included. We used parenting stress index–short form (PSI-SF) before counseling intervention (T0) and after (T1) with every parent. PSI values stress level in following scales: parental distress (PD), parent-child dysfunctional interaction (PCDI) and difficult child characteristics (DC). Figure 1 shows all the variables in each group at T0 and T1.ResultsThen a 2-tail t-test was separately carried out for each group (Counseling Yes; Counseling No). Counseling Yes: PD (t22 = .70, P = .49); PCDI (t22 = .72, P = .47); DC (t22 = 2.23, P = .03); Tot Stress (t22 = 1.04, P = .3). Counseling No: PD (t22 = .82, P = .42); PCDI (t22 = 1.7, P = .09); DC (t22 = .59, P = .56); Tot Stress (t22 = .72, P = .48)ConclusionsOur data confirm the positive effects of counseling especially on the difficulties related to children (DC scale).Disclosure of interestThe authors have not supplied their declaration of competing interest.


2021 ◽  
pp. 153944922098411
Author(s):  
Tien-Ni Wang ◽  
Yu-Lun Chen ◽  
Jeng-Yi Shieh ◽  
Hao-Ling Chen

Constraint-induced therapy (CIT) is highly effective yet not accessible to many families. Integrating commercial exergaming in home-based CIT may support the availability and attainability of the intervention. The study compared the effects of supplementary use of Nintendo Wii in home-based CIT with dose-equivalent conventional CIT. Eighteen children with cerebral palsy were randomly assigned to 8 weeks of CIT (CIT) or 4 weeks of CIT, followed by 4 weeks of Wii-augmented CIT (CIT-Wii). Outcome measures included the Bruininks–Oseretsky Test of Motor Proficiency (Manual Dexterity), the ABILHAND-Kids, the WeeFIM (Self-Care), the Test of Playfulness, the Engagement Questionnaire, and the Parenting Stress Index–Short Form. Both groups significantly improved motor outcomes and playfulness. The CIT group demonstrated greater improvement in self-care skills, whereas parental stress decreased only in the CIT-Wii group. CIT-Wii yields no significant difference in treatment effects from conventional CIT and may provide psychosocial benefits.


2020 ◽  
pp. 105566562095687
Author(s):  
Lauren L. Madhoun ◽  
Canice E. Crerand ◽  
Meghan O’Brien ◽  
Adriane L. Baylis

Objective: To examine relationships between early feeding and growth and maternal distress in infants with and without cleft lip and/or palate (CL/P). Design: Cross-sectional. Setting: Pediatric academic medical center in the Midwestern United States. Participants: Mothers of infants 1 to 12 weeks old with CL/P (n = 30) and without CL/P (control group, n = 30) were recruited at craniofacial clinic or pediatrician appointments. Main Outcome Measure(s): Maternal responses on the Feeding/Swallowing Impact Survey (FS-IS), Parenting Stress Index, Fourth Edition, Short Form (PSI-4-SF), and Edinburgh Postnatal Depression Scale. Infant feeding history and growth measurements were obtained. Results: Having an infant with CL/P revealed greater impact on maternal health-related quality of life due to feeding problems ( F = 4.83, P = .03). Mothers of infants with CL/P reported average range Total Stress scores on the PSI-4-SF, which were higher than controls ( F = 4.12, P = .05). Edinburgh Postnatal Depression Scale scores did not differ between groups. Compared to controls, infants with cleft palate had lower percentiles for weight ( t = 4.13, P = .04) and length ( t = 2.93, P = .01). Higher FS-IS scores were associated with longer feeding duration ( r = 0.32, P = .01) and lower weight ( r = −0.31, P = .02) and length ( r = −0.32, P = .02). Conclusions: Despite receiving early team care and feeding interventions, mothers of infants with CL/P reported higher stress and more challenges with feeding and growth. Future studies should examine targeted psychosocial interventions to improve feeding and growth outcomes in infants with CL/P.


