scholarly journals Adults with neuro-disabling conditions: Exploring the ways music therapy can support residents in a long term care facility

2021 ◽  
Author(s):  
◽  
Elizabeth Bolwell

<p>This exegesis presents findings which emerged from secondary review of clinical practice data collected during a music therapy placement. The setting for this research is a long-term residential care facility for people with a variety of physical and neurological conditions, including cerebral palsy, traumatic brain injury, stroke and multiple sclerosis, aged 18 to 65. The aim of the facility is to maximise the quality of life for people with physical disabilities and those with terminal illnesses. The research aim was to develop theory about how music therapy can provide support to people with long term neurological conditions. Thematic analysis was employed to develop core themes about the support that music therapy has provided. These findings are presented under the following six themes: building relationships, collaborative practices, fostering community, acknowledging diversity, emotional support and musical engagement. These themes all focus on relatedness, and the quality of life of individuals, groups and the community. They also indicate the value of a flexible community-centred approach for delivering music therapy. A vignette from clinical practice is included to illustrate important points made in the exegesis. The study complements other music therapy research situated within a health-care perspective and could offer particular significance for new music therapy practitioners looking to understand and work with people with neuro-disabilities in long term care facilities.</p>

2021 ◽  
Author(s):  
◽  
Elizabeth Bolwell

<p>This exegesis presents findings which emerged from secondary review of clinical practice data collected during a music therapy placement. The setting for this research is a long-term residential care facility for people with a variety of physical and neurological conditions, including cerebral palsy, traumatic brain injury, stroke and multiple sclerosis, aged 18 to 65. The aim of the facility is to maximise the quality of life for people with physical disabilities and those with terminal illnesses. The research aim was to develop theory about how music therapy can provide support to people with long term neurological conditions. Thematic analysis was employed to develop core themes about the support that music therapy has provided. These findings are presented under the following six themes: building relationships, collaborative practices, fostering community, acknowledging diversity, emotional support and musical engagement. These themes all focus on relatedness, and the quality of life of individuals, groups and the community. They also indicate the value of a flexible community-centred approach for delivering music therapy. A vignette from clinical practice is included to illustrate important points made in the exegesis. The study complements other music therapy research situated within a health-care perspective and could offer particular significance for new music therapy practitioners looking to understand and work with people with neuro-disabilities in long term care facilities.</p>


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S442-S442
Author(s):  
Ethan A McMahan ◽  
Marion Godoy ◽  
Abiola Awosanya ◽  
Robert Winningham ◽  
Charles De Vilmorin ◽  
...  

Abstract Empirical research on long-term care facility resident engagement has consistently indicated that increased engagement is associated with more positive clinical outcomes and increased quality of life. The current study adds to this existing literature by documenting the positive effects of technologically-mediated recreational programing on quality of life and medication usage in aged residents living in long-term care facilities. Technologically-mediated recreational programming was defined as recreational programming that was developed, implemented, and /or monitored using software platforms dedicated specifically for these types of activities. This study utilized a longitudinal design and was part of a larger project examining quality of life in older adults. A sample of 272 residents from three long-term care facilities in Toronto, Ontario participated in this project. Resident quality of life was assessed at multiple time points across a span of approximately 12 months, and resident engagement in recreational programming was monitored continuously during this twelve-month period. Quality of life was measured using the Resident Assessment Instrument Minimum Data Set Version 2.0. Number of pharmacological medication prescriptions received during the twelve-month study period was also assessed. Descriptive analyses indicated that, in general, resident functioning tended to decrease over time. However, when controlling for age, gender, and baseline measures of resident functioning, engagement in technologically-mediated recreational programming was positively associated with several indicators of quality of life. The current findings thus indicate that engagement in technology-mediated recreational programming is associated with increased quality of life of residents in long-term care facilities.


2003 ◽  
Vol 18 (4) ◽  
pp. 275-281 ◽  
Author(s):  
Constantine G. Lyketsos ◽  
Teresa Gonzales‐Salvador ◽  
Jing Jih Chin ◽  
Alva Baker ◽  
Betty Black ◽  
...  

2020 ◽  
Vol 5 (9) ◽  
pp. 152-169
Author(s):  
Cícera Alves de Luna ◽  
Allex Alves Sobral de Sousa ◽  
Iasmim Belém Silva Queiroz ◽  
Samyra Maria Lima Sampaio ◽  
Lucineide Coqueiro Gurgel ◽  
...  

Abstract: Aging is a physiological process that happens over time permeated by biological, psychosocial and cultural changes. Through the increase in life expectancy and, consequently, population aging worldwide, the Long Term Care Institutions for the Elderly (ILPI) stand out in caring for these elderly people, making it necessary to know what life is like for the elderly in this environment. Given the above, the study aimed to verify in the literature the perspective of institutionalized elderly about quality of life. Thus, the study is an integrative literature review with a qualitative approach, using Lilacs, Scielo and Medline databases as a means of research, taking advantage of the following Health Sciences Descriptors (DeCS): “Elderly”, “Quality of life” and “institutionalized”. The study sample consisted of 16 articles, which discussed the theme of the study, in which it was sought to verify the perception of institutionalized elderly about quality of life, it was decided to carry out two thematic categories: 01) Quality of Life for the Elderly Institutionalized, and 02) Perception of the Institutionalized Elderly. In view of the above, the study was able to show that the elderly who reside, live in a Long-Term Care Facility for the Elderly (ILPI), it is necessary to be active, dynamic, prepared to carry out their activities of daily living, in order to achieve their quality of life, harmonize health and promote healthy aging. Keywords: Elderly, Quality of Life, Institutionalized.


2014 ◽  
Vol 26 (12) ◽  
pp. 2073-2079 ◽  
Author(s):  
Erik Oudman ◽  
Jan W. Wijnia

ABSTRACTBackground:Korsakoff's syndrome (KS) is a neuropsychiatric disorder characterized by severe amnesia. Quality of life (QoL) is becoming an increasingly used outcome measure in clinical practice but little is known about QoL in KS and how it may change over time. The purpose of this study was therefore to assess the QoL in patients with KS at baseline and with a 20-month follow-up.Methods:The current study is a longitudinal study on the QoL in patients with KS living in two long-term care facilities for KS patients in the Netherlands. QoL was scored with the proxy-based QUALIDEM scale with a 20-month follow-up.Results:Of the 72 KS patients included at baseline, 57 KS patients had a follow-up QoL score (79.2%). On the subscales “Feeling at home,” “Positive affect,” and “Care relationship” of the QUALIDEM, there was a better QoL in the follow-up, although effects were relatively small. Other subscales indicated a stable QoL over time. There were inter-relations between changes in subscales.Conclusions:The main finding of this study is that patients with KS on average do show a relatively stable moderate to good QoL despite the severity of the syndrome. On specific subscales, there is a small increase in QoL over time. Results do suggest that prolonged stay in a long-term care facility for KS patients does have a neutral to a positive effect on QoL in KS.


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