scholarly journals Needs Detection for Carers of Family Members with Dementia

Healthcare ◽  
2021 ◽  
Vol 10 (1) ◽  
pp. 45
Author(s):  
Oriol Turró-Garriga ◽  
Maria del Mar Fernández-Adarve ◽  
Pilar Monreal-Bosch
Keyword(s):  
Qualitative Study ◽  
Social Care ◽  
Family Members ◽  
Community Dwelling ◽  
Social Recognition ◽  
Perceived Needs ◽  
Care Services ◽  
Management Of Resources ◽  
Different Characteristics ◽  
Depth Interviews

Aim: To determine the perceived needs of carers of non-institutionalized family members that suffer from dementia. Methods: Two-steps qualitative study by focus groups of relatives in three centres of different characteristics from the Girona Health Region (step 1) and two in-depth interviews with significant professionals in dementia care (step 2). The analysis was performed based on the interpretation of the transcribed data and the bottom-up coding of categories and themes. The information was triangulated and coding was agreed upon. Results: There were three groups, 26 main carers of community-dwelling relatives with dementia in step 1 and two in-depth interviews with dementia-specialised healthcare and social care professionals in step 2. The demands were categorised according to three main themes: whether they were addressed to the members of care services for more direct and close care, to the agencies for a better joint working and less fragmented system, or to society for better comprehension and social recognition. We emphasize the need for a consultation-liaison reference figure throughout the process both for aspects of greater efficiency in the management of resources and for greater empowerment of carers.

scholarly journals Occupational therapists’ experiences of enabling people to participate in sport

2020 ◽  
pp. 030802262097394
Author(s):  
Deborah Bullen ◽  
Channine Clarke
Keyword(s):  
Qualitative Study ◽  
Occupational Therapy ◽  
Thematic Analysis ◽  
Social Care ◽  
Occupational Therapists ◽  
Phenomenological Approach ◽  
Scope Of Practice ◽  
Local Populations ◽  
Care Services ◽  
Health And Social Care

Introduction In response to growing demands on health and social care services there is an emphasis on communities addressing the needs of local populations to improve lives and reduce inequalities. Occupational therapists are responding to these demands by expanding their scope of practice into innovative settings, such as working with refugees, the homeless and residents of nursing homes, and within sport and leisure environments. The benefits of sport are widely acknowledged, and this paper argues that occupational therapists could play a pivotal role in enabling people to participate. Method This qualitative study drew on a phenomenological approach and used interviews and thematic analysis to explore five occupational therapists’ experiences of enabling people to participate in sport. Findings Findings revealed that participants demonstrated the uniqueness of occupational therapy when enabling people to participate in sport and practised according to their professional philosophy. There were opportunities to reach wider communities and promote the value of occupational therapy by collaborating with organisations, but there were also challenges when working outside of traditional settings. Conclusion The study emphasises the unique skills occupational therapists can bring to this setting. It highlights opportunities to expand their practice, to forge new partnerships in sports and leisure environments, and to address the national inactivity crisis.

scholarly journals Athletes with Neurodegenerative Disease: A Phenomenological Exploration of Family Members’ Experiences

2021 ◽  
Author(s):  
Matthew Smith ◽  
Georgia Young ◽  
John Batten ◽  
Keith Parry ◽  
Rosie Collins ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Neurodegenerative Disease ◽  
Coping Strategies ◽  
Lived Experiences ◽  
Family Members ◽  
Emotional Responses ◽  
Raising Awareness ◽  
And Coping ◽  
Depth Interviews ◽  
Phenomenological Exploration

This qualitative study involved in-depth interviews with 15 family members (mainly partners and children) of deceased athletes who experienced deterioration in their neurological health towards the end of their life. The purpose of this study was to examine the stressors these family members experienced with the ailed players, their emotional responses to their family member’s condition, as well as the coping strategies they used. Vertical and horizontal thematic analyses were conducted on the data, which revealed five distinct temporal stages, a range of emotional responses, as well as accompanying stressors and coping strategies at each temporal stage. The findings are presented as an ethnodrama, capturing the lived experiences of participants. This ethnodrama aims to resonate with those caring for family members who are experiencing deteriorating neurological health, while also raising awareness of the various emotional responses of the individuals in these situations, as well as inviting dialogue and reflection about these issues.

scholarly journals Using Participatory Observation to Understand Older People’s Experiences: Lessons from the Field

2015 ◽  
Author(s):  
Josephine Tetley
Keyword(s):  
Older People ◽  
Qualitative Methods ◽  
Research Study ◽  
Social Care ◽  
Participant Observation ◽  
Community Dwelling ◽  
Care Services ◽  
Health And Social Care ◽  
Community Dwelling Older People ◽  
Participatory Observation

This article describes how participant observation and a reflective diary were used in a study that aimed to explore how three different groups of community dwelling older people experienced and made choices about using, or refusing, a range of health and social care services. The roles of these qualitative methods are highlighted to demonstrate how they enhanced the insights gained during the course of a research study.