2015 ◽  
Vol 10 (1) ◽  
pp. 17-28 ◽  
Author(s):  
Catrin Eames ◽  
Rebecca Crane ◽  
Eluned Gold ◽  
Sophie Pratt

Purpose – Behavioural parent training (PT) interventions partially mediate risk factors for the development of child behavioural problems. Mindfulness skills could have benefit in alleviating the impact of these risk factors for parents who are socio-economically disadvantaged. The paper aims to discuss these issues. Design/methodology/approach – A pre-post single group comparison of disadvantaged mothers attending the Mindfulness-Based Wellbeing for Parents (MBW-P) programme. Findings – Changes were observed in facets of parental stress (Parenting Stress Index-Short Form; Abidin, 1995), depression (Beck Depression Inventory-II; Beck et al., 1996) and brooding (Ruminative Responses Scale; Nolen-Hoeksema and Morrow, 1991), with moderate to large effect sizes and incidences of clinical change. Research limitations/implications – The research design, although pragmatic, includes a small sample and no control or long-term comparison group. Social implications – Mothers considered as the “hardest to reach” group in terms of vulnerability, risk factors and being likely to gain from intervention demonstrated positive shifts post-intervention. A targeted mindfulness-based intervention, delivered pragmatically within a health service context, may have benefit in reducing the impact of risk factors on parental wellbeing. Originality/value – To the authors’ knowledge, this is the first evaluation of a targeted mindfulness group delivered within routine health care settings, in identified “high risk” areas, by routine staff.


2021 ◽  
Vol 11 (8) ◽  
pp. 1040
Author(s):  
Martina Siracusano ◽  
Assia Riccioni ◽  
Leonardo Emberti Gialloreti ◽  
Eugenia Segatori ◽  
Lucrezia Arturi ◽  
...  

Parenting a child with a disability, such as neurodevelopmental disorders and genetic syndromes, implies a high level of stress. During the COVID-19 outbreak—as a period implying additional challenges—few studies have specifically investigated caregivers’ distress among neurodevelopmental disabilities. The objective of the study is to investigate whether during the COVID-19 pandemic, the level of parental stress differs between four disability groups including neurodevelopmental disorders (autism spectrum disorder (ASD), attention deficit and hyperactivity disorder (ADHD)) and genetic syndromes (Rett syndrome (RTT), Sotos syndrome (SS)) in comparison to families with typical development offspring (TD). In total, 220 Italian parents of children affected by neurodevelopmental disabilities (74 ASD, 51 ADHD, 34 SS, 21 RTT, 40 TD; age M 9.4 ± SD 4.2) underwent a standardized evaluation for stress related to parenting through the self-report questionnaire, Parental Stress Index-Short Form (PSI-SF). The main findings show greater levels of parental stress—mainly linked to child behavioral characteristics rather than parental sense of competence—in parents of children affected by a disability in comparison to children with typical development. This study highlights the need to support not only individuals with special needs but also their own caregivers: core figures in the management and outcome of children disorders.


2021 ◽  
Vol 11 (4) ◽  
pp. 5-9
Author(s):  
Grazia Maria Giovanna Pastorino ◽  
Francesca Operto ◽  
Valeria De Simone ◽  
Valentina Vivenzio ◽  
Chiara Scuoppo ◽  
...  

Aim: The objective of our study is to evaluate the impact that the COVID-19 emergency and the related measures adopted have had on the family management of minors with neuropsychiatric disorders. Another objective of this study is to carry out a first longitudinal evaluation of this impact on parental stress, comparing the data collected before the pandemic with those collected during the lockdown. Methods: This is an observational study that involved 271 families of patients already treated at the Child Neuropsychiatry Unit of the Salerno University Hospital between 2 and 23 years (112 with Autism Spectrum Disorder, 86 with epilepsy and 73 with other disorders of neurodevelopment). All participants were given an ad hoc telephone interview and a standardized questionnaire (PSI - Parenting Stress Index-Short Form). The telephone interview showed that a significant percentage of parents reported an increase in their child's daily management difficulties during the lock-down and emotional / behavioral problems, in particular the externalizing disorder. Comparison of the mean scores of the PSI-SF questionnaires completed before and during the lockdown showed a statistically significant increase in scores in the Total Stress scale and in the Parental Distress subscales. Results & Conclusion: The results of our study suggest that the confinement measures and changes in daily routine imposed by quarantine negatively affected the behavioral and emotional dimensions of both children and parents causing a significant increase in parental stress, which is mainly related to feelings of inadequacy in relation to their role in such a delicate situation, and concern for the future.


