scholarly journals The First Intervention Study for LGBTQ+ Older Adults With Dementia and Caregivers: COVID-19 Lessons Learned

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 112-112
Author(s):  
Karen Fredriksen Goldsen ◽  
Linda Teri ◽  
Hyun-Jun Kim ◽  
Charles Emlet ◽  
Ryan Petros ◽  
...  
Keyword(s):  
Older Adults ◽  
Culturally Responsive ◽  
Intervention Study ◽  
Retention Rate ◽  
Controlled Trial ◽  
Lessons Learned ◽  
Technology Support ◽  
Disadvantaged Communities ◽  
Aging Services ◽  
Home Technology

Abstract LGBTQ+ older adults face significant health disparities with higher rates of cognitive impairment and social isolation. Yet, the cognitive health needs of LGBTQ+ adults and caregivers have not been adequately addressed in clinical trials and services. In this presentation, we will share findings from Aging with Pride: IDEA (Innovations in Dementia Empowerment and Action), the first randomly controlled trial (RCT) intervention study designed to improve quality of life of LGBTQ+ adults living with dementia and caregivers, and to reduce institutionalization. In this presentation, we will share preliminary efficacy findings, the effectiveness of culturally responsive approaches, and Covid-19 adaptations, including delivery by virtual chat rather than in-home, technology training, ensuring safety of virtual intervention components, and providing on-going technology support. Preliminary findings suggest a higher intervention retention rate in the virtual delivery as compared to in-home. This study illustrates innovative ways to serve disadvantaged communities in dementia care and aging services.

scholarly journals LESSONS LEARNED FROM THE FIRST INTERVENTION STUDY ADDRESSING DEMENTIA IN THE LGBT COMMUNITY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S345-S345
Author(s):  
Karen Fredriksen Goldsen ◽  
Karen Fredriksen-Goldsen ◽  
Linda Teri ◽  
Hyun-Jun Kim ◽  
Glenise McKenzie ◽  
...  
Keyword(s):  
Culturally Responsive ◽  
Intervention Study ◽  
Lessons Learned ◽  
Health Needs ◽  
Living Alone ◽  
Community Partnership ◽  
Disadvantaged Communities ◽  
Lgbt Community ◽  
First Contact

Abstract The cognitive health needs of LGBT older adults have not been adequately addressed in mainstream clinical trials. Aging with Pride: IDEA (Innovations in Dementia Empowerment and Action), is an intervention designed to improve physical functioning and quality of life of LGBT adults with dementia and caregivers. We evaluate the processes and effectiveness of culturally-responsive recruitment approaches implemented in this study. A strong research-community partnership was necessary for the development and implementation of the intervention. LGBT participants with dementia made the first contact to research team as often as caregivers did and showed a higher rate of living alone and having a friend-based care network. The most common reason for ineligibility was not having a caregiver. Participants learned about the study via multiple venues including community events, newsletters, and social media. This study illustrates important new ways to sustain collaborations with disadvantaged communities and conduct a clinical trial with hard-to-reach participants.

scholarly journals The ACHIEVE Trial: Lessons Learned From Nesting a Randomized Controlled Trial Within an Observational Cohort Study

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 811-811
Author(s):  
Jennifer Deal ◽  
Nicholas Reed ◽  
David Couper ◽  
Kathleen Hayden ◽  
Thomas Mosley ◽  
...  
Keyword(s):  
Older Adults ◽  
Randomized Controlled Trial ◽  
Observational Study ◽  
Cognitive Decline ◽  
Controlled Trial ◽  
Lessons Learned ◽  
Community Dwelling ◽  
Randomized Controlled ◽  
Study Staff ◽  
Increased Risk

Abstract Hearing impairment in older adults is linked to accelerated cognitive decline and a 94% increased risk of incident dementia in population-based observational studies. Whether hearing treatment can delay cognitive decline is unknown but could have substantial clinical and public health impact. The NIH-funded ACHIEVE randomized controlled trial of 977 older adults aged 70-84 years with untreated mild-to-moderate hearing loss, is testing the efficacy of hearing treatment versus health education on cognitive decline over 3 years in community-dwelling older adults (Clinicaltrials.gov Identifier: NCT03243422.) This presentation will describe lessons learned from ACHIEVE’s unique study design. ACHIEVE is nested within a large, well-characterized multicenter observational study, the Atherosclerosis Risk in Communities Study. Such nesting within an observational study maximizes both operational and scientific efficiency. With trial results expected in 2022, this presentation will focus on the benefits gained in design and recruitment/retention, including dedicated study staff, well-established protocols, and established study staff-participant relationships. Part of a symposium sponsored by Sensory Health Interest Group.

