Validation of the Chinese Version of the Quality of Dying and Death Questionnaire for Family Members of ICU Patients

2021 ◽  
Author(s):  
Xing-ping Han ◽  
Xu Mei ◽  
Jing Zhang ◽  
Ting-ting Zhang ◽  
Ai-ni Yin ◽  
...  
Keyword(s):  
Family Members ◽  
Chinese Version ◽  
Icu Patients ◽  
Quality Of Dying

scholarly journals Validation of the Chinese version of the Care Evaluation Scale for measuring the quality of structure and process of end-of-life care from the perspective of bereaved family

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Juanjuan Zhao ◽  
Liming You ◽  
Hongmei Tao ◽  
Frances Kam Yuet Wong
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Mainland China ◽  
Chinese Version ◽  
Life Care ◽  
Quality Of Dying ◽  
Bereaved Family ◽  
Quality Of Structure ◽  
Care Evaluation

Abstract Background Assessing the quality of structure and process of end-of-life care can help improve outcomes. There was currently no valid tool for this purpose in Mainland China. The aim of this study is to validate the Chinese version of the Care Evaluation Scale (CES). Methods From January to December 2017, a cross-sectional online survey was conducted among bereaved family members of cancer patients from 10 medical institutes. The reliability of the CES was assessed with Cronbach’s α, and structural validity was evaluated by confirmatory factor analysis. Concurrent validity was tested by examining the correlation between the CES total score and overall satisfaction with end-of-life care, quality of dying and death, and quality of life. Results A total of 305 valid responses were analyzed. The average CES score was 70.7 ± 16.4, and the Cronbach’s α of the CES was 0.967 (range: 0.802–0.927 for the 10 domains). The fit indices for the 10-factor model of CES were good(root-mean-square error of approximation, 0.047; comparative fit index, 0.952; Tucker–Lewis index, 0.946; standardized root mean square residual, 0.053). The CES total score was highly correlated with overall satisfaction with medical care (r = 0.775, P < 0.01), and moderately correlated with patients’ quality of life (r = 0.579, P < 0.01) and quality of dying and death (r = 0.570, P < 0.01). In addition, few associations between CES total score and demographic characteristics, except for the family members’ age. Conclusions The Chinese version of the CES is a reliable and valid tool to evaluate the quality of structure and process of end-of-life care for patients with cancer from the perspective of bereaved family in Mainland China.

scholarly journals Agreement among family members in their assessment of the Quality of Dying and Death

2004 ◽  
Vol 28 (4) ◽  
pp. 306-315 ◽  
Author(s):  
Richard Mularski ◽  
J. Randall Curtis ◽  
Molly Osborne ◽  
Ruth A. Engelberg ◽  
Linda Ganzini
Keyword(s):  
Family Members ◽  
Quality Of Dying

Perception by Family Members and ICU Staff of the Quality of Dying and Death in the ICU

CHEST Journal ◽  
2013 ◽  
Vol 143 (2) ◽  
pp. 357-363 ◽  
Author(s):  
Rik T. Gerritsen ◽  
José G.M. Hofhuis ◽  
Matty Koopmans ◽  
Meta van der Woude ◽  
Laura Bormans ◽  
...  
Keyword(s):  
Family Members ◽  
Quality Of Dying

scholarly journals Comparing Quality of Dying and Death Perceived by Family Members and Nurses for Patients Dying in US and Dutch ICUs

CHEST Journal ◽  
2017 ◽  
Vol 151 (2) ◽  
pp. 298-307 ◽  
Author(s):  
Rik T. Gerritsen ◽  
Matty Koopmans ◽  
José G.M. Hofhuis ◽  
J. Randall Curtis ◽  
Hanne Irene Jensen ◽  
...  
Keyword(s):  
Family Members ◽  
Quality Of Dying

scholarly journals Family perceptions of quality of end of life in LGBTQ+ individuals: a comparative study

2021 ◽  
Vol 15 ◽  
pp. 263235242199715
Author(s):  
S. Alexander Kemery
Keyword(s):  
End Of Life ◽  
Hospice Care ◽  
Family Members ◽  
Queer Health ◽  
Quality Of Dying ◽  
Significant Difference ◽  
The Difference ◽  
Family Perceptions ◽  
Published Research

