‘Still out there?’ Is the service user voice becoming lost as user involvement moves into the mental health research mainstream?

Author(s):  
Kati Turner ◽  
Steve Gillard
2020 ◽  
Vol 25 (3) ◽  
pp. 281-294
Author(s):  
Joanna Fox

Purpose User involvement in research is entering the mainstream of traditional mental health research. In practice, there are diverse ways in which the process of involvement is experienced by mental health service user researchers. This paper aims to explore two diverse experiences of involvement by the researcher. Design/methodology/approach Auto-ethnography is the research methodology used in this study; it combines a process of reflective writing and critical analysis which enables the author to explore experiences of being both a service user and academic researcher. Two accounts of the author’s involvement in mental health research are presented: one which builds on a consultation model and the other based on co-production principles. Findings Experiences of power-sharing and collaborative decision-making, alongside disempowerment, are discussed, leading to exploration of the theoretical and practical processes for promoting participation of users in research. Research limitations/implications The research is limited because it is undertaken by one individual in a local setting, and is therefore is not generalisable; however, it provides useful insights into the diverse processes of involvement that many service users experience. Practical implications Recommendations are presented to support the involvement of service users in research, with final remarks offered considering the possible future implementation of this still emerging tradition. Originality/value This paper reflects on the experiences of one service user academic involved in research and highlights diverse experiences of both empowering and disempowering involvement, providing recommendations for best practice.


2011 ◽  
Vol 17 (3) ◽  
pp. 201-205 ◽  
Author(s):  
Michel Syrett

SummaryThis article focuses on service user involvement in supporting and undertaking mental health research. It is written from the author's perspective as a service user with bipolar disorder who has built on previous experience as an academic researcher in business and management studies by active involvement in a number of mental health research projects in a service user capacity. The article highlights contrasting approaches taken by different projects in how they involve service users and provides learning points based on the author's and other service users' experiences.


2002 ◽  
Vol 11 (2) ◽  
pp. 117-119 ◽  
Author(s):  
Michael Townend ◽  
Tina Braithwaite

Author(s):  
Alison Faulkner ◽  
Sarah Carr ◽  
Dorothy Gould ◽  
Christine Khisa ◽  
Trish Hafford‐Letchfield ◽  
...  

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