scholarly journals Feasibility of Conducting Nonpharmacological Interventions to Manage Dementia Symptoms in Community-Dwelling Older Adults: A Cluster Randomized Controlled Trial

2019 ◽  
Vol 35 ◽  
pp. 153331751987263 ◽  
Author(s):  
Juyoung Park ◽  
Magdalena I. Tolea ◽  
Diane Sherman ◽  
Amie Rosenfeld ◽  
Victoria Arcay ◽  
...  
Keyword(s):  
Older Adults ◽  
Randomized Controlled Trial ◽  
Retention Rate ◽  
Controlled Trial ◽  
Community Dwelling ◽  
Cluster Randomized Controlled Trial ◽  
Group Differences ◽  
Significant Group ◽  
Randomized Controlled ◽  
Cluster Randomized

This study assessed the feasibility of conducting 3 nonpharmacological interventions with older adults in dementia, exploring the effects of chair yoga (CY), compared to music intervention (MI) and chair-based exercise (CBE) in this population. Using a cluster randomized controlled trial (RCT), 3 community sites were randomly assigned 1:1:1 to CY, MI, or CBE. Participants attended twice-weekly 45-minute sessions for 12 weeks. Thirty-one participants were enrolled; 27 safely completed the interventions and final data collection (retention rate of 87%). Linear mixed modeling was performed to examine baseline and longitudinal group differences. The CY group improved significantly in quality of life compared to the MI group (CY mean = 35.6, standard deviation [SD] = 3.8; MI mean = 29.9, SD = 5.3, P = .010). However, no significant group differences were observed in physical function, behavioral, or psychological symptoms (eg, for mini-PPT: slopetime = 0.01, standard error [SE] = 0.3, P = .984 in the CBE group; slopetime = −0.1, SE = 0.3, P = .869 in the MI group; slopetime = −0.3, SE = 0.3, P = .361 in the CY group) over the 12-week intervention period. Overall, this pilot study is notable as the first cluster RCT of a range of nonpharmacological interventions to examine the feasibility of such interventions in older adults, most with moderate-to-severe dementia. Future clinical trials should be conducted to examine the effects of nonpharmacological interventions for older adults with dementia on health outcomes.

scholarly journals 86 Developing the Adapted Lifestyle - Integrated Functional Exercise Programme in Thai Context (TLIFE) to Prevent Falls among Older Adults in Thailand: A Mixed Methods Study

2019 ◽  
Vol 48 (Supplement_4) ◽  
pp. iv18-iv27
Author(s):  
Sasiporn Ounjaichon ◽  
Chris Todd ◽  
Emma Stanmore ◽  
Elisabeth Boulton
Keyword(s):  
Older Adults ◽  
Randomised Controlled Trial ◽  
Retention Rate ◽  
Controlled Trial ◽  
Intervention Group ◽  
Exercise Programme ◽  
Community Dwelling ◽  
Control Group ◽  
Functional Exercise ◽  
Randomised Controlled

Abstract Introduction Falls are the leading cause of injuries in older Thai adults. There is a need to develop a fall prevention exercise programme to encourage participation and adherence. The adapted Lifestyle-integrated Functional Exercise (aLiFE) programme may be suitable by integrating exercise into daily routines as opposed to attending an exercise class. This study aimed to explore the acceptability and feasibility of the aLiFE programme in Thai context (TLiFE) among older Thai adults. Methods Based on the findings of a prior qualitative study, a feasibility randomised controlled trial (RCT) of TLiFE was conducted among community-dwelling older adults, comparing the TLiFE intervention group with a usual care control group. Outcome measures were analysed at baseline, 3 months, and after 6 months of the intervention. Results We recruited a total of 72 older adults into the RCT, randomised to TLiFE (n=36) and control (n=36). The retention rate at 6 months was 91.7%. Attendance in the intervention group (3 home visits and 4 follow-up calls) was 82.9%. There were no differences in fall incidence between the groups. The acceptability survey reveals TLiFE is easy to perform in daily life, safe, and useful. No adverse events were reported. Conclusion The TLiFE programme appears to be acceptable and feasible to deliver to community-dwelling older Thai adults. This feasibility study was not powered to detect a difference between groups. A further fully powered definitive randomised controlled trial of TLiFE is needed to evaluate long-term outcomes and cost-effectiveness before it is integrated within the healthcare system in Thailand.

