Community Care and Gift Economy: A Qualitative Study of a Hard-to-Reach Population Recovering from War in Northern Rwanda

2019 ◽  
Author(s):  
Yuko Otake
2019 ◽  
Author(s):  
Grace M Turner ◽  
Christel McMullan ◽  
Lou Atkins ◽  
Robbie Foy ◽  
Jonathan Mant ◽  
...  

Abstract Background Transient ischaemic attack (TIA) and minor stroke are often considered transient events; however, many patients experience residual problems and reduced quality of life. Current follow-up healthcare focuses on stroke prevention and care for other long-term problems is not routinely provided. We aimed to explore patient and healthcare provider (HCP) experiences of residual problems post-TIA/minor stroke, the impact of TIA/minor stroke on patients’ lives, and current follow-up care and sources of support. Methods This qualitative study recruited participants from three TIA clinics, seven general practices and one community care trust in the West Midlands, England. Semi-structured interviews were conducted with 12 TIA/minor stroke patients and 24 HCPs from primary, secondary and community care with framework analysis. Results A diverse range of residual problems were reported post-TIA/minor stroke, including psychological, cognitive and physical impairments. Consultants and general practitioners generally lacked awareness of these long-term problems; however, there was better recognition among nurses and allied HCPs. Residual problems significantly affected patients’ lives, including return to work, social activities, and relationships with family and friends. Follow-up care was variable and medically focused. While HCPs prioritised medical investigations and stroke prevention medication, patients emphasised the importance of understanding their diagnosis, individualised support regarding stroke risk, and addressing residual problems. Conclusion HCPs could better communicate lay information about TIA/minor stroke diagnosis and secondary stroke prevention, and improve their identification of and response to important residual impairments affecting patients.


Spinal Cord ◽  
2020 ◽  
Vol 58 (8) ◽  
pp. 882-891 ◽  
Author(s):  
Claudia Zanini ◽  
Nadia Lustenberger ◽  
Stefan Essig ◽  
Armin Gemperli ◽  
Mirjam Brach ◽  
...  

2017 ◽  
Vol 22 (sup1) ◽  
pp. 66-71 ◽  
Author(s):  
Simone E. Carter ◽  
Marion O’Reilly ◽  
Jack Frith-Powell ◽  
Alpha Umar Kargbo ◽  
Daniel Byrne ◽  
...  

2015 ◽  
Vol 15 (1) ◽  
Author(s):  
Sean M. Hayes ◽  
Sophie Peloquin ◽  
Jonathan G. Howlett ◽  
Karen Harkness ◽  
Nadia Giannetti ◽  
...  

2019 ◽  
Author(s):  
Grace M Turner ◽  
Christel McMullan ◽  
Lou Atkins ◽  
Robbie Foy ◽  
Jonathan Mant ◽  
...  

Abstract Background Transient ischaemic attack (TIA) and minor stroke are often considered transient events; however, many patients experience residual problems and reduced quality of life. Current follow-up healthcare focuses on stroke prevention and care for other long-term problems is not routinely provided. We aimed to explore patient and healthcare provider (HCP) experiences of residual problems post-TIA/minor stroke, the impact of TIA/minor stroke on patients’ lives, and current follow-up care and sources of support. Methods This qualitative study recruited participants from three TIA clinics, seven general practices and one community care trust in the West Midlands, England. Semi-structured interviews were conducted with 12 TIA/minor stroke patients and 24 HCPs from primary, secondary and community care with framework analysis. Results A diverse range of residual problems were reported post-TIA/minor stroke, including psychological, cognitive and physical impairments. Consultants and general practitioners generally lacked awareness of these long-term problems; however, there was better recognition among nurses and allied HCPs. Residual problems significantly affected patients’ lives, including return to work, social activities, and relationships with family and friends. Follow-up care was variable and medically focused. While HCPs prioritised medical investigations and stroke prevention medication, patients emphasised the importance of understanding their diagnosis, individualised support regarding stroke risk, and addressing residual problems. Conclusion HCPs could better communicate lay information about TIA/minor stroke diagnosis and secondary stroke prevention, and improve their identification of and response to important residual impairments affecting patients.


