Lifestyle Interventions through Participatory Research: A Mixed-Methods Systematic Review of Alcohol and Other Breast Cancer Behavioural Risk Factors

Breast cancer is one of the most frequently diagnosed cancers in women globally. Sex and advancing age represent the dominant risk factors, with strong evidence of alcohol as a modifiable risk factor. The carcinogenic nature of alcohol has been known for over twenty years; however, this has failed to translate into significant behavioural, practice, or policy change. As a result, women have not benefitted from this research and, by extension, have been exposed to unnecessary breast cancer risk. Participatory research presents a solution to research translation in public health through the collaboration of impacted populations with academics in research. This systematic review examines peer-reviewed research studies where participants were involved in the research process and the outcomes related to breast cancer prevention (either alcohol or broader lifestyle modification). Seven of the eight studies reported positive effects, and the collaboration between academic researchers and impacted populations may have supported positive outcomes. Women were receptive and responsive to participatory approaches, and their participation is important to address socially entrenched behaviours such as alcohol consumption. Participatory research presents opportunities for future interventions to improve (or address) modifiable risk factors for breast cancer.

Project Lotus: A really cool community-based initiative assisting women post-homelessness

In Canada, recent conservative estimates report upwards of 235,000 individuals are homeless on a given night. Of those experiencing precarious housing situations, women make up approximately 30% and are among the most vulnerable. Their residential insecurity has been further exacerbated with the community and social restrictions of the COVID-19 pandemic. Existing resources that assist women experiencing homelessness or housing insecurity are often stretched to the limit dealing with emergency and crisis housing situations, with less focus on post-shelter supports. To address this issue, a community-based participatory research initiative ‘Project Lotus - Hope Together’ was established in Montreal. Grounded in the World Health Organization’s Commission on Social Determinants of Health Framework, the overarching goal of this research is to co-design a housing supports program for women leaving a shelter stay. We created a cross-sectorial Advisory Committee consisting of women with lived experiences of homelessness, service providers, community leaders, and researchers. To date, we have conducted preliminary research (literature review, interviews with women with lived experience of homelessness, stakeholder meetings) to identity what has assisted women through this transition, and what barriers exist. We have also held virtual community consultation meetings to discuss preliminary findings of recommendations of key components that should be in a post-shelter support program for women. This presentation outlines the current findings and highlights the importance of participatory research. Implementing whole person care in the area of women’s homelessness requires both a comprehensive and individualized approach to help women and children secure home, health, and a sustainable future.

Trust and temporality in participatory research

This paper argues that trust cannot be taken for granted in long-term participatory research and promotes greater consideration to conceptualizing the trusting process as fluid and fragile. This awareness by researchers can reveal to them how the passing of time shapes and reshapes the nature of trusting relationships and their constant negotiation and re-negotiation. The paper draws together literature from different disciplines on the themes of trust, temporality and participatory research and outcomes from interviews and workshops undertaken for The Trust Map project to focus on two key moments that reveal the fragility of trust. These are the subtlety of disruption and trust on trial and trust at a distance. We discuss how trust was built over time through processes of interaction that were continually tested, incremental and participatory.

The Art of Letting Go: Transforming Participatory Research on Adaptation Practices Among Local Livestock-Keepers in East Africa in Times of Covid-19

Participatory action research (PAR) puts high emphasis on the interaction of the research participants. However, with the onset of the Covid-19 pandemic in March 2020, the central role of researchers in participatory research processes had to be questioned and revisited. New modes of PAR developed dynamically under the new circumstances created by the pandemic. To better understand how Covid-19 changed the way PAR is applied, we analyzed PAR in agricultural research for development carried out in the Programme for Climate-Smart Livestock Systems (PCSL) implemented by the International Livestock Research Institute (ILRI) at five research sites in Kenya, Ethiopia, and Uganda. To understand how PAR changed in a component on adaptation research in the PCSL we facilitated a reflexive study with livestock keepers and researchers to document their experiences of PAR during the Covid-19 pandemic. The analytical framework focuses on highlighting the core characteristics and the underlying ethos of PAR in this case study. The lessons learnt in the process of adapting to the realities of doing participatory research in the middle of a pandemic provide important arguments for further amalgamating the PAR philosophy into similar research designs. The onset of the pandemic has led to a further decentering of the researcher and a shift of the focus to the citizen, in this case the local livestock keeper, that made it more participatory in the stricter interpretation of the term. Letting go of controlling both narrative and implementation of the research will be challenging for researchers in many research fields. However, this shift of power and this transformation of research methodologies is inevitable if the research should remain relevant and impactful. Ultimately, the transition into a Covid-19 future and the awareness that similar pandemics could dramatically interrupt our lives any time, will have an impact on how projects are designed and funded. More long-term funding and less pressure on providing immediate results can build community trust and ownership for research at a local level.

Engaging Young People in a Research Project: The Complexities and Contributions of Using Participatory Methods With Young People in Schools

The lack of student engagement in school has been studied from different approaches. Participatory methods are gaining acceptance and relevance in educational research because they respond to both ethical and validity concerns. Since youth engagement in participatory research should not be taken for granted and may overlap with student engagement in studies in schools, this article presents an analysis of adult researchers’ and young co-researchers’ field notes, journals, and reports of an ethnographic participatory research about learning in and outside school carried out in five secondary schools with 35 students. Findings show the different perceptions of youth engagement between young and adult researchers and how youth agency and autonomy may be more easily desired than recognized by adult researchers.

Women and the Afghan peace and reintegration process

In 2010, as the Afghan government announced its intention to begin a formal peace process, there were numerous calls for women to have a seat at the table. Both mainstream and critical discourse on women and the peace process in Afghanistan, however, relied on the production of essentialized subjectivities which failed to recognize the political and social complexity of women's lives, diminished their intellectual contributions and silenced their voices. This article challenges the simultaneous hyper-visualization and silencing of Afghan women by both Afghan and international actors. Drawing on feminist and decolonial theory, we examine the ways in which the colonial mechanisms of intervention, patriarchy and the global hierarchies of knowledge production worked in tandem to marginalize Afghan women while upholding them as agents of peace. The article brings together findings from three participatory research projects on women and peace, which took place from 2010 to 2014 across eight provinces in Afghanistan. A prismed view of the participants' intersectional realities is constructed, which highlights diverse positionalities and articulations of peace, the social and political cleavages, and differentiated obstacles to their involvement in the peace and reintegration process. The concluding remarks emphasize the relevance of these findings for Afghanistan at the time of publication.

Whose Voice is It Really? Ethics of Photovoice With Children in Health Promotion

Photovoice, a way of conducting research through pictures, is considered a child-friendly method to engage children in participatory research and social change but this practice can raise ethical dilemmas. These dilemmas have rarely been discussed in the literature. The aim of this article is to provide insight into the ethical dilemmas we faced using photovoice with children. It is grounded in a 4-year participatory health research project in two primary schools where we used photovoice alongside other creative and arts-based methods. We reflect critically on pressing ethical tensions and how we dealt with these dilemmas. Our logbooks and reflexive conversations were used as data sources. The findings reveal that everyday ethical dilemmas occurred throughout the project. These were sometimes anticipated but were often unexpected. Questions that arose included: ‘Who controls the outcome?’; ‘Photos to assess needs or to give voice?’; ‘Giving voice or aesthetics?’; ‘Who decides who is visible?’ and ‘Disrespectful and stereotypical representations?’ We conclude that ethical dilemmas in using photovoice with children deserve more attention to sensitize researchers and help them live up to the ideals of voice and empowerment.