scholarly journals Addressing physical, functional, and physiological outcomes in older adults via integrated mHealth intervention

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 934-935
Author(s):  
Melba Hernandez-Tejada ◽  
Sundaravadivel Balasubramanian ◽  
John Bian ◽  
Mohan Madisetti ◽  
Alexis Nagel ◽  
...  
Keyword(s):  
Older Adults ◽  
Large Scale ◽  
Behavioral Activation ◽  
Controlled Trial ◽  
Lessons Learned ◽  
Lower Income ◽  
Physical Strength ◽  
Mhealth Intervention ◽  
Potential Benefits ◽  
Physiological Outcomes

Abstract Objective We evaluated components of an integrated mobile (m)Health-based intervention "Activate for Life" (AFL) on health outcomes in lower-income older adults (65 years and older). Method: AFL incorporates balance (Otago; OG), physical strength (Gentle Yoga and Yogic Breathing; GYYB), and mental engagement (Behavioral Activation; BA) components. Thirty participants were randomly allocated to one of three Arms (n=10 per each arm): OG (Arm 1), (OG+GYYB (Arm2), or OG+GYYB+BA (Arm 3, or full AFL). Groups were evaluated for physical, functional and physiological endpoints at baseline, and posttreatment (12-weeks and/or 3-month follow up). Results Improvements over time in pain interference and 1,5 Ag biomarker were noted for all groups. No significant changes were observed in other physical, functional and physiological measures. DiscussionThis study illustrated potential benefits of the AFL intervention on the health of lower-income older adults and lessons learned from this pilot will be used to make improvements for a large-scale randomized controlled trial.

scholarly journals Online research in older adults: lessons learned from conducting an online randomized controlled trial

2011 ◽  
Vol 24 (4) ◽  
pp. 269-275 ◽  
Author(s):  
Eun-Shim Nahm ◽  
Barker Bausell ◽  
Barbara Resnick ◽  
Barbara Covington ◽  
Patricia F. Brennan ◽  
...  
Keyword(s):  
Older Adults ◽  
Randomized Controlled Trial ◽  
Controlled Trial ◽  
Lessons Learned ◽  
Online Research ◽  
Randomized Controlled

scholarly journals Comparison of Recruitment Strategies for Engaging Older Minority Adults: Results From Take Heart

2019 ◽  
Vol 75 (5) ◽  
pp. 922-928 ◽  
Author(s):  
Jessica E Ramsay ◽  
Cainnear K Hogan ◽  
Mary R Janevic ◽  
Rebecca R Courser ◽  
Kristi L Allgood ◽  
...  
Keyword(s):  
Older Adults ◽  
Behavioral Interventions ◽  
Controlled Trial ◽  
Management Program ◽  
Lessons Learned ◽  
Low Ses ◽  
Community Members ◽  
Face To Face ◽  
Urban Minority ◽  
Trial Testing

Abstract Background Few published studies report lessons learned for recruiting older adults from racial/ethnic minority, low SES communities for behavioral interventions. In this article, we describe recruitment processes and results for Take Heart, a randomized controlled trial testing the effectiveness of an adapted heart disease self-management program for primarily African American, urban, low SES adults 50 years or older living in Detroit. Methods Older adults were recruited via community-based (CB), electronic medical record (EMR), and in-person hospital clinic (HC) methods. Recruitment processes, demographic characteristics of enrolled participants, yield and cost, lessons learned, and best practices for each method are described. Results Within 22 months, 1,478 potential participants were identified, 1,223 were contacted and 453 enrolled, resulting in an overall recruitment yield of 37%. The CB method had the highest yield at 49%, followed by HC at 36% and EMR at 16%. Of six CB approaches, information sessions and flyers had the highest yields at 60% and 59%, respectively. The average cost of recruiting and enrolling one participant was $142. Conclusions CB, EMR, and HC methods each made important contributions to reaching our recruitment goal. The CB method resulted in the highest recruitment yield, while EMR had the lowest. Face-to-face interaction with community members and hiring a community health worker were particularly useful in engaging this population. Further research is needed to confirm these findings in urban, minority, low SES populations of older adults.