2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Grace M. Turner ◽  
Christel McMullan ◽  
Lou Atkins ◽  
Robbie Foy ◽  
Jonathan Mant ◽  
...  

Abstract Background Transient ischaemic attack (TIA) and minor stroke are often considered transient events; however, many patients experience residual problems and reduced quality of life. Current follow-up healthcare focuses on stroke prevention and care for other long-term problems is not routinely provided. We aimed to explore patient and healthcare provider (HCP) experiences of residual problems post-TIA/minor stroke, the impact of TIA/minor stroke on patients’ lives, and current follow-up care and sources of support. Methods This qualitative study recruited participants from three TIA clinics, seven general practices and one community care trust in the West Midlands, England. Semi-structured interviews were conducted with 12 TIA/minor stroke patients and 24 HCPs from primary, secondary and community care. Data was analysed using framework analysis. Results A diverse range of residual problems were reported post-TIA/minor stroke, including psychological, cognitive and physical impairments. Consultants and general practitioners generally lacked awareness of these long-term problems; however, there was better recognition among nurses and allied HCPs. Residual problems significantly affected patients’ lives, including return to work, social activities, and relationships with family and friends. Follow-up care was variable and medically focused. While HCPs prioritised medical investigations and stroke prevention medication, patients emphasised the importance of understanding their diagnosis, individualised support regarding stroke risk, and addressing residual problems. Conclusion HCPs could better communicate information about TIA/minor stroke diagnosis and secondary stroke prevention using lay language, and improve their identification of and response to important residual impairments affecting patients.


2020 ◽  
Author(s):  
Pamela Charlotte Jacobsen ◽  
Twinkle Choksi ◽  
Katherine Sawyer ◽  
Cassia Maximen ◽  
Emma Harding ◽  
...  

Objectives: Regular home practice is considered a core component of mindfulness groups and may be associated with better treatment outcomes. This study aimed to 1) review the existing evidence on how much home practice people do in Mindfulness for Psychosis groups, and 2) explore participants’ experiences of the barriers and facilitators to completing home practice in a Mindfulness for Psychosis group using a qualitative study.Methods: In study 1, we conducted a systematic review of Mindfulness for Psychosis studies and extracted data on home practice rates. In study 2, we conducted semi-structured interviews with people who had completed a Mindfulness for Psychosis group (N=5) as part of their routine community care, specifically focusing on experiences of home practice.Results: Out of twenty-two studies included in the systematic review, only 4 reported any data on amount of home practice, and none examined the relationship between completion of home practice and treatment outcomes. In the qualitative study, participants described home practice as being difficult but important. Arising themes were similar to findings from previous (non-psychosis) studies suggesting that generic challenges are common, rather than being specific to psychosis.Conclusions: We recommend that future Mindfulness for Psychosis studies record data on home practice rates, in order to investigate any association between home practice and treatment outcome. Our qualitative findings suggest home practice can be a valued part of a Mindfulness for Psychosis group, and a normalising approach could be taken when and if participants encounter common challenges.


2020 ◽  
Vol 28 (6) ◽  
pp. 2253-2264
Author(s):  
Muhammad Ghair Bin Muhsin ◽  
Yong‐Shian Goh ◽  
Norasyikin Hassan ◽  
Yuchen Chi ◽  
Xi Vivien Wu

2016 ◽  
Vol 37 (8) ◽  
pp. 965-989 ◽  
Author(s):  
Tova Band-Winterstein

Objective: Alongside clinical tasks and decision making, there is a growing awareness of the emotions that arise during nurses’ interaction with clients and its significance in relation to meeting the demands of one’s role. This study aims to delve deeper into the experience of community care nurses’ encounters with older adults engaged in self-neglectful behaviors. Method: In-depth, semistructured interviews were conducted with 22 experienced nurses in Israel, who worked with older adults engaged in self-neglectful behaviors in the community. Results: Three main themes emerged: “Everything is amplified in old age”: An age-related decline in functioning produces situations of self-neglect, Self-neglect as an experience imprinted on the nurse’s work: The struggle for treatment, and “What is our role here?”—Nurses’ obligations in cases of self-neglect. Conclusion: The complexity of older adults engaged in self-neglectful behaviors results in feelings of confusion and ambiguity regarding the nurses’ role.


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