A Child's Last Hours'Multidisciplinary Training in End-of-Life Care in Children's Hospitals: Adolescent With Cystic Fibrosis

MedEdPORTAL ◽  
2016 ◽  
Vol 12 (1) ◽  
Author(s):  
Terry Murphy ◽  
D'Anna Saul ◽  
Elizabeth Hollenkamp ◽  
Matthew Niedner ◽  
James Azim ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Children's Hospitals ◽  
Children’S Hospitals

A Child's Last Hours—Multidisciplinary Training in End-of-Life Care for Professionals Working in Children's Hospitals: Newborn With Lethal Congenital Anomalies

MedEdPORTAL ◽  
2015 ◽  
Vol 11 (1) ◽  
Author(s):  
Patricia Keefer ◽  
Ken Pituch ◽  
Terry Murphy ◽  
James Azim ◽  
Cecilia Trudeau ◽  
...  
Keyword(s):  
End Of Life ◽  
Congenital Anomalies ◽  
End Of Life Care ◽  
Life Care ◽  
Children's Hospitals ◽  
Children’S Hospitals

Surgical Interventions During End-of-Life Hospitalizations in Children’s Hospitals

PEDIATRICS ◽  
2021 ◽  
Vol 148 (6) ◽  
Author(s):  
Michael D. Traynor ◽  
Ryan M. Antiel ◽  
Maraya N. Camazine ◽  
Thane A. Blinman ◽  
Michael L. Nance ◽  
...  
Keyword(s):  
End Of Life ◽  
Surgical Procedures ◽  
Asian American ◽  
Race And Ethnicity ◽  
End Of Life Care ◽  
Life Care ◽  
Children's Hospitals ◽  
Patient Age ◽  
Children’S Hospitals ◽  
Patient Âgé

OBJECTIVES To characterize patterns of surgery among pediatric patients during terminal hospitalizations in children’s hospitals. METHODS We reviewed patients ≤20 years of age who died among 4 424 886 hospitalizations from January 2013–December 2019 within 49 US children’s hospitals in the Pediatric Health Information System database. Surgical procedures, identified by International Classification of Diseases procedure codes, were classified by type and purpose. Descriptive statistics characterized procedures, and hypothesis testing determined if undergoing surgery varied by patient age, race and ethnicity, or the presence of chronic complex conditions (CCCs). RESULTS Among 33 693 terminal hospitalizations, the majority (n = 30 440, 90.3%) of children were admitted for nontraumatic causes. Of these children, 15 142 (49.7%) underwent surgery during the hospitalization, with the percentage declining over time (P < .001). When surgical procedures were classified according to likely purpose, the most common were to insert or address hardware or catheters (31%), explore or aid in diagnosis (14%), attempt to rescue patient from mortality (13%), or obtain a biopsy (13%). Specific CCC types were associated with undergoing surgery. Surgery during terminal hospitalization was less likely among Hispanic children (47.8%; P < .001), increasingly less likely as patient age increased, and more so for Black, Asian American, and Hispanic patients compared with white patients (P < .001). CONCLUSIONS Nearly half of children undergo surgery during their terminal hospitalization, and accordingly, pediatric surgical care is an important aspect of end-of-life care in hospital settings. Differences observed across race and ethnicity categories of patients may reflect different preferences for and access to nonhospital-based palliative, hospice, and end-of-life care.

scholarly journals A Child's Last Hours'Multidisciplinary Training in End-of-Life Care in Children's Hospitals: School-Aged Child With Terminal Cancer

MedEdPORTAL ◽  
2016 ◽  
Vol 12 (1) ◽  
Author(s):  
Adam Marks ◽  
Elizabeth Hollenkamp ◽  
Sandra Bradman ◽  
D'Anna Saul ◽  
Matthew Niedner ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Terminal Cancer ◽  
Life Care ◽  
Children's Hospitals ◽  
School Aged Child ◽  
Children’S Hospitals ◽  
Aged Child

End-of-Life Care in Cystic Fibrosis: Comparing Provider Practices Based on Lung Transplant Candidacy

2020 ◽  
Vol 23 (12) ◽  
pp. 1606-1612
Author(s):  
Allison V. Lange ◽  
Ali Rueschhoff ◽  
Stephanie Terauchi ◽  
Leah Cohen ◽  
Joan Reisch ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
End Of Life ◽  
End Of Life Care ◽  
Lung Transplant ◽  
Life Care ◽  
Provider Practices

End-of-Life Care in Cystic Fibrosis

PEDIATRICS ◽  
1997 ◽  
Vol 100 (2) ◽  
pp. 205-209 ◽  
Author(s):  
W. M. Robinson ◽  
S. Ravilly ◽  
C. Berde ◽  
M. E. Wohl
Keyword(s):  
Cystic Fibrosis ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

scholarly journals End of life care in cystic fibrosis – are we offering a good service?

2010 ◽  
Vol 9 ◽  
pp. S66
Author(s):  
R. Rashid ◽  
D. Honeybourne ◽  
E.F. Nash ◽  
J.L. Whitehouse
Keyword(s):  
Cystic Fibrosis ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Good Service

scholarly journals Effects of lung transplantation on inpatient end of life care in cystic fibrosis

2007 ◽  
Vol 6 (6) ◽  
pp. 396-402 ◽  
Author(s):  
Elisabeth P. Dellon ◽  
Margaret W. Leigh ◽  
James R. Yankaskas ◽  
Terry L. Noah
Keyword(s):  
Cystic Fibrosis ◽  
Lung Transplantation ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

scholarly journals End of life care for adult cystic fibrosis patients: Facilitating a good enough death

2005 ◽  
Vol 4 (4) ◽  
pp. 249-257 ◽  
Author(s):  
Elizabeth Chapman ◽  
Annette Landy ◽  
Angela Lyon ◽  
Charles Haworth ◽  
Diana Bilton
Keyword(s):  
Cystic Fibrosis ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care
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