Customising Health Literacy Campaigns for Organ Donation and Transplantation

2022 ◽  
pp. 122-133
Author(s):  
Maria Theodosopoulou ◽  
Zoe-Athena Papalois ◽  
Lisa Aufegger ◽  
Giorgos Baskozos ◽  
Frank J. M. F. Dor ◽  
...  

The organ shortage and the increasing demand for organs are universal, worldwide challenges. Health literacy is a powerful tool that can help to increase awareness about organ donation and transplantation on a large scale and to encourage and sustain support for organ donation. The unique perspectives, experiences, and expectations of medical students, renal patients, and hospital administrative staff across the UK, Netherlands, and Spain on the topic of health literacy (HL) campaigns regarding deceased organ donation (DOD) were recorded in a cross-cultural, qualitative study. Focus group discussions enabled participants to express their views on existing HL campaigns and to propose novel pathways for future campaigns.

Author(s):  
Maria Theodosopoulou ◽  
Frank J. M. F. Dor ◽  
Daniel Casanova ◽  
Georgios Baskozos ◽  
Vassilios Papalois

Organ shortage is a worldwide persisting problem, as patients on waiting lists increase while actual donors cannot meet the demand for organs. Cultural and religious concerns, gaps of information, lack of medical procedure awareness and of understanding transplant-related terminology are some reasons why people refuse to donate organs. The medical, ethical, social, cultural, religious aspects of deceased organ donation (DOD) bring out the need for a systematic agenda of lifelong learning public awareness raising and health literacy on this issue. This chapter presents findings of a comparative research project in three European countries about how people learn about DOD and their suggestions for systematically promoting health literacy. A total sample of 1309 medical students, renal patients, and hospital administrative staff participated in a survey regarding attitudes, knowledge, sources of information, and communication about DOD. In addition, 51 participants took part in focus groups elaborating on their experiences and suggestions regarding health literacy about DOD.


2020 ◽  
Vol 104 (S3) ◽  
pp. S316-S316
Author(s):  
Ines Ushiro-Lumb ◽  
Sophie Cullen ◽  
Michelle Hunter ◽  
Sarah Jones ◽  
Claire Mitchell ◽  
...  

2021 ◽  
pp. medethics-2021-107630
Author(s):  
G M Qurashi

The Organ Donation Act 2019 has introduced an opt-out organ donor register in England, meaning that consent to the donation of organs upon death is presumed unless an objection during life was actively expressed. By assessing the rights of the dead over their organs, the sick to those same organs, and the role of consent in their requisition, this paper interrogates whether such paradigms for deceased organ donation are ethically justifiable. Where legal considerations are applicable, I focus on the recent changes in England as a case in point; however, this paper ultimately challenges the justifiability of opt-out systems in any form, concluding that ethical solutions to organ shortage do not lie in opt-out systems of deceased organ procurement.


2016 ◽  
Vol 16 (1) ◽  
pp. 125 ◽  
Author(s):  
Dale Gardiner

<p><em><span style="font-size: medium;">Long transplant lists and a shortage of organ donors has led to an international resurgence in the donation of organs after circulatory death (‘DCD’). Despite being almost entirely absent for nearly 25 years, DCD now accounts for 40 per cent of deceased organ donation in the UK. This rise is in part due to attempts to resolve the ethical, legal and professional challenges inherent to this type of donation. Since 2008 in the UK, seven major ethical, legal and professional guidances have been published relating to deceased donation and DCD in particular. It is now this author’s opinion that the professional framework that underpins the DCD programme in the UK is the strongest in the world. This paper outlines the seven UK publications that justify this bold claim.</span></em></p>


2020 ◽  
Author(s):  
Maria Theodosopoulou* ◽  
Zoe-Athena Papalois** ◽  
Frank J.M.F. Dor*** ◽  
Daniel Casanova**** ◽  
Vassilios Papalois*****

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