Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review

Dementia ◽  
2022 ◽  
pp. 147130122110653
Author(s):  
Isaac A Adedeji ◽  
Adesola Ogunniyi ◽  
David C Henderson ◽  
Nadia A Sam-Agudu

Background The increasing awareness and diagnosis of dementia in Africa necessitate documentation of caregiving practices to understand local patterns and improve the quality of care. Caregiving in African communities is rooted in informal-communal social organization. This scoping review analyses caregiver characteristics and experiences, and practices of caregiving for persons living with dementia in Africa. Methods A total of 152 references were retrieved, with 64 references obtained from PubMed, 85 from AJOL, and three from Scopus. Based on the relevance of titles, 83 references were further retained from PubMed (64), AJOL (16), and Scopus (3). A rapid review of abstracts was done in Distiller SR, and finally, six relevant articles were content-analyzed using Atlas ti 8.4 qualitative analysis software. Results All six included studies were published between 2003 and 2018. Four themes were identified: article characteristics, caregiver characteristics, caregiver in context, and caregiver potentialities (challenges and opportunities). Studies reported findings from research conducted in four African countries: three from Nigeria, and one each from South Africa, Egypt, and Tanzania. Caregivers of persons living with dementia typically had eight years or less of formal education, were unpaid, and spent a daily average of 13 hours in caregiving. Cultural thresholds and individual caregiver differences underlie the interpretation of stressors across cultures. Caregivers lack the right training and information as well as support systems to improve their role performance and reduce accumulated stress. Conclusion In African countries, informational and educational platforms are essential for improved individual dementia caregiving, vis-à-vis strengthened roles of governments, and religious/traditional leaders and organizations.

Author(s):  
Ana Lourenço ◽  
Fernando Martins ◽  
Beatriz Pereira ◽  
Rui Mendes

The right to play is crucial for the overall development of children. Several studies highlight the need to have time and space to play, especially at school where children spend much of their time. Unfortunately, in formal education the obsession with academic achievements sidelines and ignores the importance of play. The neglection of play had already reached a critical stage before the pandemic, so data are needed to realize how the right to play in school is presently affected. This paper aims to understand children’s play experience in primary education during the pandemic. It investigates what activities children participated in and what materials were used, and provides insight into the social interactions between peers. Furthermore, children’s quality of life is explored. A group of 370 Portuguese children answered a questionnaire on play and social interactions, alongside with Peds 4.0TM on health-related quality of life (HRQOL). The results showed that recess still emerges as a significant element of children’s daily lives, but COVID-19 has brought limitations on play experiences and peer-interaction. It might also have impacted HRQOL, especially in emotional functioning. Since play, health and well-being are closely connected, play opportunities at school are crucial in helping children to thrive in the pandemic, and should be invested in.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Priscilla Y. A. Attafuah ◽  
Irma H. J. Everink ◽  
Ruud J. G. Halfens ◽  
Christa Lohrmann ◽  
Aaron Abuosi ◽  
...  

Abstract Background Over 60% of the population in sub-Saharan Africa, live in informal settlements (slums) with little or no resources. To be prepared to meet the needs of older people living in slums, it is necessary to know more about their quality of life (QoL). The objective of this review is to identify instruments, which can be used by researchers to assess the QoL of older adults living in African countries, especially those dwelling in slums. Methods A scoping review was performed using the databases Scopus, PubMed, and ISI Web of Science to retrieve studies published from January 2008 – September 2020. Studies were included if they reported generic QoL instruments, focused on adults with a mean age ≥ 50 and were conducted in African countries. Results In total, 18 studies were included using 7 unique instruments to measure QoL (EUROHIS-QOL-8, SWLS, WHOQOL-OLD, the WHOQOL-BREF, SF-36, SF-12 and RAND-38). All instruments could be interviewer-administered and had 5–36 items. However, little is known about their psychometric properties (validity and reliability), time-investment and cultural sensitivity of the domains included in the instruments. Conclusions Even though this review retrieved instruments used to assess QoL of older adults in African countries, there is a need for further research on adjustment and validation of currently existing QoL instruments. In addition, the development and validation of a new instrument which can be used in (illiterate) older populations, living in slums in Africa should be considered.


