Head nodding syndrome—an onchocerciasis-related epilepsy syndrome?

2008 ◽  
Vol 4 (9) ◽  
pp. 468-469
2018 ◽  
Vol 99 (5) ◽  
pp. 1211-1218 ◽  
Author(s):  
Christoph Kaiser ◽  
Ephraim Tukesiga ◽  
Walter Kipp ◽  
Tom Rubaale ◽  
George Asaba

Epilepsia ◽  
2008 ◽  
Vol 49 (12) ◽  
pp. 2008-2015 ◽  
Author(s):  
Andrea S. Winkler ◽  
Katrin Friedrich ◽  
Rebekka König ◽  
Michael Meindl ◽  
Raimund Helbok ◽  
...  

Afrika Focus ◽  
2020 ◽  
Vol 33 (1) ◽  
Author(s):  
Karin Van Bemmel

This paper presents an ethnographic study of conceptualizations of nodding syndrome (NS) in Uganda. NS is a poorly understood condition characterized by repetitive nodding of the head, mental retardation and stunted growth, which affects thousands of children in northern Uganda, South Sudan and Tanzania. Although extensive research for causative agents has been conducted, no convincing single cause has been reported. This study establishes an understanding of different representations of NS and argues that the episodes of head nodding are related to the socio-political body in which they are manifested. Three interwoven approaches towards NS take main stage whereby the syndrome is presented as a biomedical, spiritual and/or political problem. The conceptualizations are linked to different notions of healing and affected families combine various forms of therapy. Through the examination of different narratives, this study disrupts the idea of a singular perspective on illness and pleads for a focus on motion and plurality. KEY WORDS: NODDING SYNDROME, UGANDA, HEALTH, CONCEPTUALIZATION, ANTHROPOLOGY


Epilepsia ◽  
2009 ◽  
Vol 50 (10) ◽  
pp. 2325-2326 ◽  
Author(s):  
Christoph Kaiser ◽  
Sébastien Pion ◽  
Michel Boussinesq

Afrika Focus ◽  
2020 ◽  
Vol 33 (1) ◽  
pp. 143-152
Author(s):  
Karin van Bemmel

This paper presents an ethnographic study of conceptualizations of nodding syndrome (NS) in Uganda. NS is a poorly understood condition characterized by repetitive nodding of the head, mental retardation and stunted growth, which affects thousands of children in northern Uganda, South Sudan and Tanzania. Although extensive research for causative agents has been conducted, no convincing single cause has been reported. This study establishes an understanding of different representations of NS and argues that the episodes of head nodding are related to the socio-political body in which they are manifested. Three interwoven approaches towards NS take main stage whereby the syndrome is presented as a biomedical, spiritual and/or political problem. The conceptualizations are linked to different notions of healing and affected families combine various forms of therapy. Through the examination of different narratives, this study disrupts the idea of a singular perspective on illness and pleads for a focus on motion and plurality.


2012 ◽  
Vol 43 (02) ◽  
Author(s):  
M Häusler ◽  
M Schoberer ◽  
A van Baalen ◽  
J Weis ◽  
T Orlikowsky ◽  
...  
Keyword(s):  

2016 ◽  
Vol 80 (6) ◽  
pp. 939-945 ◽  
Author(s):  
Daniel L. Kenney-Jung ◽  
Annamaria Vezzani ◽  
Robert J. Kahoud ◽  
Reghann G. LaFrance-Corey ◽  
Mai-Lan Ho ◽  
...  
Keyword(s):  

2021 ◽  
pp. 153575972199832
Author(s):  
Karnig Kazazian ◽  
Marissa Kellogg ◽  
Nora Wong ◽  
Krista Eschbach ◽  
Raquel Farias Moeller ◽  
...  

New-onset refractory status epilepticus (NORSE) is a rare clinical presentation of refractory status epilepticus (RSE) that occurs in people without active epilepsy or preexisting neurologic disorder. Febrile infection-related epilepsy syndrome (FIRES) is a subcategory of NORSE. New-onset refractory status epilepticus/FIRES are becoming increasingly recognized; however, information pertaining to disease course, clinical outcomes, and survivorship remains limited, and mortality and morbidity are variable, but often high. The objective of the NORSE/FIRES Family Registry is to (1) provide an easily accessible and internationally available multilingual registry into which survivors or NORSE/FIRES surrogates or family members of people affected by NORSE/FIRES or their physicians can enter data in a systematic and rigorous research study from anywhere in the world where internet is available; and (2) to examine past medical history, outcomes, and quality of life for people affected by NORSE/FIRES.


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