Background: Members of the lesbian, gay, bisexual, transgender, and queer community have encountered discrimination and stigmatization related to sexual orientation and/or gender identity both within healthcare establishments and in the larger community. Despite the literature describing inequities in healthcare, very little published research exists on the experiences of lesbian, gay, bisexual, transgender, and queer patients and family members in hospice care. Methods: A quantitative comparative descriptive design explored the difference in end-of-life experiences between a lesbian, gay, bisexual, transgender, and queer and non-lesbian, gay, bisexual, transgender, and queer cohort. One hundred and twenty-two family members of individuals who have died while under hospice care in the past 5 years completed the Quality of Dying and Death Version 3.2a Family Member/Friend After-Death Self-Administered Questionnaire. Results: Comparison of the experiences of the lesbian, gay, bisexual, transgender, and queer cohort ( n = 56) and non-LGBTQ cohort ( n = 66) yielded varying results, with the LGBTQ cohort experiencing lower quality end of life in some Quality of Dying and Death measures and no statistically significant difference from the non-LGBTQ cohort in others. Discussion: The findings from this study in combination with previously published works on lesbian, gay, bisexual, transgender, and queer health support the position that hospice providers must take concrete steps to ensure that professional caregivers and office staff are qualified to meet the needs of this marginalized population.

scholarly journals Validation of the Chinese Version of the Care Evaluation Scale for Measuring the Quality of Structure and Process of End-Of-Life Care From the Perspective of Bereaved Family

2020 ◽  
Author(s):  
Juanjuan Zhao ◽  
Liming You ◽  
Hongmei Tao ◽  
Frances Kam Yuet Wong
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Mainland China ◽  
Chinese Version ◽  
Life Care ◽  
Quality Of Dying ◽  
Bereaved Family ◽  
Quality Of Structure ◽  
Care Evaluation

Abstract Background: Assessing the quality of structure and process of end-of-life care can help improve outcomes. There was currently no valid tool for this purpose in mainland China. The aim of this study is to validate the Chinese version of the Care Evaluation Scale (CES).Methods: From January to December 2017, a cross-sectional online survey was conducted among bereaved family members of cancer patients from 10 medical institutes. The reliability of the CES was assessed with Cronbach’s α, and structural validity was evaluated by confirmatory factor analysis. Concurrent validity was tested by examining the correlation between the CES total score and overall satisfaction with end-of-life care, quality of dying and death, and quality of life.Results: A total of 305 valid responses were analyzed. The average CES score was 70.67±16.42, and the Cronbach’s α of the CES was 0.967 (range: 0.802–0.927 for the 10 domains). The fit indices for the 10-factor model of CES were good (root-mean-square error of approximation, 0.047; comparative fit index, 0.952; Tucker–Lewis index, 0.946; standardized root mean square residual, 0.053). The CES total score was highly correlated with overall satisfaction with medical care (r=0.775, P<0.01), and moderately correlated with patients’ quality of life (r=0.579, P<0.01) and quality of dying and death (r=0.570, P<0.01). In addition, few associations between CES total score and demographic characteristics, except for the family members’ age.Conclusions: The Chinese version of the CES is a reliable and valid tool to evaluate the quality of structure and process of end-of-life care for patients with cancer from the perspective of bereaved family in mainland China.

Revision and Validation of the Chinese Version of the McGill Quality of Life Questionnaire for ICU End-of-Life Patients

2021 ◽  
pp. 082585972110670
Author(s):  
Ting-ting Zhang ◽  
Shi-fang Mao ◽  
Yi Zeng ◽  
Xu Mei ◽  
Fang Qiu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Content Validity ◽  
Reliability And Validity ◽  
Chinese Version ◽  
Life Questionnaire ◽  
Validity Index ◽  
Icu Patients ◽  
Quality Of Life Questionnaire

Background Hospice care for end-of-life patients in the ICU should focus on quality of life. Currently, there are no specific quality-of-life measures for ICU end-of-life patients in China. Objective The aim of this study was to revise and culturally adapt the Taiwanese version of the McGill Quality of Life Questionnaire (MQOL-Taiwan) and to test its reliability and validity to provide an effective instrument for assessing the quality of life of ICU patients at the end of life. Methods The revision and cultural adaptation of the MQOL-Taiwan were performed to develop a Chinese version of the McGill Quality of Life Questionnaire for ICU end-of-life patients (MQOL-ICU). A total of 156 ICU doctors, 286 ICU nurses and 120 ICU family members of end-of-life patients were surveyed with the revised scale to evaluate the quality of life of ICU patients at the end of life. The content validity, construct validity, and internal consistency of the scale were measured after the revision. Results The Chinese version of the MQOL-ICU scale was formed based on the MQOL-Taiwan scale, which includes 8 items. For the Chinese version of the MQOL-ICU, the item-content validity index (I-CVI) ranged from 0.789 to 0.905, and the average scale-level content validity index (S-CVI/Ave) was 0.845. After exploratory factor analysis, the Kaiser-Meyer-Olkin (KMO) value was 0.700, and 3 dominant factors were extracted: physical and psychological symptoms, existential well-being, and support. In addition, 70.385% of the total variance was explained. The internal consistency (Cronbach's α) coefficient of the whole MQOL-ICU was 0.804, and the coefficients for the 3 domains ranged from 0.779 to 0.833. Conclusion The Chinese version of the MQOL-ICU showed good reliability and validity, and it can be used to assess the quality of life of ICU patients at the end of life.

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