Foot Care Self-Management in Non-Diabetic Older Adults: A Pilot Controlled Trial

2020 ◽  
pp. 019394592096271
Author(s):  
Jennifer J. O’Connor ◽  
Chelsea B. Deroche ◽  
Deidre D. Wipke-Tevis
Keyword(s):  
Older Adults ◽  
Retention Rate ◽  
Controlled Trial ◽  
Intervention Group ◽  
Community Dwelling ◽  
Effect Sizes ◽  
Self Management ◽  
Foot Care ◽  
Foot Health ◽  
Foot Problems

Self-management can mitigate common foot problems; however, community-dwelling older adults without diabetes rarely receive foot care self-management training. This two-group pilot study examined feasibility and preliminary efficacy of the novel, nurse-led 2 Feet 4 Life intervention. Twenty-nine adults ( M age 76 years ± 6.6 years) from two senior centers completed the study (90.6% retention rate). Intervention dosage was one hour/week for four consecutive weeks. Study procedures were safe and feasible. Intervention group participants found the intervention acceptable and valuable. Observed between-group effect sizes were the following: knowledge (4.339), self-efficacy (3.652), behaviors (3.403), pain (0.375) and foot health (0.376). Large effect sizes were observed within-groups and within their interaction for knowledge (1.316), behaviors (8.430), pain (9.796), and foot health (3.778). Effect sizes suggest the intervention impacted foot care outcomes between groups and within individuals over seven months’ time. Fully powered studies are indicated to test the intervention in diverse samples with more complex foot problems.

scholarly journals Challenges faced and lessons learned A multi-component prospective memory training program for Malaysian older adults

2018 ◽  
Vol 12 (2) ◽  
pp. 189-195
Author(s):  
Azin Farzin ◽  
Rahimah Ibrahim ◽  
Zainal Madon ◽  
Hamidon Basri
Keyword(s):  
Older Adults ◽  
Randomized Controlled Trial ◽  
Prospective Memory ◽  
Controlled Trial ◽  
Practical Method ◽  
Lessons Learned ◽  
Memory Training ◽  
Cultural Issues ◽  
Randomized Controlled ◽  
The Impact

Abstract The surrounding circumstances and environments of Malaysian older adults could make conducting interventions (mainly in terms of clinical or randomized controlled trials) a challenge. Working with older adults and facing cultural issues could be challenging. Objective: This paper illustrates a significant perspective of some of the challenges faced while conducting a randomized controlled trial exploring the impact of a multi-component intervention that included strategy- and process-based prospective memory (PM) training among Malaysian older adults. Methods: The current study was a randomized controlled trial (RCT) and therefore the challenges were presented in accordance with the CONSORT statement style. Results: A discussion on how these issues were addressed is provided. Conclusion: Some suggestions were presented to help researchers plan and create interventions for similar studies and to support a practical method of addressing all related challenges.

scholarly journals Teaching Anti-Racism in an Aging Services Course: Lessons Developed and Lessons Learned

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 123-123
Author(s):  
Althea Pestine-Stevens ◽  
Emily Greenfield
Keyword(s):  
Older Adults ◽  
Well Being ◽  
Lessons Learned ◽  
Advocacy Organizations ◽  
Master Of Social Work ◽  
Racial Inequalities ◽  
Aging Services ◽  
Challenges And Opportunities ◽  
Racial Disparities In Health ◽  
Social Work Program

Abstract Despite high levels of racial disparities in health and well-being among older adults, curricula addressing how aging services systems contribute to or work to ameliorate these disparities are scarce. This paper introduces a module on inequalities and anti-racism in aging developed for an online course on aging services within a Master of Social Work program. First, materials that help students identify and understand racial inequalities in aging and in the programs that serve older adults are presented. Next, students are introduced to the applied context of how COVID-19 has exacerbated these inequalities. Finally, students critically engage in reflections and assessments of the available resources within aging services and advocacy organizations, providing recommendations for how these systems may better incorporate anti-racist practices. Challenges and opportunities will be discussed, including piloting this module in a virtual, asynchronous environment.

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