scholarly journals PMS76 PATIENT REPORTED QUALITY-OF-LIFE ISSUES IN MYOTONIC DYSTROPHY TYPE-1 (DMI): A FIRST STEP IN THE DEVELOPMENT OF A DISEASE-SPECIFIC INSTRUMENT

2009 ◽  
Vol 12 (7) ◽  
pp. A447
Author(s):  
C Heatwole ◽  
N Chin ◽  
J Hilbert ◽  
R Holloway ◽  
N Johnson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Myotonic Dystrophy ◽  
Myotonic Dystrophy Type 1 ◽  
Myotonic Dystrophy Type ◽  
Specific Instrument ◽  
Patient Reported ◽  
Life Issues ◽  
Disease Specific

Clinical, Psychosocial, and Central Correlates of Quality of Life in Myotonic Dystrophy Type 1 Patients

2013 ◽  
Vol 70 (5-6) ◽  
pp. 308-315 ◽  
Author(s):  
Luc Laberge ◽  
Jean Mathieu ◽  
Julie Auclair ◽  
Éric Gagnon ◽  
Luc Noreau ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Myotonic Dystrophy ◽  
Myotonic Dystrophy Type 1 ◽  
Myotonic Dystrophy Type

scholarly journals Health-related quality of life and its correlates in Japanese patients with myotonic dystrophy type 1

2019 ◽  
Vol Volume 15 ◽  
pp. 219-226 ◽  
Author(s):  
Makiko Endo ◽  
Kaori Odaira ◽  
Ryohei Ono ◽  
Go Kurauchi ◽  
Atsushi Koseki ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Myotonic Dystrophy ◽  
Japanese Patients ◽  
Myotonic Dystrophy Type 1 ◽  
Myotonic Dystrophy Type ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Non-invasive mechanical ventilation in myotonic dystrophy type 1? Hypoventilation versus quality of life perspective

2018 ◽  
Vol 28 (2) ◽  
pp. 194 ◽  
Author(s):  
Ghilas Boussaid ◽  
Frédéric Lofaso ◽  
David Orlikowski ◽  
Dante Santos Brasil ◽  
Stéphane Bahrami ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mechanical Ventilation ◽  
Myotonic Dystrophy ◽  
Invasive Mechanical Ventilation ◽  
Myotonic Dystrophy Type 1 ◽  
Myotonic Dystrophy Type ◽  
Non Invasive

Prospective measurement of quality of life in myotonic dystrophy type 1

2017 ◽  
Vol 136 (6) ◽  
pp. 694-697 ◽  
Author(s):  
S. Peric ◽  
C. Heatwole ◽  
E. Durovic ◽  
A. Kacar ◽  
A. Nikolic ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Myotonic Dystrophy ◽  
Myotonic Dystrophy Type 1 ◽  
Myotonic Dystrophy Type
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