scholarly journals Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study

Author(s):  
Muhammad Iqbal Haji Mukhti ◽  
Mohd Ismail Ibrahim ◽  
Tengku Alina Tengku Ismail ◽  
Iliatha Papachristou Nadal ◽  
Sureshkumar Kamalakannan ◽  
...  

Background: Stroke is a chronic disease that requires stroke survivors to be supported long-term by their families. This is especially because of the inaccessibility to post-stroke rehabilitation outside hospitals. The Corona Virus Disease 2019 (COVID-19) crisis and the pandemic restrictions in Malaysia are expected to exponentially increase the demand from family caregivers in supporting stroke survivors. Thus, this study aims to explore the burden, experience, and coping mechanism of the family caregivers supporting stroke survivors during the COVID-19 pandemic. Methodology: A phenomenological qualitative study was conducted from November 2020 to June 2021 in Malaysia. A total of 13 respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan. In-depth interviews were conducted with the participants. Comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed using thematic analysis. Results: Three themes on burdens and experiences were identified. They were worsening pre-existing issues, emerging new issues, and fewer burdens and challenges. Two themes on coping strategies were also identified. They were problem-focused engagement and emotion-focused engagement. Conclusions: The COVID-19 pandemic has changed the entire system of stroke management. While family caregivers mostly faced the extra burden through different experiences, they also encountered some positive impacts from the pandemic. The integrated healthcare system, especially in the era of digitalization, is an important element to establish the collaborative commitment of multiple stakeholders to compensate burden and sustain the healthcare of stroke survivors during the pandemic.

2020 ◽  
Author(s):  
Racheal Kyarimpa ◽  
Dan Muramuzi ◽  
Talbert Muhwezi

AbstractBackgroundHydrocephalus is a long-term neurologic condition, normally identified in early childhood, where there is excessive fluid in the ventricular system within the brain which results into enlargement of the head to an abnormal size. The most common cause of hydrocephalus in most patient population is infection (over 60%) typically meningitis. In Uganda, it is estimated that about 1000 to 2000 new cases of hydrocephalus occur every year with 60 percent of these are reportedly attributed to neonatal infections. The general objective was to explore care givers‘ experiences of living with a child having hydrocephalus.MethodsThe phenomenological descriptive study involved fifteen respondents who were purposively selected. The in-depth interviews were conducted with the aid of an interview guide and a tape recorder. Transcribed interviews were analyzed using the thematic approach.ResultsCare givers were experiencing financial problems, psychological problems, lack of social support and cultural constraints and stigma associated with hydrocephalus. The care givers experiences were full of life changes and coping strategies, and they used both problem and emotion focused coping strategies to deal with the challenges as compassionate and responsive care was illustrated by the participants.ConclusionThe study discovered that having a child with hydrocephalus is challenging and frustrating in terms of financial, physical, social, and psychological experience. Therefore, these findings are essential for counselling care givers, families and communities affected by hydrocephalus. In this context, attention should be targeted to families and communities to reduce stigma and isolation faced by the affected.


Stroke ◽  
2012 ◽  
Vol 43 (suppl_1) ◽  
Author(s):  
Barbara J Lutz ◽  
Mary Ellen Young

Introduction: More than 3.5 million family caregivers provide assistance with activities and instrumental activities of daily living for stroke survivors living at home. Studies consistently indicate that stroke family caregivers are inadequately assessed and under prepared for their new caregiver roles and responsibilities as stroke survivors transition home from inpatient rehabilitation. Several tools exist to assess caregivers once they have assumed the caregiving role, however, there are no tools assess stroke caregiver readiness prior to discharge. Research has indicated the need for a thorough and systematic pre-discharge assessment of the caregiver’s ability to assume the caregiving role. The purpose of this presentation is to describe ten critical stroke caregiver readiness assessment domains and to discuss their relevance for long-term outcomes for stroke survivors and family caregivers. Methods: In this grounded theory study, data were collected from19 persons with stroke and 19 family caregivers. Semi-structured interviews were conducted during inpatient rehabilitation and within 6 months post-discharge. First interviews focused on expectations for recovery and caregiving needs post-discharge. Follow-up interviews focused on how families managed the transition from rehabilitation to home and how their initial expectations matched the reality of their post-discharge experience. Interviews were analyzed using dimensional analysis and coded in NVivo data management software. Findings: Participants indicated that stroke was an overwhelming, life changing crisis event. Family members felt abandoned, isolated, and under prepared to assume the fulltime caregiving role as stroke survivors transitioned home. They described using ineffective or risky caregiving strategies that resulted in safety and health issues for both stroke survivors and caregivers. Ten pre-discharge caregiver readiness assessment domains were identified in the interviews and a corresponding stroke caregiver readiness assessment interview guide was developed. Conclusion: Stroke survivors and family caregivers are extremely vulnerable as they transition home from inpatient rehabilitation leaving them at risk for poorer health, depression, and increased risk for injury. In order to prevent these deleterious outcomes, caregivers should be assessed, and potential areas of risk identified and addressed prior to discharge from inpatient rehabilitation. As new interventions are developed to improve survival rates for persons with stroke, we must also develop and implement primary prevention strategies for family members who are called upon to provide care following discharge to protect their health and improve the long-term recovery outcomes for the stroke survivor.


2001 ◽  
Vol 15 (1) ◽  
pp. 25-33 ◽  
Author(s):  
Ann Margret Samuelsson ◽  
Lena Annerstedt ◽  
Solve Elmstahl ◽  
Sven-Marten Samuelsson ◽  
Margareta Grafstrom

BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Shu-Chuan Yu ◽  
Hsiao-Pei Hsu ◽  
Jong-Long Guo ◽  
Shu-Fen Chen ◽  
Shu-He Huang ◽  
...  