2021 ◽  
Vol 13 (4) ◽  
pp. 576-582
Author(s):  
Daniela Smirni ◽  
Marco Carotenuto

Primary headache is an increasing phenomenon in pediatric age, and very often, it causes disabling limitations in children’s daily activities, negatively affecting family well-being. There are conflicting data in the literature on the impact of children’s migraines on parental experienced stress. This study aimed to evaluate maternal stress in a sample of school-aged children with a migraine without aura (MwoA) and its correlation with migraine intensity and frequency. A total of 474 mothers aged between 31 and 55 participated in the study: 237 were mothers of children with MwoA, and 237 were mothers of typical developing children. All participants were administered the Parent Stress Index-Short Form (PSI-SF) for the assessment of parental stress; the Pediatric Migraine Disability Assessment (PedMIDAS) was administered to children with MwoA to assess the presence of a related disability migraine. The results showed a significantly higher rate of stress in mothers of MwoA children (p < 0.001) in all the domains explored by the PSI-SF and a statistically significant correlation between the maternal stress total score and the intensity and frequency of migraine attacks (p < 0.0001). This study highlights the need for the holistic contribution of the family to be considered in the clinical management of pediatric migraines.


2010 ◽  
Vol 41 (4) ◽  
pp. 739-748 ◽  
Author(s):  
T. S. Brugha ◽  
C. J. Morrell ◽  
P. Slade ◽  
S. J. Walters

BackgroundTo test whether receiving care from a health visitor (HV) trained in identification and psychological intervention methods prevents depression 6–18 months postnatally in women who are not depressed 6 weeks postnatally.MethodThe study was a prospective cluster trial, randomized by GP practice, with follow-up for 18 months in 101 primary care teams in the Trent area of England. The participants were women scoring <12 on the postal Edinburgh Postnatal Depression Scale (EPDS) at 6 weeks postnatally (1474 intervention and 767 control women). Intervention HVs (n=89, 63 clusters) were trained in identifying depressive symptoms using the EPDS and face-to-face clinical assessment and in providing psychologically orientated sessions based on cognitive behavioral or person-centered principles. The control group comprised HVs (n=49, 37 clusters) providing care as usual (CAU). The primary outcome measure was the proportion of women scoring ⩾12 on the EPDS at 6 months postnatally. Secondary outcomes were mean EPDS score, Clinical Outcomes in Routine Evaluation – Outcome Measure (CORE-OM) score, State–Trait Anxiety Inventory (STAI), 12-item Short Form Health Survey (SF-12) and Parenting Stress Index Short Form (PSI-SF) scores at 6, 12 and 18 months.ResultsAfter adjusting for individual-level covariates, living alone, previous postnatal depression (PND), the presence of one or more adverse life events and the 6-week EPDS score, the odds ratio (OR) for EPDS ⩾12 at 6 months was 0.71 [95% confidence interval (CI) 0.53–0.97, p=0.031] for the intervention group (IG) women compared with the control (CAU) group women. Two subgroups were formed by baseline severity: a ‘subthreshold’ subgroup with a 6-week EPDS score of 6–11 (n=999) and a ‘lowest severity’ subgroup with a 6-week EPDS score of 0–5 (n=1242). There was no difference in psychological effectiveness by subgroup (interaction term: z=−0.28, p=0.782).ConclusionsThis study provides new evidence of a universal, enduring preventive effect for depression in women who screen negative for depression postnatally.


2016 ◽  
Vol 34 (17) ◽  
pp. 3691-3710 ◽  
Author(s):  
Fatemeh Alizadeh Maralani ◽  
Mirmahmoud Mirnasab ◽  
Touraj Hashemi

The link between inappropriate parenting style and both bullying and victimization is well documented. However, it is not clear as to which kind of parenting style is associated with victimization. Furthermore, no studies have yet been conducted regarding the role of parental stress in bullying and victimization. This study aimed to examine the role of parenting styles and maternal stress in pupils’ bullying and victimization. A total of 300 primary school pupils, enrolled in fourth and fifth grades, participated in the study. Initially, 100 noninvolved pupils were randomly selected using a multistage cluster sampling method. Then using a screening method, 100 bully pupils and 100 victimized peers were selected. Olweus Bullying Scale and teacher nomination were administered for screening these pupils. Baumrind Parenting Style Questionnaire and revised version of Abidin Parental Stress Index (short form) were also applied to all pupils in the study. Data were analyzed using discriminant function analysis. The findings showed that (a) with regard to parenting styles, significant differences were found among groups. Authoritarian parenting style could significantly predict pupils’ bullying behavior, whereas victimization was predictable in families with permissive parenting style. In addition, noninvolved pupils were predicted to have authoritative parenting style. (b) Considering maternal stress, significant differences were observed across groups. Parents of bullies and victims were predicted to have higher maternal stress than noninvolved pupils. The implications of the study in relation to the role of mothers in bullying and victimization are discussed.


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