Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe

2016 ◽  
Vol 17 (S1) ◽  
pp. 89-98 ◽  
Author(s):  
Márta Péntek ◽  
◽  
László Gulácsi ◽  
Valentin Brodszky ◽  
Petra Baji ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Economic ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe

2016 ◽  
Vol 17 (S1) ◽  
pp. 43-52 ◽  
Author(s):  
Karine Chevreul ◽  
◽  
Coralie Gandré ◽  
Karen Berg Brigham ◽  
Julio López-Bastida ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Fragile X Syndrome ◽  
Social Economic ◽  
Fragile X ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe

2016 ◽  
Vol 17 (S1) ◽  
pp. 99-108 ◽  
Author(s):  
Julio López-Bastida ◽  
◽  
Renata Linertová ◽  
Juan Oliva-Moreno ◽  
Manuel Posada-de-la-Paz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Economic ◽  
Prader Willi Syndrome ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

scholarly journals Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

2017 ◽  
Vol 12 (1) ◽  
Author(s):  
Julio López-Bastida ◽  
Luz María Peña-Longobardo ◽  
Isaac Aranda-Reneo ◽  
Eduardo Tizzano ◽  
Mark Sefton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Muscular Atrophy ◽  
Social Economic ◽  
Muscular Atrophy ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

Social economic costs and health-related quality of life in patients with degenerative cerebellar ataxia in Spain

2007 ◽  
Vol 23 (2) ◽  
pp. 212-217 ◽  
Author(s):  
Julio López-Bastida ◽  
Lilisbeth Perestelo-Pérez ◽  
Fernando Montón-álvarez ◽  
Pedro Serrano-Aguilar
Keyword(s):  
Quality Of Life ◽  
Cerebellar Ataxia ◽  
Social Economic ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe

2016 ◽  
Vol 17 (S1) ◽  
pp. 7-18 ◽  
Author(s):  
Karine Chevreul ◽  
◽  
Morgane Michel ◽  
Karen Berg Brigham ◽  
Julio López-Bastida ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Social Economic ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

scholarly journals Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe

2016 ◽  
Vol 17 (S1) ◽  
pp. 31-42 ◽  
Author(s):  
Aris Angelis ◽  
◽  
Panos Kanavos ◽  
Julio López-Bastida ◽  
Renata Linertová ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Epidermolysis Bullosa ◽  
Social Economic ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

scholarly journals Social/economic costs and health-related quality of life in patients with rare diseases in Europe

2016 ◽  
Vol 17 (S1) ◽  
pp. 1-5 ◽  
Author(s):  
Julio López-Bastida ◽  
Juan Oliva-Moreno ◽  
Renata Linertová ◽  
Pedro Serrano-Aguilar
Keyword(s):  
Quality Of Life ◽  
Rare Diseases ◽  
Social Economic ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related

Social economic costs and health-related quality of life in patients with amyotrophic lateral sclerosis in Spain

2009 ◽  
Vol 10 (4) ◽  
pp. 237-243 ◽  
Author(s):  
Julio López-Bastida ◽  
Lilisbeth Perestelo-Pérez ◽  
Fernando Montón-Álvarez ◽  
Pedro Serrano-Aguilar ◽  
Jose Luis Alfonso-Sanchez
Keyword(s):  
Quality Of Life ◽  
Amyotrophic Lateral Sclerosis ◽  
Social Economic ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related ◽  
Lateral Sclerosis

Social/economic costs and health-related quality of life in patients with scleroderma in Europe

2016 ◽  
Vol 17 (S1) ◽  
pp. 109-117 ◽  
Author(s):  
Julio López-Bastida ◽  
◽  
Renata Linertová ◽  
Juan Oliva-Moreno ◽  
Pedro Serrano-Aguilar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Economic ◽  
Health Related Quality ◽  
Economic Costs ◽  
Related Quality ◽  
Health Related
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