scholarly journals Meaning Through Caregiving: A Qualitative Study of the Experiences of Informal Carers

2019 ◽  
Vol 50 (3) ◽  
pp. 682-700
Author(s):  
Chak K Chan ◽  
Tom Vickers ◽  
Adam Barnard
Keyword(s):  
Qualitative Study ◽  
Family Members ◽  
Qualitative Investigation ◽  
Meaningful Life ◽  
The United Kingdom ◽  
Informal Carers ◽  
Gender Based ◽  
Additional Support ◽  
Role Confusion ◽  
Depth Interviews

Abstract This article reports the findings of a qualitative investigation of the way people find meaning through caregiving. It draws on the results of in-depth interviews with 37 informal carers and 11 stakeholders in Nottinghamshire, the United Kingdom. For most respondents caregiving involved looking after family members—for example, husband or wife, father or mother, young or adult children and mother-in-law. The meaning that respondents found through caregiving motivated them to cope with the difficulties associated with looking after a person in need. This research found that most informal carers operate with long-standing, gender-based understandings of their role, creating a potential risk that using gender-neutral terminology when referring to family members may obscure the subjective values that carers attach to informal caregiving and lead to role confusion. Moreover, although informal carers typically feel obliged to take care of family members in need and may value this role, they often require additional support from the state to reduce the pressures associated with caregiving and to enable them to continue to lead a meaningful life both within and beyond their caring role.

Being self in later life: maintaining continuity in the face of change

2016 ◽  
Vol 17 (2) ◽  
pp. 141-150
Author(s):  
Gareth O'Rourke
Keyword(s):  
Qualitative Study ◽  
Older People ◽  
Consumer Choice ◽  
Social Care ◽  
Later Life ◽  
Small Scale ◽  
Care Needs ◽  
Helping Relationships ◽  
Content Type ◽  
Care Services

Purpose – The purpose of this paper is to build upon existing knowledge of personalisation through an improved understanding of how the use of personalised social care services can support older people’s sense of self. It contains perspectives that are helpful to the development of personalisation policy and practice and to the future commissioning of social care services. Design/methodology/approach – The research involved a qualitative study with eight participants in two local authority areas in England. A series of three in-depth interviews conducted with each participant over a four to six week period explored their experience of using (in one case refusing) a direct payment to meet their social care needs. Ethical approval was obtained prior to the start of fieldwork via the research ethics committee of the author’s home university. Findings – Two inter-related themes emerge as findings of the research. First, that the locus of personalisation resides within the interpersonal dynamics of helping relationships; participants experienced personalisation when carers helped to meet needs in ways that validated their narrative of self. Second, whilst the experience of personalisation is not strongly related to consumer choice, it is important that older people are able to exercise control over and within helping relationships. Research limitations/implications – This is a small scale qualitative study conducted with only eight participants. Whilst it offers valid insights into what constitutes personalisation and the processes by which it was achieved for the participants, caution is required in applying the findings more generally. With the exception of one case, the study is focused exclusively on first person accounts of older people. Future studies might usefully be designed to incorporate the accounts of other involved parties such as family members and paid carers. Originality/value – The paper provides an alternative way of approaching personalisation of social care services for older people by exploring it in terms of its impact on self. It identifies the development of accommodations of “special requirements of Self” in helping relationships as a key mechanism of personalisation. This offers a balance to the current focus on consumer choice and control through the development of market like mechanisms.

scholarly journals “Enthusiastic Admiration Is the First Principle of Knowledge and Its Last”: A Qualitative Study of Admiration for the Famous

SAGE Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. 215824402110067
Author(s):  
Yue Meng-Lewis ◽  
Huiping Xian ◽  
Gavin Lewis ◽  
Yupei Zhao
Keyword(s):  
Qualitative Study ◽  
Well Being ◽  
Moral Emotions ◽  
Social Recognition ◽  
Psychological Effects ◽  
Positive Thinking ◽  
First Principle ◽  
Exploratory Research ◽  
Positive Attitudes ◽  
Depth Interviews

The concept of fame has been associated with celebrities, wealth, attractiveness, and social recognition. Nevertheless, people have admiration for the famous who may not be celebrities. Admiration is regarded as one of the emotions of appreciation, or moral emotions, triggered by positive appraisals of excellence. It is present when seeing extraordinary displays of skills talent or achievement. However, theoretical and empirical research on admiration and its psychological effects on people are scarce. In this article, we discuss a qualitative study that explores a collection of experiences of admiration for the famous. Based on 26 in-depth interviews with residents in southern England, we explored why people admire famous individuals and how the experience may produce positive attitudes and behaviors. We found that through admiring famous individuals who are perceived to share similar interests and attributes, people may develop positive thinking about their own lives and may be more active in seeking new opportunities or engaging in self-growth. We also discuss the potential problems of admiration. This exploratory research contributes to the literature of positive psychology and has implications for furthering the understanding of people’s well-being.

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