2016 ◽  
Vol 32 (32) ◽  
pp. 131-145
Author(s):  
Antonín Vaishar ◽  
Milada Šťastná

Abstract The paper analyses the problem of a rural region in the peripheral position. Bojkovice micro-region on the Czech (Moravian)-Slovak border has been chosen as a case study. Economic transformation of productive and non-productive branches, demographic development (depopulation and aging) and networking in the area were characterized by using statistical data and field research. Development, understood as improvement in quality of life and not in sense of quantitative growth, is highlighted with regard to the changing perception of the countryside. The question remains: how to use peripherality for prosperity? Peripheral countryside is known as “the right countryside” in comparison to suburbanized and globalized countryside in core regions. Based on the research, production embedded in local sources and traditions, ecological agriculture using the protection of landscape and soft tourism are proposed as solutions. Networking like the association of municipalities, LEADER local action group or White Carpathian Euroregion could be the instruments of micro-regional collaboration. The human and social factors seem to be more important than objective conditions. Long-term population stability is the main advantage. However, a lower level of formal education could be a problem. The character of social capital is considered as a decisive circumstance - whether it is passive social capital resistant to outer innovations or active social capital open for now ideas.


BMJ Open ◽  
2021 ◽  
Vol 11 (4) ◽  
pp. e045260
Author(s):  
Martin Marume ◽  
Susan De Klerk ◽  
Lee-Ann Jacobs-Nzuzi Khuabi

Quality of life is enhanced by engagement in meaningful activities and participation using our hands. In African countries, people rely predominantly on the use of their hands to engage in economic productive activities, including agricultural, fishing, mining and construction, that are largely performed by machines in high-income contexts. Anecdotal evidence suggests a high incidence of flexor tendon injuries that are managed using protocols that were adopted from high-income countries and implemented without considering contextual differences. African therapists use discretion in selecting protocols thereby presenting inconsistency in tendon management. This result in challenges with ascertaining the most effective protocol, factors that influence protocols and the extent of evidence about flexor tendon rehabilitation in Africa. Therefore, this scoping review aims to provide evidence currently available on the rehabilitation of flexor tendons in African countries. This will synthesise the advantages and disadvantages of the current protocols and make proposals that are contextually relevant and cost-effective for rehabilitation of tendon injuries.Methods and analysisThe research will follow the scoping review methodological framework developed by Arksey and O’Malley (2005). The search strategy was developed and will be used to retrieve articles from eight databases. Further literature will be searched in the bibliography of the identified eligible articles. Grey literature will be searched in scientifically reliable websites, organisations and other sources. Articles will be reviewed by two independent researchers and opinion will be sought from a third reviewer when disagreement prevails on the inclusion quality of an article. All relevant articles that meet the criteria will be analysed using Weft QDA.Ethics and disseminationThe scoping review paper will be discussed with local therapists. Thereafter, findings will be published in the year 2021 and sent to rehabilitation associations in respective African countries.


2019 ◽  
Vol 3 (2) ◽  
pp. 107
Author(s):  
Ade Millatussa'adiyyah ◽  
Susilawati Susilawati

This research is motivated by underage marriage problems because many children who carry out underage marriages and do not attach importance to education.This research method is descriptive with factual depiction, the data in the form of language and discourse expressions are appropriate and systematic, qualitative research is a research that is used to examine the condition of scientific objects, where the researcher is a key instrument.The results of this study indicate that there are impacts caused by underage marriage in Cireundeu Village, namely divorce and health problems, while the factors that influence the occurrence of underage marriage, namely economic factors, education, parents and promiscuity, as for efforts to reduce the marriage rate underage towards the right of formal education of children, namely by improving the quality of education that education has a good future for those who take it, then socializing the boundaries of the age of marriage, the impact and danger of underage marriage, and socializing compulsory 12-year education affect the level of graduate children so that children can continue their education to the upper secondary level and can improve their quality of life.


