Exploring Inequity in Childhood Neurodisability in a Disadvantaged Metropolitan Region in Australia
Abstract BackgroundSouth Western Sydney (SWS) region, in the state of New South Wales (NSW) in Australia is a culturally and linguistically diverse area of marked social disadvantage. Using the best available data sources, we aimed to explore the prevalence of children with developmental disability and their access to disability and special education support services, to identify equity gaps. MethodsData on the potential number of children in SWS with neurodisability was identified from the district wide Child Developmental Assessment Service (CDAS) database of public-funded Community Paediatrics services, the NSW/Australian capital territory (ACT) Cerebral Palsy (CP) register, the State-wide Infant Screening-Hearing (SWISH) Program, the Royal Institute for Deaf and Blind Children and the Department of Education. The proportion of children with access to disability services for children up-to 18 years of age was explored from the datasets of the National Disability Insurance Scheme (NDIS). Relative risks were calculated to compare any differences in proportion of supports in SWS compared to NSW. ResultsIn 2018, 503 children (median age 4.3 years) were assessed by CDAS; 65% had autism spectrum disorder (ASD) either alone or in association with global developmental delays and 24% had global developmental delay. The prevalence of CP in SWS was 1.86/1000; with a higher proportion of severe functional and intellectual impairment in SWS compared to the state. The prevalence of sensori-neural hearing loss in SWS was 2.2/1000, and more children in SWS had severe visual impairment compared to the state (P=0.003). Students in support classes with special needs were overrepresented in SWS compared to the state (P<0.0001). There were slightly more children with intellectual disability in SWS supported by the NDIS, but proportions for other conditions were comparable to NSW. Conclusions While available data sources are incomplete, we identified greater proportions of children with neurodisability, experiencing more functional impairment in SWS, compared to NSW; with ASD being the most common neurodisability presenting to developmental clinics. We also identified potential equity gaps in disability service provision. A state-wide child disability register would aid planning and research, with concerted advocacy needed to improve equity in disability support provision in this region.