scholarly journals A delphi procedure on rehabilitation outcome for patients with moderate to severe traumatic brain injury; first phase of the Neurotraumatology Quality Registry (NET-QURE)

2021 ◽  
Author(s):  
Lianne D. Peppel ◽  
Majanka H. Heijenbrok-Kal ◽  
Thomas A. Van Essen ◽  
Godard C. W. De Ruiter ◽  
Wilco C. Peul ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Psychological Functioning ◽  
International Classification Of Functioning ◽  
Self Awareness ◽  
Personal Factors ◽  
Measurement Instruments ◽  
Rehabilitation Outcome ◽  
Quality Registry ◽  
Delphi Procedure

Objective: To select a set of rehabilitation outcome instruments for a national Neurotrauma Quality Registry (Net-QuRe) among professionals involved in the care of patients with traumatic brain injury. Design: A 3-round online Delphi procedure. Subjects: Eighty professionals from multiple disciplines working in 1 of the 8 participating rehabilitation centres were invited to participate. The response rate varied from 70% to 76% per round. Methods: For the Delphi procedure, multiple outcome categories were defined based on the International Classification of Functioning, Disability and Health (ICF) with concomitant measurement instruments. For each category we strived for consensus on one instrument of at least 75%. Results: After the first round, consensus was reached for the category subjective cognitive functioning. After the second round for quality of life, pain, general functioning, anxiety and depression, general psychological functioning, communication (impairment), and personal factors. Finally, after the third round, consensus was reached for activities of daily living, participation, self-awareness, and aphasia. No consensus was reached for the categories motor function, cognitive function, comorbidity, fatigue, and employment status. Conclusion: Consensus was reached in 12 out of 17 outcome categories. A Delphi procedure seems to be a feasible method to collectively select measurement instruments for a multicentre study.

scholarly journals Participation after Stroke and Traumatic Brain Injury: Results of a Pilot Study in Outpatient Neurorehabilitation in Vorarlberg

2017 ◽  
Vol 1 (02) ◽  
pp. E71-E78
Author(s):  
Dominik Pöppl ◽  
Judith Marheineke ◽  
Ruth Deck
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Outcome Evaluation ◽  
World Health ◽  
International Classification Of Functioning ◽  
Measurement Instruments ◽  
Multicentric Study ◽  
Sustained Effects ◽  
Conduct Of Life ◽  
Health Organization

Abstract Objective A multicentric study has reported on the sustained effects of outpatient neurorehabilitation in Germany. Different to Germany, the biopsychosocial model of disability, as described in the International Classification of Functioning, Disability and Health (published by the World Health Organization), is not incorporated into Austrian law. There is a need for objective measurement instruments for routine outcome evaluation of outpatient neurorehabilitation in Austria. The present examines the extent to which the instruments used for the German multicentric study are applicable in the Austrian rehabilitation context and if there are similar rehabilitation effects over time. Method In a multicentric observational study, patients of 4 Austrian outpatient neurorehabilitation centers for stroke or traumatic brain injury were asked to fill in a questionnaire. This was carried out 4 times throughout the program: on admission and discharge as well as on month 4 and 12 post rehabilitation. Additionally, clinical experts were asked to rate the patients’ status at admission and discharge. Results and conclusions The results of 4 outpatient neurorehabilitation centers in Vorarlberg (Austria) suggest that the used measurement instruments are reasonable for the evaluation of outpatient neurorehabilitation in Austria, based on the ultimate goal “participation and self-determined conduct of life”. For routine outcome evaluation, fewer instruments should be used and adjustments should be made while assessing more severely affected patients.

Domain-specific deficits in self-awareness and relationship to psychosocial outcomes after severe traumatic brain injury

2018 ◽  
Vol 42 (5) ◽  
pp. 651-659 ◽  
Author(s):  
Felicity G. Hurst ◽  
Tamara Ownsworth ◽  
Elizabeth Beadle ◽  
David H. K. Shum ◽  
Jennifer Fleming
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Severe Traumatic Brain Injury ◽  
Psychosocial Outcomes ◽  
Self Awareness ◽  
Domain Specific

Assessment of memory self-awareness following traumatic brain injury

Brain Injury ◽  
2010 ◽  
Vol 24 (4) ◽  
pp. 598-608 ◽  
Author(s):  
Michelle Livengood ◽  
Jonathan W. Anderson ◽  
Maureen Schmitter-Edgecombe
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Self Awareness

Collaborative Goal Setting: A Clinical Approach for Adults With Mild Traumatic Brain Injury

2021 ◽  
pp. 1-20
Author(s):  
Jessica Brown ◽  
Kristen Ackley ◽  
Kelly Knollman-Porter
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Goal Setting ◽  
Mild Traumatic Brain Injury ◽  
Clinical Decision Making ◽  
Clinical Decision ◽  
Models Of Care ◽  
Clinical Approach ◽  
Self Awareness ◽  
Clinical Resource

Purpose Speech-language pathologists (SLPs) have many available procedural options when setting treatment goals. Extant literature supports goal setting protocols that include and value the perspectives of the client; however, in practice, rehabilitation professionals may lean toward expert models of care when planning treatment. Our purpose is to describe a newly developed approach for SLPs and individuals with mild traumatic brain injury (mTBI) to work together to build meaningful, relevant goals. Method We utilized a multiple case study format to exemplify goal setting procedures. Specifically, we describe procedures and outcomes for a 29-year-old female 28 days postinjury and a 70-year-old male 9 months postinjury. Results Clients who engaged in this protocol worked collaboratively with a clinician to identify strengths and challenges postinjury, select and prioritize goal areas, and discuss and develop meaningful, personalized treatment activities. For both participants, use of the proposed protocol resulted in meaningful goals that addressed their self-reported deficits as well as their respective cognitive–linguistic deficits noted on objective, standardized measures. Conclusions Clinician and client collaboration during treatment goal development can facilitate increased client motivation and functional outcomes. The described approach is feasible from a clinical resource standpoint and promotes a systematic approach to placing the client at the forefront of clinical decision making to enhance therapeutic gains. Such client-centered approaches may be particularly valuable for individuals with mTBI who experience substantial cognitive and communicative challenges but may maintain high levels of self-awareness postinjury.

Depression, apathy and impaired self-awareness following severe traumatic brain injury: a preliminary investigation

Brain Injury ◽  
2019 ◽  
Vol 33 (9) ◽  
pp. 1245-1256 ◽  
Author(s):  
U. Bivona ◽  
A. Costa ◽  
M. Contrada ◽  
D. Silvestro ◽  
E. Azicnuda ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Severe Traumatic Brain Injury ◽  
Preliminary Investigation ◽  
Self Awareness
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