2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Letasha Kalideen ◽  
Pragashnie Govender ◽  
Jacqueline Marina van Wyk ◽  
Desmond Kuupiel

Abstract Background Ageing is a global and universal process that results in physiological, psychological and behavioural changes. Due to the changing needs of the individual and the circumstances of the family, long-term care of older persons in facilities has become essential. The standard and quality of health care for older persons in long-term care facilities is critical to maintain functional ability in keeping with international goals of healthy ageing. This study, therefore, will aim to systematically map literature and describe the evidence on standards and the quality of health care for older persons living in long-term care facilities (LTCFs). Methods A scoping review will be conducted using Arksey and O’Malley’s framework and recommendations set out by Levac and colleagues. PubMed, CINAHL, Health Sources, PsycInfo, Web of Science, Scopus, and Google Scholar will be searched for relevant published studies/sources of evidence up to the last search date. The search will be conducted using keywords, and Boolean terms, and Medical Subject Headings/Subject Headings. EndNote X9 will be used to compile all relevant sources of evidence. This study will include studies involving participants ≥ 65 years old, living in LTCFs for older persons. English language publications, with no time limitations, and primary studies, guidelines, and quality of care specific to LTCFs for older persons will be sourced. Two reviewers will independently screen all sources of evidence at the title, abstract, and full-text screening stages as well as perform the data charting. The Preferred Reporting Items for Systematic Review and Meta-Analysis flow diagram will be used to account for all relevant sources of evidence during the screening. Thematic content analysis will be used to describe the themes aligned with this study’s research question based on initial coding and categorisation and a summary of the findings reported narratively for each theme. Discussion We anticipate that this scoping review will highlight the standards of care and assessment tools available worldwide, in addition to gaps that exist in the evidence base for older persons in LTCFs. These may include an exposition of the standards and quality of care documented, monitoring and evaluation processes, instruments used for reviewing standards of care. This would contribute towards identifying the need for practical and universally acceptable tools for LTCFs for older persons.


2019 ◽  
Vol 27 (2) ◽  
pp. 173-187 ◽  
Author(s):  
Jennifer Mann ◽  
Sue Devine ◽  
Robyn McDermott

PurposeIntegrated care is gaining popularity in Australian public policy as an acceptable means to address the needs of the unwell aged. The purpose of this paper is to investigate contemporary models of integrated care for community dwelling older persons in Australia and discuss how public policy has been interpreted at the service delivery level to improve the quality of care for the older person.Design/methodology/approachA scoping review was conducted for peer-reviewed and grey literature on integrated care for the older person in Australia. Publications from 2007 to present that described community-based enablement models were included.FindingsCare co-ordination is popular in assisting the older person to bridge the gap between existing, disparate health and social care services. The role of primary care is respected but communication with the general practitioner and introduction of new roles into an existing system is challenging. Older persons value the role of the care co-ordinator and while robust model evaluation is rare, there is evidence of integrated care reducing emergency department presentations and stabilising quality of life of participants. Technology is an underutilised facilitator of integration in Australia. Innovative funding solutions and a long-term commitment to health system redesign is required for integrated care to extend beyond care co-ordination.Originality/valueThis scoping review summarises the contemporary evidence base for integrated care for the community dwelling older person in Australia and proposes the barriers and enablers for consideration of implementation of any such model within this health system.


BMJ Open ◽  
2021 ◽  
Vol 11 (8) ◽  
pp. e046294
Author(s):  
Pisirai Ndarukwa ◽  
Moses John Chimbari ◽  
Elopy Sibanda

