Exploring resource use and associated costs in end-of-life care for older people with dementia in residential care homes

2013 ◽  
Vol 29 (7) ◽  
pp. 758-766 ◽  
Author(s):  
Sarah Amador ◽  
Claire Goodman ◽  
Derek King ◽  
Yi Ting Ng ◽  
Natasha Elmore ◽  
...  
2020 ◽  
Vol 21 (6) ◽  
pp. 858-863.e1 ◽  
Author(s):  
Ying Hsin Hsu ◽  
Ming Yueh Chou ◽  
Hsiu-Min Chen ◽  
Wei-Cheng Chang ◽  
Che Sheng Chu ◽  
...  

2012 ◽  
Vol 24 (10) ◽  
pp. 1581-1591 ◽  
Author(s):  
Koen Meeussen ◽  
Lieve Van den Block ◽  
Michael Echteld ◽  
Nicole Boffin ◽  
Johan Bilsen ◽  
...  

ABSTRACTBackground: Large-scale nationwide data describing the end-of-life characteristics of older people with dementia are lacking. This paper describes the dying process and end-of-life care provided to elderly people with mild or severe dementia in Belgium. It compares with elderly people dying without dementia.Methods: A nationwide retrospective mortality study was conducted, via representative network of general practitioners (GPs) in 2008 in Belgium, with weekly registration of all deaths (aged ≥ 65) using a standardized form. GPs reported on diagnosis and severity of dementia, aspects of end-of-life care and communication, and on the last week of life in terms of symptoms that caused distress as judged by the GP, and the patients’ physical and cognitive abilities.Results: Thirty-one percent of our sample (1,108 deaths) had dementia (43% mildly, 57% severely). Of those, 26% died suddenly, 59% in care home, and 74% received palliative treatment, versus 37%, 19%, and 55% in people without dementia. GP–patient conversations were less frequent among those with (45%) than those without (73%) dementia, and 11% of both groups had a proxy decision-maker. During the last week of life, physical and psychological distress was common in both groups. Of older people with dementia, 83% were incapable of decision-making and 83% were bedridden; both significantly higher percentages than found in the group without dementia (24% and 52%).Conclusions: Several areas of end-of-life care provision could be improved. Early communication and exploration of wishes and appointment of proxy decision-makers are important components of an early palliative care approach which appears to be initiated too infrequently.


2017 ◽  
Vol 32 (1) ◽  
pp. 299-308 ◽  
Author(s):  
Sofia Andersson ◽  
Olav Lindqvist ◽  
Carl-Johan Fürst ◽  
Margareta Brännström

2010 ◽  
Vol 19 (3-4) ◽  
pp. 389-397 ◽  
Author(s):  
Sarah Yeun-Sim Jeong ◽  
Isabel Higgins ◽  
Margaret McMillan

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