Abstract Background The essence and workload of nursing can easily lead to burdens associated with female nurses’ menstrual symptoms, and consequently, result in decreased working performance. Without effective support this can lead to resignation due to maladaptation. This study adopted Q methodology to explore the experience of working stressors and coping strategies associated with menstrual symptoms among nurses with shifting schedules. Methods Data were collected in two stages. First, in-depth interviews were conducted to collect nurses’ experiences. Sentences that best fit the study’s purpose were extracted for the construction of Q statements. Second, nurses were allowed to subjectively rank these Q statements by using Q-sorts. A total of 90 participants ranked the designed Q statements. The Q factor analysis revealed a five-factor solution that accounted for 48.90% of the total variance. Results The five evident factors included: menstrual symptoms interfering in collaboration with colleagues, deficiency of professional function and stress due to symptoms burden, diverse experiences without a clear pattern, adapted self-management with and without medication use, and stress due to symptoms burden and using medication for self-management. Conclusions The identification of these five groups may facilitate the development of responsive strategies to meet nurses’ preferences. Furthermore, identifying workplace factors that are associated with the adverse effects of menstrual symptoms on nurses will be helpful for nursing supervisors and hospital managers. Additionally, strategies that can be implemented to create supportive work environments are discussed.


Author(s):  
Emadul Islam ◽  
Ishtiaque Jahan Shoef ◽  
Mehadi Hasan

This chapter is part of an extensive panel survey conducted among the BRAC COVID-19 response HHs between April 2020 to September 2020. This chapter aims to describe the food insecurity status of BRAC-supported HHs and their coping strategies to combat the impact of COVID-19. A total of 6,086 HHs were interviewed in the 1st round (April 2020-June 2020), whilst these HHs were interviewed in the 2nd round (July 2020 to September 2020). Findings reveal that COVID-19 has created an unprecedented impact on HH food insecurity. The study prepared a food index score and found that 33% of HHs are extremely food insecure, whilst 19% are highly insecure. In terms of coping strategies to the current food needs of the HHs, dependency on the personal mechanism and institutional mechanisms were identified. The study argues that the COVID-19 crisis forces HHs into long-term loan burden, which may lead to another hurdle, causing delayed HHs economic recovery. Long-term GO and NGO sustainable economic recovery intervention could help marginalized people to build back better from COVID-19.


2003 ◽  
Vol 17 (4) ◽  
pp. 406-425 ◽  
Author(s):  
Mi-Sook Kim ◽  
Joan L. Duda

This study examined the effectiveness of the reported coping responses utilized by 318 U.S. and 404 Korean athletes based on the Outcome model (i.e., considers perceived immediate and long-term outcomes) and the Goodness-of-Fit model (i.e., considers the fit between situational appraisal and coping strategies employed). Intercollegiate athletes provided information regarding frequency of psychological difficulties experienced during competition, their perceived controllability over such difficulties, and the reported coping strategies utilized to counter this particular stressor. Recursive path analyses revealed that both Active/Problem-Focused and Avoidance/Withdrawal coping were deemed immediately effective during competition. Active/Problem-Focused and Avoidance/Withdrawal coping strategies were, respectively, positively and negatively associated with all three long-term variables. Results partially supported the Goodness-of-Fit model among both Korean and U.S. athletes.


Author(s):  
Long Huang ◽  
Fuming Xu ◽  
Hairong Liu

AbstractBackgroundAffected by a Corona Virus Disease 2019 (COVID-19) outbreak, Since December 2019, there have been more than 76,000 cases of COVID-19 in China, causing more than 3,000 medical staff infections. Due to COVID-19 spreads quickly, is highly contagious, and can be fatal in severe cases, and there are no specific medicines, it poses a huge threat to the life and health of nurses and has a large impact on their emotional responses and coping strategies.MethodsThis study conducted an online questionnaire survey from February 1 to 9, 2020 to investigate the current state of emotional responses and coping strategies of nurses and college nursing students in Anhui Province. This study used a modified Brief COPE (Carver, 1997) and a emotional responses scale.ResultsThe results found that women showed more severe anxiety and fear than men. Participants from cities showed more anxiety and fear than participants from rural, but rural participants showed more sadness than urban participants. The closer COVID-19 is to the participants, the stronger the anxiety and anger. Compared with Nursing college students, nurses have stronger emotional responses and are more willing to use Problem-focused coping. People may have a cycle of “the more fear, the more problem-focused coping”. And people may “The more angry, the more emotion-focused coping”, “the more problem-focused coping, the more anxious, the more angry, the more sadness”.ConclusionCOVID-19 is a pressure source with great influence, both for individuals and for the social public groups. Different individuals and groups may experience different levels of psychological crisis, and those nurses at the core of the incident are affected. Hospitals should focus on providing psychological support to nurses and providing timely psychological assistance and training in coping strategies.Improving nurses’ ability to regulate emotions and effective coping strategies, providing a strong guarantee for resolutely winning the battle against epidemic prevention and control.


Author(s):  
Shaikha R AL-Naimi ◽  
Michael H Romanowski ◽  
Xiangyun Du

This study examined the challenges novice teachers encountered in Qatari government schools and the coping strategies they adopt. A qualitative study was conducted using semi-structured interviews with 15 novice teachers during their initial years of teaching. The findings demonstrated that most participants faced several personal challenges and other challenges within and beyond the school. Findings also indicated that these teachers confronted these challenges using various coping strategies. The challenges facing novice teachers include teaching and classroom, government, and administrative, and professional challenges. Novice teachers' coping strategies included individual internal peace strategies, active communication, and changing environment. Finally, based on these findings, suggestions are provided to support novice teachers' long-term success in Qatari government schools or similar contexts.


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