IntroductionHealth systems in sub-Saharan African (SSA) countries are fragile and centralised. Consequently, majority of people have restricted access to healthcare services. Given the rise in the prevalence and burden of asthma in SSA, it is imperative to scrutinise the utilisation of healthcare services by people with asthma. We aim to understand, through this review, the extent of utilisation of healthcare services by asthma patients in SSA countries.Methods and analysisArksey and O’Malley’s scoping review methodology framework will be used to guide the conduct of this scoping review. We will conduct a search of the literature on the electronic databases: Medline, (using PubMed interface), EMBASE, EBSCOHOST, Web of Science and Google Scholar, grey literature sources and the reference lists of key studies to identify studies appropriate for inclusion. Two reviewers will independently screen all abstracts and full-text studies for inclusion. Registration of the proposed scoping review on the PROSPERO has indicated that no similar work has been or is being done elsewhere. We will review studies published on the subject from January 2009 to May 2020 in SSA.Ethics and disseminationThe proposed scoping review will contribute towards the knowledge base on utilisation of healthcare services particularly for people with asthma. This will provide a better understanding of the extent of utilisation of healthcare services by asthma patients and ultimately contribute to improvement of quality of care for people suffering from asthma. The results from the review will enlighten and guide healthcare practitioners and researchers on developing appropriate and feasible interventions to increase the utilisation of healthcare services by asthma patients in resource-constrained settings in SSA countries. Results of this scoping review will be disseminated through a peer-reviewed publication, conference presentations and a 1-day stakeholder meeting.PROSPERO registration numberCRD42020154127.


2019 ◽  
Author(s):  
PRISCILLA Yeye Adumoah ATTAFUAH ◽  
Irma HJ Everink ◽  
Ruud JG Halfens ◽  
Christa Lohrmann ◽  
Aaron Abuosi ◽  
...  

Abstract Background Over 60% of the population in sub-Saharan Africa lives in informal settlements (slums) with little or no resources. To be prepared to meet the needs of older people living in slums, it is necessary to know more about their quality of life (QoL). The objective of this review is to identify instruments, which can be used by researchers to assess the QoL of older adults living in African countries, especially those dwelling in slums.Methods A scoping review was performed using the databases Scopus, PubMed, and ISI Web of Science to retrieve studies published between January 2008 – February 2019. Studies were included if they reported generic QoL instruments, focused on adults with a mean age ≥50 and were conducted in African countries.Results In total, 22 studies were included using 14 unique instruments to measure QoL (WHOQOL, SWLS, WHOQOL-OLD, the WHOQOL-BREF, SF-36, SF-12, RAND 36, WHO-SAGE-INDEPTH, CASP-19, CASP-12, the EQ-5D+C, EQ-6D, CAF and the adapted AMS). Almost all instruments could be interviewer-administered and had the possibility for content modification to better suit the research setting. However, little is known about their psychometric properties (validity and reliability), time-investment and cultural sensitivity of the domains included in the instruments.Conclusions Even though this review retrieved instruments used to assess QoL of older adults in African countries, there is a need for further research on adjustment and validation of currently existing QoL instruments. In addition, the development and validation of a new instrument which can be used in (illiterate) older populations, living in slums in Africa should be considered.


Author(s):  
Luiza Cremonese ◽  
Stela Maris de Mello Padoin ◽  
Cristiane Cardoso de Paula

ABSTRACT Objective: To map how the communication of the HIV infection diagnosis occurs in pediatrics. Methods: Scoping review of the 64 original articles. We selected research papers in Portuguese, English, or Spanish, with the participants: child, adolescent, relative/family, and/or health professional from 2011-2020. We accessed the following sources: PubMed, CINAHL, Scopus, WoS, ASSIA, PsycINFO, ERIC, Sociological Abstracts, Edubase, LILACS, BDENF, and IndexPsi. Results: Regarding the population, it was evident to us that the relative must be the sender of the diagnosis with the professionals’ support; regarding the reasons for the communication, the child maturity, expressed by questions, the necessity of therapy adherence, abilities to communicate and the right of knowing the diagnosis must be considered. The communication channel is centered on materials that promote comprehension, quantity, and quality of information. That indicated an interactive process. Regarding the effects, they are beneficial when the communication occurs at a proper time. Conclusion: Communication must occur through a process that includes professional support to the relatives/family, development of abilities to evaluate the appropriate moment, and the monitoring effect.


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