scholarly journals The Development and Validation of a Shorter Version of the Canadian Health Care Evaluation Project Questionnaire (CANHELP Lite): A Novel Tool to Measure Patient and Family Satisfaction With End-of-Life Care

2013 ◽  
Vol 46 (2) ◽  
pp. 289-297 ◽  
Author(s):  
Daren K. Heyland ◽  
Xuran Jiang ◽  
Andrew G. Day ◽  
S. Robin Cohen
2010 ◽  
Author(s):  
Daren K. Heyland ◽  
Deborah J. Cook ◽  
Graeme M. Rocker ◽  
Peter M. Dodek ◽  
Demetrios J. Kutsogiannis ◽  
...  

2014 ◽  
Vol 4 (Suppl 1) ◽  
pp. A83.3-A84 ◽  
Author(s):  
Arunangshu Ghoshal ◽  
Manjiri Dighe ◽  
Jayita Deodhar ◽  
Sunil Dhiliwal ◽  
Anuja Damani ◽  
...  

Author(s):  
Christina Marie Lamb

Abstract Canadians are looking to expand their Medical Assistance in Dying (MAID) program to include mature minors. Yet, little evidence exists to support this expansion. The Council of Canadian Academies released a report in December 2018 indicating that little is known about how mature minors make meaning of end of life care. To address this knowledge gap, research is needed to understand how mature minors make meaning of the dying process in the first place. Since social perceptions drive Canadian health care, practice, and end of life mentalities, the question that needs to be asked is: What is the Canadian perception of a good death for mature minors? To answer this question it is first necessary to examine the meaning that death and dying hold for mature minors, as voiced by mature minors themselves.


2008 ◽  
Vol 42 (5) ◽  
pp. 42
Author(s):  
BRYAN R. FINE

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Juanjuan Zhao ◽  
Liming You ◽  
Hongmei Tao ◽  
Frances Kam Yuet Wong

Abstract Background Assessing the quality of structure and process of end-of-life care can help improve outcomes. There was currently no valid tool for this purpose in Mainland China. The aim of this study is to validate the Chinese version of the Care Evaluation Scale (CES). Methods From January to December 2017, a cross-sectional online survey was conducted among bereaved family members of cancer patients from 10 medical institutes. The reliability of the CES was assessed with Cronbach’s α, and structural validity was evaluated by confirmatory factor analysis. Concurrent validity was tested by examining the correlation between the CES total score and overall satisfaction with end-of-life care, quality of dying and death, and quality of life. Results A total of 305 valid responses were analyzed. The average CES score was 70.7 ± 16.4, and the Cronbach’s α of the CES was 0.967 (range: 0.802–0.927 for the 10 domains). The fit indices for the 10-factor model of CES were good(root-mean-square error of approximation, 0.047; comparative fit index, 0.952; Tucker–Lewis index, 0.946; standardized root mean square residual, 0.053). The CES total score was highly correlated with overall satisfaction with medical care (r = 0.775, P < 0.01), and moderately correlated with patients’ quality of life (r = 0.579, P < 0.01) and quality of dying and death (r = 0.570, P < 0.01). In addition, few associations between CES total score and demographic characteristics, except for the family members’ age. Conclusions The Chinese version of the CES is a reliable and valid tool to evaluate the quality of structure and process of end-of-life care for patients with cancer from the perspective of bereaved family in Mainland China.


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