scholarly journals A rare cause of respiratory distress in pediatric palliative care: Thoracic Duplication Cyst

2021 ◽  
Author(s):  
Nilgün Harputluoğlu ◽  
Tanju Çelik ◽  
Günyüz Temir ◽  
Münevver Hoşgör
Keyword(s):  
Palliative Care ◽  
Respiratory Distress ◽  
Neonatal Period ◽  
Correct Diagnosis ◽  
Duplication Cyst ◽  
Pediatric Palliative Care ◽  
Shortness Of Breath ◽  
Vertebral Anomalies ◽  
Gastrointestinal Duplication Cyst ◽  
Gastrointestinal Duplication

Gastrointestinal duplication cysts are actually rare congenital anomalies that can accompany various anomalies and are most frequently seen in the small intestine. Gastrointestinal duplication may accompany anomalies such as vertebral anomalies, spinal cord malformations. Depending on the location, symptoms such as chest pain, shortness of breath, cough, asthma-like symptoms, hemoptysis, cyanosis, vomiting, difficulty swallowing, weight loss, hematemesis and melena can be observed. To our knowledge, we report a rare case that has not been reported in pediatric palliative care. We present a case operated for diaphragmatic hernia in the neonatal period. A 3-month-old patient with respiratory distress who was followed up in pediatric palliative care was reoperated and pathologically diagnosed as gastrointestinal duplication cyst. Thoracic cysts can have a wide variety of etiology. The correct diagnosis can be made by performing further examinations and appropriate surgery.

Duplication cyst with midgut volvulus in a neonate: an unusual presentation

2020 ◽  
Vol 13 (8) ◽  
pp. e235526
Author(s):  
Nitin G Pai ◽  
Santosh Prabhu ◽  
Pavithra Prabhakar ◽  
Vijay Kumar
Keyword(s):  
Surgical Intervention ◽  
Case Reports ◽  
Anorectal Malformations ◽  
Duplication Cyst ◽  
Midgut Volvulus ◽  
Rare Association ◽  
Internal Hernias ◽  
Gastrointestinal Duplication Cyst ◽  
Resection And Anastomosis ◽  
Gastrointestinal Duplication

Incomplete intestinal fixation or malrotation of gut with midgut volvulus is one of the important causes of bilious vomiting in neonates. The incidence of malrotation of gut in population is 4% and that of duplication cyst is 1:4500. Patients with malrotation are prone to develop midgut volvulus due to their narrow mesenteric base demanding urgent surgical intervention. Common associated anomalies are intrinsic duodenal obstruction, internal hernias, caecal volvulus, anorectal malformations and Hirschsprung’s disease. The present case refers to a 4-day-old neonate who presented with malrotation of gut with reverse volvulus and an associated gastrointestinal duplication cyst, which is a rare association with only few reported case reports. After imaging with ultrasound and contrast radiograph, the baby underwent prompt surgical intervention in the form of Ladd’s procedure with resection and anastomosis of jejunal duplication cyst.

An Order Protocol for Respiratory Distress/Acute Pain Crisis in Pediatric Palliative Care Patients: Medical and Nursing Staff Perceptions

2016 ◽  
Vol 19 (3) ◽  
pp. 306-313 ◽  
Author(s):  
Gwenaëlle Bidet ◽  
Lysanne Daoust ◽  
Michel Duval ◽  
Thierry Ducruet ◽  
Baruch Toledano ◽  
...  
Keyword(s):  
Palliative Care ◽  
Respiratory Distress ◽  
Nursing Staff ◽  
Acute Pain ◽  
Pediatric Palliative Care ◽  
Staff Perceptions ◽  
Pain Crisis

scholarly journals Clinical Use of an Order Protocol for Distress in Pediatric Palliative Care

Healthcare ◽  
2019 ◽  
Vol 7 (1) ◽  
pp. 3
Author(s):  
Marc-Antoine Marquis ◽  
Lysanne Daoust ◽  
Edith Villeneuve ◽  
Thierry Ducruet ◽  
Nago Humbert ◽  
...  
Keyword(s):  
Palliative Care ◽  
Respiratory Distress ◽  
Chart Review ◽  
Retrospective Chart Review ◽  
Pediatric Palliative Care ◽  
Clinical Use ◽  
Borg Scale ◽  
Care Experience ◽  
Clinical Evolution ◽  
Study Support

Several children receiving palliative care experience dyspnea and pain. An order protocol for distress (OPD) is available at Sainte-Justine Hospital, aimed at alleviating respiratory distress, pain and anxiety in pediatric palliative care patients. This study evaluates the clinical use of the OPD at Sainte-Justine Hospital, through a retrospective chart review of all patients for whom the OPD was prescribed between September 2009 and September 2012. Effectiveness of the OPD was assessed using chart documentation of the patient’s symptoms, or the modified Borg scale. Safety of the OPD was evaluated by measuring the time between administration of the first medication and the patient’s death, and clinical evolution of the patient as recorded in the chart. One hundred and four (104) patients were included in the study. The OPD was administered at least once to 78 (75%) patients. A total of 350 episodes of administration occurred, mainly for respiratory distress (89%). Relief was provided in 90% of cases. The interval between administration of the first protocol and death was 17 h; the interval was longer in children with cancer compared to other illnesses (p = 0.02). Data from this study support the effectiveness and safety of using an OPD for children receiving palliative care.

scholarly journals Mimicry of an acute pseudocyst by a gastrointestinal duplication cyst in a 14-year-old boy

Endoscopy ◽  
2021 ◽  
Author(s):  
Thomas Billiet ◽  
Ann Elewaut ◽  
François d’Heygere ◽  
Gert de Hertogh ◽  
Raymond Aerts ◽  
...  
Keyword(s):  
Duplication Cyst ◽  
Gastrointestinal Duplication Cyst ◽  
Gastrointestinal Duplication

Can’t Catch My Breath

2020 ◽  
pp. 135-144
Author(s):  
Juliana H. O’Brien
Keyword(s):  
Mechanical Ventilation ◽  
Palliative Care ◽  
Palliative Sedation ◽  
Pediatric Palliative Care ◽  
Shortness Of Breath ◽  
Subjective Report ◽  
Goals Of Care ◽  
Common Causes ◽  
End Stage ◽  
Palliative Patients

Shortness of breath is one of the most common symptoms among pediatric palliative patients and can cause significant distress in patients and their caregivers. Dyspnea assessments highlight the patient’s subjective report as crucial to the evaluation and treatment of dyspnea. Symptom-directed treatments such as opioids and benzodiazepines should be given if disease-directed treatments are insufficient in providing dyspnea relief. In cases of dyspnea due to end-stage illness, palliative sedation or chronic mechanical ventilation via tracheostomy may need to be considered depending on the patient’s goals of care. This chapter presents a systems-based approach to evaluating and treating common causes of dyspnea in pediatric palliative care patients.

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